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Sinemet CR
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B1 Thiamin
To PWP who are taking B1, kindly share the first time you took it, what time of the day, how much and it’s effect on you and when is the next dose. I’m just overwhelmed at the moment and excited. Today, my husband started when he woke up at 5 a.m, 1-1/2 tab sinemet, 4 dopa mucuna pills and 2 (500 mg
To PWP who are taking B1, kindly share the first time you took it, what time of the day, how much and it’s effect on you and when is the next dose. I’m just overwhelmed at the moment and excited. Today, my husband started when he woke up at 5 a.m, 1-1/2 tab sinemet, 4 dopa mucuna pills and 2 (500 mg
pdwife41yrs
in
Cure Parkinson's
4 years ago
Hello again, I need help from all the knowledgeable experts here please.
I have withdrawn from 0.75 mg Pramipexole at bedtime once daily and 100/25 Sinemet once at bedtime starting August 2019. You all know how miserable that was .. I then went onto Gabapentin , increasing to 1200 mg in divided doses at bedtime, with Targin 25 mg at the same time. I have struggled with
I have withdrawn from 0.75 mg Pramipexole at bedtime once daily and 100/25 Sinemet once at bedtime starting August 2019. You all know how miserable that was .. I then went onto Gabapentin , increasing to 1200 mg in divided doses at bedtime, with Targin 25 mg at the same time. I have struggled with
wairoa36
in
Restless Legs Syndrome
4 years ago
Would you call this a step towards "recovery" from PD?
My purpose in writing this is to get feedback on whether my experiences are similar to anyone else's and to get your opinion about where I stand now and where I might be going. I'm not claiming to be recovered, but if you read the rest of this rather long post, you'll see that my condition has improved
My purpose in writing this is to get feedback on whether my experiences are similar to anyone else's and to get your opinion about where I stand now and where I might be going. I'm not claiming to be recovered, but if you read the rest of this rather long post, you'll see that my condition has improved
JerMan22
in
Cure Parkinson's
4 years ago
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How many hours do you sleep?
Does anyone sleep at least 6 hours straight at night? Or is it always fragmented for you? What do you do to have a good night's sleep. My dad can't seem to get more than 4-5 hours a night. Sometimes he takes a cbd/melatonin/valarian tincture, other times an Aleve night pill... He has taken marijuana
Does anyone sleep at least 6 hours straight at night? Or is it always fragmented for you? What do you do to have a good night's sleep. My dad can't seem to get more than 4-5 hours a night. Sometimes he takes a cbd/melatonin/valarian tincture, other times an Aleve night pill... He has taken marijuana
pdkid
in
Cure Parkinson's
4 years ago
Timing of Medication
I am a 72 year old woman who has had pd for 4.5 years. I can't seem to get my dosing of sinemet correct and suffer terrible off periods at least 3 times a day or more. I take 3 C/L ER 3 times a day and 1 C/L IR 25/100 4 times a day and I don't know what time to take the meds to keep my dopamine
I am a 72 year old woman who has had pd for 4.5 years. I can't seem to get my dosing of sinemet correct and suffer terrible off periods at least 3 times a day or more. I take 3 C/L ER 3 times a day and 1 C/L IR 25/100 4 times a day and I don't know what time to take the meds to keep my dopamine
schatsie
in
Cure Parkinson's
4 years ago
Rytary overdosage
My husband has been on Rytary since 11-19-19! Sinemet for 20 years before! We changed bc he was freezing a lot and we heard good things about Rytary! He has still been freezing, but under control! His 1:00 pm time had been his hardest so we upped it from three to four pills (48.75-195mg) and left
My husband has been on Rytary since 11-19-19! Sinemet for 20 years before! We changed bc he was freezing a lot and we heard good things about Rytary! He has still been freezing, but under control! His 1:00 pm time had been his hardest so we upped it from three to four pills (48.75-195mg) and left
grannma
in
Cure Parkinson's
4 years ago
Sinemet cr
I was talking to someone else with PD and told them I took 100cr every 2+half hours and they told me that it was dangerous to take them so often as the were designed to be take every 4+ hours . I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to
I was talking to someone else with PD and told them I took 100cr every 2+half hours and they told me that it was dangerous to take them so often as the were designed to be take every 4+ hours . I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to
Connie18
in
Cure Parkinson's
5 years ago
Significant cost increase for ER Sinemet?
