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Seeking Diagnostic/Treatment Ideas
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
Pamelayne
in
Pernicious Anaemia Society
19 days ago
Help?
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
PlatypusProfit8077
in
Pernicious Anaemia Society
20 days ago
Help please
Hello could someone look at my recent blood test please.Since my last post(I know it's been 2 years)I had scan, because of high ferritin which came back clear. All blood tests normal. GP says it's not thyroid! Been having symptoms of hyper and hypo, March I kept having metalic taste GP said it's burning
Hello could someone look at my recent blood test please.Since my last post(I know it's been 2 years)I had scan, because of high ferritin which came back clear. All blood tests normal. GP says it's not thyroid! Been having symptoms of hyper and hypo, March I kept having metalic taste GP said it's burning
mollyjo
in
Thyroid UK
20 days ago
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Hope this is a blip...
Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this disappeared pretty soon after 6 loading doses, and I SI every 3 days since then. Taking iron, folic acid, VitD as recommended and eating a daily banana
Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this disappeared pretty soon after 6 loading doses, and I SI every 3 days since then. Taking iron, folic acid, VitD as recommended and eating a daily banana
Myoldcat
in
Pernicious Anaemia Society
20 days ago
List of medications to avoid?
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Myoldcat
in
Pernicious Anaemia Society
20 days ago
steroid reduction problems
I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specific way eg as when having a virus. After showering and dressing I need to sit down for a couple of hours to recover. To be fair this has been the case for weeks. I don’t do any housework ( husband does it) can’t attend yoga
I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specific way eg as when having a virus. After showering and dressing I need to sit down for a couple of hours to recover. To be fair this has been the case for weeks. I don’t do any housework ( husband does it) can’t attend yoga
Sheeplegs
in
PMRGCAuk
20 days ago
Sunshiney days.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Calceolaria
in
Thyroid UK
20 days ago
T3 (Cytomel): How would you fit it in these results? Or would you? And all the mistakes I have made on this journey
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Latest results (overjoyed to be finally here) - TSH .74 (.32 to 4) T4 14 (9 to 19) T3 4.2 (2.6 to 5.8) I am on 262.5 mcg levothyroxine (Note: In 50s so 50×5 & 1/4 of a 50) I feel what I would deem pleasantly okay. Always have felt the best on NDT, but I needed so much I could no longer afford it. And
Litatamon
in
Thyroid UK
21 days ago
Confused
I have just received the results of my advanced thyroid blood test. My last test was in January and my results were: TSH .005 (.27 - 4.2) T4 17.5 (12 - 22) T3 5.4 (3.1 - 6.8) I take 2.75 grains of NDT Today's results are: TSH .005 T4 25.1 (12 - 22) T3 15.8 (3.1 -6.8) I don't understand
I have just received the results of my advanced thyroid blood test. My last test was in January and my results were: TSH .005 (.27 - 4.2) T4 17.5 (12 - 22) T3 5.4 (3.1 - 6.8) I take 2.75 grains of NDT Today's results are: TSH .005 T4 25.1 (12 - 22) T3 15.8 (3.1 -6.8) I don't understand
dottyb09
in
Thyroid UK
21 days ago
Post SCT update
I'm now +58 days and 3 weeks out of hospital. So far (touch wood, fingers crossed) I'm not showing any signs of GVHD or other abnormal symptoms but I know this can all still happen as my recovery progresses. Consultant has reduced the Mycophenolate (in place of Cyclosporin which didn't agree with me)
I'm now +58 days and 3 weeks out of hospital. So far (touch wood, fingers crossed) I'm not showing any signs of GVHD or other abnormal symptoms but I know this can all still happen as my recovery progresses. Consultant has reduced the Mycophenolate (in place of Cyclosporin which didn't agree with me)
Flyingsteamer
in
MPN Voice
21 days ago
Micro Dosing
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
21 days ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
21 days ago
Hypothyroidism and weightloss
Good morning everyone,I am hoping for some good news stories to keep me going. I have gained 2 1/2 stone since I developed hypothyroidism, and I am finding it so so difficult to shift it again even though my current dose of t4/t3 seems to work really well in other aspects (hypo tiredness gone, depression
Good morning everyone,I am hoping for some good news stories to keep me going. I have gained 2 1/2 stone since I developed hypothyroidism, and I am finding it so so difficult to shift it again even though my current dose of t4/t3 seems to work really well in other aspects (hypo tiredness gone, depression
flohal
in
Thyroid UK
21 days ago
Any Help to break free of this rut I'm in??
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
Bookmama20
in
Anxiety and Depression Support
22 days ago
I think I need a reset
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
Bookmama20
in
Mental Health Support
22 days ago
TSH levels
Hi everyone Ive posted previously and you've all been extremely helpful. Long story short.... I had a totle thyroidectomy in 2006 due to thyroid cancer. Im a 57 year old male builder. Was put on 200mcg thyroxin until november last year when it was reduced to 175 then 150 in April. This was due to my
Hi everyone Ive posted previously and you've all been extremely helpful. Long story short.... I had a totle thyroidectomy in 2006 due to thyroid cancer. Im a 57 year old male builder. Was put on 200mcg thyroxin until november last year when it was reduced to 175 then 150 in April. This was due to my
wolthebuilder
in
Thyroid UK
22 days ago
Daily back pain
I have had daily middle / upper back pain for 2 and a half years. I have pernicious anaemia too. G.p. thinks my pain is muscular. I've seen several physiotherapists. The current one thinks my pain is muscular caused by poor posture. I think she's probably right. I think it's been exacerbated by my job
I have had daily middle / upper back pain for 2 and a half years. I have pernicious anaemia too. G.p. thinks my pain is muscular. I've seen several physiotherapists. The current one thinks my pain is muscular caused by poor posture. I think she's probably right. I think it's been exacerbated by my job
Suesue246
in
Pain Concern
22 days ago
Fatigue, anemia, blood test results
Would anyone give their interpretation of the following blood test results (ref.range in the brackets and those out of the ranges in bold letters)? ALAT 19 (<34) ASAT 22 (15-35) GGT 9 (9-36)
FERRITIN 4,2 (10-204)
B12 340 (138-652) HEMOGRAM: Hb 132 (121-150) Hct 42,5% (37-45%) WBC
Would anyone give their interpretation of the following blood test results (ref.range in the brackets and those out of the ranges in bold letters)? ALAT 19 (<34) ASAT 22 (15-35) GGT 9 (9-36)
FERRITIN 4,2 (10-204)
B12 340 (138-652) HEMOGRAM: Hb 132 (121-150) Hct 42,5% (37-45%) WBC
Nipitiri
in
Thyroid UK
22 days ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
22 days ago
Amiodarone.....again! Sorry....
Hi Everyone,Appreciate your thoughts suggestion on this as am stuck....thank you. I was put on Amiodarone for 4 weeks post surgery last September. So Amiodarone was stopped 7 months ago. I was on 3 3/4 grains of Armour Thyroid for Hypothyroidism before surgery. Been stable for years on this dose. 16yrs
Hi Everyone,Appreciate your thoughts suggestion on this as am stuck....thank you. I was put on Amiodarone for 4 weeks post surgery last September. So Amiodarone was stopped 7 months ago. I was on 3 3/4 grains of Armour Thyroid for Hypothyroidism before surgery. Been stable for years on this dose. 16yrs
waveylines
in
Thyroid UK
22 days ago
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