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does everyone take methotrexate?
I have already tried Baricitnib, Enbrel,
rituximab
(allergic reaction). The consultant mentioned adulilumab or Filgotinib. Has anyone got any experience of these drugs? my consultant seemed to think side effects for methotrexate were rare?? Anyway hope everyone is ok xx
I have already tried Baricitnib, Enbrel,
rituximab
(allergic reaction). The consultant mentioned adulilumab or Filgotinib. Has anyone got any experience of these drugs? my consultant seemed to think side effects for methotrexate were rare?? Anyway hope everyone is ok xx
Claire32
in
NRAS
3 months ago
A few developments - anybody got similar
On a funny note to end, I was in Bedale North Yorkshire on Market Day last Tuesday, I was having my
Rituximab
the following day so got on the pushbike and got out. Unfortunately for me on the way I got drenched as the heavens opened.
On a funny note to end, I was in Bedale North Yorkshire on Market Day last Tuesday, I was having my
Rituximab
the following day so got on the pushbike and got out. Unfortunately for me on the way I got drenched as the heavens opened.
Investigator1
in
Vasculitis UK
15 days ago
HAIR LOSS
Dermatologist said combination of long-term use of steroids,
Rituximab
,Mepacrine any one of these or combination. I know with medical issues over last 11 years I should not be worried about hair loss but it is really getting me down. Any words of wisdom
Dermatologist said combination of long-term use of steroids,
Rituximab
,Mepacrine any one of these or combination. I know with medical issues over last 11 years I should not be worried about hair loss but it is really getting me down. Any words of wisdom
Haired
in
LUPUS UK
10 days ago
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Kidney biopsy confirms active GPA
I have seen my rheumatologist twice now, given pred and was put forward for
rituximab
. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis is active in the kidneys.
I have seen my rheumatologist twice now, given pred and was put forward for
rituximab
. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis is active in the kidneys.
lollypocket
in
Vasculitis UK
4 months ago
Hi everyone and Happy New Year
I’ve had no
Rituximab
since 2019. But have yearly follow ups at Addenbrookees. Wishing you all a Happy and please god healthier 2024. 🙏🏻 Jill
I’ve had no
Rituximab
since 2019. But have yearly follow ups at Addenbrookees. Wishing you all a Happy and please god healthier 2024. 🙏🏻 Jill
Essex-jill
in
Vasculitis UK
5 months ago
Skin Rash
I finished my second round of treatment;
rituximab
at the end of August 2023 and I have another year to take Venetoclax but my oncologist advised to stop Venetoclax for 3 weeks now. The rash is still going, does anyone have experience this?
I finished my second round of treatment;
rituximab
at the end of August 2023 and I have another year to take Venetoclax but my oncologist advised to stop Venetoclax for 3 weeks now. The rash is still going, does anyone have experience this?
Champlain
in
CLL Support
6 months ago
Re-introduction
I was diagnosed with GPA in 2012, which made a hole in my nose, and after treatment with cyclophosphamide, azathioprine, and then
rituximab
, I have now been in remission for several years. The hole in my nose is filled with a silicone prosthesis.
I was diagnosed with GPA in 2012, which made a hole in my nose, and after treatment with cyclophosphamide, azathioprine, and then
rituximab
, I have now been in remission for several years. The hole in my nose is filled with a silicone prosthesis.
suffolkgirl
in
Vasculitis UK
6 months ago
Possible Leukoplakia
I have been through the mill since last October, Covid in October, then Retinal Tears in November along with my
Rituximab
then diagnosed with low cortisol production in Feb (currently waiting results after second test) it’s just one thing after another. Now this. Has anyone had anything similar.
I have been through the mill since last October, Covid in October, then Retinal Tears in November along with my
Rituximab
then diagnosed with low cortisol production in Feb (currently waiting results after second test) it’s just one thing after another. Now this. Has anyone had anything similar.
Investigator1
in
Vasculitis UK
13 days ago
Reaction to Rituximab Infusion
My doctor wants to start
Rituximab
infusion since my hemoglobin had gone down to 8.2 on my last visit. What has been the reactions & results to any one having
Rituximab
infusions?
My doctor wants to start
Rituximab
infusion since my hemoglobin had gone down to 8.2 on my last visit. What has been the reactions & results to any one having
Rituximab
infusions?
emg112253
in
CLL Support
9 months ago
Rituximab doses
This a question for anyone on
rituximab
, I’m really interested in the dose you receive . I’ve been having
rituximab
for years, sometimes over 4 weeks a time sometimes at 2. I don’t react very well on the day so have to have the infusions very slowly .
