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Emotional at 5 months FCR UK
New here Yeah. Thought it would be a breeze. I’m 60. Whoo. My emotions are all over the place. I’m doing well on all “counts” but as a gay man I don’t think my friends quite understand. Everything in the past is coming into my mind like cinema. My first boyfriend died of AIDS so memories are not comfortable.I
New here Yeah. Thought it would be a breeze. I’m 60. Whoo. My emotions are all over the place. I’m doing well on all “counts” but as a gay man I don’t think my friends quite understand. Everything in the past is coming into my mind like cinema. My first boyfriend died of AIDS so memories are not comfortable.I
Gaday
in
CLL Support
5 years ago
My story ... journey to a diagnosis
Now we are trying
Rituximab
and I have just had my second transfusion.
Now we are trying
Rituximab
and I have just had my second transfusion.
356bubbles
in
Vasculitis UK
5 years ago
Rituximab
Hi peop hope you are all well as you know I dont post a lot but wonder if anyone else has the same problem with
rituximab
had my first full infusion on 14 feb since then have been urinating blood my gp thinks its a bad uti but I am not convinced anyone else had similar Billy
Hi peop hope you are all well as you know I dont post a lot but wonder if anyone else has the same problem with
rituximab
had my first full infusion on 14 feb since then have been urinating blood my gp thinks its a bad uti but I am not convinced anyone else had similar Billy
Bully915
in
NRAS
5 years ago
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Rituximab infusion after effects
It's a
rituximab
hangover haha. Is this normal? What should I do? Give in to rest, or give in to my anxiety about working?
It's a
rituximab
hangover haha. Is this normal? What should I do? Give in to rest, or give in to my anxiety about working?
Savannahseger
in
NRAS
5 years ago
Lupus rash
Hi all, My lupus has been under control for a while now due to
rituximab
infusions. But I have woken up with a lupus rash this morning. Is it possible to have a lupus rash and lupus to still be under control? Or does this mean my lupus is active again? Sorry bit confused/worried. Sarah x
Hi all, My lupus has been under control for a while now due to
rituximab
infusions. But I have woken up with a lupus rash this morning. Is it possible to have a lupus rash and lupus to still be under control? Or does this mean my lupus is active again? Sorry bit confused/worried. Sarah x
Sarahjj87
in
LUPUS UK
5 years ago
cost of Plasmapheresis in India?
Also the cost of IVIG and
Rituximab
? Thanks
Also the cost of IVIG and
Rituximab
? Thanks
Balap
in
Kidney Transplant
5 years ago
Good News
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
dandelup
in
CLL Support
5 years ago
FCR or BR?
Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his lymphs are very big so he needs to be treated. His IGHV is unmutated and tp53 also unmutated. We visited two hospitals, one says FCR and the other one says BR. We really don’t know what to do. Any advice is welcome! Thanks
Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his lymphs are very big so he needs to be treated. His IGHV is unmutated and tp53 also unmutated. We visited two hospitals, one says FCR and the other one says BR. We really don’t know what to do. Any advice is welcome! Thanks
TOFK
in
CLL Support
5 years ago
Rituximab and flare ups
Hello I have just had my second infusion infusion and am just recovering from an awful flare up in my arm that lasted a whole week ( whilst I was on holiday ! ☹️). I noticed I had a similar flare up exactly a week after my first infusion. Has this happened to anyone else? It totally wiped me out for
Hello I have just had my second infusion infusion and am just recovering from an awful flare up in my arm that lasted a whole week ( whilst I was on holiday ! ☹️). I noticed I had a similar flare up exactly a week after my first infusion. Has this happened to anyone else? It totally wiped me out for
Phoo2
in
NRAS
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
.,
rituximab
) or complement inhibition (e.g., eculizumab) therapies may be considered based on data from case reports.
REFERENCE
: Tektonidou M, Andreoli L, Limper M, et al.
.,
rituximab
) or complement inhibition (e.g., eculizumab) therapies may be considered based on data from case reports.
REFERENCE
: Tektonidou M, Andreoli L, Limper M, et al.
