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Headache und Stiffness a sign of relapse?
He was getting better very slowly since then after steroids, plasmapheresis and
rituximab
every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings, sometimes in the evening as well. He also have stiffness during the night. Could that be a relapse?
He was getting better very slowly since then after steroids, plasmapheresis and
rituximab
every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings, sometimes in the evening as well. He also have stiffness during the night. Could that be a relapse?
Marty1234
in
Encephalitis Society
4 years ago
flair ..fcr
hi all i have had cll from 2012 i have been on w&w my question is i have signed up for the flair trail Manchester Christie i got phone call this week saying i was randomized for FCR my age is 57yrs i have no tp53 or any other abnormal readings and i dont know what my mutations are etc mutated or unmutated
hi all i have had cll from 2012 i have been on w&w my question is i have signed up for the flair trail Manchester Christie i got phone call this week saying i was randomized for FCR my age is 57yrs i have no tp53 or any other abnormal readings and i dont know what my mutations are etc mutated or unmutated
kel555
in
CLL Support
4 years ago
Rituximab infusion Feb. 9/26. Not feeling like it is working. Still have arthritis pain, in fact, it seems worse. How long until it works?
How Long Until
Rituximab
works? Or, is there a way to know that
rituximab
is not working for me?
How Long Until
Rituximab
works? Or, is there a way to know that
rituximab
is not working for me?
Hidden
in
NRAS
4 years ago
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Side affects of Rituximab - Pred steriod
Hi had my 2nd Infusion on 31st March been OK apart from now having a D V T in my left leg, but now am getting 2-3 Sores on my head and skin is very dry and corners of my mouth are red and cracking, eyes are continually watering and mild soreness and a light headache, been putting Suda cream and Vaseline
Hi had my 2nd Infusion on 31st March been OK apart from now having a D V T in my left leg, but now am getting 2-3 Sores on my head and skin is very dry and corners of my mouth are red and cracking, eyes are continually watering and mild soreness and a light headache, been putting Suda cream and Vaseline
Cookyboy1
in
Vasculitis UK
4 years ago
Difficulty concentrating???
I had a hemorrhagic stroke in 2017 followed by my NHL diagnosis in 2018 & treatment with
Rituximab
. Ever since I've noticed a shift in my cognitive abilities especially with concentrating and comprehension. Anyone else had that experience? What did you do about it?
I had a hemorrhagic stroke in 2017 followed by my NHL diagnosis in 2018 & treatment with
Rituximab
. Ever since I've noticed a shift in my cognitive abilities especially with concentrating and comprehension. Anyone else had that experience? What did you do about it?
TigerM
in
Non Hodgkin's Lymphoma Friends
4 years ago
Advice on blood tests at the moment
Hi All I would really like your thoughts, I am soon due for for my 12 week post
rituximab
blood test and in all honesty am not at all keen to go. Would you say it was vital or in the circumstances would it be ok to give it a miss or delay for a while? Thanks Jenny
Hi All I would really like your thoughts, I am soon due for for my 12 week post
rituximab
blood test and in all honesty am not at all keen to go. Would you say it was vital or in the circumstances would it be ok to give it a miss or delay for a while? Thanks Jenny
Galaxy2
in
Vasculitis UK
4 years ago
Change away from FCR
https://www.onclive.com/view/dr-ghia-on-the-shift-from-chemotherapy-to-novel-agents-in-cll&ct. I guess this is the general and hopefully costs will come down so more of the world can benefit
https://www.onclive.com/view/dr-ghia-on-the-shift-from-chemotherapy-to-novel-agents-in-cll&ct. I guess this is the general and hopefully costs will come down so more of the world can benefit
Research123
in
CLL Support
4 years ago
Calquence Headaches and Low Blood Counts?
He was about to prep for stem cell transplant... however, they found some more abnormal cells after a bone marrow biopsy so they put him on Calquence/Acalabrutinib for 3 months with 1 dose of
Rituximab
.
He was about to prep for stem cell transplant... however, they found some more abnormal cells after a bone marrow biopsy so they put him on Calquence/Acalabrutinib for 3 months with 1 dose of
Rituximab
.
stonefilly
in
Non Hodgkin's Lymphoma Friends
4 years ago
FDA approval
I just read an article that stated that the FDA approves Ibrutinib plus
rituximab
for CLL on 4/21/2020 for INITIAL treatment. Approval was based on the E1912 trial. Patients with 17p deletions were excluded. The main efficacy outcome measure was progression-free survival.
I just read an article that stated that the FDA approves Ibrutinib plus
rituximab
for CLL on 4/21/2020 for INITIAL treatment. Approval was based on the E1912 trial. Patients with 17p deletions were excluded. The main efficacy outcome measure was progression-free survival.
kathymac52
in
CLL Support
4 years ago
D V T
and had some blood tests to check if I had a blood clot they came back all good but had a scan afterwards and found I had a clot behind my left knee area, they said as I hadn't had any recent injury to that leg they were not sure why I had a clot but wondered if it could be caused by my infusions of
rituximab
and had some blood tests to check if I had a blood clot they came back all good but had a scan afterwards and found I had a clot behind my left knee area, they said as I hadn't had any recent injury to that leg they were not sure why I had a clot but wondered if it could be caused by my infusions of
rituximab
Cookyboy1
in
Vasculitis UK
4 years ago
CLL treatment prognosis
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
HarryMet
in
CLL Support
4 years ago
Lumps under armpits
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
aloneifly
in
CLL Support
4 years ago
Report from CLL Webinar: Prof Hillmen, 10th June 2020
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
Davdow
in
CLL Support
4 years ago
shielding letter at last
I suffer from
Rituximab
induced Hypogammaglobulinaemia so require immunoglobulin therapy weekly to maintain my immune system. Will need to be sure life outside is safe before I venture out into the world again. Wishing everyone well. Keep safe. Pam X
I suffer from
Rituximab
induced Hypogammaglobulinaemia so require immunoglobulin therapy weekly to maintain my immune system. Will need to be sure life outside is safe before I venture out into the world again. Wishing everyone well. Keep safe. Pam X
Pam-51
in
NRAS
4 years ago
Rituximab/anxiety
Rituximab
Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in late
Rituximab
Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in late
Vonnie10
in
NRAS
4 years ago
Rituximab risk from Covid19 coronavirus
Im on
rituximab
for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to work
Im on
rituximab
for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to work
jeanette60
in
LUPUS UK
4 years ago
Do something or not?
I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several
Rituximab
infusions, the last being a couple of years ago.
I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several
Rituximab
infusions, the last being a couple of years ago.
Neriah
in
LUPUS UK
4 years ago
Getting a letter?
Having SLE, on steroids, had
rituximab
in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really really unsure. Very worrying times just now.
Having SLE, on steroids, had
rituximab
in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really really unsure. Very worrying times just now.
Hidden
in
LUPUS UK
4 years ago
Advice on Shielding
Hi All I have yet to get a letter telling me I'm high risk but am on
rituximab
and predisolone so know I am and just wanted advice on shielding. I live in a flat and have to come out into the communal area and go downstairs to get my post and also have to go out to take rubbish to the bins etc.
Hi All I have yet to get a letter telling me I'm high risk but am on
rituximab
and predisolone so know I am and just wanted advice on shielding. I live in a flat and have to come out into the communal area and go downstairs to get my post and also have to go out to take rubbish to the bins etc.
Galaxy2
in
Vasculitis UK
4 years ago
Vasculitis chest probs
Hi had my first infusion of
rituximab
days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,
Hi had my first infusion of
rituximab
days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,
Cookyboy1
in
Vasculitis UK
4 years ago
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