Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,536 public posts
Filter results
Pneumonian prevention
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Mick491
in
CLL Support
8 years ago
FCR-neutrophils
My blood was taken last Friday 9 days post
Rituximab
and my neuts were at 0.1. Injected a course of G-CSF over Fri/Sat/Sun and blood taken again today. Results WBC 0.7, neuts still 0.1!..Anybody kindly have any advice as to how long they will possibly flat line before coming up? Best regards Jack
My blood was taken last Friday 9 days post
Rituximab
and my neuts were at 0.1. Injected a course of G-CSF over Fri/Sat/Sun and blood taken again today. Results WBC 0.7, neuts still 0.1!..Anybody kindly have any advice as to how long they will possibly flat line before coming up? Best regards Jack
jackhammer
in
CLL Support
8 years ago
6-month post FCR
I'm a little late posting this- as I had no choice but to go back to work which has been EXHAUSTING!!! My Oncologist is happy with my blood levels so he released me to go back 8/1- I'm obviously very happy that my levels are good. Unfortunately, the chemo caused other issues (according to my neurologist
I'm a little late posting this- as I had no choice but to go back to work which has been EXHAUSTING!!! My Oncologist is happy with my blood levels so he released me to go back 8/1- I'm obviously very happy that my levels are good. Unfortunately, the chemo caused other issues (according to my neurologist
rlyndecker
in
CLL Support
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Blotches and Red Blood spots
Hi I'm on the Flair Trial I had my first of 6 treatments of
Rituximab
along with Ibrutinib and have been well apart from having Blood spots and getting a red blotch like sunburn on my cheek ,I see my specialist soon and have my next dose of Retuximab next week just hoping those symptoms are common thanks
Hi I'm on the Flair Trial I had my first of 6 treatments of
Rituximab
along with Ibrutinib and have been well apart from having Blood spots and getting a red blotch like sunburn on my cheek ,I see my specialist soon and have my next dose of Retuximab next week just hoping those symptoms are common thanks
Chuddie48
in
CLL Support
8 years ago
tocilizumab for gpa?
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for
rituximab
but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for
rituximab
but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
roobub
in
Vasculitis UK
8 years ago
Waiting time for another round of Rituximab
Not posted for a while as been well since my 3rd cycle of
Rituximab
last July ( should have been May but hospital messed me around and was quite unwell by the time finally booked in!!!).
Not posted for a while as been well since my 3rd cycle of
Rituximab
last July ( should have been May but hospital messed me around and was quite unwell by the time finally booked in!!!).
lisalockit
in
NRAS
8 years ago
Chest Pain
Hi all, I've been diagnosed with GPA for nearly a year now, currently in remission (thanks to
rituximab
) but have been experiencing a real tightness in my chest which comes and goes.
Hi all, I've been diagnosed with GPA for nearly a year now, currently in remission (thanks to
rituximab
) but have been experiencing a real tightness in my chest which comes and goes.
Marcus1988
in
Vasculitis UK
8 years ago
Problem
Whould therapy
Rituximab
might bee too risky for me of any help?(one kydney and other comorbiditet)My Haematologist previosly recomanded Endoxanplus Prednisolon,but I have refused the totoxity concerns.I have asked about Bendamustin and was told it is not aviable .What now?
Whould therapy
Rituximab
might bee too risky for me of any help?(one kydney and other comorbiditet)My Haematologist previosly recomanded Endoxanplus Prednisolon,but I have refused the totoxity concerns.I have asked about Bendamustin and was told it is not aviable .What now?
Name-1
in
CLL Support
8 years ago
End of FLAIR. No more Ibrutinib. Great improvement!
I have been on FLAIR trail since November 2015, finished
Rituximab
end of March. Suffered side effect from Ibrutinib of severe muscle and joint pains. Despite reducing the dosage to the minimum these continued. So debilitating that eventually it was decided to stop the Ibrutinib completely.
I have been on FLAIR trail since November 2015, finished
Rituximab
end of March. Suffered side effect from Ibrutinib of severe muscle and joint pains. Despite reducing the dosage to the minimum these continued. So debilitating that eventually it was decided to stop the Ibrutinib completely.
romarin
in
CLL Support
8 years ago
Rituximab
I had another
Rituximab
infusion yesterday which went well. A little tired and a couple of odd hot flushes later in the evening. The funny thing was one side of my face was red hot and the other side cool, chest red hot but fine today. Anyone else had odd symptoms after
Rituximab
.
I had another
Rituximab
infusion yesterday which went well. A little tired and a couple of odd hot flushes later in the evening. The funny thing was one side of my face was red hot and the other side cool, chest red hot but fine today. Anyone else had odd symptoms after
Rituximab
.
