Search
Search
About
Log in
Join
Experiences with
Radical prostatectomy
Posts
Communities
2,337 public posts
Filter results
So unsure what to do...
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
SadandScared
in
Prostate Cancer And Gay Men
8 months ago
Looking to chat
Radical
prostatectomy
was done in May 2022. Biopsy showed no spreading and, for now, I am cancer free. 99% continence regained 3 months post surgery. 1 year post surgery....0% return of erections. The last many years of my married life has had a very little sexual content.
Radical
prostatectomy
was done in May 2022. Biopsy showed no spreading and, for now, I am cancer free. 99% continence regained 3 months post surgery. 1 year post surgery....0% return of erections. The last many years of my married life has had a very little sexual content.
ejefowe
in
Prostate Cancer And Gay Men
1 year ago
PSA 0.5, 6 yrs after prostatectomy
Hi all, My father's PSA has risen to 0.5 today. He had the prostate removal 6.5 yrs back in 2017. His gleason score was 8, PSA around 20 at the time of surgery. However post surgery, it was indicated that seminal vesicles were clean and no occurence in lymph nodes so it was indeed a localized tumor
Hi all, My father's PSA has risen to 0.5 today. He had the prostate removal 6.5 yrs back in 2017. His gleason score was 8, PSA around 20 at the time of surgery. However post surgery, it was indicated that seminal vesicles were clean and no occurence in lymph nodes so it was indeed a localized tumor
VikPa
in
Prostate Cancer Network
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
pT3b just diagnosed
on 9/18/2023 had prostatectomy. Resection margins clear but right seminal vesicles invasion identified along with lymphovascular and perineural invasion present. Any ideas on next step thanks Ed
on 9/18/2023 had prostatectomy. Resection margins clear but right seminal vesicles invasion identified along with lymphovascular and perineural invasion present. Any ideas on next step thanks Ed
bargerat
in
Advanced Prostate Cancer
8 months ago
should I stop Zytiga early?
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
PaulJR
in
Advanced Prostate Cancer
8 months ago
What next? Is my man a candidate for Pluvicto?
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
TahoeJ
in
Advanced Prostate Cancer
8 months ago
ART Percent GS 4-5 Predicts Survival after RP
On the basis of our results, we recommend that the combined percentage of Gleason patterns 4 and 5 be evaluated in
radical
prostatectomy
specimens.
On the basis of our results, we recommend that the combined percentage of Gleason patterns 4 and 5 be evaluated in
radical
prostatectomy
specimens.
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Information overload and now decision time!
Okay, so I am at that stage of making a decision. Mind you I am about to embark on a 10 week overseas 45th anniversary trip. Dr says that should be fine. So whatever decision i come up with now could change by late November. So then a month ago, I had 42 biopsy samples taken and 8 of them were found
Okay, so I am at that stage of making a decision. Mind you I am about to embark on a 10 week overseas 45th anniversary trip. Dr says that should be fine. So whatever decision i come up with now could change by late November. So then a month ago, I had 42 biopsy samples taken and 8 of them were found
Mike58
in
Prostate Cancer Network
8 months ago
12-year post surgery PSA
Hi All, Hard to believe that it’s been 12 years since my prostatectomy. So many health issues since then that PCa has moved down my list of worries. My PSA for the prior 2 years was .008. This year’s result just back and it’s ticked up to .009. I don’t think it’s anything to worry about, but of
Hi All, Hard to believe that it’s been 12 years since my prostatectomy. So many health issues since then that PCa has moved down my list of worries. My PSA for the prior 2 years was .008. This year’s result just back and it’s ticked up to .009. I don’t think it’s anything to worry about, but of
jeff1257
in
Prostate Cancer Network
8 months ago
Has Anyone had a CGA CHROMOGRANIN A, EIA Test ? It’s tumor marker test.
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Open or Robotic Prostatectomy
Open or Robotic? A new wrinkle has cropped up in my journey towards prostatectomy. I have a penile implant whose reservoir is right next to my prostate. My surgeon (who I am reliably told is the best prostatectomy surgeon in the area, Dr L) told me that there is a risk of damaging the reservoir
Open or Robotic? A new wrinkle has cropped up in my journey towards prostatectomy. I have a penile implant whose reservoir is right next to my prostate. My surgeon (who I am reliably told is the best prostatectomy surgeon in the area, Dr L) told me that there is a risk of damaging the reservoir
Lost_Sheep
in
Prostate Cancer Network
8 months ago
Considering options regarding salvage radiation.
"I had robotic
radical
prostatectomy
in April 2019 with Gleason Score of 4+3, clear margins, and unilateral nerve sparing, (one seminal vesicle implicated).
"I had robotic
radical
prostatectomy
in April 2019 with Gleason Score of 4+3, clear margins, and unilateral nerve sparing, (one seminal vesicle implicated).
jacro
in
Advanced Prostate Cancer
1 year ago
Laparotomy, Radical hysterectomy, bilateral salpingo-oophrectomy
I had a major surgery about 8 months ago but the pain around my stomach hasn't gone away. My blood tests and CT scan results are normal.They mentioned that have adhesions which make me in pain all day all night, so I only rely on the pain reliefs.
