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Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
7 months ago
Rising PSA … Clear PSMA SCAN
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
JolleySprings
in
Advanced Prostate Cancer
5 months ago
Carnosine as potential initial PCa treatment
Researchers have discovered that a naturally-occurring molecule could potentially be an effective first line of treatment against prostate cancer. Nottingham Trent University (NTU) scientists investigated the anti-cancer properties of carnosine, which can be produced in the body and is also found
Researchers have discovered that a naturally-occurring molecule could potentially be an effective first line of treatment against prostate cancer. Nottingham Trent University (NTU) scientists investigated the anti-cancer properties of carnosine, which can be produced in the body and is also found
Derf4223
in
Advanced Prostate Cancer
5 months ago
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Gluten free and vegetarian- struggling for choices
Hi, I am diagnosed with coeliac disease and I am also vegetarian. I am struggling for choices, and feel my diet is very bland and I tend to repeat meals several times a week. Particularly eating out, or free-from sections in supermarkets are difficult. They seem to cater for both, but not the two combined
Hi, I am diagnosed with coeliac disease and I am also vegetarian. I am struggling for choices, and feel my diet is very bland and I tend to repeat meals several times a week. Particularly eating out, or free-from sections in supermarkets are difficult. They seem to cater for both, but not the two combined
lauram1978
in
Gluten Free Guerrillas
5 months ago
metastatic prostate cancer
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
my dad has castrate resistant metastatic pc in bones- currently his psa is going up but his scans have been stable- he gets them Every three months- after Zytiga and xtandi are there still many treatments available- the scans were stable for over a year and he gets them Every three Months-
Chris52981
in
Advanced Prostate Cancer
5 months ago
PSA Bounce
Hello and happy New year distinguished gentlemen. I was wondering if I may please get your input on my latest PSA which bounced from 1.2 to 1.6. Why did this happen and is this something I should be concerned about? Thanks so much. Regards.
Hello and happy New year distinguished gentlemen. I was wondering if I may please get your input on my latest PSA which bounced from 1.2 to 1.6. Why did this happen and is this something I should be concerned about? Thanks so much. Regards.
caysary
in
Advanced Prostate Cancer
5 months ago
Heart Transplant
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
DW4019
in
British Heart Foundation
10 months ago
GCA - kidney problem
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Groda
in
PMRGCAuk
5 months ago
Some good news
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
Ruthless247
in
British Liver Trust
5 months ago
Prolactin high
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Jimmy69
in
Thyroid UK
5 months ago
IBD symptoms with no diagnosis
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
JQLA
in
IBS Network
5 months ago
Darolutamide failing after 2 years. Any success if I switch to Xandi or Zytiga or do I need to move to Pluvicto.
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Longterm101
in
Advanced Prostate Cancer
5 months ago
Overall Survival With [177]Lu-PSMA-617 vs Cabazitaxel in Metastatic Castration-Resistant Prostate Cancer
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
Magnus1964
in
Advanced Prostate Cancer
5 months ago
Criteria for "my ADT has stopped working and we have to move to another"
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
jackwfrench
in
Advanced Prostate Cancer
5 months ago
Parkinson’s and vagal nerve stimulation, promising human studies.
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
House2
in
Cure Parkinson's
5 months ago
Lp(a) results are in ….
I’ve recently had bloods taken to test for FH and Lp(a) levels. I had a heart attack in 2022 at aged 51 and was started on a whole ton of medications afterwards including Atorvastatin 80mg and then a bit later adding in 10mg Ezetimibe. My LDL cholesterol has not been able to reach the target of 1.4
I’ve recently had bloods taken to test for FH and Lp(a) levels. I had a heart attack in 2022 at aged 51 and was started on a whole ton of medications afterwards including Atorvastatin 80mg and then a bit later adding in 10mg Ezetimibe. My LDL cholesterol has not been able to reach the target of 1.4
EU95PTM
in
Cholesterol Support
7 months ago
Is Baclofen part of asthma treatment?
I was taken off Montelukast by my Asthma specialist after more than twenty years. Baclofen was given but I had to stop taking it after two weeks because my cough didn't get better. My GP asked me to stop. I couldn't get in touch with my specialist. Should I restart the Baclofen?
I was taken off Montelukast by my Asthma specialist after more than twenty years. Baclofen was given but I had to stop taking it after two weeks because my cough didn't get better. My GP asked me to stop. I couldn't get in touch with my specialist. Should I restart the Baclofen?
Ossing
in
Asthma Community Forum
5 months ago
Lyme disease
Reply to Steve n. Yes have Lyme . Diagnosed with ME so sadly no treatment. Very interested to hear about new treatment.
Reply to Steve n. Yes have Lyme . Diagnosed with ME so sadly no treatment. Very interested to hear about new treatment.
Shelley1234567
in
Pernicious Anaemia Society
5 months ago
Nebivolol problems
I'm struggling with trying to balance blood pressure and heart rate.I take 1.25 Nebivolol once a day but am finding it lowers my BP too much which is making me feel dizzy and light headed.Have tried stopping it for a day but then get tachycardia and AF. Anyone else had this problem?
I'm struggling with trying to balance blood pressure and heart rate.I take 1.25 Nebivolol once a day but am finding it lowers my BP too much which is making me feel dizzy and light headed.Have tried stopping it for a day but then get tachycardia and AF. Anyone else had this problem?
stormcloud
in
AF Association
10 months ago
Low blood pressure
I was diagnosed with AF in October ( now permanent but controlled)and heart failure in December(EF 32). I am now on Bisoprolol 2.5mg, Edoxaban60mg, Entresto24mg twice daily,and new one Spironolactone25g. My problem is that my already low BP plummets every time a new drug is introduced or an increase
I was diagnosed with AF in October ( now permanent but controlled)and heart failure in December(EF 32). I am now on Bisoprolol 2.5mg, Edoxaban60mg, Entresto24mg twice daily,and new one Spironolactone25g. My problem is that my already low BP plummets every time a new drug is introduced or an increase
Poorlizzie
in
AF Association
10 months ago
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