Hidden
in
Vasculitis UK
8 years ago
Can anyone help
Hi I'm a newbie I have had non Hodgkin's lymphoma 2004, 2013, 2015 I am now nearly half way through a
rituximab
maintenance programme and have noticed how much weight I seem to be putting on around my middle and cannot shift it no matter what I do. it's really starting to affect my mental health.
Hi I'm a newbie I have had non Hodgkin's lymphoma 2004, 2013, 2015 I am now nearly half way through a
rituximab
maintenance programme and have noticed how much weight I seem to be putting on around my middle and cannot shift it no matter what I do. it's really starting to affect my mental health.
Ladyjay56
in
The Australian Sjögren's Syndrome Association
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
For those with vasculitis AND pain in the stomach
recently have been undergoing tests to get a specific diagnosis of GPA/Wegeners & have been told that I do have a generalise ANCA positive small cell vasculitis but that we need to be specific and to rule out ALL other problems or possibilities so that I can be treated with cyclophosphamide and/or
Rituximab
recently have been undergoing tests to get a specific diagnosis of GPA/Wegeners & have been told that I do have a generalise ANCA positive small cell vasculitis but that we need to be specific and to rule out ALL other problems or possibilities so that I can be treated with cyclophosphamide and/or
Rituximab
Jools52
in
Vasculitis UK
8 years ago
FCR stopped after cycle 5
What joy I was told at haematology clinic on Monday that I would not be having cycle 6 of FCR because there was no need. I had responded well and why put more chemo into me when associated with secondary cancer malignancies. For the past 3 cycles my lympocyctes have been below 0.5. Started at 265. Can't
What joy I was told at haematology clinic on Monday that I would not be having cycle 6 of FCR because there was no need. I had responded well and why put more chemo into me when associated with secondary cancer malignancies. For the past 3 cycles my lympocyctes have been below 0.5. Started at 265. Can't
devonrr
in
CLL Support
8 years ago
Untreated Aussies needing treatment - great clinical trial just for you
I just saw Con Tam at the Peter Mac in Melbourne today - I asked him when he thinks the trial of ibrutinib plus Venetoclax will open here for CLL patients (it's open for MCL and they're all doing well) and he said it's opening for treatment naieve in 3 months. Anyone approaching treatment here really
I just saw Con Tam at the Peter Mac in Melbourne today - I asked him when he thinks the trial of ibrutinib plus Venetoclax will open here for CLL patients (it's open for MCL and they're all doing well) and he said it's opening for treatment naieve in 3 months. Anyone approaching treatment here really
Debinoz
in
CLL Support
8 years ago
FCR Cycle 1
Hi, My dad is on day 2 of cycle 1 of FCR. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Hi, My dad is on day 2 of cycle 1 of FCR. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Lena2016
in
CLL Support
8 years ago
Cyclophosphamide for the elderly
She was going to be infused with low dose
Rituximab
but this has been changed to Cyclophosphamide (50-100mg) orally with an anti-sickness drug while continuing to reduce the steroid dose. Although she is 95 she has had no serious health issues until now.
She was going to be infused with low dose
Rituximab
but this has been changed to Cyclophosphamide (50-100mg) orally with an anti-sickness drug while continuing to reduce the steroid dose. Although she is 95 she has had no serious health issues until now.
nigeldodd
in
CLL Support
8 years ago
Severe anemia
Since diagnosis at the beginning of May I have completed three rounds of FCR treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs). After second cycle everything started to go down and my third round was put off for two weeks while my counts improved
Since diagnosis at the beginning of May I have completed three rounds of FCR treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs). After second cycle everything started to go down and my third round was put off for two weeks while my counts improved
Elremsetay
in
CLL Support
8 years ago
Wegeners or periodic fever syndrome ? Help please
Is this maybe just dotting the I's and crossing the T's before embarking upon cyclophosphamide/
Rituximab
? Thanks for reading this and for any comments. Jools
Is this maybe just dotting the I's and crossing the T's before embarking upon cyclophosphamide/
Rituximab
? Thanks for reading this and for any comments. Jools
Jools52
in
Vasculitis UK
8 years ago
NW Scotland sunsets and a bit of knee progress
I have had quite a bit of RA inflammation despite the
rituximab
infusions, but have hit it with ibuprofen and found that my walking and getting up has been much easier. So much so that I've been able to take part in the shopping for the first time in two and a half years.
I have had quite a bit of RA inflammation despite the
rituximab
infusions, but have hit it with ibuprofen and found that my walking and getting up has been much easier. So much so that I've been able to take part in the shopping for the first time in two and a half years.
cathie
in
NRAS
8 years ago
1
...
88
89
90
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1021 results
NRAS
570 results
Vasculitis UK
330 results
View top 10 communities
Sort by
Most Relevant
Newest