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Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I have started taking 5 a day and then add in
Sinemet
CR
25mg Levodopa at night to try and get some sleep. If RLS kicks in it can take up to 2 hours + to get back on track! Am I heading for problems in the future by doing this? I can't stick the discomfort it gets me down.
I have started taking 5 a day and then add in
Sinemet
CR
25mg Levodopa at night to try and get some sleep. If RLS kicks in it can take up to 2 hours + to get back on track! Am I heading for problems in the future by doing this? I can't stick the discomfort it gets me down.
Yogibear
in
Cure Parkinson's
12 years ago
What is the maximum amount of sinemet daily?
It seems that Sinemet is not working. I get about 3 hrs on and the rest of the day off. I take a 50/200 @ bed and one during the nite. 2ea 25/100 when I get up and every 2 to 3 hrs during the day. What can I take to help extend on time.
It seems that Sinemet is not working. I get about 3 hrs on and the rest of the day off. I take a 50/200 @ bed and one during the nite. 2ea 25/100 when I get up and every 2 to 3 hrs during the day. What can I take to help extend on time.
merlethegirl
in
Cure Parkinson's
12 years ago
Self managing PD - Are we serious or not?
I’m back. With good reason though, inspired by a message I received, I decided to post. The following issues, in my opinion, are not being addressed properly within the whole pd community. (I am in the UK but this could equally apply anywhere). Ok here we go. (Another lengthy one) The drugs
I’m back. With good reason though, inspired by a message I received, I decided to post. The following issues, in my opinion, are not being addressed properly within the whole pd community. (I am in the UK but this could equally apply anywhere). Ok here we go. (Another lengthy one) The drugs
Leyther
in
Cure Parkinson's
12 years ago
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I'm on Sinemet 25/100 (1 1/2 tablet) 4 times a day. I can honestly say it doesn't seem like my symptoms ever change, I don't feel like I
have on/off periods. My Neuro is going to have me go off my meds for 48 hours then have me come into the office and run me through the usual tests. Then he is going to medicate me and then check me again to see what changes, if anything. I was diagnosed with Parkinson's in July 2010 and initially
have on/off periods. My Neuro is going to have me go off my meds for 48 hours then have me come into the office and run me through the usual tests. Then he is going to medicate me and then check me again to see what changes, if anything. I was diagnosed with Parkinson's in July 2010 and initially
tlongmire
in
Cure Parkinson's
12 years ago
diet while taking sinemet
Hello friends: I'm looking for information on diet while taking sinemet. Is anyone aware of books with solid advice on what and when to eat while taking sinemet 4 times per day. Any advice on foods to avoid? Thanks
Hello friends: I'm looking for information on diet while taking sinemet. Is anyone aware of books with solid advice on what and when to eat while taking sinemet 4 times per day. Any advice on foods to avoid? Thanks
grayland
in
Cure Parkinson's
12 years ago
Boost Sinemet with Madopar Dispersible YES OR NO?
"if you need to take an extra sinemet thats ok, it may differ from day to day. Use the dispersible as required, just keep to a minimum, but if you need them, you need to take them". What does my PD Nurse mean by the above in quotations? not to boost the Sinement with Madopar Dispersible? does she
"if you need to take an extra sinemet thats ok, it may differ from day to day. Use the dispersible as required, just keep to a minimum, but if you need them, you need to take them". What does my PD Nurse mean by the above in quotations? not to boost the Sinement with Madopar Dispersible? does she
Yogibear
in
Cure Parkinson's
12 years ago
Does anyone know how my mum can stabilise after going into freefall?
My mum started taking madopar to boost her rasagiline but this has coincided with her having diarrohea. She was switched to Sinemet but the diarrohea has persisted so she's now off that too and on rasagiline only. A stool sample and bowel cancer test have come back as normal so I think maybe levodopar
My mum started taking madopar to boost her rasagiline but this has coincided with her having diarrohea. She was switched to Sinemet but the diarrohea has persisted so she's now off that too and on rasagiline only. A stool sample and bowel cancer test have come back as normal so I think maybe levodopar
mymumhasPD
in
Cure Parkinson's
12 years ago
Pramipexole
Last year I suffered from restless leg syndrome for about 7 months. After seeing my consultant is was agreed that I take 0.088mg of pramipexole (mirapexin) to try and enable me to sleep. It worked. Brilliant. Slept every night since. Saw my consultant the next month and he decided on a program
Last year I suffered from restless leg syndrome for about 7 months. After seeing my consultant is was agreed that I take 0.088mg of pramipexole (mirapexin) to try and enable me to sleep. It worked. Brilliant. Slept every night since. Saw my consultant the next month and he decided on a program
drew410
in
Cure Parkinson's
12 years ago
Does anyone have any experience of travel vaccinations and anti-malaria medication while taking PD meds (Azilect, Requip XL, Sinemet Plus) ?
