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Stem Cell Transplant update
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
Scaredy_cat
in
MPN Voice
10 months ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my
stem
cell
transplant
journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond.
Sorry I've been absent for so long, my
stem
cell
transplant
journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond.
Jm954
Administrator
in
CLL Support
8 months ago
Start of my Stem Cell Journey 0.3
The Good news is I have now been given a provisional date to start my
stem
cell
transplant
17th November. Have to have another bone marrow biopsy and some tests on the 14th November ie Covid, flu etc, so things are moving on.
The Good news is I have now been given a provisional date to start my
stem
cell
transplant
17th November. Have to have another bone marrow biopsy and some tests on the 14th November ie Covid, flu etc, so things are moving on.
Grizly
in
MPN Voice
7 months ago
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Stem cell transplant starts on Monday
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
Jm954
Administrator
in
CLL Support
1 year ago
pink patches on skin
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Tortina
in
MPN Voice
9 months ago
introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a
Stem
Cell
Transplant
at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same?
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a
Stem
Cell
Transplant
at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same?
jmcasbar
in
Leukaemia CARE
1 year ago
start of my SCT journey
I’m on my journey to have a
stem
cell
transplant
. In the past few weeks I have gone through the Prehab process, ie poked prodded, X-rayed, scanned and blowing into machine. lol. Also a tooth needs to come out as a precaution.
I’m on my journey to have a
stem
cell
transplant
. In the past few weeks I have gone through the Prehab process, ie poked prodded, X-rayed, scanned and blowing into machine. lol. Also a tooth needs to come out as a precaution.
Grizly
in
MPN Voice
10 months ago
Red face / flushing. Possible rosacea
Hi I am 200 plus days post
stem
cell
transplant
. Since then I get flushed very easily.
Hi I am 200 plus days post
stem
cell
transplant
. Since then I get flushed very easily.
Kraskie1915
in
CLL Support
1 year ago
Immune Responses + Autoimmune Myelofibrosis
I'm still waiting on the cytogenetics results to know the full picture but I'll be talking to the
stem
cell
transplant
people soon to see what is now possible for me.
I'm still waiting on the cytogenetics results to know the full picture but I'll be talking to the
stem
cell
transplant
people soon to see what is now possible for me.
LongETinUS
in
MPN Voice
6 months ago
billionaires
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a
stem
cell
transplant
of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing.
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a
stem
cell
transplant
of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing.
Rupa88
in
Cure Parkinson's
1 year ago
Time flies... when you're having babies!
This year will mark 20 years since my lifesaving
stem
cell
transplant
so I want to mark that with a fundraising and awareness event befitting the occasion. I also turn 40, have a driving test to pass and an amazing, beautiful daughter to raise.
This year will mark 20 years since my lifesaving
stem
cell
transplant
so I want to mark that with a fundraising and awareness event befitting the occasion. I also turn 40, have a driving test to pass and an amazing, beautiful daughter to raise.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
4 months ago
Hi, im new here
I have recently recovered from treatment for blood cancer by having a
stem
cell
transplant
(14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin hurts?
I have recently recovered from treatment for blood cancer by having a
stem
cell
transplant
(14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin hurts?
Marchhare7
in
Fibromyalgia Action UK
1 year ago
Travel insurance within the UK.
I am over 200 days post
stem
cell
transplant
and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering going via Dublin and wonder how this affects travel insurance.Many thanks
I am over 200 days post
stem
cell
transplant
and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering going via Dublin and wonder how this affects travel insurance.Many thanks
Kraskie1915
in
CLL Support
1 year ago
Allogenic Stem Cell Transplant
I [i]received a
Stem
cell
transplant
six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia.
I [i]received a
Stem
cell
transplant
six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia.
GarciaB
in
MPN Voice
1 year ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
Hidden
in
CLL Support
1 month ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
1 month ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
2 months ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
2 months ago
Life beyond Myelofibrosis
My haematologist was keen for me to think about a
stem
cell
transplant
and I was booked to speak to the transplant centre in Bristol about 40 miles from my home. Those of you that have read previous posts of mine showed how much I dithered.
My haematologist was keen for me to think about a
stem
cell
transplant
and I was booked to speak to the transplant centre in Bristol about 40 miles from my home. Those of you that have read previous posts of mine showed how much I dithered.
Scaredy_cat
in
MPN Voice
1 year ago
HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
3 months ago
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