This a question for anyone on
rituximab
, I’m really interested in the dose you receive . I’ve been having
rituximab
for years, sometimes over 4 weeks a time sometimes at 2. I don’t react very well on the day so have to have the infusions very slowly .
Galaxy2
in
Vasculitis UK
9 months ago
Advice needed please
I last had
Rituximab
in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue, hip joint pain.
I last had
Rituximab
in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid. I cannot have RTmab because my Immune system is so low, Igg 3.4IgA 0.48 IgM 0.42p Yesterday I was walking around and felt extreme fatigue, hip joint pain.
Fleen
in
Vasculitis UK
6 months ago
Retuximab
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started
Rituximab
infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started
Rituximab
infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
jopo280886
in
LUPUS UK
5 months ago
Warts and all
This after Fludarabine/Cytoxan/
Rituximab
x 5 with only a brief response. Starting on one of the first phase II trials of ibrutinib in 2012, now on acalabrutinib, it's been a good run.
This after Fludarabine/Cytoxan/
Rituximab
x 5 with only a brief response. Starting on one of the first phase II trials of ibrutinib in 2012, now on acalabrutinib, it's been a good run.
Bluesinthenight
in
CLL Support
24 days ago
Rituximab failure ?
Hi Folks, my consultant confirmed yesterday that
Rituximab
has done very little for me, CRP has come down a bit to 38 from over 100 but every day I still struggle to get about. Starting to get properly depressed about it all to be honest. What can they do next ?
Hi Folks, my consultant confirmed yesterday that
Rituximab
has done very little for me, CRP has come down a bit to 38 from over 100 but every day I still struggle to get about. Starting to get properly depressed about it all to be honest. What can they do next ?
RootsToots
in
NRAS
9 months ago
Foot Fusion on Biologics
Has any one had foot surgery ( taviculalar fusion ) and on the biological
Rituximab
? How did it go please? How was the healing did anyone have problems? As having surgery and on
Rituximab
. Many thanks I would love to hear .
Has any one had foot surgery ( taviculalar fusion ) and on the biological
Rituximab
? How did it go please? How was the healing did anyone have problems? As having surgery and on
Rituximab
. Many thanks I would love to hear .
-Mii
in
NRAS
9 months ago
Ibrutinib stopped working, what’s next
Morning all,a quick recap on journey so far, FCR treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January
Rituximab
and Ventoclax for 2 years, just wondering if there are any alternatives?
Morning all,a quick recap on journey so far, FCR treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January
Rituximab
and Ventoclax for 2 years, just wondering if there are any alternatives?
Stacky66
in
CLL Support
5 months ago
Pneumonia Vaccine - Who Can Have it?
Hypothetical for me because just had
Rituximab
, anybody any clues? Nick.
Hypothetical for me because just had
Rituximab
, anybody any clues? Nick.
Investigator1
in
Vasculitis UK
6 months ago
well another drug fail.
Rituximab
after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks.
Rituximab
after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks.
J1707-
in
NRAS
7 months ago
Finally...🥳
I am more than grateful that this was picked up and I had all the tests etc needed, but it was a real slog as it coincided with
Rituximab
having worn off so went into a very severe flare where at times I felt so low it was hard to pick myself up again but I have previously posted about that.
I am more than grateful that this was picked up and I had all the tests etc needed, but it was a real slog as it coincided with
Rituximab
having worn off so went into a very severe flare where at times I felt so low it was hard to pick myself up again but I have previously posted about that.
3LittleBirds2
in
NRAS
5 days ago
More evidence for vaccination
Among the small subgroup of patients using
rituximab
, we could not confirm a similar direction or magnitude of effect (1·37; 0·32–5·86). [/i] [i]ref: November 15, 2023 https://doi.org/10.1016/S2665-9913(23)00272-2[/i] There is fatigue amongst us all - too many injections!
Among the small subgroup of patients using
rituximab
, we could not confirm a similar direction or magnitude of effect (1·37; 0·32–5·86). [/i] [i]ref: November 15, 2023 https://doi.org/10.1016/S2665-9913(23)00272-2[/i] There is fatigue amongst us all - too many injections!
oldtimer2
in
NRAS
5 months ago
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