Caroj
in
Cure Parkinson's
12 years ago
Comments on Madopar and Requip XL
Currently taking 22mg Requip XL once a day at 7:30am .I've already tried Sinemet but they made me feel worse.PD nurse suggested Madopar dissolvable , 1x 62.5mg a day before i get up as i have mobility problems first thing in the morning. Does anyone out there have any experience of this combination?
Currently taking 22mg Requip XL once a day at 7:30am .I've already tried Sinemet but they made me feel worse.PD nurse suggested Madopar dissolvable , 1x 62.5mg a day before i get up as i have mobility problems first thing in the morning. Does anyone out there have any experience of this combination?
Helshubby
in
Cure Parkinson's
12 years ago
Are Sinemet and Madopar the same thing - L-Dopa ?
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Helshubby
in
Cure Parkinson's
12 years ago
MEMORYGet yourself a drink. It may take a while to read this.
Today I lost my memory. I just could not remember where I put it but for the life of me I could not find it. I knew it had to be somewhere but where? I felt great. Made a coffee and watched the news on TV. Went back into the bedroom and I remembered where my memory was. In an instant the last 13 years
Today I lost my memory. I just could not remember where I put it but for the life of me I could not find it. I knew it had to be somewhere but where? I felt great. Made a coffee and watched the news on TV. Went back into the bedroom and I remembered where my memory was. In an instant the last 13 years
drew410
in
Cure Parkinson's
12 years ago
Has anyone been taking sinemet? I was prescribed it but find that it makes me too nauseated to continue.
LyndaEllis
in
PSP Association
12 years ago
Are you on Sinemet? Is it worth the side effects?
Seems that a lot of PWPs on this site report side effects.
Seems that a lot of PWPs on this site report side effects.
Jerebet
in
Cure Parkinson's
12 years ago
Does anyone else suffer from foot dystonia? Anything work?
After several hours of standing I am also crippled with pain. Being sedentary is not good either. Any one have any suggestions? Taking sinemet and requip.
After several hours of standing I am also crippled with pain. Being sedentary is not good either. Any one have any suggestions? Taking sinemet and requip.
HomeinVa
in
Cure Parkinson's
12 years ago
Drugs not toxic
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Hidden
in
Cure Parkinson's
12 years ago
When I eat proien I get a Sinemet "fail". Can anyone recommend a good low protein diet. I'm losing too much weight!
Timodopa
in
Cure Parkinson's
12 years ago
The Dark Years (warning my blogs are not all full of cheer&hope)
I don't know why I write these blogs. I guess it more of a therapy for me to vent my feelings. Parkinson's, I hate that word. I read a lot of hopes for cure, great attitudes and I don't want to bring any one down ..So if you don't want to read a non-positive blog don"t read this. I am here to tell
I don't know why I write these blogs. I guess it more of a therapy for me to vent my feelings. Parkinson's, I hate that word. I read a lot of hopes for cure, great attitudes and I don't want to bring any one down ..So if you don't want to read a non-positive blog don"t read this. I am here to tell
Captsteve
in
Cure Parkinson's
13 years ago
Tiredness
I was dx about two years ago, but I think I had PD coming quite a while before that. The doc saysI have a mild case. The only tremor have is in my mouth - teeth chatter. Balance etc. is not good. But I am so tired all the time - No energy to do anything. I'm on six Sinemet a day.. Does anyone have
I was dx about two years ago, but I think I had PD coming quite a while before that. The doc saysI have a mild case. The only tremor have is in my mouth - teeth chatter. Balance etc. is not good. But I am so tired all the time - No energy to do anything. I'm on six Sinemet a day.. Does anyone have
Owenbob
in
Cure Parkinson's
12 years ago
My PD
I’m so glad I had found this site; I can read and write to people who are just like me.Now I don’t know about the rest, but PD has created havoc in my life. I rarely go out, this because I get panicky when the Sinemet goes out my system, and I’m in public. I hated when ppl stared, or when I’m in the
I’m so glad I had found this site; I can read and write to people who are just like me.Now I don’t know about the rest, but PD has created havoc in my life. I rarely go out, this because I get panicky when the Sinemet goes out my system, and I’m in public. I hated when ppl stared, or when I’m in the
Antonio_Montolio
in
Cure Parkinson's
13 years ago
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