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May be doing IV chemo for the first time. Need tips - really freaked out!
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Verbena1
in
SHARE Metastatic Breast Cancer
8 months ago
Nausea & Buprenorphine
I am waiting for my doctor to advise on an alternative anti nausea drug and to get him to prescribe sublingual Zofran. I have completed, without any success, the prescription the GP gave me for 5 days of Zofran and I am currently really struggling with the nausea 24 hours a day (milder during day though
I am waiting for my doctor to advise on an alternative anti nausea drug and to get him to prescribe sublingual Zofran. I have completed, without any success, the prescription the GP gave me for 5 days of Zofran and I am currently really struggling with the nausea 24 hours a day (milder during day though
davchar23
in
Restless Legs Syndrome
3 months ago
Implications of positive if ‘weak ANA test’?
I have dry-eye confirmed by Moorfield’s. I also have dry mouth and my dentist said she suspected I had Sjorgren’s. When tested I proved to have a ‘weak positive ANA test’. What, if anything does that mean?
I have dry-eye confirmed by Moorfield’s. I also have dry mouth and my dentist said she suspected I had Sjorgren’s. When tested I proved to have a ‘weak positive ANA test’. What, if anything does that mean?
Morganalefaye
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
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Decision Time (again)
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
adventure4me
in
Prostate Cancer Network
8 months ago
Let’s Talk Intrusive Thoughts
Happy Thursday everyone! Has anyone else been diagnosed with having obsessive/intrusive thoughts? I am working with my therapist on this, but it is so hard to hear that this is what’s going on. I know we’ll work on regaining control of my thoughts, but I feel like I have no control right now and I feel
Happy Thursday everyone! Has anyone else been diagnosed with having obsessive/intrusive thoughts? I am working with my therapist on this, but it is so hard to hear that this is what’s going on. I know we’ll work on regaining control of my thoughts, but I feel like I have no control right now and I feel
Itmewithanxiety
in
Anxiety and Depression Support
3 months ago
Alverine and/or Simalvia - (which is alverine citrate with simethicone.) Side effects.
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
emmjay77
in
IBS Network
6 months ago
8CT Scan Protocol
I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms + drug side effects. It's been 2 years since my last CT scan and hematologist wants to do one not because nodes are palpably swollen but because of my anxiety about other symptoms. This doesn't seem reason to expose myself
I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms + drug side effects. It's been 2 years since my last CT scan and hematologist wants to do one not because nodes are palpably swollen but because of my anxiety about other symptoms. This doesn't seem reason to expose myself
Amberesque
in
CLL Support
8 months ago
Lupus questions
Good afternoon, My doctor has been helping me with some ongoing symptoms, and following a positive ANA test has now referred me to a rheumatologist, theorising I may have Lupus. Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED My symptoms are: - mild arthritis in my neck, back
Good afternoon, My doctor has been helping me with some ongoing symptoms, and following a positive ANA test has now referred me to a rheumatologist, theorising I may have Lupus. Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED My symptoms are: - mild arthritis in my neck, back
EllsBells591
in
LUPUS UK
5 months ago
persistent oral thrush
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
oldtimer2
in
NRAS
3 months ago
IBS meds not working....
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Kooks
in
IBS Network
6 months ago
Feeling very not like myself, feeling like I can't control my thoughts during panic attacks. I want to go back to normal, what should I do?
I (20F) have always had anxiety, it is primarily situational and has never lasted more than a day, it was way worse when I was a kid but I've learned how to deal with it and control it more as an adult. fast-forward to now I've moved to college and have been doing pretty well so far (school and being
I (20F) have always had anxiety, it is primarily situational and has never lasted more than a day, it was way worse when I was a kid but I've learned how to deal with it and control it more as an adult. fast-forward to now I've moved to college and have been doing pretty well so far (school and being
Hidden
in
Anxiety and Depression Support
3 months ago
ADAA Blog: Tackling Shy Bladder Syndrome: Understanding and Managing Paruresis
Does the thought of using a public restroom fill you with dread? Shy bladder syndrome, or paruresis, is more than a minor inconvenience; it represents a significant performance anxiety disorder affecting countless individuals. An estimated two to seven percent of the population may navigate this challenge
Does the thought of using a public restroom fill you with dread? Shy bladder syndrome, or paruresis, is more than a minor inconvenience; it represents a significant performance anxiety disorder affecting countless individuals. An estimated two to seven percent of the population may navigate this challenge
ADAATeamRachel
Partner
in
Anxiety and Depression Support
3 months ago
Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Ced60
in
Restless Legs Syndrome
3 months ago
Newly diagnosed MBC
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
monkeygirl62
in
SHARE Metastatic Breast Cancer
8 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
6 months ago
cancer spread to bone marrow
My husband was told by his doctor that his prostate cancer might have spread to the bone marrow. He is waiting to have Bone marrow biopsy done. Has anyone had their cancer spread to the marrow and what type of treatment have you done?
My husband was told by his doctor that his prostate cancer might have spread to the bone marrow. He is waiting to have Bone marrow biopsy done. Has anyone had their cancer spread to the marrow and what type of treatment have you done?
Peloton
in
Advanced Prostate Cancer
8 months ago
Functional B12 problem, advice wanted
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Uluru72
in
Pernicious Anaemia Society
6 months ago
Information and experiences please?
Hello. I am new, here on behalf of a friend with lung cancer. She is an otherwise healthy 75 year-old. A CT scan shows multiple spots in her lungs as well as a mass. She is to hear the results of a PET scan on Wednesday and to talk about treatment. Can you give us some idea what to expect? If the
Hello. I am new, here on behalf of a friend with lung cancer. She is an otherwise healthy 75 year-old. A CT scan shows multiple spots in her lungs as well as a mass. She is to hear the results of a PET scan on Wednesday and to talk about treatment. Can you give us some idea what to expect? If the
marcyh
in
Lung Cancer Support
8 months ago
HCC cancer diagnosis
Hi everyone. my partner recently diagnosed with HCC and awaiting which treatment he should have. Either ablation or resection. The hospital called and told him the surgeon is unsure if it is hcc and wants a ct scan done. Now we are wondering what it could be. Has anyone else had this experience .
Hi everyone. my partner recently diagnosed with HCC and awaiting which treatment he should have. Either ablation or resection. The hospital called and told him the surgeon is unsure if it is hcc and wants a ct scan done. Now we are wondering what it could be. Has anyone else had this experience .
pussycat66
Patient
in
Blue Faery Liver Cancer
8 months ago
Finally a specialist appointment...
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
NewEnglander
in
IBS Network
6 months ago
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