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MTX headaches and folic acid ,other meds
I have been taking MTX for 2 weeks now , I take it on a Saturday night tablet form . I was then told to take 1 folic acid on Mondays . Every Wednesday / Thursday I get awful headaches could this be a coincidence ? I have also been taking Naproxen , hydroxychloroquine.lansoprazole .also had steroid
I have been taking MTX for 2 weeks now , I take it on a Saturday night tablet form . I was then told to take 1 folic acid on Mondays . Every Wednesday / Thursday I get awful headaches could this be a coincidence ? I have also been taking Naproxen , hydroxychloroquine.lansoprazole .also had steroid
Liz018
in
NRAS
5 years ago
Biologics 😔
Sorry I've not been about for a while. I've just been struggling silently. Anyway my nurse has put me forward to my rheumatologist to be trailed for biologics. I've tried mtx, hydroxychloroquine and sulphasalezine and none have worked well enough and even the steroid injections just don't have the same
Sorry I've not been about for a while. I've just been struggling silently. Anyway my nurse has put me forward to my rheumatologist to be trailed for biologics. I've tried mtx, hydroxychloroquine and sulphasalezine and none have worked well enough and even the steroid injections just don't have the same
Hels1989
in
NRAS
5 years ago
Steroids
I have been on steroids for over ten years and have also had steroid injections into joints and also depot injections. I joined slimming world and in 7 weeks I am 2lb heavier than when I started. Help !
I have been on steroids for over ten years and have also had steroid injections into joints and also depot injections. I joined slimming world and in 7 weeks I am 2lb heavier than when I started. Help !
LUPIELASSY13
in
Weight Loss Support
5 years ago
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Pubic synthesis
I have been diagnosed with pubic synthesis alongside endo, currently getting steroid injections every 3 or so months and waiting to see physio. Recently my groin pain and leg pain has gotten so bad to the point that i struggle to walk and I’m in agony when I do walk. It’s horrendous!! Does anyone know
I have been diagnosed with pubic synthesis alongside endo, currently getting steroid injections every 3 or so months and waiting to see physio. Recently my groin pain and leg pain has gotten so bad to the point that i struggle to walk and I’m in agony when I do walk. It’s horrendous!! Does anyone know
tinkerbell971
in
Pelvic Pain Support Network
5 years ago
New here and a bit confused
Hi everyone, I have been reading lots of your posts and it has been really helpful but I am a bit confused following an appointment with my rheumatologist yesterday. I apologise in advance as this is a bit long! I am 40 and was diagnosed in 2017 with PBC, it is an autoimmune disease that affects the
Hi everyone, I have been reading lots of your posts and it has been really helpful but I am a bit confused following an appointment with my rheumatologist yesterday. I apologise in advance as this is a bit long! I am 40 and was diagnosed in 2017 with PBC, it is an autoimmune disease that affects the
jjones78
in
NRAS
5 years ago
Prednisolone and steroid injections
I’m currently on 10mg prednisolone for PMR and have bursitis in my upper arm also. My rheumy wants to give me a steroid injection for the pain in my arm, has anyone else had this injection whilst already taking prednisolone and how did you get on? Thanks for any advice
I’m currently on 10mg prednisolone for PMR and have bursitis in my upper arm also. My rheumy wants to give me a steroid injection for the pain in my arm, has anyone else had this injection whilst already taking prednisolone and how did you get on? Thanks for any advice
Floridafan
in
PMRGCAuk
5 years ago
Methotrexate not working & now chronic neck pain
Hi, I'm desperately in need of advice. I was diagnosed with RA a year ago after my left wrist swelled up. I'd had an accident just prior to the diagnosis. I was placed on Methotrexate immediately and given a steroid injection. A few weeks later the wrist pain came back, along with neck pain. Again, I
