Search
Search
About
Log in
Join
Experiences with
Stem cell and bone marrow transplants
Posts
Communities
3,708 public posts
Filter results
Allogenic Stem Cell Transplant
I [i]received a
Stem
cell
transplant
six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia.
I [i]received a
Stem
cell
transplant
six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia.
GarciaB
in
MPN Voice
1 year ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
2 months ago
HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
3 months ago
Life beyond Myelofibrosis
My haematologist was keen for me to think about a
stem
cell
transplant
and I was booked to speak to the transplant centre in Bristol about 40 miles from my home. Those of you that have read previous posts of mine showed how much I dithered.
My haematologist was keen for me to think about a
stem
cell
transplant
and I was booked to speak to the transplant centre in Bristol about 40 miles from my home. Those of you that have read previous posts of mine showed how much I dithered.
Scaredy_cat
in
MPN Voice
1 year ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
3 months ago
Good sats - so why so breathless?
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
Timberman
in
Lung Conditions Community Forum
4 months ago
Tapering with new issues ongoing
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
arvine
in
PMRGCAuk
1 year ago
Tapering while new issues
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having
stem
cell
transplant
in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any
arvine
in
Pain Concern
1 year ago
Need Help with Next Gen ADT
That's followed by a
stem
cell
transplant
but that's for another time Question, and I will ask this of the PA on Monday, why would the oncologist prefer daralutamide over abiraterone? Or differently stated, can someone any of you weigh in on the differences?
That's followed by a
stem
cell
transplant
but that's for another time Question, and I will ask this of the PA on Monday, why would the oncologist prefer daralutamide over abiraterone? Or differently stated, can someone any of you weigh in on the differences?
swwags
in
Advanced Prostate Cancer
8 months ago
‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study
In particular, a 65-year-old woman suffering from mid-stage Parkinson's disease received the world's first
stem
cell
transplant
in 2013 and is now able to perform routine daily activities with an improvement in overall motor function, such as using public transportation.
In particular, a 65-year-old woman suffering from mid-stage Parkinson's disease received the world's first
stem
cell
transplant
in 2013 and is now able to perform routine daily activities with an improvement in overall motor function, such as using public transportation.
Baron1
in
Cure Parkinson's
1 year ago
Successfully treated my Multiple Myeloma and now in remission from both MM and PCA
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
swwags
in
Advanced Prostate Cancer
6 months ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
Update on STEM-PD clinical trial – stem cell-based transplant for Parkinson’s disease
https://www.stemcellcenter.lu.se/article/update-
stem
-pd-clinical-trial-
stem
-
cell
-based-
transplant
-parkinsons-disease
https://www.stemcellcenter.lu.se/article/update-
stem
-pd-clinical-trial-
stem
-
cell
-based-
transplant
-parkinsons-disease
nednedned
in
Cure Parkinson's
24 days ago
RA and live flu vaccine
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
Julia31
in
NRAS
8 months ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
9 months ago
Anyone had a coronary sinus reducer?
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
SomersetJo
in
British Heart Foundation
9 months ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
1 year ago
Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread.
They didn't expressly refer to prostate cancer. But this is an issue that has been on my mind for a while. Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread. Https://m.jpost.com/health-and-wellness/article-757233 While many people may take
They didn't expressly refer to prostate cancer. But this is an issue that has been on my mind for a while. Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread. Https://m.jpost.com/health-and-wellness/article-757233 While many people may take
cesanon
in
Advanced Prostate Cancer
9 months ago
Important to know, but sucks to have: TP53 Mutations Confer High Risk in Patients With Myelofibrosis Undergoing HSCT
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic
stem
cell
transplant
(HSCT), according to results of a study published in the Blood.
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic
stem
cell
transplant
(HSCT), according to results of a study published in the Blood.
PhysAssist
in
MPN Voice
1 year ago
1
2
3
4
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
699 results
Lung Conditions Community Forum
458 results
Kidney Transplant
425 results
View top 10 communities
Sort by
Most Relevant
Newest