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Palindromic Rheumatoid Arthritis
Hi. New to the site. I am now of pension age and have had Palindromic Rheumatoid Arthritis for over 30 years and never come across anyone else with it. Is there anyone out there with the same condition Cheers 35395
Hi. New to the site. I am now of pension age and have had Palindromic Rheumatoid Arthritis for over 30 years and never come across anyone else with it. Is there anyone out there with the same condition Cheers 35395
35395
in
NRAS
1 year ago
hashimotos and b12
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
Rowing2
in
Pernicious Anaemia Society
2 months ago
So girding my loins, GP's in morning,
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
Polo22
in
Thyroid UK
7 months ago
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Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
4 months ago
Pain and rheumatoid arthritis
Has anyone had a stiff neck wih rheumatoid arthritis for the last week my neck has been stiff at the moment I have a flare in my hands and shoulders,
Has anyone had a stiff neck wih rheumatoid arthritis for the last week my neck has been stiff at the moment I have a flare in my hands and shoulders,
Indersisive71
in
NRAS
1 year ago
I believe you.
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Tracking your B12 changes after injections? (Please share if so)
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Pante
in
Pernicious Anaemia Society
1 year ago
help please 😊
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
Hidden
in
NRAS
1 year ago
Dr. Mark Porter's B12 Times article
Further to deniseinmilden's post I decided to risk my credit card and subscribed to the free trial of The Times to get the article. Here it is, for better or for worse! There are a lot of comments, some of which he replies to, sadly I can't reproduce them here. But I think it's good news in terms of the
Further to deniseinmilden's post I decided to risk my credit card and subscribed to the free trial of The Times to get the article. Here it is, for better or for worse! There are a lot of comments, some of which he replies to, sadly I can't reproduce them here. But I think it's good news in terms of the
Sneedle
in
Pernicious Anaemia Society
9 months ago
Rheumatoid Serositis
Hello Everyone. I have complex and overlapping auto-immune diseases. I have been given a recent diagnosis of Rheumatoid Serositis. My Respitory Consultant and my Rheumatologist have made this diagnosis. I would like to know if there is anyone dealing with this condition and if there is a known Specialist
Hello Everyone. I have complex and overlapping auto-immune diseases. I have been given a recent diagnosis of Rheumatoid Serositis. My Respitory Consultant and my Rheumatologist have made this diagnosis. I would like to know if there is anyone dealing with this condition and if there is a known Specialist
Skyeblue2
in
NRAS
1 year ago
Various B12D/PA resources
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
jade_s
in
Pernicious Anaemia Society
10 months ago
Another ignorant GP - "is PA forever?" he asked
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
HKAnne
in
Pernicious Anaemia Society
1 year ago
Top tips for driving with rheumatoid arthritis
Driving is something many of us take for granted, but imagine driving with swollen joints and pains in your hands. 😣 Read about some of our top tips to manage driving for someoone living with rheumatoid arthritis. Read the full article here 👉 https://nras.org.uk/resource/tips-for-driving-rheumatoid-arthritis
Driving is something many of us take for granted, but imagine driving with swollen joints and pains in your hands. 😣 Read about some of our top tips to manage driving for someoone living with rheumatoid arthritis. Read the full article here 👉 https://nras.org.uk/resource/tips-for-driving-rheumatoid-arthritis
Aribah-NRAS
NRAS
in
NRAS
1 year ago
Can I eat better to aid stomach acid?
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Mocha23
in
Pernicious Anaemia Society
1 year ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
castor, oil patch
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
Nc3500
in
MPN Voice
11 months ago
Cystocele/Rectocele repair all done
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
Jasparswim
in
Pelvic Pain Support Network
11 months ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
1 month ago
Myasthenia and RA
I have Myasthenia Gravis, and am tapering off Prednisone. Since I went down from 5mg to 2.5 g I am suffering symptoms of rheumatoid arthritis . It's severe.The doctor has me on naproxen. It's not helping at all. Anyone else experience this? thanks. Ian
I have Myasthenia Gravis, and am tapering off Prednisone. Since I went down from 5mg to 2.5 g I am suffering symptoms of rheumatoid arthritis . It's severe.The doctor has me on naproxen. It's not helping at all. Anyone else experience this? thanks. Ian
ianwebber
in
NRAS
1 year ago
Hello and thank you for having me!
Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to this, but it will help me to share it anyhow. I hope that's OK. My name is Holly and I am 35. I am on somewhat of a journey in terms of seeking
Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to this, but it will help me to share it anyhow. I hope that's OK. My name is Holly and I am 35. I am on somewhat of a journey in terms of seeking
Hollyinthewild
in
LUPUS UK
1 year ago
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