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Treatment starts tomorrow.
Well, here we are - OH was diagnosed in August 2014, so W&W didn't last as long as we had hoped it would. Most figures have remained fairly stable, but platelet levels consistently around 80 for last 9 months, so FCR starting tomorrow. As he is pretty fit, we are hoping that 4 lots of treatment will
Well, here we are - OH was diagnosed in August 2014, so W&W didn't last as long as we had hoped it would. Most figures have remained fairly stable, but platelet levels consistently around 80 for last 9 months, so FCR starting tomorrow. As he is pretty fit, we are hoping that 4 lots of treatment will
shoppingtrolley
in
CLL Support
7 years ago
The start for me on FCR.
So here I am sitting on a bed having my first cycle of
rituximab
( FCR ) . Wish me luck and thanks to all CLLers who have contributed over the past months. I will keep you guys posted. Cheers. Sandydog
So here I am sitting on a bed having my first cycle of
rituximab
( FCR ) . Wish me luck and thanks to all CLLers who have contributed over the past months. I will keep you guys posted. Cheers. Sandydog
sandydog
in
CLL Support
7 years ago
FCR...the "gold standard" for CLL
Well, after all kinds of advice and doing some serious research, I decided to go to OSU James Cancer Center for treatment. Dr. Byrd will give me FCR outpatient. I start Wed. May 3. I cant sleep or do much of anything. I am anxious but relieved to finally start treatment. I am trisomy 12 simple karotype
Well, after all kinds of advice and doing some serious research, I decided to go to OSU James Cancer Center for treatment. Dr. Byrd will give me FCR outpatient. I start Wed. May 3. I cant sleep or do much of anything. I am anxious but relieved to finally start treatment. I am trisomy 12 simple karotype
queencalabrese
in
CLL Support
7 years ago
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Starting yet another Biologic
My rheumy has suggested I go onto this biologic now (number 4), as
Rituximab
has not worked as it should. Would really appreciate any comments, good or bad. Many thanks 😊
My rheumy has suggested I go onto this biologic now (number 4), as
Rituximab
has not worked as it should. Would really appreciate any comments, good or bad. Many thanks 😊
Luthien
in
NRAS
7 years ago
Rituximab and possible side effects
I am due to start my first
rituximab
infusions soon (four over four weeks) and although not great timing have the opportunity to start a job working at home around the same time.
I am due to start my first
rituximab
infusions soon (four over four weeks) and although not great timing have the opportunity to start a job working at home around the same time.
Galaxy2
in
LUPUS UK
7 years ago
Update on ... ongoing pain following injection. 71 year old male with Wegener's
On the medication side it is possible I will be continuing with
Rituximab
AND Cyclophosphamide. This to be discussed in depth with Rheumatology. Although inflammation is present in the lungs it is recommended that there should be no increase in steroid dose so as not to compromise procedure.
On the medication side it is possible I will be continuing with
Rituximab
AND Cyclophosphamide. This to be discussed in depth with Rheumatology. Although inflammation is present in the lungs it is recommended that there should be no increase in steroid dose so as not to compromise procedure.
lfu2
in
Vasculitis UK
7 years ago
Try not to get too frightened!
I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current protocol (cyclophosphamide;
rituximab
2x; couple hits of high-dose steroids, then stop) followed by MMF (I don't tolerate Aza; this is next-best option for me & because
I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current protocol (cyclophosphamide;
rituximab
2x; couple hits of high-dose steroids, then stop) followed by MMF (I don't tolerate Aza; this is next-best option for me & because
SkinHorse
in
Vasculitis UK
7 years ago
Back to work on Monday - Whaaaah!
Still doing fine and will have my second
Rituximab
injection in early April. I get a couple of night sweats every night which is probably down to menopause and I've started using Gabapentin with HRT to see if it will alleviate them - the GP is happy for me to give this a go.
Still doing fine and will have my second
Rituximab
injection in early April. I get a couple of night sweats every night which is probably down to menopause and I've started using Gabapentin with HRT to see if it will alleviate them - the GP is happy for me to give this a go.
Hidden
in
Non Hodgkin's Lymphoma Friends
7 years ago
N plate
My situation is that after ITP showing its head again in September, I've been having N plate injections to control the level (had
rituximab
but failed after 3 years, and cant do steroids as body goes into melt down and give me steroid induced type 1 diabetes).
