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Tocilizumab
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RISKS OF STEROID MEDICATION AND CORONAVIRUS
If you have to self-isolate and if you are on immunosuppressive medication besides steroids (methotrexate, leflunomide, azathioprine,
tocilizumab
), you must stop those (but not the steroids) when you develop those symptoms and urgently inform your doctor. 3.
If you have to self-isolate and if you are on immunosuppressive medication besides steroids (methotrexate, leflunomide, azathioprine,
tocilizumab
), you must stop those (but not the steroids) when you develop those symptoms and urgently inform your doctor. 3.
Hidden
in
PMRGCAuk
4 years ago
An unwanted Christmas present!
After 18 months on
Tocilizumab
with never a sniffle it had to come to ruin my Christmas! Crawled round to very sympathetic GP and crawled even more slowly to pharmacy for antibiotics. Think I will come to a completer standstill in M and S but hey a girls got to do what a girl has to do!
After 18 months on
Tocilizumab
with never a sniffle it had to come to ruin my Christmas! Crawled round to very sympathetic GP and crawled even more slowly to pharmacy for antibiotics. Think I will come to a completer standstill in M and S but hey a girls got to do what a girl has to do!
Pat9442
in
NRAS
4 years ago
Steroids
Come today I’m in so much pain so I wanted to know how long can you keep taking steroids until the
Tocilizumab
start to kick in.
Come today I’m in so much pain so I wanted to know how long can you keep taking steroids until the
Tocilizumab
start to kick in.
Crystal197
in
NRAS
4 years ago
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Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)
wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with
tocilizumab
. The more tracking/monitoring, the more data... the more data, the more answers!
wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with
tocilizumab
. The more tracking/monitoring, the more data... the more data, the more answers!
Hidden
in
PMRGCAuk
4 years ago
What We Did Right: Israeli Doctors Explain How They Beat the Coronavirus
To treat the inflammatory element of the illness, many doctors are using the drug Actemra (
tocilizumab
). “And in extreme cases steroids are also given as a treatment, which is controversial,” Shapira says.
To treat the inflammatory element of the illness, many doctors are using the drug Actemra (
tocilizumab
). “And in extreme cases steroids are also given as a treatment, which is controversial,” Shapira says.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Tocilizumab concerns ..
Had a steroid jab yesterday and am on 12.5 Methx and starting
Tocilizumab
in a couple of weeks .. I’ve read good feedback and fingers crossed it works but my concern is weight gain as I’ve lost 2 stone this year and feel good for that at least .
Had a steroid jab yesterday and am on 12.5 Methx and starting
Tocilizumab
in a couple of weeks .. I’ve read good feedback and fingers crossed it works but my concern is weight gain as I’ve lost 2 stone this year and feel good for that at least .
claireyj
in
NRAS
5 years ago
Dental pain
LVV diagnosis June 19 , now on
tocilizumab
weekly, methotrexate weekly and pred down to 16 mg daily. Started recently with sensitive teeth, particularly to cold drink, food or even breathing in cold air .
LVV diagnosis June 19 , now on
tocilizumab
weekly, methotrexate weekly and pred down to 16 mg daily. Started recently with sensitive teeth, particularly to cold drink, food or even breathing in cold air .
Devoid
in
Vasculitis UK
5 years ago
Suffering from GCA or Prednisolone
Six months ago it was mentioned by the consultant I might be a candidate for
tocilizumab
although he wasn't that keen due to side effects. It was deferred for 6 months.
Six months ago it was mentioned by the consultant I might be a candidate for
tocilizumab
although he wasn't that keen due to side effects. It was deferred for 6 months.
Stkeyna
in
PMRGCAuk
4 years ago
Tocilizumab
I have just had my first
tocilizumab
pen injection. How long did it take to work. I’m in a lot of pain as Enbral stopped working after the switch they introduced. I have been off any sort of treatment since Aug and as result the inflammation has spread to my feet and knees. Thank you
I have just had my first
tocilizumab
pen injection. How long did it take to work. I’m in a lot of pain as Enbral stopped working after the switch they introduced. I have been off any sort of treatment since Aug and as result the inflammation has spread to my feet and knees. Thank you
Crystal197
in
NRAS
5 years ago
Side effects from biologics
I am on
Tocilizumab
. I have been experiencing the following symptoms for the last few months and I am trying to work out (if possible) what may be causing them. I have Rheumatoid Arthritis and have been taking my present medication for approx 1yr. I am 54 yrs female. The drug controls the RA well.
