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Parkinsons / Parkinsonism ?
Hello This is my first post here. My hubby was taking Venaflaxine in August then by mid Sept was taken off cold turkey as had slurred speech. Both CAT & MRI brain scans came back clear. Beg of October was put on Lyrica - speech got worse and also walking issues began to kick in which still exist now
Hello This is my first post here. My hubby was taking Venaflaxine in August then by mid Sept was taken off cold turkey as had slurred speech. Both CAT & MRI brain scans came back clear. Beg of October was put on Lyrica - speech got worse and also walking issues began to kick in which still exist now
Stonroy
in
Cure Parkinson's
7 years ago
Seeking Comments From those combining Mucuna Pruriens (MC) with their Sinemet (C/L)
When combining MC w/C/L how does that seem to work best for you? I believe there must be a better way than I have done so far. I have taken them at the same time and independently and one awhile before the other in both directions. I've taken MP with water, juice, hot pineapple juice as a hot beverage
When combining MC w/C/L how does that seem to work best for you? I believe there must be a better way than I have done so far. I have taken them at the same time and independently and one awhile before the other in both directions. I've taken MP with water, juice, hot pineapple juice as a hot beverage
BUZZ1397
in
Cure Parkinson's
7 years ago
Azilect and aches and pains
One of the continual frustrations with PD is not knowing what causes what. I started taking a very low dose of azilect, .5 milligram, in addition to the Sinemet, three times a day 25/100, and after a few days I had pain in my back where I get dystonia and in my arms and general discomfort. Apparently
One of the continual frustrations with PD is not knowing what causes what. I started taking a very low dose of azilect, .5 milligram, in addition to the Sinemet, three times a day 25/100, and after a few days I had pain in my back where I get dystonia and in my arms and general discomfort. Apparently
Enidah
in
Cure Parkinson's
7 years ago
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The weather
If you live in an area of changeable weather, does it effect how you feel or how the symptoms of PD increase or decrease, if on Sinemet do you feel cold even when the weather is not, when coming up for another dose? If effected how do you deal with what is happening?
If you live in an area of changeable weather, does it effect how you feel or how the symptoms of PD increase or decrease, if on Sinemet do you feel cold even when the weather is not, when coming up for another dose? If effected how do you deal with what is happening?
Tamarisk
in
Cure Parkinson's
7 years ago
Ingesting potentially toxic non-foods as a toddler a pre- cursor for developing Juvenile On-set Parkinson's
As a toddler I used to get up to all sorts of mischief apparently and was forever putting strange things in my mouth and then proceeding to ingest them. The list includes eating soil and sand ,drinking some brake fluid I found , licking a paint brush clean of emulsion paint and sucking the pink phosphorus
As a toddler I used to get up to all sorts of mischief apparently and was forever putting strange things in my mouth and then proceeding to ingest them. The list includes eating soil and sand ,drinking some brake fluid I found , licking a paint brush clean of emulsion paint and sucking the pink phosphorus
Bionicmatt
in
Cure Parkinson's
7 years ago
An interesting read on Botox Therapy from CurePSP. For those of you not on Facebook.
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients November 29, 2016 | By Lucas Metherall Categories: Research News Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith brent-bluett-do-suit-jacket-ju6_2109Very few patients with a rare brain disease such as Progressive Supranuclear
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients November 29, 2016 | By Lucas Metherall Categories: Research News Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith brent-bluett-do-suit-jacket-ju6_2109Very few patients with a rare brain disease such as Progressive Supranuclear
am2015
in
PSP Association
7 years ago
Rotigotine ( Neupro ) ?
