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Small bowel transplant
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39 public communities
Kidney Transplant
3,565 members
Welcome to the National Kidney Foundation's Transplant Community! Whether you have had a transplant, are waiting for a transplant, or are a family/friend/caregiver, here you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
National Foundation for Transplants
301 members
At the National Foundation for Transplants, our goal is to ensure that transplant patients are given every opportunity to fully enjoy the gift of life. Since 1983, NFT has offered fundraising support and expertise to transplant patients across the country. In that time, we have helped generate nearly $65 million to assist patients in need.
Small Cell Lung Cancer Support
107 members
The Small Cell Lung Cancer Support Community is a peer support network run by the GO2 for Lung Cancer: https://go2foundation.org/, the place where people impacted by small cell lung cancer can connect, learn, and find hope and support. We are focused on understanding and meeting the needs of the small cell lung cancer community from diagnosis through treatment and on to survivorship. Your needs are important – Click HERE: https://www.surveymonkey.com/r/QDFNG7R to take the Small Cell Lung Cancer Survey: Understanding Your Needs To learn more about Small Cell Lung Cancer, Click HERE: https://go2foundation.org/what-is-lung-cancer/types-of-lung-cancer/small-cell-lung-cancer/ and explore the GO2 Small Cell Lung cancer education materials, videos, and more. Through our Small Cell Lung Cancer Initiative, we have dedicated and knowledgeable staff to answer questions and provide resources to you whether you are a patient, caregiver, or loved one. If you would like personalized support, treatment information, clinical trial assistance, or if you just have questions, please call our helpline at 800-298-2436, email at support@go2.org
Kidney Transplant Patient Support
1,320 members
Welcome to our community! We are a group of people all affected by kidney transplants looking to share information and support.
Bowel Disease Support
1,374 members
We are a peer support community for people living with bowel disease. Here we share our experiences, ask questions and support each other!
PBCers Organization
1,407 members
PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) information and offer support to its members. Topics discussed include symptoms, medication, diet, personal experiences, transplant and anything else PBC related.
IBS Network
47,835 members
The IBS Network is the national charity that helps people with Irritable Bowel Syndrome (IBS) and has provided support to those with the condition and to healthcare professionals for over 25 years. Funding for the charity is received from a number of sources, including: annual memberships, an online shop for purchasing the ‘Can’t Wait’ card, Radar keys and other useful aids, in addition to income from legacies.
Lynch Syndrome UK
115 members
Lynch syndrome (LS) is a genetic disorder that causes an increase in certain cancers at an earlier age than usual. There about 12 cancers that can be affected, the commonest are large bowel cancer and rectal cancer. After that, the next most common is womb cancer. LS tends to run in families so it is usual to find than people in different generations have one of these cancers. Find out more on our website lynch-syndrome-uk.org
Alopecia UK
1,495 members
Alopecia UK is a small national charity working to improve the lives of those affected by alopecia through aims of support, awareness, research and fundraising. Despite being a small charity we are still the largest alopecia charity in the UK with big ambitions to develop and grow further. Alopecia UK was founded in 2004 and registered with the Charity Commission of England & Wales in September 2005. Registration with the Scottish Charity Regulator took place in February 2014. We also have a website full of information and support - https://www.alopecia.org.uk/ As well as a very active closed Facebook group - https://www.facebook.com/groups/AlopeciaUK/ Our HealthUnlocked forum is still fairly quiet, as such if you ever find your post goes unanswered or you'd like some further help please consider joining the Facebook group or contacting the charity directly.
Living with a Stoma
1,018 members
We are a peer support community for people who experienced stoma or are affected by stoma surgery on their bowel or bladder. Join us to discuss your condition, ask questions and get quick advice from others like you!
Multiple System Atrophy Trust
1,669 members
The Multiple System Atrophy Trust is the only charity in the UK and Ireland that provides information and support to people affected by Multiple System Atrophy (MSA). We do this through a number of ways including our three MSA Nurse Specialists, a network of Support Groups, information resources and our MSA News magazine. We also provide funding towards research projects and small grants to our members. We are entirely funded by voluntary donations. Share your stories, ask questions and support one another!
ERIC
8,889 members
We are a community that supports families with children or teenagers who have bowel and/or bladder problems (including potty training, bedwetting, daytime wetting and constipation/soiling). Please feel free to ask our members any questions you might have about these conditions or to share your own experience of managing a continence problem in childhood or adolescence. Most of our members are parents but we do also have some young people who contribute. Whatever your situation, we hope you feel welcome here. If you would like to speak to an expertly trained continence advisor, please call the helpline run by ERIC, The Children's Bowel & Bladder Charity on 0808 169 9949. The telephone helpline is open Monday to Thursday 10am - 2pm and calls are free from landline and mobiles.
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