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Update to Here We Go Again
There are 4 tumors, and the onc report says they are Stage II Grade II ER+ PR+ HER2- I hope this is accurate as the last breast cancer was a triple negative encasing a triple positive (hard to treat!) I am still going to Florida for the month of October; surgery is Nov 1. Need to recharge my batteries
There are 4 tumors, and the onc report says they are Stage II Grade II ER+ PR+ HER2- I hope this is accurate as the last breast cancer was a triple negative encasing a triple positive (hard to treat!) I am still going to Florida for the month of October; surgery is Nov 1. Need to recharge my batteries
anrean
in
SHARE Breast Cancer Support
2 years ago
Total Gastrectomy
Hi Has anyone had a total gastrectomy that is willing to contact me and give me advice etc. I am due to have one in November due to a large adenoma in my stomach which they cannot be 100% sure does not have cancer in. Obviously I am very scared at the prospect of having no stomach. I have had APS
Hi Has anyone had a total gastrectomy that is willing to contact me and give me advice etc. I am due to have one in November due to a large adenoma in my stomach which they cannot be 100% sure does not have cancer in. Obviously I am very scared at the prospect of having no stomach. I have had APS
Molly100
in
Hughes Syndrome APS Forum
2 years ago
Anyone with knowledge, personal experience, studies, trials with Radical Prostatectomy after bone, lymph node and/or soft tissue metastases?
Found this: Treatment with radical prostatectomy (RP) plus adjuvant external beam radiotherapy (EBRT), androgen deprivation therapy (ADT), or both (MaxRP) provides equivalent survival outcomes as EBRT, brachytherapy, and ADT (MaxRT) in men with Gleason score 9–10 prostate cancer, according to a new
Found this: Treatment with radical prostatectomy (RP) plus adjuvant external beam radiotherapy (EBRT), androgen deprivation therapy (ADT), or both (MaxRP) provides equivalent survival outcomes as EBRT, brachytherapy, and ADT (MaxRT) in men with Gleason score 9–10 prostate cancer, according to a new
Shorehousejam
in
Advanced Prostate Cancer
2 years ago
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Symptoms during B12 loading phase?
Just checking that my symptoms flare is usual with B12 loading doses. First dose last Thursday and on Saturday I had nerve pain across my mastectomy scar (surgery in 2019), dizzy spells/loss if balance, nausea, and intensifying of my existing peripheral neuropathy in my feet and legs. Second dose this
Just checking that my symptoms flare is usual with B12 loading doses. First dose last Thursday and on Saturday I had nerve pain across my mastectomy scar (surgery in 2019), dizzy spells/loss if balance, nausea, and intensifying of my existing peripheral neuropathy in my feet and legs. Second dose this
MyrtleMac
in
Pernicious Anaemia Society
2 years ago
NALFD/Gall stones
Has anyone come across this ,after having stomach pains,blood test and an ultrasound, I have been advised I have raised liver enzymes,NAFLD, and some gall stones,have seen the consultant and because my attacks are about every 2 months, gall bladder removal not being considered at present,however the
Has anyone come across this ,after having stomach pains,blood test and an ultrasound, I have been advised I have raised liver enzymes,NAFLD, and some gall stones,have seen the consultant and because my attacks are about every 2 months, gall bladder removal not being considered at present,however the
mudgiebananas
3lbs
in
Weight Loss Support
2 years ago
Latest Results Advice Needed
Graves Disease -Subtotal Thyroidectomy 1989 Radioactive Iodine 1994 I currently take Levothyroxine 75mcg Monday to Saturday then 100mcg Sunday I was diagnosed with osteopenia after having 2x vertebral compression fractures and started adcal D3 plus HRTDec 2021 I haven’t seen GP as this was a private
Graves Disease -Subtotal Thyroidectomy 1989 Radioactive Iodine 1994 I currently take Levothyroxine 75mcg Monday to Saturday then 100mcg Sunday I was diagnosed with osteopenia after having 2x vertebral compression fractures and started adcal D3 plus HRTDec 2021 I haven’t seen GP as this was a private
Eladee
in
Thyroid UK
1 year ago
Tailbone coccyx pain- unable to get relief.
