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Iron levels checked
Had an iron panel completed. 2 important numbers. Ferritin 102, saturation 29 percent. Now what. Dr says both normal. Every test I take, everything comes back normal so why have I had RLS since childhood and at 76 getting 2-3 hours sleep because I have to walk the floors all night and getting worse and
Had an iron panel completed. 2 important numbers. Ferritin 102, saturation 29 percent. Now what. Dr says both normal. Every test I take, everything comes back normal so why have I had RLS since childhood and at 76 getting 2-3 hours sleep because I have to walk the floors all night and getting worse and
lanie136
in
Restless Legs Syndrome
5 months ago
TSH dropping, but FT4 stuck
I started levothyroxine on 10th August on 25mcg, then went up to 50mcg in September, then 75mcg Nov and I'm now alternating 75/100mcg every day. My TSH has dropped considerably, however my FT4 has got stuck at the very bottom end of normal and doesn't seem to be rising despite me increasing the dose
I started levothyroxine on 10th August on 25mcg, then went up to 50mcg in September, then 75mcg Nov and I'm now alternating 75/100mcg every day. My TSH has dropped considerably, however my FT4 has got stuck at the very bottom end of normal and doesn't seem to be rising despite me increasing the dose
TheSnufkin
in
Thyroid UK
2 months ago
T4 and T3
Hi all,I was wondering if you have had your thyroid removed do you still need Levo? I am having some problems since on levo and lio. I was self medicating with lio only and was doing OK, not great, but better than I am now. I have an appointment at Christies in two weeks and could do with some more
Hi all,I was wondering if you have had your thyroid removed do you still need Levo? I am having some problems since on levo and lio. I was self medicating with lio only and was doing OK, not great, but better than I am now. I have an appointment at Christies in two weeks and could do with some more
ashquar
in
Thyroid UK
5 months ago
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Confounded by two different results for MMA test. One negative, one positive
About six weeks ago husband took a Medichecks MMA test. It was over range (positive) In a way I was relieved by this because it meant that now we knew what we were dealing with and what to do about it. However, GP was clueless and referred us on to a specialist in Cambridge, who five weeks after the
About six weeks ago husband took a Medichecks MMA test. It was over range (positive) In a way I was relieved by this because it meant that now we knew what we were dealing with and what to do about it. However, GP was clueless and referred us on to a specialist in Cambridge, who five weeks after the
Noelnoel
in
Pernicious Anaemia Society
5 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
5 months ago
Switched from Methadone at 10 mg to Buprenorphine 10 mcg
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
vikkitennis
in
Restless Legs Syndrome
5 months ago
Genetic test
Got a copy of my Tempest test. My MO says "No actionable results" meaning plan of action doesn't change (Triplet Therapy). He also stated I had nothing to pass on to my son as far as hereditary gene problems. I have no clue what any of it means. DNA mismatch expression (normal) Homologous recombination
Got a copy of my Tempest test. My MO says "No actionable results" meaning plan of action doesn't change (Triplet Therapy). He also stated I had nothing to pass on to my son as far as hereditary gene problems. I have no clue what any of it means. DNA mismatch expression (normal) Homologous recombination
APK3
in
Advanced Prostate Cancer
5 months ago
how long before?
just wondering how long T4 takes to kick in ! Recently (4 weeks) had increase of levo but not really any signs of improvement and still feel “wrecked”
just wondering how long T4 takes to kick in ! Recently (4 weeks) had increase of levo but not really any signs of improvement and still feel “wrecked”
AustinHealeySprite
in
Thyroid UK
5 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
2 months ago
Pregablin
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Baz33
in
Restless Legs Syndrome
5 months ago
Alk phos on Xeloda
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Flower1513
in
SHARE Metastatic Breast Cancer
5 months ago
Tried Bovine Thyroid Supplement - feel very ill!
I could really use some help. I just started on a beef thyroid supplement this morning (Grassfed Beef Thyroid by Ancestral Supplements). And it looks like my body is reacting the same way it reacted when I tried 2 porcine thyroid supplements in the past - heart palpitations and severe fatigue. Although
I could really use some help. I just started on a beef thyroid supplement this morning (Grassfed Beef Thyroid by Ancestral Supplements). And it looks like my body is reacting the same way it reacted when I tried 2 porcine thyroid supplements in the past - heart palpitations and severe fatigue. Although
Betterhealth4me
in
Thyroid UK
5 months ago
Update on my journey of elimination
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Incoguto
in
Thyroid UK
4 months ago
Recommendations for places to purchase T3 meds please
Please could you DM me your recommendations for places to purchase T3 meds. Many thanks ❤️
Please could you DM me your recommendations for places to purchase T3 meds. Many thanks ❤️
Flaxjax
in
Thyroid UK
5 months ago
low lymphocytes in blood. High white cells in urine. Should I be worried?