I am on
Tocilizumab
. I have been experiencing the following symptoms for the last few months and I am trying to work out (if possible) what may be causing them. I have Rheumatoid Arthritis and have been taking my present medication for approx 1yr. I am 54 yrs female. The drug controls the RA well.
Mouseling
in
NRAS
5 years ago
Vascular surgeon appointment
Have struggled with steroids, now on steroids, methotrexate and now 2nd week of
tocilizumab
Have so far been seen by rheumatology consultant
Have struggled with steroids, now on steroids, methotrexate and now 2nd week of
tocilizumab
Have so far been seen by rheumatology consultant
Devoid
in
Vasculitis UK
5 years ago
Tocilizumab or Baricitinib?
The two biologics are Baricitinib and
Tocilizumab
. Is there anyone who has had a similar experience and has responded well to Enbrel, had no reaction to Rituximab but success with
Tocilizumab
or Baricitinib? A long shot, but worth a try! Cheers, Elaine x
The two biologics are Baricitinib and
Tocilizumab
. Is there anyone who has had a similar experience and has responded well to Enbrel, had no reaction to Rituximab but success with
Tocilizumab
or Baricitinib? A long shot, but worth a try! Cheers, Elaine x
Squarefish1
in
NRAS
5 years ago
GCA NICE Recommendations UK Tocilizumab
https://www.nice.org.uk/guidance/ta518/chapter/1-Recommendations Paste and Go in your URL For Refractory GCA Patients, your country posted these recommendations for Actemra (
Tocilizumab
) for GCA. I am a refractory patient. Do not worry. I will not post again or look at comments.
https://www.nice.org.uk/guidance/ta518/chapter/1-Recommendations Paste and Go in your URL For Refractory GCA Patients, your country posted these recommendations for Actemra (
Tocilizumab
) for GCA. I am a refractory patient. Do not worry. I will not post again or look at comments.
Dream21
in
PMRGCAuk
5 years ago
Eye infections
I've been getting recurrent eye infections since starting
tocilizumab
. The ophthalmologist seems to think that it's more generally related to the RA but I wonder if it's the meds.
I've been getting recurrent eye infections since starting
tocilizumab
. The ophthalmologist seems to think that it's more generally related to the RA but I wonder if it's the meds.
attatel
in
NRAS
5 years ago
Advice please pmrpro
I'm starting
tocilizumab
beginning of November. Thank you
I'm starting
tocilizumab
beginning of November. Thank you
Pamela60
in
PMRGCAuk
5 years ago
Update on previous post but cannot find it 🙄
My consultant is going to start me on
tocilizumab
soon just waiting for appointment. Weird symptoms for a flare and she's still suspicious of tia but hey as she keeps telling me I'm a complex case 🙄.
My consultant is going to start me on
tocilizumab
soon just waiting for appointment. Weird symptoms for a flare and she's still suspicious of tia but hey as she keeps telling me I'm a complex case 🙄.
Pamela60
in
PMRGCAuk
5 years ago
Pip update and dry eyes, mouth😵
Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic
tocilizumab
. In recent weeks I have been getting a very dry mouth, dry throat, dry lips, sometimes sore in the corners of lips, sore in my mouth and tongue, and now hoarseness and stuffy nose.
Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic
tocilizumab
. In recent weeks I have been getting a very dry mouth, dry throat, dry lips, sometimes sore in the corners of lips, sore in my mouth and tongue, and now hoarseness and stuffy nose.
Mouseling
in
NRAS
5 years ago
Tocilizumab
Soon to start on
tocilizumab
, any experience good preferably or bad , would be appreciated
Soon to start on
tocilizumab
, any experience good preferably or bad , would be appreciated
Devoid
in
PMRGCAuk
5 years ago
Advice on RoActemra/tocilizumab infusion
I'm due to have my first
tocilizumab
infusion on Tuesday next week and I've got a few boring logistics questions that the hospital didn't really answer for me: 1. Is it true that I should be able to work or read while being infused or is this overly optimistic? 2. How long does it typically take?
I'm due to have my first
tocilizumab
infusion on Tuesday next week and I've got a few boring logistics questions that the hospital didn't really answer for me: 1. Is it true that I should be able to work or read while being infused or is this overly optimistic? 2. How long does it typically take?
12Chrissy34
in
NRAS
5 years ago
Tocilizumab and rash
For the last nine weeks I’ve been self injecting with
tocilizumab
.....and really pleased with the result. It’s taken time to settle in, but I’m a lot better than I was before I started.
For the last nine weeks I’ve been self injecting with
tocilizumab
.....and really pleased with the result. It’s taken time to settle in, but I’m a lot better than I was before I started.
BronteM
in
Vasculitis UK
5 years ago
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