Hi, I'm desperately in need of advice. I was diagnosed with RA a year ago after my left wrist swelled up. I'd had an accident just prior to the diagnosis. I was placed on Methotrexate immediately and given a steroid injection. A few weeks later the wrist pain came back, along with neck pain. Again, I
dave_mckiernan
in
NRAS
5 years ago
Chronic Pain Relief
Have attended Rheumatology and RF scleroderma clinic. Have never had any treatment, diagnosed 2005 by Gastrologist complete hypomotility of oesophagus and bowel. Fibromyalgia throughout spine and Patella disease both knees. Have struggled with pain for last 20 years and find lack of organised pain clinics
Have attended Rheumatology and RF scleroderma clinic. Have never had any treatment, diagnosed 2005 by Gastrologist complete hypomotility of oesophagus and bowel. Fibromyalgia throughout spine and Patella disease both knees. Have struggled with pain for last 20 years and find lack of organised pain clinics
murdina
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
My new drug cocktail
Having had ongoing issues with painful swollen knees I have added leflunomide to my prednisolone and hydroxychloroquine. My rheumy still believes I have PMR (diagnosed March 2016) but believes something else is at play with my knees as she said she hasn’t seen it present in large joints in the way mine
Having had ongoing issues with painful swollen knees I have added leflunomide to my prednisolone and hydroxychloroquine. My rheumy still believes I have PMR (diagnosed March 2016) but believes something else is at play with my knees as she said she hasn’t seen it present in large joints in the way mine
Lochy
in
PMRGCAuk
5 years ago
Hip flexor/psoas
Hi, it is more than 1 year that I developed a pain in my hip, initially they though it was an hernia or psoas bursitis but I had an MRI, ultrasound and x ray that ruled out this things. They also did a steroid injection but no luck. Pain get worst after exercise, if I run I have no pain but the following
Hi, it is more than 1 year that I developed a pain in my hip, initially they though it was an hernia or psoas bursitis but I had an MRI, ultrasound and x ray that ruled out this things. They also did a steroid injection but no luck. Pain get worst after exercise, if I run I have no pain but the following
tuscan72
in
Bridge to 10K
5 years ago
Frozen Shoulder
Has anyone had frozen shoulder? I’ve been struggling for 1.5months. Got through to GP today & have been referred for Steroid Injection in my right shoulder. After call my left shoulder is now showing signs of pain too. Did the Injections work? Was it painful? I have the injections in my hips for Bursitis
Has anyone had frozen shoulder? I’ve been struggling for 1.5months. Got through to GP today & have been referred for Steroid Injection in my right shoulder. After call my left shoulder is now showing signs of pain too. Did the Injections work? Was it painful? I have the injections in my hips for Bursitis
Ann1-74
in
Behçet's UK
5 years ago
Pneumonia injection
Hi to everyone , I am another newbie to this site and so grateful that I found it as I have been reading and learnt so much in just a few weeks,You all are so brave, I had never heard of RA until last December after going to see GP to get some pain relief after suffering with such bad arm, shoulder and
Hi to everyone , I am another newbie to this site and so grateful that I found it as I have been reading and learnt so much in just a few weeks,You all are so brave, I had never heard of RA until last December after going to see GP to get some pain relief after suffering with such bad arm, shoulder and
patsymay13
in
NRAS
5 years ago
MXT and mouth problems
Hi I'm on 10ml of mxt injections as I couldn't tolerate the tablets. So far they're not working (but accept I've only had 5 doses). Anyway the specialist nurse wanted to increase methotrexate dose as I'm in a bad flare but says she can't as I'm got lesions in my mouth which are bleeding and making it
Hi I'm on 10ml of mxt injections as I couldn't tolerate the tablets. So far they're not working (but accept I've only had 5 doses). Anyway the specialist nurse wanted to increase methotrexate dose as I'm in a bad flare but says she can't as I'm got lesions in my mouth which are bleeding and making it
Dobcross1
in
NRAS
5 years ago
Time to give up on Enbrel?
