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Arcticfox44
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Arcticfox44
in
Advanced Prostate Cancer
10 days ago
A little update
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Decant
in
Thyroid UK
10 days ago
phosphate
Good Evening, a little question. I was reading an article about white and whole grain bread. I believe with CKD it is advised to eat white bread due to lower phosphates. The article said that this is not always the case, as although whole grain has more phosphates we only absorb 20-50% of the phosphates
Good Evening, a little question. I was reading an article about white and whole grain bread. I believe with CKD it is advised to eat white bread due to lower phosphates. The article said that this is not always the case, as although whole grain has more phosphates we only absorb 20-50% of the phosphates
Miss-guineapig
in
Kidney Disease
5 months ago
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Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
11 days ago
Anyone else with Jak2 PV have difficulty walking and leg pain?
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
Panda2014
in
MPN Voice
11 days ago
GP appointment
An update from my last posts.I went to see my gp yesterday waited 2 weeks for a face to face appointment , I asked about HRT and was told at my age there would be to many risks and it would have any benifits to my health, also as I had to go to A&E on Monday funny turn at 4 am, gp said go to A&E, suspected
An update from my last posts.I went to see my gp yesterday waited 2 weeks for a face to face appointment , I asked about HRT and was told at my age there would be to many risks and it would have any benifits to my health, also as I had to go to A&E on Monday funny turn at 4 am, gp said go to A&E, suspected
Dawney63
in
Thyroid UK
3 months ago
Iron infusion
I had an iron infusion. Finished it last week. My ferritin was 44 prior to infusion. I have to have a blood test to see if it went up. Just curious how long before you feel better. I still feel the same, very tired. Came off mirapex a month ago and waiting for my dr. to give me a new medication.
I had an iron infusion. Finished it last week. My ferritin was 44 prior to infusion. I have to have a blood test to see if it went up. Just curious how long before you feel better. I still feel the same, very tired. Came off mirapex a month ago and waiting for my dr. to give me a new medication.
lorri214
in
Restless Legs Syndrome
13 days ago
Levothyroxine in spain
Hi all getting desperate now with trying to self source levo as ive had to decrease my levo from 150mcg to 125mcg due to high ft4 on my blood test. I only get 100mcg from my doctor. Asked a few times for a private msg but nobody replied. Anyone know if you can buy it in spain as i am starting to feel
Hi all getting desperate now with trying to self source levo as ive had to decrease my levo from 150mcg to 125mcg due to high ft4 on my blood test. I only get 100mcg from my doctor. Asked a few times for a private msg but nobody replied. Anyone know if you can buy it in spain as i am starting to feel
giggy63
in
Thyroid UK
13 days ago
Levo increase needed
How can doctors expect hypothyroid patients to feel good with a free t4 at only 50 percent? Doesn't even make sense.
How can doctors expect hypothyroid patients to feel good with a free t4 at only 50 percent? Doesn't even make sense.
Dryski
in
Thyroid UK
5 months ago
Looking for help :(
Diagnosed with hashimotos. I’ve had a few ongoing issues and symptoms and they’re getting worse. My endo didn’t believe it was thyroid related or pcos related but arranged for other tests like ACTH, RF etc. He also stated at this point they were discharging me as there’s nothing more they can help with
Diagnosed with hashimotos. I’ve had a few ongoing issues and symptoms and they’re getting worse. My endo didn’t believe it was thyroid related or pcos related but arranged for other tests like ACTH, RF etc. He also stated at this point they were discharging me as there’s nothing more they can help with
Shymxo
in
Thyroid UK
1 month ago
Blood tests advice please
Hello, I wondered if you might advise on recent blood tests? Recently introduced T3 and not felt any improvements yet (I know 5mcg is small dose). May 15th 2024: FT 17.6 (12-22) FT3 4.8 (3.1-6.8) Blood tests were taken 24 hrs after last levo and 4 hrs after 1/2 dose of T3 (as recommended to
Hello, I wondered if you might advise on recent blood tests? Recently introduced T3 and not felt any improvements yet (I know 5mcg is small dose). May 15th 2024: FT 17.6 (12-22) FT3 4.8 (3.1-6.8) Blood tests were taken 24 hrs after last levo and 4 hrs after 1/2 dose of T3 (as recommended to
HotelHurricaine
in
Thyroid UK
14 days ago
Update on Head/neck pressure post from a few days ago
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
Murphysmum
in
Thyroid UK
5 months ago
Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
5 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
5 months ago
Has anyone had a Jak2 Blood Test for blood disorders?
Hi I've had high Platelets for years about 20 at least on every blood test. GP always just said your Platelets are high but we know that! rheumy often mentioned it too. Recently I have been seen in Endocrinology (in a different hospital to my rheumatology team) & been having regular blood tests since
Hi I've had high Platelets for years about 20 at least on every blood test. GP always just said your Platelets are high but we know that! rheumy often mentioned it too. Recently I have been seen in Endocrinology (in a different hospital to my rheumatology team) & been having regular blood tests since
Otto11
in
NRAS
16 days ago
T3 only and feeling a bit desperate
I have been taking T3 only for a handful of years now and for a couple of them on a LCHF diet I was happy enough. I lost weight, and felt good. In October 2020 I restarted HRT (I still had/have) hot flushes, but within 2 months I had started to gain weight and on balance I thought that I would rather
I have been taking T3 only for a handful of years now and for a couple of them on a LCHF diet I was happy enough. I lost weight, and felt good. In October 2020 I restarted HRT (I still had/have) hot flushes, but within 2 months I had started to gain weight and on balance I thought that I would rather
Icicles
in
Thyroid UK
16 days ago
hashimotos and b12
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
Rowing2
in
Pernicious Anaemia Society
2 months ago
Help sourcing t3 online please
Hi folks. New here. I realise that nobody can post links etc but I'm hoping someone out there can message me some info. I'm post menopausal and blood tests show I have hypothyroidism (tsh 9.8). For the past almost 10 years I've been so tired, hair falling out, gaining weight etc. I've been unable
Hi folks. New here. I realise that nobody can post links etc but I'm hoping someone out there can message me some info. I'm post menopausal and blood tests show I have hypothyroidism (tsh 9.8). For the past almost 10 years I've been so tired, hair falling out, gaining weight etc. I've been unable
Johnprinefan
in
Thyroid UK
16 days ago
Should I stop Ferrous Fumarate before Blood Test?
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
SleepingDisco
in
Thyroid UK
17 days ago
Macrocytic Anemia?
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Simonapo
in
Pernicious Anaemia Society
17 days ago
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