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Best treatment for Post PV/MF ?
I'm wondering Which medication is more effective for post pv/mf. Ruxolitinib or interferon? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with
I'm wondering Which medication is more effective for post pv/mf. Ruxolitinib or interferon? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with
MCW22
in
MPN Voice
3 months ago
Maltofer
Hi -- just curious if anyone is using Maltofer to raise their ferritin? It's chief benefit is that it has fewer gastrointestinal side effects than the ferrous iron salts. Thanks.
Hi -- just curious if anyone is using Maltofer to raise their ferritin? It's chief benefit is that it has fewer gastrointestinal side effects than the ferrous iron salts. Thanks.
Whippetmama
in
Restless Legs Syndrome
3 months ago
Ferritin and Iron levels
After an infusion three months ago my ferritin has increased from 18 to 202 but my iron is still only 11 a slight increase from 8 My RBD is still in the red at 15.2% range is up to 14.8% . Coud someone help with these results please ?
After an infusion three months ago my ferritin has increased from 18 to 202 but my iron is still only 11 a slight increase from 8 My RBD is still in the red at 15.2% range is up to 14.8% . Coud someone help with these results please ?
davina70
in
Pernicious Anaemia Society
3 months ago
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Armour Thyroid for over 20 years
I have been taking Armour thyroid since 2000... Have had my current Dr for at least 20. When I had COVID last time (about 2 years ago .. very mild case) I noticed my TSH was up (over 3...very high for me and on Armour). I mentioned it to my Dr and she suggested waiting, it could be temporary. In the
I have been taking Armour thyroid since 2000... Have had my current Dr for at least 20. When I had COVID last time (about 2 years ago .. very mild case) I noticed my TSH was up (over 3...very high for me and on Armour). I mentioned it to my Dr and she suggested waiting, it could be temporary. In the
NanaV54
in
Thyroid UK
3 months ago
new test results and dose review advice.
Hello, I was started on levothyroxine by my GP on the 8th of January following test results that showed hypothyroidism. I had had symptoms for a while snd thought they were perimenopause, but my TSH levels were tested previously and came back ok (as shown by my July 2023 test results) T4 wasn’t tested
Hello, I was started on levothyroxine by my GP on the 8th of January following test results that showed hypothyroidism. I had had symptoms for a while snd thought they were perimenopause, but my TSH levels were tested previously and came back ok (as shown by my July 2023 test results) T4 wasn’t tested
Phoenix_24
in
Thyroid UK
3 months ago
Blood results interpretation required
Hi there, I need help interpreting my results. My symptoms are brain fog, joint aches, lack of energy and anxiety. These have been with me all my life. They got better in 2022 when I started combination therapy. However, I do not think I have reached my optimum (whatever that is) because these symptoms
Hi there, I need help interpreting my results. My symptoms are brain fog, joint aches, lack of energy and anxiety. These have been with me all my life. They got better in 2022 when I started combination therapy. However, I do not think I have reached my optimum (whatever that is) because these symptoms
Carlax
in
Thyroid UK
3 months ago
I need some help with this
I am having the most painful but weird cramping. It is only a night and it is getting worse, not better. Yesterday I had them and I did not have dialysis because we infiltrated the fistula, AGAIN. We thought it was the iron I was taking, but I stopped that last week. These cramps are not in my calves
I am having the most painful but weird cramping. It is only a night and it is getting worse, not better. Yesterday I had them and I did not have dialysis because we infiltrated the fistula, AGAIN. We thought it was the iron I was taking, but I stopped that last week. These cramps are not in my calves
Bassetmommer
in
Kidney Dialysis
3 months ago
Masked pv?
Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Spanelmad
in
MPN Voice
3 months ago
NAC with ferritin deficiency or PA
Hi all. Just thought I’d pop in and ask my new friends if they know of any reason NAC shouldn’t be taken with iron tablets or B12, or whether NAC could actually have a negative effect on ferritin/B12 levels. Can’t find any info on this, so here I am 😊 I am awaiting latest blood results, so don’t
Hi all. Just thought I’d pop in and ask my new friends if they know of any reason NAC shouldn’t be taken with iron tablets or B12, or whether NAC could actually have a negative effect on ferritin/B12 levels. Can’t find any info on this, so here I am 😊 I am awaiting latest blood results, so don’t
MLJ2024
in
Pernicious Anaemia Society
3 months ago
Elevated iron levels-advice please
Hi, Would just like a bit of advice. After years of infertility and miscarriages, we were referred for fertility testing. We have been refused for IVF on NHS due to diminished ovarian reserve which is pretty low for my age. I am 42 years old. I have always been aware that my haemaglobin has been on
Hi, Would just like a bit of advice. After years of infertility and miscarriages, we were referred for fertility testing. We have been refused for IVF on NHS due to diminished ovarian reserve which is pretty low for my age. I am 42 years old. I have always been aware that my haemaglobin has been on
Believeinmiracles82
in
Haemochromatosis Society UK
3 months ago
Iron plus zinc better for iron deficiency anemia
reading about zinc I came across the following article. I mean it focuses on chronic kidney desease but I found this gem of info stating that zinc combined with iron is better than iron alone. Now I'm not iron deficient. But I thought this might be interesting for those who are. Beware too much zinc
reading about zinc I came across the following article. I mean it focuses on chronic kidney desease but I found this gem of info stating that zinc combined with iron is better than iron alone. Now I'm not iron deficient. But I thought this might be interesting for those who are. Beware too much zinc
B12life
in
Pernicious Anaemia Society
3 months ago
What to ask Endo?
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Sesameseed82
in
Thyroid UK
3 months ago
Results Advice
Hi looking for some advice on my recent blood results please. I followed all protocols for testing as per usual. My iron seems to have gone down so I’m back to taking two supplements a day as I dropped it to one after my last results in November. Been feeling tired a lot with not much energy but I’
Hi looking for some advice on my recent blood results please. I followed all protocols for testing as per usual. My iron seems to have gone down so I’m back to taking two supplements a day as I dropped it to one after my last results in November. Been feeling tired a lot with not much energy but I’
PrincessAnnie
in
Thyroid UK
3 months ago
Heartened to know I am not alone in the struggles caused by pramipexole
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
SleeplessinNC
in
Restless Legs Syndrome
3 months ago
Blood work
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Jojomcc
in
Thyroid UK
3 months ago
Ferritin Questions
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Monkharris
in
Pernicious Anaemia Society
3 months ago
Tsh 7.09
Hello My mum is 86 & on 75mg level. She has recently had an iron infusion privately as had a ferritin of just 6. Those levels now normal I asked for a full thyroid but they don't do T3 & will have to do a fingerprick test on her. (If she agrees!) Tsh 7.09 (0.35 - 5.5) T4 16.6 (10.5 - 21)
Hello My mum is 86 & on 75mg level. She has recently had an iron infusion privately as had a ferritin of just 6. Those levels now normal I asked for a full thyroid but they don't do T3 & will have to do a fingerprick test on her. (If she agrees!) Tsh 7.09 (0.35 - 5.5) T4 16.6 (10.5 - 21)
Mollop
in
Thyroid UK
3 months ago
Levothyroxine
I would discuss your results with your GP and also let them know what oral iron vitamins etc you are taking and make a decision from there. You should be able to book a telephone consultation. Goid luck
I would discuss your results with your GP and also let them know what oral iron vitamins etc you are taking and make a decision from there. You should be able to book a telephone consultation. Goid luck
leeHil
in
Thyroid UK
3 months ago
Newbie needs advice
Hey all 💖 So, I've classically been misdiagnosed with fibromyalgia after 7 years shuttling back and forth to gp. Been served anemic for two years just palmed off with iron tablets. Have so many symptoms of lupus, but only realised when I logged onto gp records online to see that my latest bloods show
Hey all 💖 So, I've classically been misdiagnosed with fibromyalgia after 7 years shuttling back and forth to gp. Been served anemic for two years just palmed off with iron tablets. Have so many symptoms of lupus, but only realised when I logged onto gp records online to see that my latest bloods show
Siouxsiesioux
in
LUPUS UK
3 months ago
Should I be asking for an increase in Levo?
I have an appt with my endo on Thursday to discuss my latest results and those from last August and April when I was taking different amounts of levo. I always follow the suggested procedure of stopping Vit B complex a week before, early blood test and not taking levo for 24 hours. My most recent
I have an appt with my endo on Thursday to discuss my latest results and those from last August and April when I was taking different amounts of levo. I always follow the suggested procedure of stopping Vit B complex a week before, early blood test and not taking levo for 24 hours. My most recent
Feelingrubbish
in
Thyroid UK
3 months ago
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