Copay Cost of extended release Sinemet increased significantly in 2020. (10x) for me Regular release did not change anyone else notice this?
Copay Cost of extended release Sinemet increased significantly in 2020. (10x) for me Regular release did not change anyone else notice this?
Coot18
in
Cure Parkinson's
4 years ago
Advice if you can please
Hi was diagnosed pmr 6 years ago and have been on 2 mg Prednisolone last 18 months then tried very slow taper down to 1 over 5 weeks then started bad shoulder ache, top of arms and difficulty lifting arms and then scalp feeling sore. Over 4 days went from 2 to 5 then 7 then 10mg and last Sunday really
Hi was diagnosed pmr 6 years ago and have been on 2 mg Prednisolone last 18 months then tried very slow taper down to 1 over 5 weeks then started bad shoulder ache, top of arms and difficulty lifting arms and then scalp feeling sore. Over 4 days went from 2 to 5 then 7 then 10mg and last Sunday really
figtree2
in
PMRGCAuk
4 years ago
Off periods?
I can guess the answer is, "It depends..." But I'll ask anyway. After a dose of Sinemet the PD signs diminish but eventually return. That's the OFF period, as I understand it. How long does the Sinemet last? Why can't I take more Sinemet once the OFF period starts? Once I start Sinemet, how long
I can guess the answer is, "It depends..." But I'll ask anyway. After a dose of Sinemet the PD signs diminish but eventually return. That's the OFF period, as I understand it. How long does the Sinemet last? Why can't I take more Sinemet once the OFF period starts? Once I start Sinemet, how long
kaypeeoh
in
Cure Parkinson's
4 years ago
IF balance problem is from PD will Sinemet help?
Third sunday in a row I put on my 25# back pack and walked on the half-mile asphalt track surrounding the rec center. The first time I walked for three hours before having balance problems. The second time the balance problem started after two hours. Today the balance problem started after one hour
Third sunday in a row I put on my 25# back pack and walked on the half-mile asphalt track surrounding the rec center. The first time I walked for three hours before having balance problems. The second time the balance problem started after two hours. Today the balance problem started after one hour
kaypeeoh
in
Cure Parkinson's
4 years ago
Does Sinemet cause anyone else intense yawning?
I have been having great success with Sinemet, Vitamin B1, and fast walking. I’m doing better now than I have for several years, and seem to have very minor side effects from PD meds. I do notice, however, that if I take my Sinemet dose on an empty stomach, I start yawning within about half an hour,
I have been having great success with Sinemet, Vitamin B1, and fast walking. I’m doing better now than I have for several years, and seem to have very minor side effects from PD meds. I do notice, however, that if I take my Sinemet dose on an empty stomach, I start yawning within about half an hour,
Dpeachey
in
Cure Parkinson's
4 years ago
Ohiohhealth
https://www.youtube.com/watch?v=ChtUlpfkPZA&list=PLrLDtjEaWrDuuwlsakceQHQ-O1IVktGou May be old news but these 12 lectures discuss much of what I've read on this site. #12 talks about sinemet and the dopamine agonists.
https://www.youtube.com/watch?v=ChtUlpfkPZA&list=PLrLDtjEaWrDuuwlsakceQHQ-O1IVktGou May be old news but these 12 lectures discuss much of what I've read on this site. #12 talks about sinemet and the dopamine agonists.
kaypeeoh
in
Cure Parkinson's
4 years ago
How much Sinemet can you take? Or do you take?
