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Anyone somatic BRCA mutation in tumour?
Hi all, I’m wondering if anyone had their tumour tested positive for BRCA1/2 mutation, but your genetic test (via blood/saliva) tested negative? And if so, did your oncology team explain what that means especially regarding if it puts you at a higher risk to develop breast cancer. At my recent oncology
Hi all, I’m wondering if anyone had their tumour tested positive for BRCA1/2 mutation, but your genetic test (via blood/saliva) tested negative? And if so, did your oncology team explain what that means especially regarding if it puts you at a higher risk to develop breast cancer. At my recent oncology
ruthg55
in
My Ovacome
7 months ago
Burning tongue and metallic taste .
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
I was dx 10 years ago. Had FCR, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
GIDI
in
CLL Support
20 days ago
Cognition Issues
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
JolleySprings
in
Advanced Prostate Cancer
7 months ago
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So down today 🥺 Why does everything take so long and nothing helps
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
Mindfullness4791
in
Endometriosis UK
5 months ago
In hospital again over oxygen levels & new happening Dizzy spells & panic attacks
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Sara_2611
in
Lung Conditions Community Forum
21 days ago
IBS Diarrhoea
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Buddybella
in
IBS Network
5 months ago
chronic rectal bleeding, colonoscopy normal
I have been dealing with chronic rectal bleeding for at least 8 months, if not more. Been blown off by doctors. My family doctor finally sent me to a general surgeon who ordered a colonoscopy. Was instantly not a fan of him. My consultation was literally a minute long. He was very arrogant, and didn’
I have been dealing with chronic rectal bleeding for at least 8 months, if not more. Been blown off by doctors. My family doctor finally sent me to a general surgeon who ordered a colonoscopy. Was instantly not a fan of him. My consultation was literally a minute long. He was very arrogant, and didn’
Bulldogmomma73
in
Colon Cancer Connected
5 months ago
You can't fool mother nature
I can not find the post which recommends this video. It was less than a week ago. It is 3 hours long so I recorded the audio and listened to it while working in my shop. I recommend it to anyone who has cancer or knows anyone who has cancer or really anyone. For me the most important take aways are intermittent
I can not find the post which recommends this video. It was less than a week ago. It is 3 hours long so I recorded the audio and listened to it while working in my shop. I recommend it to anyone who has cancer or knows anyone who has cancer or really anyone. For me the most important take aways are intermittent
spencoid2
in
Advanced Prostate Cancer
7 months ago
Brutal Panic/Anxiety
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Goinboating
in
Anxiety and Depression Support
24 days ago
calprotectin levels
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Lo181
in
Bowel Disease Support
6 months ago
Break ups?? Walk in the park
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
detour13
in
Anxiety and Depression Support
25 days ago
Night sweats etc.
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
Washingup
in
PMRGCAuk
10 months ago
Wednesday's Word
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
[u][i]
MRCP -
[/i][/u] This is a type of body scan that examines the bile ducts in great detail. It uses magnetic resonance imaging (MRI). Prior to this test, the examination of the bile ducts for gallstones or some type of blockage was done with the placement of a scope called ERCP. This was
DonnaBoll
Administrator
in
PBC Foundation
26 days ago
Octasa / Mesalazine - Should I be seeing more of a change?
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
VV_1990
in
Crohn's and Colitis Support
5 months ago
Seeking advice about starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Texas_Mom
in
My Ovacome
6 months ago
one more tumor marker question?
As some of you read my moms 15-3 marker went up from 163 to 332. She’s been on her new combo for 7 weeks. Everolimus and Faslodex . She finished a five day radiation treatment to the leg in her bone on Sept. 29th and then they did a tumor marker 20 days later and it had almost doubled . This is
As some of you read my moms 15-3 marker went up from 163 to 332. She’s been on her new combo for 7 weeks. Everolimus and Faslodex . She finished a five day radiation treatment to the leg in her bone on Sept. 29th and then they did a tumor marker 20 days later and it had almost doubled . This is
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
Webinar: Exploring Valeda light therapy for AMD
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
Carol_MacularSociety
Partner
in
Macular Society
27 days ago
I don't fall into any category not IBS-D or IBS-C...is it still IBS?
I can't say I have diarrhea or constipation....but my gut does react to stress.It changes my stool shape, thickness, at times color but I don't necessarily have diarrhea or constipation. Maybe once a month I'll have diarrhea Anyone have this? Could I still have IBS? thank you
I can't say I have diarrhea or constipation....but my gut does react to stress.It changes my stool shape, thickness, at times color but I don't necessarily have diarrhea or constipation. Maybe once a month I'll have diarrhea Anyone have this? Could I still have IBS? thank you
Catsandsunsets
in
IBS Network
5 months ago
What are "normal" bowel movements?
With IBS have you noticed your stool never looks the same? Has anyone seen a change in how their stools look? Do they seem erratic, every day they look different? Sometimes it's thinner, sometimes it's not as long, sometimes it's short, sometimes it's weird shaped like a J...etc. Have you had a
With IBS have you noticed your stool never looks the same? Has anyone seen a change in how their stools look? Do they seem erratic, every day they look different? Sometimes it's thinner, sometimes it's not as long, sometimes it's short, sometimes it's weird shaped like a J...etc. Have you had a
Catsandsunsets
in
IBS Network
5 months ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
28 days ago
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