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Rituximab
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Recurring high temperatures?
GPA current treatment
rituximab
azathioprine and prednisolone
GPA current treatment
rituximab
azathioprine and prednisolone
Vqueen
in
Vasculitis UK
6 months ago
Golimumab v. Rituximab? What is others' experience?
I'd like to know what experience others have had of
rituximab
: side effects, effectiveness, etc. so that I'm ready with questions to ask at my next appointment.
I'd like to know what experience others have had of
rituximab
: side effects, effectiveness, etc. so that I'm ready with questions to ask at my next appointment.
Lifesforliving
in
NRAS
5 months ago
Why did my infusions get stopped?
I’ve had several
Rituximab
infusions, usually every 9 months to a year apart; the last one was in 2021. In 2022 I was informed that
Rituximab
would be replaced by Rituxithon ( I hope that’s right) as its cheaper. I haven’t got a problem with this.
I’ve had several
Rituximab
infusions, usually every 9 months to a year apart; the last one was in 2021. In 2022 I was informed that
Rituximab
would be replaced by Rituxithon ( I hope that’s right) as its cheaper. I haven’t got a problem with this.
SwimmerBTC
in
NRAS
4 months ago
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Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
My daughter received treatment of steroids, IVIG and has just completed her second dose of
Rituximab
.
My daughter received treatment of steroids, IVIG and has just completed her second dose of
Rituximab
.
Cat29red
in
Encephalitis Society
2 months ago
CNS Symptoms and Advice
When I started
rituximab
7 ish years ago I remember being disappointed as it took a good year or so for things to improve but then my main problem was peripheral nerve damage, with autonomic involvement .
When I started
rituximab
7 ish years ago I remember being disappointed as it took a good year or so for things to improve but then my main problem was peripheral nerve damage, with autonomic involvement .
Galaxy2
in
Vasculitis UK
5 months ago
2nd Dose of Shingrix - How Long After Rituximab?
Hi everybody as mentioned in an earlier post I had my 1st Shingrix Vaccine yesterday, no worries my Consultant told me no closer than a month before my
Rituximab
, that’s due end of November so job done.
Hi everybody as mentioned in an earlier post I had my 1st Shingrix Vaccine yesterday, no worries my Consultant told me no closer than a month before my
Rituximab
, that’s due end of November so job done.
Investigator1
in
Vasculitis UK
7 months ago
RITUXIMAB
THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START
RITUXIMAB
NEXT WEEK. I HAVE HAD MY PRED INCREASED TO 40MG A DAY.
THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START
RITUXIMAB
NEXT WEEK. I HAVE HAD MY PRED INCREASED TO 40MG A DAY.
eyeBRing
in
PMRGCAuk
8 months ago
Rheumatoid arthritis since 1995
Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and
rituximab
infusion, I've had 2 operations on my feet joints removed and fused,I'm 65 still working which is a struggle,two year ago I was awarded the lower living pip no mobility pip,how do
Hi,I was diagnosed with ra 1996,been on various drugs over the years,I'm taken methotrexate self injection and
rituximab
infusion, I've had 2 operations on my feet joints removed and fused,I'm 65 still working which is a struggle,two year ago I was awarded the lower living pip no mobility pip,how do
Justlucy
in
NRAS
3 months ago
Why are we waiting?
So they gave me my last infusion of
rituximab
in June 2023. They made no difference to my pain or blood levels. I had zero follow up calls and no further offers of help.
So they gave me my last infusion of
rituximab
in June 2023. They made no difference to my pain or blood levels. I had zero follow up calls and no further offers of help.
RootsToots
in
NRAS
4 months ago
Dry throat and skin & headaches after Rituximab infusions
Hi there, I'm wondering if anyone else has experienced these symptoms after
Rituximab
infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth.
Hi there, I'm wondering if anyone else has experienced these symptoms after
Rituximab
infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth.
Han1
in
NRAS
1 month ago
What would you do??
I am currently on the Bruin-321 trial and am on my 3rd cycle of Pirtobrutinib, after a very rough time with Idelalisib +
Rituximab
infusions. They are not financially able to stay in hotels etc. and no other relatives close by. I don't know what I am feeling.
