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Update on Endo and WLAMS
Re the Endo who was determined to take away my T3 whilst all I wanted was a blood test to include T3. After an exchange of letters, he phoned this morning. He had back pedalled so far he was out of site. He agreed T3 was vital, he agreed testing the full TSH, T4 and T3 were needed to make a positive
Re the Endo who was determined to take away my T3 whilst all I wanted was a blood test to include T3. After an exchange of letters, he phoned this morning. He had back pedalled so far he was out of site. He agreed T3 was vital, he agreed testing the full TSH, T4 and T3 were needed to make a positive
serenfach
in
Thyroid UK
4 months ago
update Vanderbilt
just thought I would update and let y’all know that I have an appointment with a doctor at Vanderbilt university medical in Franklin Tennessee in April. Vanderbilt is a RLS quality care center and the closest to me. I actually had one of their Doctors call me and said that if there were any cancellations
just thought I would update and let y’all know that I have an appointment with a doctor at Vanderbilt university medical in Franklin Tennessee in April. Vanderbilt is a RLS quality care center and the closest to me. I actually had one of their Doctors call me and said that if there were any cancellations
6236
in
Restless Legs Syndrome
4 months ago
red light therapy
has anyone ever heard of or tried red light therapy? I’m sure that’s not the proper medical term but that’s what Dr Cooper called it. After the nerve induction test he said both my legs showed nerve weakness and the red light therapy is what he prescribed saying that it might possibly help the RLS.
has anyone ever heard of or tried red light therapy? I’m sure that’s not the proper medical term but that’s what Dr Cooper called it. After the nerve induction test he said both my legs showed nerve weakness and the red light therapy is what he prescribed saying that it might possibly help the RLS.
6236
in
Restless Legs Syndrome
4 months ago
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Secondary Cancers after CAR-T Cell Therapy
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
Jm954
Administrator
in
CLL Support
4 months ago
Red light/ near infrared light therapy
I have been treating my foot and legs with red light/ near infrared light with the Leanne Venier Red juvenator biophotonic led light matrix #3 formula lights over the past 3 months. My treatment was for multiple fractures of my foot bones and ligament and tendon sprains. Over the course of a month
I have been treating my foot and legs with red light/ near infrared light with the Leanne Venier Red juvenator biophotonic led light matrix #3 formula lights over the past 3 months. My treatment was for multiple fractures of my foot bones and ligament and tendon sprains. Over the course of a month
maxkat22
in
Restless Legs Syndrome
4 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
4 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
4 months ago
Should I reduce dose slightly? T3/T4 combination therapy
Hello lovely people. I recently had my bloods done and met with my endocrinologist, and wanted to ask your thoughts. I am currently on 87.5mcg Levothyroxine and 25mcg T3 daily. I feel better than I have in a long time, though possibly slightly anxious (difficult to tell though as I am prone to anxiety
Hello lovely people. I recently had my bloods done and met with my endocrinologist, and wanted to ask your thoughts. I am currently on 87.5mcg Levothyroxine and 25mcg T3 daily. I feel better than I have in a long time, though possibly slightly anxious (difficult to tell though as I am prone to anxiety
CatACat1
in
Thyroid UK
4 months ago
Support in your local community.
It may be that you are in the process of getting a diagnosis, you may be in treatment, you may be on a
targeted
lifetime
therapy
, you may be finished with chemo and radiation or surgery, you might be the caregiver, we can all benefit from talking to others that have "been there".
It may be that you are in the process of getting a diagnosis, you may be in treatment, you may be on a
targeted
lifetime
therapy
, you may be finished with chemo and radiation or surgery, you might be the caregiver, we can all benefit from talking to others that have "been there".