At the end of 2017 I was switched from Enbrel to Benepali with awful consequences. Eventually in April last year I went back on to Enbrel but it's just not been anywhere near as effective. I've switched from Mtx tabs to injections s to see if that would help but I just seem to be in a vicious circle
At the end of 2017 I was switched from Enbrel to Benepali with awful consequences. Eventually in April last year I went back on to Enbrel but it's just not been anywhere near as effective. I've switched from Mtx tabs to injections s to see if that would help but I just seem to be in a vicious circle
Maggsie
in
NRAS
5 years ago
HRT and Levo
Hi just me again. I did mention a couple of weeks ago that my doctor had me on 150. Levo,that I feel tired irritable and I have constant ailments ranging from joint pain ( I had a scan guided steroid injection in my shoulder last week) pretty nasty but seems to be working. I get constant chest infections
Hi just me again. I did mention a couple of weeks ago that my doctor had me on 150. Levo,that I feel tired irritable and I have constant ailments ranging from joint pain ( I had a scan guided steroid injection in my shoulder last week) pretty nasty but seems to be working. I get constant chest infections
Trying-hard
in
Thyroid UK
5 years ago
Painful weekend
Hi everyone, Been a while since my last post Just got back in the office since weekend following a flare up of my knees and hip felt shocking last 2 days, Have 12 week review with consultant tomorrow hopefully she will give me a steroid injection also had Rituximab infusion last July so starting to think
Hi everyone, Been a while since my last post Just got back in the office since weekend following a flare up of my knees and hip felt shocking last 2 days, Have 12 week review with consultant tomorrow hopefully she will give me a steroid injection also had Rituximab infusion last July so starting to think
phil_54
in
NRAS
5 years ago
Flare up...again! Advice please, am I doing the right thing?
Hi all. I'm a regular reader of posts and find this site massively helpful. Diagnosed December 2016. Age 56. Down to 6/5.5mg. hip pain was starting again through January. Also thighs and buttocks hurting. At its worst unable to walk upstairs, or even on the flat very far. Felt this was a flare up starting
Hi all. I'm a regular reader of posts and find this site massively helpful. Diagnosed December 2016. Age 56. Down to 6/5.5mg. hip pain was starting again through January. Also thighs and buttocks hurting. At its worst unable to walk upstairs, or even on the flat very far. Felt this was a flare up starting
Lyndab62
in
PMRGCAuk
5 years ago
Feeling worse after steroid injection
I had my first rheumatologist appointment in the first week of January and was given a steroid injection in the backside. After a day or two I started to feel good, aches and pains in joints were gone, along with the morning stiffness it was bliss! Roll on 3 weeks later I felt bad in the mornings again
I had my first rheumatologist appointment in the first week of January and was given a steroid injection in the backside. After a day or two I started to feel good, aches and pains in joints were gone, along with the morning stiffness it was bliss! Roll on 3 weeks later I felt bad in the mornings again
Pinkypie2018
in
NRAS
5 years ago
Treatment options -pros and cons
Hi everyone. Sorry I’ve not been on much again lately - it feels like I’m only ever here asking for help rather than giving it but unfortunately life just seems to keep getting in the way and I just run out of energy I’m afraid. Sooo - apologies in advance as this is a long one. I had an appointment
Hi everyone. Sorry I’ve not been on much again lately - it feels like I’m only ever here asking for help rather than giving it but unfortunately life just seems to keep getting in the way and I just run out of energy I’m afraid. Sooo - apologies in advance as this is a long one. I had an appointment
Mifford
in
LUPUS UK
5 years ago
It would be very interesting to hear from men out there and whether they were sent for a physiological assessment at any stage?
Time and time again I am reading the same story but from different people! It breaks my heart to read some of your posts. Now I’m sitting here thinking and wondering if men are experiencing the same? I would really like to hear from a few males and their journey to a diagnosis? Does Lupus UK have
Time and time again I am reading the same story but from different people! It breaks my heart to read some of your posts. Now I’m sitting here thinking and wondering if men are experiencing the same? I would really like to hear from a few males and their journey to a diagnosis? Does Lupus UK have
Lisalou19
in
LUPUS UK
5 years ago
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