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Maybe not PMR update 5 years on
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Pawscat11
in
PMRGCAuk
1 day ago
Follow up to initial appt
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
hazelcats
in
NRAS
2 days ago
Pain Relief
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
3 days ago
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Is it back? š
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Croft9232
in
PMRGCAuk
3 days ago
Angina and arthritis pain.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
graemeparsons
in
British Heart Foundation
5 days ago
Severe pain in Hips
Hello all, I havenāt been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40ās, now aged 62 & as
Hello all, I havenāt been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40ās, now aged 62 & as
Shamrockgirl
in
NRAS
5 days ago
vita health group physio? & Simponi question
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Km27
in
NRAS
6 days ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
14 days ago
Puzzled
I went for a Rheumatology appointment yesterday as Iād had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didnāt need a steroid injection and because and I have another appointment with my new Consultant in November
I went for a Rheumatology appointment yesterday as Iād had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didnāt need a steroid injection and because and I have another appointment with my new Consultant in November
Blackwitch
in
NRAS
14 days ago
MRI's
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
BenHall1
in
Atrial Fibrillation Support
14 days ago
is this a flare
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
I was diagnosed with GCA in Dec 2022, put on 30mg prednisolone, ultra sound delayed by 10 days and had negative result, within a few days of the prednisolone the headaches neck pain and scalp pain all gone, I gradually tapered to 12 and half mg last September, have had many side effects, weight gain,
Mumdadlove
in
PMRGCAuk
16 days ago
Appointment Update
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Hello. Following my recent post about my dry eyes, I had my follow-up appointment on Monday nearly 4 months post right trabeculectomy & it did not go well. Had a visual field test and eye scan. No change to my right eye but my left eye continues to lose peripheral vision. The pressure was elevated even
Mitziecat
in
Glaucoma UK
16 days ago
Osteoarthritis in knee
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
completely-zero654
in
Couch to 5K
20 days ago
From Prednisone to Morphine
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? Itās been suggested to me by my new Rheumatologist recently. Heās questioning my diagnosis of PMR & suggests the pain is due to āwear & tearā. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? Itās been suggested to me by my new Rheumatologist recently. Heās questioning my diagnosis of PMR & suggests the pain is due to āwear & tearā. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
Chelseadog
in
PMRGCAuk
21 days ago
Tinnitus and Meniere's
Has anyone ever received Intratympanic steroid injection in their ear(s) for Tinnitus or Meniere's? I was just curious if it was worth it and made matters better. Is the injection painful or create other issues? My ENT has recommended it for my left ear which has a variety of issues. Thanks.
Has anyone ever received Intratympanic steroid injection in their ear(s) for Tinnitus or Meniere's? I was just curious if it was worth it and made matters better. Is the injection painful or create other issues? My ENT has recommended it for my left ear which has a variety of issues. Thanks.
MrGC314
in
Tinnitus UK
23 days ago
Finally a little light!
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
HeadInASpin
in
NRAS
24 days ago
A return of the dreaded mongrel .......... ?????
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
BenHall1
in
Atrial Fibrillation Support
25 days ago
Pes Anserine Bursitis - steroid injection offered.
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment š). He was happy for me to continue with my slow tapering and then
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment š). He was happy for me to continue with my slow tapering and then
Sukydee
in
PMRGCAuk
27 days ago
I am nervous
Today was a rough day and I do t know what I am going to do in two weeks Iām so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didnāt work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Today was a rough day and I do t know what I am going to do in two weeks Iām so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didnāt work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Dolphfan47
in
Anxiety and Depression Support
29 days ago
Covid booster and steroids
I have been offered my Covid booster for next Monday but I had a steroid injection on March 25th. Does anyone know if I need to leave longer between the two jabs??
I have been offered my Covid booster for next Monday but I had a steroid injection on March 25th. Does anyone know if I need to leave longer between the two jabs??
Spin1959
in
NRAS
1 month ago
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