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Three years in
Today three years ago I walked into a emergency room. I could only walk 60 yards without resting. I had to stop driving 6 times during a 40 minute drive. Luckily I was admitted and luckily my B12 was finally tested and was <150 which is the lowest level that this particular lab tests for. I started
Today three years ago I walked into a emergency room. I could only walk 60 yards without resting. I had to stop driving 6 times during a 40 minute drive. Luckily I was admitted and luckily my B12 was finally tested and was <150 which is the lowest level that this particular lab tests for. I started
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
PA/b12 and ferratin
Hi, extremely confused here, I have been seeing a neurology specialist for cluster headaches, my last appointment I mentioned that I'm mixing my words up and my RLS (restless leg syndrome is getting worse).He asked if I'd had my bloods done and who was overseeing care.. I am PA, B12 deficient, folate
Hi, extremely confused here, I have been seeing a neurology specialist for cluster headaches, my last appointment I mentioned that I'm mixing my words up and my RLS (restless leg syndrome is getting worse).He asked if I'd had my bloods done and who was overseeing care.. I am PA, B12 deficient, folate
Mammymonster
in
Pernicious Anaemia Society
6 months ago
B12 help
Following on from previous post I have an under active thyroid (Hashimoto’s) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didn’t tell me that. I have been supplementing B complex and sometimes B12
Following on from previous post I have an under active thyroid (Hashimoto’s) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didn’t tell me that. I have been supplementing B complex and sometimes B12
Denny39
in
Pernicious Anaemia Society
6 months ago
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Having trouble ordering b12 as there is apparently a shortage in Australia. Help!!
I am in New Zealand but ordered my B12 from Australia. Without warning, I have just discovered there is a shortage that may go on to as far off as March next year. I am really stressed. Can anyone help with alternatives? I was told Germany did not send to Australia and wondered if NZ was the same. Thanks
I am in New Zealand but ordered my B12 from Australia. Without warning, I have just discovered there is a shortage that may go on to as far off as March next year. I am really stressed. Can anyone help with alternatives? I was told Germany did not send to Australia and wondered if NZ was the same. Thanks
brenanddave
in
Pernicious Anaemia Society
6 months ago
Buying T3 privately
Can I have some help with sourcing T3 privately. I am UK. Endo has me on 10 mcg of T3, morning dose, for the last 9 weeks. I feel that this should be upped, but I do not see him now for another 2 months. I would like to be able to adjust my T3 in increments as my hypo symptoms are back. They were
Can I have some help with sourcing T3 privately. I am UK. Endo has me on 10 mcg of T3, morning dose, for the last 9 weeks. I feel that this should be upped, but I do not see him now for another 2 months. I would like to be able to adjust my T3 in increments as my hypo symptoms are back. They were
Katherine123
in
Thyroid UK
6 months ago
preparing for ivf round 2
Hi all , if you have been following my journey .. it has been crazy to say the least. I have pcos i am 26 - amh normal levels and bmi -normal/healthy. protocol - Gonal f 112.5 (really low dose) 5 eggs retrieved - 3 immature 2 listed below First ivf - 1 bfp fresh 3 day transfer - lost baby at 21
Hi all , if you have been following my journey .. it has been crazy to say the least. I have pcos i am 26 - amh normal levels and bmi -normal/healthy. protocol - Gonal f 112.5 (really low dose) 5 eggs retrieved - 3 immature 2 listed below First ivf - 1 bfp fresh 3 day transfer - lost baby at 21
Hidden
in
Fertility Network UK
6 months ago
Chronic pain , degenerative spinal disease
I am at the end of my tether with chronic pain and more recently, peripheral neuropathy. Every 8 weeks I have a B12 injection for management of Pernicious Anaemia diagnosed in 1985. However, the pains shooting into my toes and burning sensation around week 6, drives me crazy. The GP is nice but does
I am at the end of my tether with chronic pain and more recently, peripheral neuropathy. Every 8 weeks I have a B12 injection for management of Pernicious Anaemia diagnosed in 1985. However, the pains shooting into my toes and burning sensation around week 6, drives me crazy. The GP is nice but does
HappyLass1e
in
Neuro Support
6 months ago
anyone know how long chemo & radiation & effects remain in your body? Thx in advance.
I’m a year past these treatments. My oncologist said during treatment to stay off of vitamin E & C. Just wondering.
I’m a year past these treatments. My oncologist said during treatment to stay off of vitamin E & C. Just wondering.
DCCC_204
in
SHARE Breast Cancer Support
6 months ago
B12 thyroid
Hi, I am new to the PA site. I was diagnosed with under active thyroid in 2021 which I’m still struggling daily with. I have peripheral neuropathy in legs and can’t walk far at all and I’ve just turned 40. My B12 at the time of thyroid diagnosed with not being on any supplements was 379.8 (197-
Hi, I am new to the PA site. I was diagnosed with under active thyroid in 2021 which I’m still struggling daily with. I have peripheral neuropathy in legs and can’t walk far at all and I’ve just turned 40. My B12 at the time of thyroid diagnosed with not being on any supplements was 379.8 (197-
Denny39
in
Pernicious Anaemia Society
6 months ago
high bp
hello everyone I have always kept an eye on my blood pressure over the years and it’s been pretty good up until now.I’ve noticed it’s gone to 160/89 Could my dose be too much which is causing the high bp? my last TSH test was 0.91 mU/L. I was taking 125 mcg up until 5 months ago,I then switched up
hello everyone I have always kept an eye on my blood pressure over the years and it’s been pretty good up until now.I’ve noticed it’s gone to 160/89 Could my dose be too much which is causing the high bp? my last TSH test was 0.91 mU/L. I was taking 125 mcg up until 5 months ago,I then switched up
oily1601
in
Thyroid UK
6 months ago
Rash any advice?
