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Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
9 months ago
Endo & HRT
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
meme2
in
Endometriosis UK
9 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
8 months ago
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Heat or Light Therapy
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Gym-rat
in
Advanced Prostate Cancer
1 year ago
degeralix vs lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Oatmeal2
in
Prostate Cancer Network
9 months ago
ART Intermittent HT, Quality of Life, and Testosterone Recovery
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
RMontana
in
Active Surveillance - Prostate Cancer
9 months ago
First FDA Approved Targeted Therapy for HER2, Enhertu, for the Treatment of NSCLC With an Activating HER2 Mutation
Enhertu is the first drug approved by the FDA to treat NSCLC with the HER2 mutation giving patients access to a
targeted
therapy
that they would otherwise not be able to receive.
Enhertu is the first drug approved by the FDA to treat NSCLC with the HER2 mutation giving patients access to a
targeted
therapy
that they would otherwise not be able to receive.
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
9 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
7 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
9 months ago
Zoladex delay
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Saffie123
in
Endometriosis UK
9 months ago
Panic and panic attacks
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
jaxie28
in
Thyroid UK
9 months ago
Anxiety/peri menopause
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
Bassem1979
in
Menopause and Perimenopause Support
9 months ago
Anyone w Xofigo experience?
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
JDN0415
in
Advanced Prostate Cancer
9 months ago
ADT/Exercise and QoL thanks
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
LongevityAT
in
Advanced Prostate Cancer
9 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
8 months ago
Dentist/Root canal
hey guys. I had the dentist yesterday and they told me I needed root canal on my lower back tooth. I’ve never had any fillings ect from the dentist so didn’t know what to expect. Anyway, they injected my mouth twice and I didn’t feel fully numb so they done another 2 injections which they said was the
hey guys. I had the dentist yesterday and they told me I needed root canal on my lower back tooth. I’ve never had any fillings ect from the dentist so didn’t know what to expect. Anyway, they injected my mouth twice and I didn’t feel fully numb so they done another 2 injections which they said was the
Littlechopsxo
in
Anxiety and Depression Support
10 months ago
Amitriptyline! Treatment for nerve damage.Anyone had this for nerve damage?
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
K2023
in
Endometriosis UK
9 months ago
speech and language therapy
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
Maychristine
in
Headway
1 year ago
Oligomets and SBRT: "Whack a Mole"?
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
FrankyB4
in
Advanced Prostate Cancer
9 months ago
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