I had a major surgery about 8 months ago but the pain around my stomach hasn't gone away. My blood tests and CT scan results are normal.They mentioned that have adhesions which make me in pain all day all night, so I only rely on the pain reliefs.
Bandung
in
My Ovacome
6 months ago
Wow! Not again
Was totally traumatized 13 years ago at 57. The near death experience after myI prostatectomy then ecoli. 2012 was a rough year. Mesh sling to get off diapers 2013 and Appendicitis in 2014. I survived because I am a taurus and too stubborn to die!Now at 70 renal cysts with cancer! I am still too stubborn
Was totally traumatized 13 years ago at 57. The near death experience after myI prostatectomy then ecoli. 2012 was a rough year. Mesh sling to get off diapers 2013 and Appendicitis in 2014. I survived because I am a taurus and too stubborn to die!Now at 70 renal cysts with cancer! I am still too stubborn
4OyrsPOZ-PC-KC-SBM
in
Prostate Cancer And Gay Men
9 months ago
PSA 6.9 six years after prostatectomy but PET/CT negative?
Weird situation here. Had a prostatectomy at Hopkins in early 2018. Organ-confined but Gleason on pathology was 4+5. For a little over two years PSA remained undetectable...and then, well, I kind of slacked off the test. Stupid and reckless on my part. After a roughly 3-year interval I recently
Weird situation here. Had a prostatectomy at Hopkins in early 2018. Organ-confined but Gleason on pathology was 4+5. For a little over two years PSA remained undetectable...and then, well, I kind of slacked off the test. Stupid and reckless on my part. After a roughly 3-year interval I recently
Nittany
in
Advanced Prostate Cancer
9 months ago
feeling blessed
Happy to share that no detectable psa score at 2 years post prostatectomy. I feel blessed since I delayed radiation which was suggested by Urologist. Going from 3 month checks to 6 month checks. Hopefully they got it all Excellent site for info signing off I hope for good. 🙏🤞
Happy to share that no detectable psa score at 2 years post prostatectomy. I feel blessed since I delayed radiation which was suggested by Urologist. Going from 3 month checks to 6 month checks. Hopefully they got it all Excellent site for info signing off I hope for good. 🙏🤞
thansen535
in
Advanced Prostate Cancer
9 months ago
Starting my prostate cancer journey after radical prostatectomy. Looking for info, suggestions or recommendations on future treatments.
I had
radical
prostatectomy
with lymph node dissection on 12/1/2022. I am on the road to recovery. The pathology report showed 60-70 % of prostate involved by tumor with extraprostatic extension present, non focal.
I had
radical
prostatectomy
with lymph node dissection on 12/1/2022. I am on the road to recovery. The pathology report showed 60-70 % of prostate involved by tumor with extraprostatic extension present, non focal.
MrDexter
in
Advanced Prostate Cancer
1 year ago
Advice for my husband, looking at treatment options
My husband's history - I don't have all the PSA numbers currently. He is 63 yrs now, under care of a urologist in a multidisciplinary group. No comorbidities other than well controlled hypertension. Nov 2021 Diagnosed via MRI, biopsy. At that time Grade 2 Gleason 3+4 on 1 core, numerous Grade 1
My husband's history - I don't have all the PSA numbers currently. He is 63 yrs now, under care of a urologist in a multidisciplinary group. No comorbidities other than well controlled hypertension. Nov 2021 Diagnosed via MRI, biopsy. At that time Grade 2 Gleason 3+4 on 1 core, numerous Grade 1
MidwifeK
in
Prostate Cancer Network
9 months ago
Post surgery issues
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Jpembs
in
My Ovacome
7 months ago
PSMA PET CT results
PSA 0.2. Would appreciate any comments on the results of my recent PSMA PET CT SCAN: EXAM: NUC PET PSMA PROSTATE, 07/21/2023 13:33 PM CLINICAL INDICATIONS: Carcinoma of prostate; , COMPARISON: Compared to prior outside PET/CT study dated October 11, 2022 CT DOSE: DLP: 689 mGy x cm kVp: 120
PSA 0.2. Would appreciate any comments on the results of my recent PSMA PET CT SCAN: EXAM: NUC PET PSMA PROSTATE, 07/21/2023 13:33 PM CLINICAL INDICATIONS: Carcinoma of prostate; , COMPARISON: Compared to prior outside PET/CT study dated October 11, 2022 CT DOSE: DLP: 689 mGy x cm kVp: 120
LowT
in
Active Surveillance - Prostate Cancer
9 months ago
1
...
9
10
11
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
936 results
Prostate Cancer Network
203 results
PMRGCAuk
202 results
View top 10 communities
Sort by
Most Relevant
Newest