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PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Radical prostatectomy consultant in the south of England
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
MarkS
in
Prostate Cancer Network
6 months ago
Ovaries or no Ovaries
I'm 46 next week and have recently been diagnosed with a large fibroid approx 15cm x 10cm and also an ovarian cyst. Consultant has recommended an hysterectomy as I'm also having severe bleeding during my period and am very anaemic. Hysterectomy is also being recommended as my mother had breast cancer
I'm 46 next week and have recently been diagnosed with a large fibroid approx 15cm x 10cm and also an ovarian cyst. Consultant has recommended an hysterectomy as I'm also having severe bleeding during my period and am very anaemic. Hysterectomy is also being recommended as my mother had breast cancer
Pizzame
in
Pelvic Pain Support Network
5 months ago
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You Are All Amazing
Ladies, I came to read some of your stories, being new to the forum and you are all are amazing and brave.I am 49 and at a regular annual check a week ago on a transvaginal ultrasound the doctor saw three large masses near my left ovary in addition to pretty heavy endometriosis. My right ovary was removed
Ladies, I came to read some of your stories, being new to the forum and you are all are amazing and brave.I am 49 and at a regular annual check a week ago on a transvaginal ultrasound the doctor saw three large masses near my left ovary in addition to pretty heavy endometriosis. My right ovary was removed
QuietSorbus
in
My Ovacome
5 months ago
Why all of a sudden Endo?
I am aware on here that many people have experienced problems for many years, since puberty. I have what is suspected to be Endometriosis, but I haven't had any problems until the past 2 and a half years. Is this unusual? I know it takes a long time to get a correct diagnosis. I am waiting for a
I am aware on here that many people have experienced problems for many years, since puberty. I have what is suspected to be Endometriosis, but I haven't had any problems until the past 2 and a half years. Is this unusual? I know it takes a long time to get a correct diagnosis. I am waiting for a
Kittie5117
in
Endometriosis UK
5 months ago
Good News
It seems unfair to share my good news as I know many on this site are unsure how there diagnosis will go, as I was too at the beginning of my journey. But it is also good to read how many have good results. I was diagnosed with stage 3 Ovarian cancer over two years ago now. I had a hysterectomy, six
It seems unfair to share my good news as I know many on this site are unsure how there diagnosis will go, as I was too at the beginning of my journey. But it is also good to read how many have good results. I was diagnosed with stage 3 Ovarian cancer over two years ago now. I had a hysterectomy, six
Jingles6
in
My Ovacome
5 months ago
Medically induced menopause at 24
So I had surgery in July my pain ramped up post surgery and I'm not in excruciating pain daily some days bed bound I work and had 37 days of since km worried about my job they seem OK but its a worry still. I've exhausted alot of options eg. Pain relief and dienogest, doubling my pill for hormones ect
So I had surgery in July my pain ramped up post surgery and I'm not in excruciating pain daily some days bed bound I work and had 37 days of since km worried about my job they seem OK but its a worry still. I've exhausted alot of options eg. Pain relief and dienogest, doubling my pill for hormones ect
En89
in
Endometriosis UK
5 months ago
Deep Infilrative Endometriosis - Recommended Hysterectomy. Age 35.
Hi All, I have been to see a specialist at Endometriosis Centre in Birmingham. He has done an MRI where he can see Endometriosis around my csection scar, my pelvis, back, on bladder and bowel. He's consulting with MDT re bowel and bladder to check it has not infiltrating into there. He has recommended
Hi All, I have been to see a specialist at Endometriosis Centre in Birmingham. He has done an MRI where he can see Endometriosis around my csection scar, my pelvis, back, on bladder and bowel. He's consulting with MDT re bowel and bladder to check it has not infiltrating into there. He has recommended
Rachp88
in
Endometriosis UK
5 months ago
STAGE 1C1 Grade 2
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Kscott10
in
My Ovacome
5 months ago
Adenomyosis, should I have hysterectomy?
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
mavenmi
in
Endometriosis UK
5 months ago
Hysterectomy leaving 1 ovary...
Does anyone have experience of this? I seen an expert gynae BSGE clinical lead and he was so blaze about the fact I may as well just get a hysterectomy since I'm done having kids. I have andenomyosis and endo 6 cysts on one ovary so he said I could keep one which would stop menopause symptoms. But I'm
Does anyone have experience of this? I seen an expert gynae BSGE clinical lead and he was so blaze about the fact I may as well just get a hysterectomy since I'm done having kids. I have andenomyosis and endo 6 cysts on one ovary so he said I could keep one which would stop menopause symptoms. But I'm
DarkStar85
in
Endometriosis UK
5 months ago
Should I have a hysterectomy?
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
mavenmi
in
Menopause and Perimenopause Support
6 months ago
hormonnes .. are they ok or not
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
kes2008
in
Menopause and Perimenopause Support
6 months ago
Saw a specialist
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
I saw a specialist in endometriosis last week and it was eye opening. I had to pay for it or wait 12 months so I opted to go private. I spent over an hour with him and he was incredible. He explained everything and was very practical. I had a list of questions and he answered all of them. I already know
Sunset-lady
in
Endometriosis UK
6 months ago
Monthly endometriosis bleeding after hysterectomy
Hi, I'm new here, so sorry if this has been asked before. I had a hysterectomy (retaining ovaries and cervix) in June, but since August have had monthly bleeding. Pretty sure it's endometriosis, which I was only diagnosed with when the hysterectomy was undertaken. It was in my bowel and pouch of Douglas
Hi, I'm new here, so sorry if this has been asked before. I had a hysterectomy (retaining ovaries and cervix) in June, but since August have had monthly bleeding. Pretty sure it's endometriosis, which I was only diagnosed with when the hysterectomy was undertaken. It was in my bowel and pouch of Douglas
Emwb
in
Endometriosis UK
6 months ago
I've been prescribed Amitriptyline for pelvic pain. Has anyone had success with this medication?
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
I've seen the consultant for Adenomyosis. He is referring me for an urgent mri to confirm it's Adenomyosis and listed for a hysterectomy, including my ovaries. It's an 18 month wait.So, I've been prescribed Amitriptyline and he wants me to trial Prostsap again. Which I'm nervous to do, as it was the
Mindfullness4791
in
Endometriosis UK
6 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
6 months ago
Post Surgery Issues
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
Hi All, I had a total laparoscopic hysterectomy in July and all healed well - very happy. Then the past few days the incision in my belly button has started hurting, I have a swollen belly and it feels like a UTI then I have some bleeding from my belly button and it has a red mark around it. It looks
TJ2021
in
Endometriosis UK
6 months ago
Now for something completely different
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Tryfan
in
AF Association
7 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
6 months ago
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