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
CLL treatment options
I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR chemotherapy because of decrease in Hb. One cycle given. FISH shows Del 13q14.3 30% and 14q32 IGH gene 86% Hypermutated IGVH. Age 62 years also Hypertension and Diabetes. Hb 5.9 TLC 368000 Platelets 68000. Please
I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR chemotherapy because of decrease in Hb. One cycle given. FISH shows Del 13q14.3 30% and 14q32 IGH gene 86% Hypermutated IGVH. Age 62 years also Hypertension and Diabetes. Hb 5.9 TLC 368000 Platelets 68000. Please
drvksethi
in
CLL Support
5 years ago
Treatment card holders
I now have to carry a steroid card, warfarin card and a
Rituximab
card. Don't always need to carry a wallet and just wondering if there's any lightweight card holders out there for them and where to get them too
I now have to carry a steroid card, warfarin card and a
Rituximab
card. Don't always need to carry a wallet and just wondering if there's any lightweight card holders out there for them and where to get them too
Hidden
in
LUPUS UK
5 years ago
Whats the difference between a relapse and a flare
I received 4 X weekly
rituximab
infusions which helped a lot. I have been feeling unwell again for a couple of months and last month my rheumatologist advised that my inflammation markers were up again and thinks I am having a flare. I am currently going through another course of
rituximab
.
I received 4 X weekly
rituximab
infusions which helped a lot. I have been feeling unwell again for a couple of months and last month my rheumatologist advised that my inflammation markers were up again and thinks I am having a flare. I am currently going through another course of
rituximab
.
stuc
in
Vasculitis UK
5 years ago
1st dose of Rituximab
Had my 1st dose of
Rituximab
yesterday and it all went as well as it could've.
Had my 1st dose of
Rituximab
yesterday and it all went as well as it could've.
Hidden
in
LUPUS UK
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
.,
rituximab
) or complement inhibition (e.g., eculizumab) therapies may be considered based on data from case reports.
REFERENCE:
Tektonidou M, Andreoli L, Limper M, et al.
.,
rituximab
) or complement inhibition (e.g., eculizumab) therapies may be considered based on data from case reports.
REFERENCE:
Tektonidou M, Andreoli L, Limper M, et al.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Treatment starting soon
Monday’s I have to have
Rituximab
and. On a Tuesday Bendamustine. There are loads of side effects they tell you about but have no idea how I will react but I know that it will get rid of the non Hodgkin lymphoma so I will have to put up with the side effects it’s only four sessions at the most.
Monday’s I have to have
Rituximab
and. On a Tuesday Bendamustine. There are loads of side effects they tell you about but have no idea how I will react but I know that it will get rid of the non Hodgkin lymphoma so I will have to put up with the side effects it’s only four sessions at the most.
LesleyH
in
NRAS
5 years ago
A Good Result
I have had my second
Rituximab
infusion prior to which I had dreadful neuropathy in my hands. I am noticing a steady and continuing improvement with that and much less joint pain. I didn't suffer as a result of accidentally taking too much Prednisone.
I have had my second
Rituximab
infusion prior to which I had dreadful neuropathy in my hands. I am noticing a steady and continuing improvement with that and much less joint pain. I didn't suffer as a result of accidentally taking too much Prednisone.
Laurapc
in
PMRGCAuk
5 years ago
FCR?
I'm concerned about whether my husband made the right decision when he was given the FCR arm of the Flair trial as over a number of weeks been mentioned that it is not the best frontline treatment to have. We were both CLL nieve even though he had it for 19yrs and had no problems. Did we make a hasty
I'm concerned about whether my husband made the right decision when he was given the FCR arm of the Flair trial as over a number of weeks been mentioned that it is not the best frontline treatment to have. We were both CLL nieve even though he had it for 19yrs and had no problems. Did we make a hasty
very
in
CLL Support
5 years ago
IVIG
My igG levels are depleting pretty rapidly from having
rituximab
infusions every four months for the last three years, and they are significantly below the recommended level. Because of that, I continue to develop infections and have received almost a dozen courses of antibiotics in the last year.
My igG levels are depleting pretty rapidly from having
rituximab
infusions every four months for the last three years, and they are significantly below the recommended level. Because of that, I continue to develop infections and have received almost a dozen courses of antibiotics in the last year.
VasculitisQueen
in
Vasculitis UK
5 years ago
RA treatments
Hi I was diagnosed with RA 2.5 years ago and I will be starting either
rituximab
or abatacept in August. Has anyone else had either of these treatments that could tell me what to expect? Thank you
Hi I was diagnosed with RA 2.5 years ago and I will be starting either
rituximab
or abatacept in August. Has anyone else had either of these treatments that could tell me what to expect? Thank you
StrugglingwithRA
in
NRAS
5 years ago
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