My situation is that after ITP showing its head again in September, I've been having N plate injections to control the level (had
rituximab
but failed after 3 years, and cant do steroids as body goes into melt down and give me steroid induced type 1 diabetes).
Ironspur14
in
ITP Support Association
7 years ago
Great interview with Dr. Furman of Cornell. Important discussion of new treatments verse FCR. Very positive for all of us.
Watch at: https://youtu.be/-eJhDFbEIYY Sorry if this was shown before.
Watch at: https://youtu.be/-eJhDFbEIYY Sorry if this was shown before.
Hoffy
in
CLL Support
7 years ago
High WBC and it does matter to my doctor
I think perhaps I should print out Maggie_b's post from yesterday, "High WBC but it doesn't matter" to give to my hemo/oncologist (along with other similar posts, articles, & webinar material about high WBC). Then again given my experience for the past 5+ years with him when it comes to other's opinions
I think perhaps I should print out Maggie_b's post from yesterday, "High WBC but it doesn't matter" to give to my hemo/oncologist (along with other similar posts, articles, & webinar material about high WBC). Then again given my experience for the past 5+ years with him when it comes to other's opinions
gemit2000
in
CLL Support
7 years ago
Digestion
Hi, as I have recently posted I have just finished first session/week of FCR. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told. I have been having lots of nausea and awful
Hi, as I have recently posted I have just finished first session/week of FCR. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told. I have been having lots of nausea and awful
sallyplest
in
CLL Support
7 years ago
Morning sickness .......
Hi all, I have Rheumatoid Vasculitis and am on sulfasalazine, prednisolone, hydroxychloroquine, gabapentin and
rituximab
infusions. I am still able to work but it takes me a good hour to get ready in the morning due to the aches and pains.
Hi all, I have Rheumatoid Vasculitis and am on sulfasalazine, prednisolone, hydroxychloroquine, gabapentin and
rituximab
infusions. I am still able to work but it takes me a good hour to get ready in the morning due to the aches and pains.
CHARLIE49
in
Vasculitis UK
7 years ago
Ibrutinib stopped - What treatment next ?
I am a 78 year old male living in the UK. Started treatment 3 years ago. Had two rounds of FCR which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford. After
I am a 78 year old male living in the UK. Started treatment 3 years ago. Had two rounds of FCR which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford. After
Haileybury
in
CLL Support
7 years ago
Doxycycline
I am on
rituximab
and having various frequent infections because of it, this one being a chest infection.
I am on
rituximab
and having various frequent infections because of it, this one being a chest infection.
joannebond360
in
LUPUS UK
7 years ago
At last!
It's been six weeks since my second infusion of
Rituximab
. I have now managed to stop taking painkillers as of the middle of last week. Seem to be improving daily.
It's been six weeks since my second infusion of
Rituximab
. I have now managed to stop taking painkillers as of the middle of last week. Seem to be improving daily.
Ellieellie
in
NRAS
7 years ago
FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
NMMP
in
CLL Support
7 years ago
Diagnosed with Panca Vasculitis, Rhumatoid, and Osteoarthritis
I took 3 treatments of cyclophosphamide and it caused nodules to pop up on my fingers so he stopped them and started me on the
Rituximab
. He gave me 2 treatments of it and then told me my Vasculitis was in remission.
I took 3 treatments of cyclophosphamide and it caused nodules to pop up on my fingers so he stopped them and started me on the
Rituximab
. He gave me 2 treatments of it and then told me my Vasculitis was in remission.
deebeau
in
Vasculitis UK
7 years ago
Trouble weaning off steroids
Then after several admissions into hospital, I was approved to go on biological infusion
Rituximab
back in October 2016. It has been about 4 months now since the infusions and blood tests show that
Rituximab
is working and so we have started weaning off the steroids again.
Then after several admissions into hospital, I was approved to go on biological infusion
Rituximab
back in October 2016. It has been about 4 months now since the infusions and blood tests show that
Rituximab
is working and so we have started weaning off the steroids again.
LydiaG
in
LUPUS UK
7 years ago
Rituximab infusion on Monday
Anyhow, on Monday I am having my first
Rituximab
infusion. ..it's a biologic drug. They are hoping it might save me a transplant in the future. At the moment my body attacks itself &is working it's way around organs.
Anyhow, on Monday I am having my first
Rituximab
infusion. ..it's a biologic drug. They are hoping it might save me a transplant in the future. At the moment my body attacks itself &is working it's way around organs.
madonbrew
in
Early CKD Support
7 years ago
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