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EGPA Diagnosis today
Kidney health was deteriorating so idea was to put me on
Steroids
ASAP prior to diagnosis being confirmed. Body has responded well and will be out of hospital today. Anyone have any similar stories or any advice. I'm feeling much better with the
steroids
and can breath for England.
Kidney health was deteriorating so idea was to put me on
Steroids
ASAP prior to diagnosis being confirmed. Body has responded well and will be out of hospital today. Anyone have any similar stories or any advice. I'm feeling much better with the
steroids
and can breath for England.
s8lomon
in
Vasculitis UK
1 year ago
Leg Pain pt 3
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Alloagirl
in
Pain Concern
4 months ago
chronic knee pain, can anyone help!
lve had knee pain before, lve had my knee drained , steroid injection s , but the last 2weeks have been chronic pain never had it this bad before, l dread going to bed trying to walk when l get out of bed is almost impossible, l need a chair with wheels on to get to bathroom, it’s okay when I’m sitting
lve had knee pain before, lve had my knee drained , steroid injection s , but the last 2weeks have been chronic pain never had it this bad before, l dread going to bed trying to walk when l get out of bed is almost impossible, l need a chair with wheels on to get to bathroom, it’s okay when I’m sitting
Kate2628
in
NRAS
4 months ago
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9 years in the menopause
I’m also taking
steroids
for another unrelated condition (PMR) I have never taken HRT due to it linked to cancer. The problem I’m having is I can’t bare much more of the hot flushes! I don’t know what to do or if I should now consider HRT.
I’m also taking
steroids
for another unrelated condition (PMR) I have never taken HRT due to it linked to cancer. The problem I’m having is I can’t bare much more of the hot flushes! I don’t know what to do or if I should now consider HRT.
Holycow2
in
Menopause and Perimenopause Support
1 year ago
advice on not taking meds for a day
hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA is and was going to Google it. 🙈 They have told me not to take my steroid’s tomorrow and it will not matter. I’ve tried to contact the the rheumatologist
hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA is and was going to Google it. 🙈 They have told me not to take my steroid’s tomorrow and it will not matter. I’ve tried to contact the the rheumatologist
lennysmummy
in
PMRGCAuk
10 months ago
conjunctivitis
i have had a bruise in the corner of my right eye for nearly week,it has now made my eye blood shot ,but as i use
steroids
and dry eye drops in my eyes after having transplants to both eyes 3yrs ago would i still be able to have over the counter eye drops or see my gp.
i have had a bruise in the corner of my right eye for nearly week,it has now made my eye blood shot ,but as i use
steroids
and dry eye drops in my eyes after having transplants to both eyes 3yrs ago would i still be able to have over the counter eye drops or see my gp.
jackiect71
in
Lung Conditions Community Forum
1 year ago
Is it long Covid
I had many flares but the last one was when my GP during Covid put my
steroids
up from 6mg to 15mg as I had head and jaw pain. After scans etc it was decided the cause was neuropathic and I began the long withdrawal back to 6mg.
I had many flares but the last one was when my GP during Covid put my
steroids
up from 6mg to 15mg as I had head and jaw pain. After scans etc it was decided the cause was neuropathic and I began the long withdrawal back to 6mg.
Cobnut
in
PMRGCAuk
1 year ago
angel54
Thanks everyone for your feedback regarding being advised to go to GP if need
steroids
.
Thanks everyone for your feedback regarding being advised to go to GP if need
steroids
.
Angels54
in
NRAS
1 year ago
anyone have achy legs
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
Corolla1
in
Restless Legs Syndrome
4 months ago
Lost hearing, vertigo and now rash is this?
I hope someone can help me. I was diagnosed with MCAS in 2015 at Guys and St Thomas then discharged when the drugs started to work. I’ve been in and out of hospital for chronic IC and unexplained gallbladder inflammation which was extremely painful on numerous occasions. Every time I go in I end up
I hope someone can help me. I was diagnosed with MCAS in 2015 at Guys and St Thomas then discharged when the drugs started to work. I’ve been in and out of hospital for chronic IC and unexplained gallbladder inflammation which was extremely painful on numerous occasions. Every time I go in I end up
Redfleur
in
The UK Mastocytosis Support Group
7 months ago
Help please
Then, out of the blue I received a phone call from a GP I had never heard of informing me he was sending me oral
steroids
. I tried to query this but he would not listen to me.
Then, out of the blue I received a phone call from a GP I had never heard of informing me he was sending me oral
steroids
. I tried to query this but he would not listen to me.
Countrykitten
in
PMRGCAuk
1 year ago
Steroid injection in shoulder joint
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
Cutes
in
NRAS
4 months ago
help me to understand
They have told him that they will give him two or three rounds of radiation to stem the bleeding , and he has
steroids
and antibiotics and will have a supply of oxygen at home in case he needs it. He has been poorly for a while but this is a new diagnosis. He has had copd for many years.
They have told him that they will give him two or three rounds of radiation to stem the bleeding , and he has
steroids
and antibiotics and will have a supply of oxygen at home in case he needs it. He has been poorly for a while but this is a new diagnosis. He has had copd for many years.
Beccaf
in
The Roy Castle Lung Cancer Foundation
1 year ago
please can someone advise is it a flare or withdrawal 🥴
Could this be a flare and if could be how much would I need to up my
steroids
.
Could this be a flare and if could be how much would I need to up my
steroids
.
Maggie1313
in
PMRGCAuk
1 year ago
Sciatica
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Stormtrooper4
in
Pain Concern
4 months ago
New to PMR and confused
Already I'm beginning to wonder if the pain of PMR is worse than
steroids
. Magic wand, anyone?
Already I'm beginning to wonder if the pain of PMR is worse than
steroids
. Magic wand, anyone?
tweety_pie
in
PMRGCAuk
1 year ago
steroid injections
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
Linny3
in
PMRGCAuk
4 months ago
massages and facials
Good morning all, I am currently on 22 1/2mg for GCA, having tapered from 30mg at the beginning of Dec, I am doing ok now I have accepted the condition and being on the
steroids
, this week have had a bit of a dip, can see a few changes to my face, eyes very puffy, very very dark under the eyes,and I
Good morning all, I am currently on 22 1/2mg for GCA, having tapered from 30mg at the beginning of Dec, I am doing ok now I have accepted the condition and being on the
steroids
, this week have had a bit of a dip, can see a few changes to my face, eyes very puffy, very very dark under the eyes,and I
Mumdadlove
in
PMRGCAuk
1 year ago
Should I be as worried as I am before my 6th transfer?
I then changed clinics and they ran the EMMA, ALICE and ERA tests, and based the timing of the transfer off that data, and they also discovered I have an auto-immune condition, which they treated with
steroids
.
I then changed clinics and they ran the EMMA, ALICE and ERA tests, and based the timing of the transfer off that data, and they also discovered I have an auto-immune condition, which they treated with
steroids
.
CyclingAddict
in
Fertility Network UK
4 months ago
Need advice on Etoricoxib, can anyone help please !
I went to AE and was prescibeEtorcoxib , the main problem l have is in my knee, lve had pain with flares before, but nothing like this , it seems to lock mornings are bad getting out of bed , l have no pain when sitting down, lm having a flare at , no meds for 2 months waiting to go new meds., steroid
I went to AE and was prescibeEtorcoxib , the main problem l have is in my knee, lve had pain with flares before, but nothing like this , it seems to lock mornings are bad getting out of bed , l have no pain when sitting down, lm having a flare at , no meds for 2 months waiting to go new meds., steroid
Kate2628
in
NRAS
4 months ago
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