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Stem cell and bone marrow transplants
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What is “Public Comment” and why should I participate?
Do you ever wonder how you can influence change when it comes to the development of policies in the world of organ transplant? When the Organ Procurement and Transplantation Network (OPTN) begins to investigate how to solve any current policy issues regarding organ sharing and regulation, they provide
Do you ever wonder how you can influence change when it comes to the development of policies in the world of organ transplant? When the Organ Procurement and Transplantation Network (OPTN) begins to investigate how to solve any current policy issues regarding organ sharing and regulation, they provide
IzabellaDOnofrio
Administrator
in
Power2Save Transplant Community
4 years ago
Is it worth to get transplanted?
I have been following the forum in this site for a while. However, everytime I read many of the threads, I end up wondering if it is worth going through it. Currently, I am relatively healthy, although my creatinine is 3.6, my BUM is 49, and my GFR is 13. I have been in the list for almost a year. I
I have been following the forum in this site for a while. However, everytime I read many of the threads, I end up wondering if it is worth going through it. Currently, I am relatively healthy, although my creatinine is 3.6, my BUM is 49, and my GFR is 13. I have been in the list for almost a year. I
hope1419
in
Kidney Transplant
4 years ago
Uric acid rise after 1 year kidney transplant
Uric acid rise after 1 year kidney transplant and pain in forefeet and heel uric acid 7.1 normal 7 .o but to do for
Uric acid rise after 1 year kidney transplant and pain in forefeet and heel uric acid 7.1 normal 7 .o but to do for
Ish123
in
Kidney Transplant
4 years ago
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First Face-to-Face With Other CKD Patients
I am a 76 yr old, live alone woman who has long prided myself on my independence. The CKD stage 3 diagnosis in 2019 left me feeling very alone and frightened. Both pcp and nephrologist seemed unconcerned about my CKD and I knew no one else with renal problems. After many hours and weeks spent searching
I am a 76 yr old, live alone woman who has long prided myself on my independence. The CKD stage 3 diagnosis in 2019 left me feeling very alone and frightened. Both pcp and nephrologist seemed unconcerned about my CKD and I knew no one else with renal problems. After many hours and weeks spent searching
FlowerPreciousLover
in
Kidney Disease
4 years ago
So much new CLL material to read
See: https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
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cell
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transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll/ Guest writer, Brian Maxson is a CLL patient and an inquisitive engineer who lays out the points Dr.
See: https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
-
cell
-
transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll/ Guest writer, Brian Maxson is a CLL patient and an inquisitive engineer who lays out the points Dr.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
CLL SOCIETY'S ASH POSTER on our Free second opinion program plus two important papers from ASCO
second-cancers-in-patients-receiving-btk-inhibitors-in-chronic-lymphocytic-leukemia-cll/ In my #7 of the top 10 CLL abstracts from ASH, I review the encouraging data on the benefits of transplants for Richter’s Transformations. https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
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cell
-
transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll
second-cancers-in-patients-receiving-btk-inhibitors-in-chronic-lymphocytic-leukemia-cll/ In my #7 of the top 10 CLL abstracts from ASH, I review the encouraging data on the benefits of transplants for Richter’s Transformations. https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-
stem
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cell
-
transplant
-in-richter-transformation-inn-chronic-lymphocytic-leukemia-cll
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
can a kidney transplant be performed when the filtration rate is between 15 and 20%?
Hi. I am new to the forum and to ckd, transplant, etc... still trying to get oriented... Has anyone been told by a hospital that they wouldn't even be registered for a transplant if they are not below 15%?
Hi. I am new to the forum and to ckd, transplant, etc... still trying to get oriented... Has anyone been told by a hospital that they wouldn't even be registered for a transplant if they are not below 15%?
kidkidney202
in
Kidney Transplant
4 years ago
I have to withhold my tocilizumab
I was taken into hospital again with cellulitis on my leg put on intravenous antibiotics and am now at home on antibiotic tablets. This means that I have to withhold my tocilizumab. My concern is that if I have a flare what should I do. Increase my pred and by how much? I am now on 8mgms. Tried to reduce
I was taken into hospital again with cellulitis on my leg put on intravenous antibiotics and am now at home on antibiotic tablets. This means that I have to withhold my tocilizumab. My concern is that if I have a flare what should I do. Increase my pred and by how much? I am now on 8mgms. Tried to reduce
Teekay2
in
PMRGCAuk
4 years ago
Donation
Can you tell me how to, make a Donation, in Pounds Stirling please. Your system ONLY seems to want US Dollars....and NOT all of us live in the USA, believe it, or not! We DO however have Kidney Disease, Kidney Transplants and wish to show our gratitude. Can you advise further please? AndrewT
Can you tell me how to, make a Donation, in Pounds Stirling please. Your system ONLY seems to want US Dollars....and NOT all of us live in the USA, believe it, or not! We DO however have Kidney Disease, Kidney Transplants and wish to show our gratitude. Can you advise further please? AndrewT
AndrewT
in
Kidney Transplant
4 years ago
Transplant
How long does it take to get a liver transplant and does insurance pay for any of it I’m in Florida
How long does it take to get a liver transplant and does insurance pay for any of it I’m in Florida
Cathyjo
in
PBC Foundation
4 years ago
Blood cancers: New generation stem cell transplant significantly reduces complications for patients
Post by MPN-MATE Admin » Wed Nov 06, 2019 9:21 am Hey everyone... :-) More great good news is coming our way... This article has already successfully run 'Human Trials', and in the USA, it's about to be accepted by the FDA for a Phase III Clinical Trial... Impressive results as you will see from reading
Post by MPN-MATE Admin » Wed Nov 06, 2019 9:21 am Hey everyone... :-) More great good news is coming our way... This article has already successfully run 'Human Trials', and in the USA, it's about to be accepted by the FDA for a Phase III Clinical Trial... Impressive results as you will see from reading
socrates_8
in
MPN Voice
5 years ago
Liver Transplant suggestion
Is liver transplant is good for aged person age is about 78 round about
Is liver transplant is good for aged person age is about 78 round about
Bangash11
in
British Liver Trust
4 years ago
anyone ??