I have noticed this rash over last 2 or 3 months. Its not itchy or raised. Any advice most welcome. Im taking 100mcg teva levo and 15mcg thybon henning. Vit d, magnesium glycinate. Any advice most welcome 🌸🌸🌸🌸🌸
I have noticed this rash over last 2 or 3 months. Its not itchy or raised. Any advice most welcome. Im taking 100mcg teva levo and 15mcg thybon henning. Vit d, magnesium glycinate. Any advice most welcome 🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
6 months ago
Pulsatile tinnitus links to Folate B9 and cholesterol
I have Pulsatile Tinnitus. I’ve just had blood test results… along with my folate B9 levels (having been very low when I first developed PT) I also have high cholesterol… LDL (bad cholesterol) is slightly high at 3.6 (should be below 3) Serum cholesterol is 5.4 (should be below 5) My overall ratio
I have Pulsatile Tinnitus. I’ve just had blood test results… along with my folate B9 levels (having been very low when I first developed PT) I also have high cholesterol… LDL (bad cholesterol) is slightly high at 3.6 (should be below 3) Serum cholesterol is 5.4 (should be below 5) My overall ratio
PTNewbie
in
Tinnitus UK
6 months ago
Advice on latest test results
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Shoesy99
in
Thyroid UK
6 months ago
Introduction and Strontium Ranelate
Hello, I thought I would introduce myself: I was on this forum a few years ago when the last of the NOS forums was closed, but then I lapsed reading posts and posting myself, so here I am again, at least for a while ! I was diagnosed with osteoporosis 17 years ago, this was on DEXA but also x-ray
Hello, I thought I would introduce myself: I was on this forum a few years ago when the last of the NOS forums was closed, but then I lapsed reading posts and posting myself, so here I am again, at least for a while ! I was diagnosed with osteoporosis 17 years ago, this was on DEXA but also x-ray
salagoo
in
Bone Health and Osteoporosis UK
6 months ago
Low Iron
Hi everyone, Wondered if anyone has had experience with SVT and low iron? I’ve just found out that I have extremely low iron stores which explains a lot of my symptoms, including a fast heart rate and wondering whether anyone knows whether it could cause atrial tachycardia? I am really hoping once
Hi everyone, Wondered if anyone has had experience with SVT and low iron? I’ve just found out that I have extremely low iron stores which explains a lot of my symptoms, including a fast heart rate and wondering whether anyone knows whether it could cause atrial tachycardia? I am really hoping once
Cookieisland
in
British Heart Foundation
6 months ago
B12 deficiency v. Ferritin deficiency
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
MLJ2024
in
Pernicious Anaemia Society
4 months ago
Interesting B12 Study
An article about new B12 research https://newatlas.com/medical/vitamin-b12-reprogram-cells-tissue/?utm_source=New+Atlas+Subscribers&utm_campaign=bafa92a40e-EMAIL_CAMPAIGN_2023_11_17_03_05&utm_medium=email&utm_term=0_65b67362bd-bafa92a40e-%5BLIST_EMAIL_ID%5D
An article about new B12 research https://newatlas.com/medical/vitamin-b12-reprogram-cells-tissue/?utm_source=New+Atlas+Subscribers&utm_campaign=bafa92a40e-EMAIL_CAMPAIGN_2023_11_17_03_05&utm_medium=email&utm_term=0_65b67362bd-bafa92a40e-%5BLIST_EMAIL_ID%5D
MoKayD
in
Pernicious Anaemia Society
7 months ago
Burning feet and hands update, advice please.
Burning feet and hands update. Hi all, thank you so much for your really helpful replies. I managed to get an appointment with a GP who I hadn’t seen before and was disarmingly young. She looked at my recent bloods but I’m not sure she knew what she was looking at. I’m not totally sure how but she
Burning feet and hands update. Hi all, thank you so much for your really helpful replies. I managed to get an appointment with a GP who I hadn’t seen before and was disarmingly young. She looked at my recent bloods but I’m not sure she knew what she was looking at. I’m not totally sure how but she
FW23
in
Thyroid UK
7 months ago
sub clinical hypothyroidism
Hello everyone, I was told by the lovely Julie at my occupation health to come on here for some advice and support. Around two months ago I was completely exhausted struggled to get out of bed or he awake for log periods of time. I did have any energy whatsoever. I have been loosing weight gradually
Hello everyone, I was told by the lovely Julie at my occupation health to come on here for some advice and support. Around two months ago I was completely exhausted struggled to get out of bed or he awake for log periods of time. I did have any energy whatsoever. I have been loosing weight gradually
Jeanette56
in
Thyroid UK
7 months ago
Is this common? fatigue and joint pain / cold hands and feet
On my 3rd month of treatment for active TB, currently on Rifampin, isoniazid, and b6. Looking at 6 months of treatment, maybe 9. I feel fatigued all the time, even with good sleep, exercise, drinking lots of water, eating whole foods and probiotics— like this general feeling of unwell and tiredness.
On my 3rd month of treatment for active TB, currently on Rifampin, isoniazid, and b6. Looking at 6 months of treatment, maybe 9. I feel fatigued all the time, even with good sleep, exercise, drinking lots of water, eating whole foods and probiotics— like this general feeling of unwell and tiredness.
Keepfighting_
in
TB Alert
7 months ago
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