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How long does this process take?
My 2nd post and still full of questions, would like to hear from everyone. Regarding my specific case: I was told I have to do 6 months of ADT and appx 28-30 rounds of EBRT. Of course, I still don't have my PSMA/PET scan results back yet, but I'm assuming the best case scenario. Still trying to make
My 2nd post and still full of questions, would like to hear from everyone. Regarding my specific case: I was told I have to do 6 months of ADT and appx 28-30 rounds of EBRT. Of course, I still don't have my PSMA/PET scan results back yet, but I'm assuming the best case scenario. Still trying to make
conchjoe
in
Advanced Prostate Cancer
10 months ago
TSH how long for suppressed TSH to return to normal after stopping T3?
I saw a ‘hormone specialist’ GP today. Again she tried to tell me I need to reduce my levothyroxine because of my suppressed TSH. Only saw her because she’s meant to be good with HRT, but she’s gone mad about my TSH. My FT4 is only 48-% through range, so if anything, I’d like to increase my levo!
I saw a ‘hormone specialist’ GP today. Again she tried to tell me I need to reduce my levothyroxine because of my suppressed TSH. Only saw her because she’s meant to be good with HRT, but she’s gone mad about my TSH. My FT4 is only 48-% through range, so if anything, I’d like to increase my levo!
CornishChick
in
Thyroid UK
11 months ago
Dipping my toe into the possibility of thyroid issues
I'm 55 and have been officially 'ill' since 1996 - I have an alphabet soup of acronymsCFS/ME, IBS, FM, hypermobility, absorption issues, vitamin deficiencies ( I supplement aggressively with B12 and D & I take methyl folate -I take magnesium, zinc, k2, potassium, rosehip, ubiquinol, floradix and a probiotic
I'm 55 and have been officially 'ill' since 1996 - I have an alphabet soup of acronymsCFS/ME, IBS, FM, hypermobility, absorption issues, vitamin deficiencies ( I supplement aggressively with B12 and D & I take methyl folate -I take magnesium, zinc, k2, potassium, rosehip, ubiquinol, floradix and a probiotic
KatyMac68
in
Thyroid UK
11 months ago
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Should I fight for Darolutamide ?
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
CarlosBrasil
in
Advanced Prostate Cancer
11 months ago
Anyone have a dramatic drop in WBC bordering on neutropenia from pelvic radiation (not chemo)?
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
StephH72
in
Advanced Prostate Cancer
9 months ago
Taurine and ADT weight gain
One thing that many PCa endurers see occurring despite their best efforts is weight gain while on ADT. Does the community have any info on whether taurine can help, in conjunction with lots of exercise? I found a couple articles that it might.
One thing that many PCa endurers see occurring despite their best efforts is weight gain while on ADT. Does the community have any info on whether taurine can help, in conjunction with lots of exercise? I found a couple articles that it might.
Derf4223
in
Advanced Prostate Cancer
11 months ago
How much exercise needed?
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
BobC1234
in
Advanced Prostate Cancer
11 months ago
Some hopeful test news:🙏🏻
My son had a PSA of 20 just 3 mo after RRP last October 24th. Prior to that we had no idea from his test results that the PC was outside of the prostate. It had gone to his pelvic lymph nodes plus he’s tertiary five. He’s been on generic Zytiga and prednisone and Lupron and finished six weeks of IMRT
My son had a PSA of 20 just 3 mo after RRP last October 24th. Prior to that we had no idea from his test results that the PC was outside of the prostate. It had gone to his pelvic lymph nodes plus he’s tertiary five. He’s been on generic Zytiga and prednisone and Lupron and finished six weeks of IMRT
Cactus297
in
Advanced Prostate Cancer
10 months ago
New to this: travel during ADT & post EBRT?