Can a kidney transplant patient have a side effect of having a thyroid ??I'm just curious
Can a kidney transplant patient have a side effect of having a thyroid ??I'm just curious
Mrsmarupok
in
Kidney Transplant
4 years ago
Ibuprofen for pain - level of risk to kidney transplant
Greetings all, I am new to the forum and have a question about treating arthritis. I am 67 and had a kidney transplant back in 1999. I am in very good health except for experiencing moderate to severe arthritis pain, especially following exercise. Ibuprofen (200-400 mg dose) seems to be the only remedy
Greetings all, I am new to the forum and have a question about treating arthritis. I am 67 and had a kidney transplant back in 1999. I am in very good health except for experiencing moderate to severe arthritis pain, especially following exercise. Ibuprofen (200-400 mg dose) seems to be the only remedy
Rebel1975
in
Kidney Transplant
4 years ago
Update and Best Wishes
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
lesleyg
in
Behçet's UK
4 years ago
Yoga after kidney transplant
Hi! I’m a few months post kidney transplant and loving getting back into my yoga practice. Anyone been through this? How long did it take you to be able to lie on your stomach comfortably/without too much pain to do poses like cobra/seal? (I’m thin with a huge new kidney that sticks out!). And secondly
Hi! I’m a few months post kidney transplant and loving getting back into my yoga practice. Anyone been through this? How long did it take you to be able to lie on your stomach comfortably/without too much pain to do poses like cobra/seal? (I’m thin with a huge new kidney that sticks out!). And secondly
ThisAdventure
in
Nutrition and Yoga for Health
4 years ago
Do anyone need Hemodialysis Home Supplies?
Hi everyone, We are newly home from a liver and kidney transplant and have a large number of dialysis supplies that we no longer need. We had just ended our first week of home dialysis when we got the call for the transplant. The supplies are new and in unopened shipping boxes. I hate to see this go
Hi everyone, We are newly home from a liver and kidney transplant and have a large number of dialysis supplies that we no longer need. We had just ended our first week of home dialysis when we got the call for the transplant. The supplies are new and in unopened shipping boxes. I hate to see this go
vestalclan
in
Kidney Dialysis
4 years ago
The Transplant Journey update 2
Hello, I wanted to give you guys an update on my mothers lung transplant journey... Before reading, this is not intended to put any perspective lung transplant person off having a transplant. It is a factual view on what can happen after transplant. I am writing this as a means to manage the stress
Hello, I wanted to give you guys an update on my mothers lung transplant journey... Before reading, this is not intended to put any perspective lung transplant person off having a transplant. It is a factual view on what can happen after transplant. I am writing this as a means to manage the stress
Queenbean
in
Lung Conditions Community Forum
4 years ago
2nd liver transplant?
Hello Im new to this forum. My question is has anyone had an experience with a 2nd liver transplant? My husband had a liver transplant but now after 18 months the bile ducts are plugged up and 2 transplant surgeons at reputable hospitals are stating that he will need another transplant in the near future
Hello Im new to this forum. My question is has anyone had an experience with a 2nd liver transplant? My husband had a liver transplant but now after 18 months the bile ducts are plugged up and 2 transplant surgeons at reputable hospitals are stating that he will need another transplant in the near future
Lipstick2020
in
Liver4Life
4 years ago
Do I self treat now?
Hello - long post ahead. I posted here last year, prior to seeing a neurologist as I was (and still am having) neuro symptoms: occasional tremor in hands, constant pins and needles in hands and feet, numbness (hands mostly). I have Hashimotos Thyroiditis and psoriasis. I was diagnosed as B12 deficient
Hello - long post ahead. I posted here last year, prior to seeing a neurologist as I was (and still am having) neuro symptoms: occasional tremor in hands, constant pins and needles in hands and feet, numbness (hands mostly). I have Hashimotos Thyroiditis and psoriasis. I was diagnosed as B12 deficient
Hidden
in
Pernicious Anaemia Society
4 years ago
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