Hi all, been dealing with tailbone pain for about 3 years now. Have been a plethora of doctors who have tried different things but nothing helps. Latest I had a ganglion impar shot that did nothing for the pain. This doctor said there's nothing more he can do and other doctors keep passing me around.
Hi all, been dealing with tailbone pain for about 3 years now. Have been a plethora of doctors who have tried different things but nothing helps. Latest I had a ganglion impar shot that did nothing for the pain. This doctor said there's nothing more he can do and other doctors keep passing me around.
CAT1866
in
Pelvic Pain Support Network
2 years ago
ADCal alternatives?
Hello everyone. Am prone to UTIs and don't like the ADCal tabs as they are grainy/gritty. I take a Soldar Vit D, but what dose is advisable, and what brand, type and dose of calcium does anyone advise please. Thanks in advance for any guidance.
Hello everyone. Am prone to UTIs and don't like the ADCal tabs as they are grainy/gritty. I take a Soldar Vit D, but what dose is advisable, and what brand, type and dose of calcium does anyone advise please. Thanks in advance for any guidance.
Temoral
in
PMRGCAuk
2 years ago
genetic testing and circulating cell free dna
Hi lovely ladies Just want to say how extremely helpful and supportive this website is. I’m a nutshell my history is breast cancer grade 1, back in December 2001. Mastectomy, chemotherapy, radiotherapy plus 15 yrs of oestrogen suppressing medication. 2022 big shock, mets in bones, liver & lungs
Hi lovely ladies Just want to say how extremely helpful and supportive this website is. I’m a nutshell my history is breast cancer grade 1, back in December 2001. Mastectomy, chemotherapy, radiotherapy plus 15 yrs of oestrogen suppressing medication. 2022 big shock, mets in bones, liver & lungs
Sweep16
in
SHARE Metastatic Breast Cancer
2 years ago
Should I consider increasing my prednisolone to cover Zoledronic acid infusion?
Morning all- I need to have an infusion of Zoledronic acid next week as my latest DEXA scan has shown that I am osteoporotic again following a year of prednisolone treatment. I was originally diagnosed with osteoporosis 4 years ago at the age of 52 and was managed initially with HRT and Adcal/Vit D3
Morning all- I need to have an infusion of Zoledronic acid next week as my latest DEXA scan has shown that I am osteoporotic again following a year of prednisolone treatment. I was originally diagnosed with osteoporosis 4 years ago at the age of 52 and was managed initially with HRT and Adcal/Vit D3
PPop
in
PMRGCAuk
2 years ago
Coming off pramipexole but pausing for surgery
I was given a date for my mastectomy of October 4 so I decided to continue my pramipexole reduction until nearer the time. I am down to half a tablet a day, from a full tablet a day. I am going to pause now though as they brought my surgery forward to next week. 😬 eek Overall I am ok. I have had
I was given a date for my mastectomy of October 4 so I decided to continue my pramipexole reduction until nearer the time. I am down to half a tablet a day, from a full tablet a day. I am going to pause now though as they brought my surgery forward to next week. 😬 eek Overall I am ok. I have had
RestlessMe
in
Restless Legs Syndrome
2 years ago
Surgery date brought forward by two weeks
Surgery date brought forward by two weeks. Mastectomy was booked for October 4, but I’ve just had a call from the surgeon offering me a week today. I’ve accepted it but it’s left me quite shaky, no idea why. Perhaps because I thought I had three more weeks to prepare and I have less than a week. But
Surgery date brought forward by two weeks. Mastectomy was booked for October 4, but I’ve just had a call from the surgeon offering me a week today. I’ve accepted it but it’s left me quite shaky, no idea why. Perhaps because I thought I had three more weeks to prepare and I have less than a week. But
RestlessMe
in
My Breast Cancer Community
2 years ago
Medical Cannabis
perhaps this topic already covered. Are any of you using it? What forms? i.e. tincture, gummies, brownies? Hybrid, Indica, sativa? I have had recent onset of late afternoon RLS. Very aggravating-dealing with nighttime is bad enough. Donn’t like using cannabis except at bedtimes. Difficult to deal with
perhaps this topic already covered. Are any of you using it? What forms? i.e. tincture, gummies, brownies? Hybrid, Indica, sativa? I have had recent onset of late afternoon RLS. Very aggravating-dealing with nighttime is bad enough. Donn’t like using cannabis except at bedtimes. Difficult to deal with
LoverofParis2014
in
Restless Legs Syndrome
2 years ago
alternative to adcal-3 lemon chewable tabs
my gp has sent me a prescription for adcal-d3 is there an alternative for my severe osteoporosis, they have a lot of sugar which is not good for my prostate cancer.