Also take 200 mg
cr
sinemet
at night up 2 3 50mg dispersable madopar and 100mg adamantine.
Also take 200 mg
cr
sinemet
at night up 2 3 50mg dispersable madopar and 100mg adamantine.
stanny7
in
Cure Parkinson's
4 years ago
Feeling of unstable physical balance.
In the past 20 days I have been operated on for inguinal hernia and I have lost my dear father. From a psycho physical point of view, my condition was not affected at all in those bad days. I resisted very well. Now, a few days after those worries, something has changed: my balance is unstable, dizziness
In the past 20 days I have been operated on for inguinal hernia and I have lost my dear father. From a psycho physical point of view, my condition was not affected at all in those bad days. I resisted very well. Now, a few days after those worries, something has changed: my balance is unstable, dizziness
Fed1000
in
Cure Parkinson's
4 years ago
Where to now St Peter
Medication currently 2 x Sinemet 3 times a day but need Fludrocortisone twice a day to increase blood pressure. According to neurologist (Movement specialist) unable to increase Sinemet as it would lower blood pressure too much. So that's it? There doesn't seem to be any way forward! At last clinic was
Medication currently 2 x Sinemet 3 times a day but need Fludrocortisone twice a day to increase blood pressure. According to neurologist (Movement specialist) unable to increase Sinemet as it would lower blood pressure too much. So that's it? There doesn't seem to be any way forward! At last clinic was
RazorFace
in
Cure Parkinson's
4 years ago
Parkinsons
Help! Suddenly my daughter is talking out of her head, random talking, not making sense, Just all over the place.......asked if she had taken anything extra besides the sinemet. She said no, but it’s very scary ..... just not herself. Is this normal??
Help! Suddenly my daughter is talking out of her head, random talking, not making sense, Just all over the place.......asked if she had taken anything extra besides the sinemet. She said no, but it’s very scary ..... just not herself. Is this normal??
Williemom
in
Cure Parkinson's
4 years ago
Bradykinesia
Is this bradykinesia? Three years ago the neuros decided I had MS. After two years on tysabri infusions they said maybe it's PD. I never felt I had either condition. Six months ago I planned to run the local marathon; The Run With the Wild Horses in Sweetwater County, Wyoming. It's a difficult
Is this bradykinesia? Three years ago the neuros decided I had MS. After two years on tysabri infusions they said maybe it's PD. I never felt I had either condition. Six months ago I planned to run the local marathon; The Run With the Wild Horses in Sweetwater County, Wyoming. It's a difficult
kaypeeoh
in
Cure Parkinson's
4 years ago
Neupro review
I try again: who has used Neupro in the uncomplicated phase of PD and wants to share his/her experience? I could not tolerate Sinemet or Madopar, even with extra Carbidopa. I have built up Neupro till 8 mg now. It helps with anxiety, stiffness, but not much on my tremor.
I try again: who has used Neupro in the uncomplicated phase of PD and wants to share his/her experience? I could not tolerate Sinemet or Madopar, even with extra Carbidopa. I have built up Neupro till 8 mg now. It helps with anxiety, stiffness, but not much on my tremor.
pinoka11
in
Cure Parkinson's
4 years ago
Ways various PD treatments deplete essential chemicals.
https://www.dovepress.com/parkinsonrsquos-disease-managing-reversible-neurodegeneration-peer-reviewed-fulltext-article-NDT The above is an interesting read, including various pathways that are depleted with PD treatments. Also this was interesting: Should mucuna and 5-HTP be used instead of sinemet
https://www.dovepress.com/parkinsonrsquos-disease-managing-reversible-neurodegeneration-peer-reviewed-fulltext-article-NDT The above is an interesting read, including various pathways that are depleted with PD treatments. Also this was interesting: Should mucuna and 5-HTP be used instead of sinemet
LAJ12345
in
Cure Parkinson's
4 years ago
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