Denzie
Volunteer
in
Lung Cancer Support
2 months ago
help 4 yr old
Hi, My daughter has expressive speech deficit and severe ADHD - she goes to speech therapy 1-2 sessions per week. I am having tough time getting her attention to teach her or practice with her - she would not even sit through the story -please any tips or suggestions that helped you and how long does
Hi, My daughter has expressive speech deficit and severe ADHD - she goes to speech therapy 1-2 sessions per week. I am having tough time getting her attention to teach her or practice with her - she would not even sit through the story -please any tips or suggestions that helped you and how long does
mvb29
in
CHADD's ADHD Parents Together
5 months ago
Radiation Sessions
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
AVOCADOtastes
in
SHARE Breast Cancer Support
5 months ago
Research paper about T3/T4combination treatment. What happened there?
I became aware of this through "Endocrinology Advisor": https://pubmed.ncbi.nlm.nih.gov/38124252/ The link to the paper was not given. I found it myself. "Conclusions: Six months of combination therapy with twice-daily LT3 dose adapted according to TSH-level do not significantly change peripheral tissue
I became aware of this through "Endocrinology Advisor": https://pubmed.ncbi.nlm.nih.gov/38124252/ The link to the paper was not given. I found it myself. "Conclusions: Six months of combination therapy with twice-daily LT3 dose adapted according to TSH-level do not significantly change peripheral tissue
buddy99
in
Thyroid UK
5 months ago
Thyroid Education Day, Birmingham (Edgbaston), January 26th
https://www.thyroideducationday.com This is the first event of this kind. Is someone here from Thyroid U.K. or anyone else who is a member of this group attending? Seems vital a) to have someone to put our case there and b) to have a record of discussions and developments, for current and future
https://www.thyroideducationday.com This is the first event of this kind. Is someone here from Thyroid U.K. or anyone else who is a member of this group attending? Seems vital a) to have someone to put our case there and b) to have a record of discussions and developments, for current and future
HowNowWhatNow
in
Thyroid UK
5 months ago
newly diagnosed
my friend is newly diagnosed with CLL. It’s not at the stage of needing medical intervention. She wants to be proactive. Does anyone have experience of natural health treatments that work? Such as oxygen therapy or high levels of vitamin c? I would be very interested to hear of positive outcomes.
my friend is newly diagnosed with CLL. It’s not at the stage of needing medical intervention. She wants to be proactive. Does anyone have experience of natural health treatments that work? Such as oxygen therapy or high levels of vitamin c? I would be very interested to hear of positive outcomes.
Oxygenlover
in
CLL Support
5 months ago
Venetoclax
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
JoeMcDote
in
CLL Support
5 months ago
Neurological Disorders: How Regenerative Medicines Help in Treating Nervous System Diseases
In this insightful discussion, the revolutionary field of regenerative medicine and its profound impact on treating neurological disorders are being discussed. Discover cutting-edge techniques such as stem cell therapy, gene therapy, and surgical innovations that are reshaping the landscape of neurology
In this insightful discussion, the revolutionary field of regenerative medicine and its profound impact on treating neurological disorders are being discussed. Discover cutting-edge techniques such as stem cell therapy, gene therapy, and surgical innovations that are reshaping the landscape of neurology
Farooqji
in
Cure Parkinson's
5 months ago
AB-1005
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
Boscoejean
in
Cure Parkinson's
5 months ago
NHS Endo - South East - Pro T3 - Three referral choices...
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
joey82
in
Thyroid UK
5 months ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
5 months ago
Sharing a recording of a Lung Cancer conference for patients
– old targets, new tools · Role of immunotherapy and
targeted
therapy
· New directions in lung surgical oncology · Survivorship and follow-up care – a Town Hall This year’s meeting also featured a Patient Power Panel – survivors and caregivers who openly shared their experiences
– old targets, new tools · Role of immunotherapy and
targeted
therapy
· New directions in lung surgical oncology · Survivorship and follow-up care – a Town Hall This year’s meeting also featured a Patient Power Panel – survivors and caregivers who openly shared their experiences
sassassas
in
The Roy Castle Lung Cancer Foundation
2 years ago
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