New to this group and the Dx took me by complete surprise. I'm 76 and in excellent health - or so I thought! - and now [i]this[/i] happens. PSA between 7 and 8 over the past year, wait and see. April PSA was 7.4 and DRE indicated a mass. MRI, biopsy followed, showing Gleason 4=3=7, Stage IIC. Did another
New to this group and the Dx took me by complete surprise. I'm 76 and in excellent health - or so I thought! - and now [i]this[/i] happens. PSA between 7 and 8 over the past year, wait and see. April PSA was 7.4 and DRE indicated a mass. MRI, biopsy followed, showing Gleason 4=3=7, Stage IIC. Did another
conchjoe
in
Advanced Prostate Cancer
11 months ago
Results advice pls....
Hi, I've just had results from medichecks and would like some advice pls on my levels, if any are sub-optimal and what they should be. Quick recap: I have Hashimoto’s (Dx 13yrs ago), am hypothyroid (Dx 2yrs ago, been on levothyroxine since), now take 100mcg levothyroxine 6 x/week and 75mcg 1x/week
Hi, I've just had results from medichecks and would like some advice pls on my levels, if any are sub-optimal and what they should be. Quick recap: I have Hashimoto’s (Dx 13yrs ago), am hypothyroid (Dx 2yrs ago, been on levothyroxine since), now take 100mcg levothyroxine 6 x/week and 75mcg 1x/week
bollin
in
Thyroid UK
11 months ago
Are You F...n' kidding me!
I just got turned down for the second time for disability. "though you may be sad and forgetful"... SAD ?, SAD! REALLY- THE HOSPITALIZATIONS AND MAXIMUM DOSES OF MULTIPLE ANTIDEPRESSANTS, 21 ROUNDS OF OLD SCHOOL ELECTRO SHOCK THERAPY AND SUICIDE ATTEMPTS = SAD! REALLY! I can't remember large parts of
I just got turned down for the second time for disability. "though you may be sad and forgetful"... SAD ?, SAD! REALLY- THE HOSPITALIZATIONS AND MAXIMUM DOSES OF MULTIPLE ANTIDEPRESSANTS, 21 ROUNDS OF OLD SCHOOL ELECTRO SHOCK THERAPY AND SUICIDE ATTEMPTS = SAD! REALLY! I can't remember large parts of
Raggedy-Ann
in
Major Depressive Disorder (MDD) Support
1 year ago
metallic taste in mouth during pelvic radiation
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
StephH72
in
Advanced Prostate Cancer
9 months ago
Second Gen ADT Drug Issues
Dont remember seeing this on here yet. I guess one weighs increased risk of dementia vs stopping PC. Wouldnt want to be in that position. I remember back before my SRT went on Bicalutamide for one month before SRT started and then stopped when I read that is also linked to dementia. Crap. https://www.urologytimes.com
Dont remember seeing this on here yet. I guess one weighs increased risk of dementia vs stopping PC. Wouldnt want to be in that position. I remember back before my SRT went on Bicalutamide for one month before SRT started and then stopped when I read that is also linked to dementia. Crap. https://www.urologytimes.com
Teufelshunde
in
Advanced Prostate Cancer
11 months ago
Prostatectomy 2012, Oligometastatic 2021. Metabolic approach ,no ADT, no chemo. Interested in Lutetium 177, Dr. Kwon Mayo patient
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
roman44
in
Advanced Prostate Cancer
11 months ago
Brain metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
pca2004
in
Fight Prostate Cancer
9 months ago
PSA reading
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
Formosan
in
Advanced Prostate Cancer
11 months ago
18 vs 24 mos ADT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
Oceankayaker
in
Advanced Prostate Cancer
11 months ago
Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
11 months ago
HRT and cirrhosis
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
Turvy
in
British Liver Trust
11 months ago
Discrepancy in test results on same dose
I’ve recently had two blood tests - one at the GP surgery, and one at home fingerprick test with Monitor My Health. They’ve come back with quite different results (for FT4, at least) despite being on the same dose, tests done at the same time of day under the same conditions (24 hrs after levo, T3 dose
I’ve recently had two blood tests - one at the GP surgery, and one at home fingerprick test with Monitor My Health. They’ve come back with quite different results (for FT4, at least) despite being on the same dose, tests done at the same time of day under the same conditions (24 hrs after levo, T3 dose
Smorzando
in
Thyroid UK
11 months ago
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