My Dad is 80yrs old. Has Parkinson's and was on Sinemet & other Meds. Became poorly with heart rate of 40 (!) & slight pneumonia. Admitted to Hosp & advised needed Pacemaker. He had "seizure" and they would not do Pacemaker. Very ill, Consultant told us he may die & we decided on not to have him resuscitated
My Dad is 80yrs old. Has Parkinson's and was on Sinemet & other Meds. Became poorly with heart rate of 40 (!) & slight pneumonia. Admitted to Hosp & advised needed Pacemaker. He had "seizure" and they would not do Pacemaker. Very ill, Consultant told us he may die & we decided on not to have him resuscitated
julieju
in
Cure Parkinson's
7 years ago
Update on high b/p azilect and theanine in Gabba-Plex
About 3 months ago I was struggling to manage elevated b/p and to continue to take a Rx of Azilect and also to continue to take otc Gabba-Plex. Briefly, the history is that theanine in the Gabba-Plex increased the elevation of my b/p a common side-effect to Azilect. The update is that by taking just
About 3 months ago I was struggling to manage elevated b/p and to continue to take a Rx of Azilect and also to continue to take otc Gabba-Plex. Briefly, the history is that theanine in the Gabba-Plex increased the elevation of my b/p a common side-effect to Azilect. The update is that by taking just
BUZZ1397
in
Cure Parkinson's
7 years ago
Jumping legs!
My husband was diagnosed with grade 2. PD 3 years ago. He is doing pretty well on sinemet. The main problem is jumping legs, either one. Usually late in the day. This is apparently Repetitive Limb Movement and Sinemet is also a drug for this but it can make it worse. Does anyone else have this? It
My husband was diagnosed with grade 2. PD 3 years ago. He is doing pretty well on sinemet. The main problem is jumping legs, either one. Usually late in the day. This is apparently Repetitive Limb Movement and Sinemet is also a drug for this but it can make it worse. Does anyone else have this? It
KenbrookLondon
in
Cure Parkinson's
7 years ago
PD or LBD and what about me?
My husband of 12 years was diagnosed with Parkinson's four years ago at the age of 51. It was never a definitive diagnosis and depending who we see, I can tell that they have doubts. We're in Canada, so no one will give him a SPECT or PET scan to even attempt to confirm a diagnosis. His on and off episodes
My husband of 12 years was diagnosed with Parkinson's four years ago at the age of 51. It was never a definitive diagnosis and depending who we see, I can tell that they have doubts. We're in Canada, so no one will give him a SPECT or PET scan to even attempt to confirm a diagnosis. His on and off episodes
TheGimba
in
Cure Parkinson's
7 years ago
Bathroom issues
Dad was having severe constipation, up to 7 days. Even with lachulose twice a day and prune juice. No results. Even slow results with using suppository. Neurologist just stopped sinemet to see if that helps. It seems to have helped but now he has been unable to urinate and now has a catheter last
Dad was having severe constipation, up to 7 days. Even with lachulose twice a day and prune juice. No results. Even slow results with using suppository. Neurologist just stopped sinemet to see if that helps. It seems to have helped but now he has been unable to urinate and now has a catheter last
Lucy602
in
PSP Association
7 years ago
40 years and counting ......
Hi everyone ! I am new here but i am not new to Parkinson's disease having developed symptoms aged eight and started on Sinemet 110mg shortly afterwards. I am now entering my 41st year with PD so I have plenty of experience !
Hi everyone ! I am new here but i am not new to Parkinson's disease having developed symptoms aged eight and started on Sinemet 110mg shortly afterwards. I am now entering my 41st year with PD so I have plenty of experience !
Bionicmatt
in
Cure Parkinson's
7 years ago
Thanksgiving Day Tremors!
I know, it is not Thanksgiving Day yet! But I have to share this story. Ok, so I forego going to church yesterday so that I can get up early to do my Thanksgiving dinner shopping. Well , I don't really go to church much, but it sounds good, right? I always have to bundle up when I go to almost any
I know, it is not Thanksgiving Day yet! But I have to share this story. Ok, so I forego going to church yesterday so that I can get up early to do my Thanksgiving dinner shopping. Well , I don't really go to church much, but it sounds good, right? I always have to bundle up when I go to almost any
Carolinagirl123
in
Cure Parkinson's
7 years ago
Question about Azilect
I am a stage3 possible 4 person with Parkinson's. I've taken very little pharmaceutical drugs so far. Mostly supplements. Is Azilect mostly for early stage 1 or 2 pwp? Can Azilect possibly help me at this late stage in my progression? Sinemet doesn't seem to work well for me. Please help.