Recently had a letter from rheumatologist saying my lymphocytes are low 0.5. And +++ Leukocytes in urine. As well as low vitamin D & low ferritin. I take Vit D anyway and am on MMF & prednisolone 7mg . Should I be worried? My named rheumatology team are not helpful at all, these results only came
Recently had a letter from rheumatologist saying my lymphocytes are low 0.5. And +++ Leukocytes in urine. As well as low vitamin D & low ferritin. I take Vit D anyway and am on MMF & prednisolone 7mg . Should I be worried? My named rheumatology team are not helpful at all, these results only came
Beau2016
in
LUPUS UK
5 months ago
Dodo appointment today 😠
Merry Christmas everyone 🎄 Well I've just come from the most awful endo appointment ever, I've seen this endo several time and each time she as dismissed me with changing my thyroid medication. So far she as changed me from T4 to T3 then Back to T4 then T3 again, thinking she's going to get a different
Merry Christmas everyone 🎄 Well I've just come from the most awful endo appointment ever, I've seen this endo several time and each time she as dismissed me with changing my thyroid medication. So far she as changed me from T4 to T3 then Back to T4 then T3 again, thinking she's going to get a different
birkie
in
Thyroid UK
5 months ago
What causes subclinical hypothyroidism?
My brief history: Diagnosed subclincal last year and have felt persistently awful on all doses of levo (25-75mcg) and 75 pushed my t4 slightly too high. The side effects of it have been debilitating and in many ways I feel worse taking it. 25mcg puts my t4 at around 18 which seemed high for a tiny dose
My brief history: Diagnosed subclincal last year and have felt persistently awful on all doses of levo (25-75mcg) and 75 pushed my t4 slightly too high. The side effects of it have been debilitating and in many ways I feel worse taking it. 25mcg puts my t4 at around 18 which seemed high for a tiny dose
GreenTealSeal
in
Thyroid UK
3 months ago
Advice please on latest results after dose decrease
Dear all, for the last 3 months I've been taking 112 levo (eutirox) and 10ml T3 Liotir (liquid). A slight reduction from the 125 levo I was taking when I last posted.My results (using protocol advised here) are as follows: Ft3 2.92 (2.30-4.20) 3 x months ago on 125 levo - 3.18 Ft4 0.93 (0.89-1.76)
Dear all, for the last 3 months I've been taking 112 levo (eutirox) and 10ml T3 Liotir (liquid). A slight reduction from the 125 levo I was taking when I last posted.My results (using protocol advised here) are as follows: Ft3 2.92 (2.30-4.20) 3 x months ago on 125 levo - 3.18 Ft4 0.93 (0.89-1.76)
Sandytango
in
Thyroid UK
2 months ago
Update on what was thought was PMR
He'llo everyone , I first posted on hear after my gp said he thought I had PMR. I took 20 mg of pred for 10 days. No improvement so more blood tests, and finally I had a Cervical spinal MRI in January. This has revealed some issues with Spurs on some vertebrae and general wear and tear.However te MRI
He'llo everyone , I first posted on hear after my gp said he thought I had PMR. I took 20 mg of pred for 10 days. No improvement so more blood tests, and finally I had a Cervical spinal MRI in January. This has revealed some issues with Spurs on some vertebrae and general wear and tear.However te MRI
Charlieanna12
in
PMRGCAuk
3 months ago
Happy holidays, need help, exhausted after med change
Hi friends, I last posted after raising my meds a bit 5 months ago. Was doing ok on that but still needed a little T3 so tried adding liothyronine (again) and it felt good for a while but then started up with side effects after a bit. I was doing a tiny amount...started with 2.5 mcg daily and then tried
Hi friends, I last posted after raising my meds a bit 5 months ago. Was doing ok on that but still needed a little T3 so tried adding liothyronine (again) and it felt good for a while but then started up with side effects after a bit. I was doing a tiny amount...started with 2.5 mcg daily and then tried
deniseross
in
Thyroid UK
5 months ago
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