I am currently on the Bruin-321 trial and am on my 3rd cycle of Pirtobrutinib, after a very rough time with Idelalisib +
Rituximab
infusions. They are not financially able to stay in hotels etc. and no other relatives close by. I don't know what I am feeling.
rcusher
in
CLL Support
5 days ago
CARPEL TUNNEL
I am on 5mg maintenance Steroids/
Rituximab
/Mepacrine for Lupus& Sjogrens. Any advice would be appreciated. X
I am on 5mg maintenance Steroids/
Rituximab
/Mepacrine for Lupus& Sjogrens. Any advice would be appreciated. X
Haired
in
LUPUS UK
5 months ago
Ibrutinib VS V&O
I initially started with
rituximab
and shrank my nodes then went on Imbruvica after a few months and here we are. I had it pretty bad at first prior to the chemo but have responded well. Thoughts and opinions ?? I’m nowhere near as knowledgeable as many of you and seeking to learn.
I initially started with
rituximab
and shrank my nodes then went on Imbruvica after a few months and here we are. I had it pretty bad at first prior to the chemo but have responded well. Thoughts and opinions ?? I’m nowhere near as knowledgeable as many of you and seeking to learn.
GettinThruIt
in
CLL Support
6 days ago
does everyone take methotrexate?
I have already tried Baricitnib, Enbrel,
rituximab
(allergic reaction). The consultant mentioned adulilumab or Filgotinib. Has anyone got any experience of these drugs? my consultant seemed to think side effects for methotrexate were rare?? Anyway hope everyone is ok xx
I have already tried Baricitnib, Enbrel,
rituximab
(allergic reaction). The consultant mentioned adulilumab or Filgotinib. Has anyone got any experience of these drugs? my consultant seemed to think side effects for methotrexate were rare?? Anyway hope everyone is ok xx
Claire32
in
NRAS
2 months ago
Kidney biopsy confirms active GPA
I have seen my rheumatologist twice now, given pred and was put forward for
rituximab
. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis is active in the kidneys.
I have seen my rheumatologist twice now, given pred and was put forward for
rituximab
. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis is active in the kidneys.
lollypocket
in
Vasculitis UK
4 months ago
Hi everyone and Happy New Year
I’ve had no
Rituximab
since 2019. But have yearly follow ups at Addenbrookees. Wishing you all a Happy and please god healthier 2024. 🙏🏻 Jill
I’ve had no
Rituximab
since 2019. But have yearly follow ups at Addenbrookees. Wishing you all a Happy and please god healthier 2024. 🙏🏻 Jill
Essex-jill
in
Vasculitis UK
4 months ago
A few developments - anybody got similar
On a funny note to end, I was in Bedale North Yorkshire on Market Day last Tuesday, I was having my
Rituximab
the following day so got on the pushbike and got out. Unfortunately for me on the way I got drenched as the heavens opened.
On a funny note to end, I was in Bedale North Yorkshire on Market Day last Tuesday, I was having my
Rituximab
the following day so got on the pushbike and got out. Unfortunately for me on the way I got drenched as the heavens opened.
Investigator1
in
Vasculitis UK
1 day ago
Skin Rash
I finished my second round of treatment;
rituximab
at the end of August 2023 and I have another year to take Venetoclax but my oncologist advised to stop Venetoclax for 3 weeks now. The rash is still going, does anyone have experience this?
I finished my second round of treatment;
rituximab
at the end of August 2023 and I have another year to take Venetoclax but my oncologist advised to stop Venetoclax for 3 weeks now. The rash is still going, does anyone have experience this?
Champlain
in
CLL Support
5 months ago
Re-introduction
I was diagnosed with GPA in 2012, which made a hole in my nose, and after treatment with cyclophosphamide, azathioprine, and then
rituximab
, I have now been in remission for several years. The hole in my nose is filled with a silicone prosthesis.
I was diagnosed with GPA in 2012, which made a hole in my nose, and after treatment with cyclophosphamide, azathioprine, and then
rituximab
, I have now been in remission for several years. The hole in my nose is filled with a silicone prosthesis.
suffolkgirl
in
Vasculitis UK
6 months ago
Reaction to Rituximab Infusion
My doctor wants to start
Rituximab
infusion since my hemoglobin had gone down to 8.2 on my last visit. What has been the reactions & results to any one having
Rituximab
infusions?
My doctor wants to start
Rituximab
infusion since my hemoglobin had gone down to 8.2 on my last visit. What has been the reactions & results to any one having
Rituximab
infusions?
emg112253
in
CLL Support
8 months ago
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