I am a stage3 possible 4 person with Parkinson's. I've taken very little pharmaceutical drugs so far. Mostly supplements. Is Azilect mostly for early stage 1 or 2 pwp? Can Azilect possibly help me at this late stage in my progression? Sinemet doesn't seem to work well for me. Please help.
Blackfeather
in
Cure Parkinson's
8 years ago
Grapefruit fruit & Sinemet
Does anyone knows, scientifically, if there is reaction, positive or negative, between grapefruit and Sinemet? Love the juice but .....?
Does anyone knows, scientifically, if there is reaction, positive or negative, between grapefruit and Sinemet? Love the juice but .....?
RobertoOcana
in
Cure Parkinson's
8 years ago
Anxiety/panic attacks
Hi..I was diagnosed Jan 2012 at age 58. I'm currently on Sinemet 100/25 now 2-3 tab every 3 hours. It's been historical for me to start a dose ex: 1 tab every 6-8 hours and need to titration up to where I am today. In the past week I am now getting frequent panic attacks on the wearing off phase. My
Hi..I was diagnosed Jan 2012 at age 58. I'm currently on Sinemet 100/25 now 2-3 tab every 3 hours. It's been historical for me to start a dose ex: 1 tab every 6-8 hours and need to titration up to where I am today. In the past week I am now getting frequent panic attacks on the wearing off phase. My
Annie11
in
Cure Parkinson's
8 years ago
Medication wearing off early
Hi...I was diagnosed at 5 yrs ago. I'm on Sinemet 100/25 2-3 tablets every 3 hours. My neurologist informed my husband and I in March there wasn't anything else she could do for me???! Anyway she is gone for a year back in March 2017 My question is how do others handle coming off medication, not due
Hi...I was diagnosed at 5 yrs ago. I'm on Sinemet 100/25 2-3 tablets every 3 hours. My neurologist informed my husband and I in March there wasn't anything else she could do for me???! Anyway she is gone for a year back in March 2017 My question is how do others handle coming off medication, not due
Annie11
in
Cure Parkinson's
8 years ago
Sinemet and Restoril (Temazepam)
Has anyone heard that using Sinemet and Restoril together reduces the effectiveness of Sinemet? I take Sinenet and have been using Ambien for sleep for awhile but would like to get off of it as its effectiveness has been decreasing. I'll be talking to my doctor about this on my next visit, but I would
Has anyone heard that using Sinemet and Restoril together reduces the effectiveness of Sinemet? I take Sinenet and have been using Ambien for sleep for awhile but would like to get off of it as its effectiveness has been decreasing. I'll be talking to my doctor about this on my next visit, but I would
BarryJ
in
Cure Parkinson's
8 years ago
Vivid Dreams
Last night I had a nighmare and I awoke to find my husband grabbing my arm because I nearly hit him. I was, apparently, thrashing both arms in the air. Does anyone ele have this? I am on sinemet, 13 tabs daily in divided doses and was diagnosed in DEC 2015. Sheila
Last night I had a nighmare and I awoke to find my husband grabbing my arm because I nearly hit him. I was, apparently, thrashing both arms in the air. Does anyone ele have this? I am on sinemet, 13 tabs daily in divided doses and was diagnosed in DEC 2015. Sheila
Trenny
in
Cure Parkinson's
8 years ago
My tremor exacerbated by taking a B-complex
Recently I found that I needed more and more Sinemet and still could not effectively manage tremor. After noting anything and everything that had occurred or I had changed about my routine that may have caused the exacerbation, I started reversing course. Finally discovered it was a B vitamin complex
Recently I found that I needed more and more Sinemet and still could not effectively manage tremor. After noting anything and everything that had occurred or I had changed about my routine that may have caused the exacerbation, I started reversing course. Finally discovered it was a B vitamin complex
BUZZ1397
in
Cure Parkinson's
8 years ago
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