my gp has sent me a prescription for adcal-d3 is there an alternative for my severe osteoporosis, they have a lot of sugar which is not good for my prostate cancer.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
medical cannabis
hello everyone. has anyone here been invited to take part in medical cannabis trials, from UK Fibromyalgia (link removed by admin) ive been invited this week, just curious to see if anyone else as took part in it. thanks
hello everyone. has anyone here been invited to take part in medical cannabis trials, from UK Fibromyalgia (link removed by admin) ive been invited this week, just curious to see if anyone else as took part in it. thanks
Hidden
in
Fibromyalgia Action UK
2 years ago
Need Support
Hi They say if you want to hear God laugh, tell him your plans. Well, He is laughing mightily!! When the call came that I have breast cancer for the third time, I was adamant that I wouldn't undergo a mastectomy - unfortunately, the onc surgeon does not think she can do a lumpectomy because of a previous
Hi They say if you want to hear God laugh, tell him your plans. Well, He is laughing mightily!! When the call came that I have breast cancer for the third time, I was adamant that I wouldn't undergo a mastectomy - unfortunately, the onc surgeon does not think she can do a lumpectomy because of a previous
anrean
in
SHARE Breast Cancer Support
2 years ago
Heavy feeling after radical hysterectomy
I had a total hysterectomy four weeks ago and my vagina now feels heavy. Dragging feeling. I’m worried it has prolapsed. Or is it too soon to tell. Does recovery and scar tissue feel heavy? Should I be worried. My follow up appointment isn’t for another three weeks. Has my vagina fallen? How do I
I had a total hysterectomy four weeks ago and my vagina now feels heavy. Dragging feeling. I’m worried it has prolapsed. Or is it too soon to tell. Does recovery and scar tissue feel heavy? Should I be worried. My follow up appointment isn’t for another three weeks. Has my vagina fallen? How do I
Littlelady111
in
Gynae Cancer Support
2 years ago
Article in Karger Medical - Neurological Improvement with Medical Cannabis in a Progressive Supranuclear Palsy Patient: A Case Report
Good evening (Friend of a PSP sufferer). https://www.karger.com/Article/FullText/503864 I came across the above report in Karger Medical at the weekend and I am wondering if anyone or any carers have had experience/tried this? In particular if any improvements were noticed in dysarthria (no specific
Good evening (Friend of a PSP sufferer). https://www.karger.com/Article/FullText/503864 I came across the above report in Karger Medical at the weekend and I am wondering if anyone or any carers have had experience/tried this? In particular if any improvements were noticed in dysarthria (no specific
Sweenstar
in
PSP Association
2 years ago
Hello,I live in Bradenton Florida and go to Moffitt Cancer in Tampa
I once had two(2 )oncologists. l live in Bradenton and due to the drive to Moffitt in Tampa I once had another oncologist here at Florida Cancer. She once gave me a second opinion about immunotherapy which I was hesitant to try (it was new at the time so I didn't try that) She told me to just
I once had two(2 )oncologists. l live in Bradenton and due to the drive to Moffitt in Tampa I once had another oncologist here at Florida Cancer. She once gave me a second opinion about immunotherapy which I was hesitant to try (it was new at the time so I didn't try that) She told me to just
Figletf
in
SHARE Metastatic Breast Cancer
2 years ago
blood results from GP what’s your thoughts?
hi all last week my GP refused to depense my medication unless I had a blood test even though my endocrinologist wrote to tell them my findings of my blood test 3 weeks ago 😤 I am currently on 100mg Levo, I am full thyroidectomy patient, also on hypopara so on alfacalcidol and ADCAL. What makes your
hi all last week my GP refused to depense my medication unless I had a blood test even though my endocrinologist wrote to tell them my findings of my blood test 3 weeks ago 😤 I am currently on 100mg Levo, I am full thyroidectomy patient, also on hypopara so on alfacalcidol and ADCAL. What makes your
Thyroid36
in
Thyroid UK
2 years ago
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