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Cll
Hi,my dad was detected with CLL I December end,wbc720000,HBO 5.5 .He has undergone 2 chemos of
rituximab
and endoxon,ie,cyclophosphamide. From today he started ibrutinib 420 ,he is having severe backache ,headache and also little feverish.are these side effects?
Hi,my dad was detected with CLL I December end,wbc720000,HBO 5.5 .He has undergone 2 chemos of
rituximab
and endoxon,ie,cyclophosphamide. From today he started ibrutinib 420 ,he is having severe backache ,headache and also little feverish.are these side effects?
sweetromeet
in
CLL Support
4 years ago
Wearing face masks
I always use them if I'm off colour when I visit my mum who is on
Rituximab
for vasculitis and RA. Mum always wears one when she is on a plane, to help stop catching germs. Hope this helps.
I always use them if I'm off colour when I visit my mum who is on
Rituximab
for vasculitis and RA. Mum always wears one when she is on a plane, to help stop catching germs. Hope this helps.
treesy
in
Vasculitis UK
4 years ago
Truxima (Rituximab biosimilar) infusions effects?
Does anyone get strange effects from 6 week point after first two infusions? I did get pretty bad hot and cold episodes for a week or so straight after the second infusion. I’ve got intermittent hot all over (no temp) with sweat beading on forehead; intermittent chills; intermittent prickling like needles
Does anyone get strange effects from 6 week point after first two infusions? I did get pretty bad hot and cold episodes for a week or so straight after the second infusion. I’ve got intermittent hot all over (no temp) with sweat beading on forehead; intermittent chills; intermittent prickling like needles
charisma
in
NRAS
4 years ago
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Acalabrutinib plus Obinutuzumab in Treatment-Naïve and Relapsed/Refractory CLL
Rituximab
plus the less selective BTK inhibitor ibrutinib has not shown benefit in CLL; however, the selective BTK inhibitor acalabrutinib plus the antibody-dependent cellular cytotoxicity–enhanced antibody obinutuzumab yielded durable responses that deepened over time in treatment-naïve and relapsed
Rituximab
plus the less selective BTK inhibitor ibrutinib has not shown benefit in CLL; however, the selective BTK inhibitor acalabrutinib plus the antibody-dependent cellular cytotoxicity–enhanced antibody obinutuzumab yielded durable responses that deepened over time in treatment-naïve and relapsed
Jm954
Administrator
in
CLL Support
4 years ago
Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no
Rituximab
in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life.
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no
Rituximab
in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life.
Jm954
Administrator
in
CLL Support
4 years ago
Concerns with CLL
Hi...my dad has been diagnosed with CLL .had 2 chemos of
rituximab
and endoxon combi.His wbc was 7 lacs plus..now it varies between 3 to 3.5 lacs after last week report.But latest report states that wbc count is 2.5 lacs.But we noticed that he had developed blood mark patches like blood clot on his hand
Hi...my dad has been diagnosed with CLL .had 2 chemos of
rituximab
and endoxon combi.His wbc was 7 lacs plus..now it varies between 3 to 3.5 lacs after last week report.But latest report states that wbc count is 2.5 lacs.But we noticed that he had developed blood mark patches like blood clot on his hand
sweetromeet
in
CLL Support
4 years ago
Pain relief Delay after having Rituximab and Lidocaine infusions.
I can't remember how soon I felt relief from the
Rituximab
infusion I had previously. The Lidocaine infusion I had instant relief previously. I am wondering if it could be due to having to wait 3 months longer to get the 3rd set of infusions.
I can't remember how soon I felt relief from the
Rituximab
infusion I had previously. The Lidocaine infusion I had instant relief previously. I am wondering if it could be due to having to wait 3 months longer to get the 3rd set of infusions.
Angels-delight
in
NRAS
4 years ago
Has anyone had these problems with chemo
The next week my Oncologist started me on a regiment for chemotherapy of
Rituximab
and Bendamustine for 6 months, 2 consecutive days per month.
The next week my Oncologist started me on a regiment for chemotherapy of
Rituximab
and Bendamustine for 6 months, 2 consecutive days per month.
laldoroty
in
CLL Support
4 years ago
Metallic taste in mouth after rituximab
I had my first infusion of
rituximab
just over 4 weeks ago & second 2 weeks ago and I've noticed a metallic taste in my mouth and I wondered if its connected to the meds, as Ive also had a dental teeth clean during that time but my dentist says my teeth are fine no loose fillings etc.
I had my first infusion of
rituximab
just over 4 weeks ago & second 2 weeks ago and I've noticed a metallic taste in my mouth and I wondered if its connected to the meds, as Ive also had a dental teeth clean during that time but my dentist says my teeth are fine no loose fillings etc.
slightlyrumpled
in
NRAS
4 years ago
RITUXIMAB FOR SYSTEMIC SCLEROSIS?
I've read reports about
rituximab
being a much safer alternative but even altho I've read reports of people with scleroderma benefitting from it, he is stating there is no evidence to support this. Is there anyone in the UK receiving this treatment on the nhs or privately?
I've read reports about
rituximab
being a much safer alternative but even altho I've read reports of people with scleroderma benefitting from it, he is stating there is no evidence to support this. Is there anyone in the UK receiving this treatment on the nhs or privately?
momo17
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Rituximab and Bendamustine side effects
Hello, I've previously asked for people's opinions on taking the above drugs and I have had many very positive feedback. Many thanks for that. I just have another question. What were the side effects you had on these drugs? My partner has just had his second dose of these chemos. He has developed
Hello, I've previously asked for people's opinions on taking the above drugs and I have had many very positive feedback. Many thanks for that. I just have another question. What were the side effects you had on these drugs? My partner has just had his second dose of these chemos. He has developed
pollyg2016
in
Non Hodgkin's Lymphoma Friends
4 years ago
IPFR in Wales - who’s had one approved for lupus services or treatments?
Our health board will only let you out of Wales currently, to a Centre of Excellence if you have kidney involvement and/or they are considering
Rituximab
(as indicated to do so under the NICE Approved BSR Guidelines for Lupus.
Our health board will only let you out of Wales currently, to a Centre of Excellence if you have kidney involvement and/or they are considering
Rituximab
(as indicated to do so under the NICE Approved BSR Guidelines for Lupus.
Wendy39
in
LUPUS UK
4 years ago
Nephrotic Syndrome
Following two
Rituximab
infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic and continue to pass urine. Thanks in anticipation for your input/advise.
Following two
Rituximab
infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic and continue to pass urine. Thanks in anticipation for your input/advise.
Potuar
in
Kidney Dialysis
4 years ago
Help with choosing the right Biologic
They are: Abatacept injections;
Rituximab
infusions; Baricitinib tablets (Jak inhibitor). Thank you all for you thoughts xx
They are: Abatacept injections;
Rituximab
infusions; Baricitinib tablets (Jak inhibitor). Thank you all for you thoughts xx
Aloquifiqie
in
NRAS
4 years ago
Which biologic to take? Help!
Any advice between Abatacept injections,
Rituximab
infusions or Baricitinib tables (jak inhibitor). Anyone got any good thoughts? Thank you so much xxx
Any advice between Abatacept injections,
Rituximab
infusions or Baricitinib tables (jak inhibitor). Anyone got any good thoughts? Thank you so much xxx
Aloquifiqie
in
Arthritis Action
4 years ago
Has anyone experienced swollen legs after Rituximab Infusion?
Liver blood results showed damage, however my Rheumy is convinced it was a side effect of the
Rituximab
, which I truly hope not as the infusions really work. I was given water tablets to get rid of the fluid and I have to weigh myself every day at the same time.
Liver blood results showed damage, however my Rheumy is convinced it was a side effect of the
Rituximab
, which I truly hope not as the infusions really work. I was given water tablets to get rid of the fluid and I have to weigh myself every day at the same time.
Paisley58
in
NRAS
4 years ago
Wishes
For a very odd Easter I wish you all lots of health and successes ! Seven month after FCR I feel very well and healthy and wish you all the same ! Anna
For a very odd Easter I wish you all lots of health and successes ! Seven month after FCR I feel very well and healthy and wish you all the same ! Anna
Ankakoza
in
CLL Support
4 years ago
Information for CLL chemo
First chemo was a combination of
Rituximab
and endoxon.Now he has suggested to go on oral.chemo..ibrutinin..can the treatment be shifted from one method to another after 1 chemo? What foods should be usually restricted for ibritunin?
First chemo was a combination of
Rituximab
and endoxon.Now he has suggested to go on oral.chemo..ibrutinin..can the treatment be shifted from one method to another after 1 chemo? What foods should be usually restricted for ibritunin?
sweetromeet
in
CLL Support
4 years ago
Shield or not to shield - confusing advice
I was diagnosed with CLL in Spring of 2011 and undertook a variation of the FCR chemo treatment on the ARCTIC clinical trial in the Autumn. Several years ago I was advised that I was in full remission and see my consultant every 4-6 months. I have not received a letter or text from the NHS advising
I was diagnosed with CLL in Spring of 2011 and undertook a variation of the FCR chemo treatment on the ARCTIC clinical trial in the Autumn. Several years ago I was advised that I was in full remission and see my consultant every 4-6 months. I have not received a letter or text from the NHS advising
Hidden
in
Positive Wellbeing During Self-Isolation
4 years ago
Neutropenia
I have a date for
Rituximab
infusion in 3 weeks but I may not be able to have it. The only meds I am on are plaquenil and prednisone, and I am beginning to flare.
I have a date for
Rituximab
infusion in 3 weeks but I may not be able to have it. The only meds I am on are plaquenil and prednisone, and I am beginning to flare.
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
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