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Regulolix [Orgovyx]
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
podsart
in
Advanced Prostate Cancer
10 months ago
Tamoxifen
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
galgo
in
My Breast Cancer Community
10 months ago
I want to try SARM's-Yes or No?
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
AllenMarco
in
Advanced Prostate Cancer
10 months ago
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Experience of taking Lofepromine.
I am a parent of a teenager diagnosed with treatment resistant depression. ECT has recently made minor improvements but now Lofepromine is being suggested. I am concerned about the side effects, the possibility of an increase in suicidal thoughts and many other worries as we have had some nasty past
I am a parent of a teenager diagnosed with treatment resistant depression. ECT has recently made minor improvements but now Lofepromine is being suggested. I am concerned about the side effects, the possibility of an increase in suicidal thoughts and many other worries as we have had some nasty past
Silversquid
in
Mental Health Support
1 year ago
Can orchidectomy substitute ADT/HT?
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
FMOH_N
in
Prostate Cancer Network
10 months ago
Update again again again!
Hi All, I have to say I am feeling MUCH better, and I feel we are getting somewhere now! I have ME and Fibro and was going into a flare so the CRP was raised a little. I don't have any vitamins as this was an NHS test, however, I am keeping my finger crossed that we are also getting somewhere on that
Hi All, I have to say I am feeling MUCH better, and I feel we are getting somewhere now! I have ME and Fibro and was going into a flare so the CRP was raised a little. I don't have any vitamins as this was an NHS test, however, I am keeping my finger crossed that we are also getting somewhere on that
Flippasmile
in
Thyroid UK
11 months ago
Dodged Another Bullet
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
TottenhamMan
in
Advanced Prostate Cancer
10 months ago
Work - the curse of the Running Class! ;)
So darn busy I let my seventh 'Runaversary' pass by! Yep - June 1st, 2016 I decided to try the crazy-promises App I stumbled across on my new cell phone. C25K itself did not fill me with any confidence - it was a post by a newly graduated young lady who described her struggles with breathing, heavy
So darn busy I let my seventh 'Runaversary' pass by! Yep - June 1st, 2016 I decided to try the crazy-promises App I stumbled across on my new cell phone. C25K itself did not fill me with any confidence - it was a post by a newly graduated young lady who described her struggles with breathing, heavy
Irish-John
Graduate
in
Couch to 5K
1 year ago
eGFR down 14% since starting ADT
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
SierraSix
in
Advanced Prostate Cancer
10 months ago
Relapsed CLL: New Approaches Prolong Survival
Dr Furman says that genetically unstable CLL patients need a combination therapy approach to treatment irrespective of MRD assessment results. This is only a short read and Dr Furman's opinion is always worth taking note of. In case it’s behind a paywall, here is the article in full. Credit to
Dr Furman says that genetically unstable CLL patients need a combination therapy approach to treatment irrespective of MRD assessment results. This is only a short read and Dr Furman's opinion is always worth taking note of. In case it’s behind a paywall, here is the article in full. Credit to
Jm954
Administrator
in
CLL Support
1 year ago
Advice on Thyroid results?
Hi all, my first post. I've had symptoms of hypothyroidism for several (6-7) years including extreme fatigue, weight gain (now 2 stone heavier), depression, achy muscles - I used to be so fit and healthy and now everything feels like a huge effort. Had several tests over the years for TSH and T4
Hi all, my first post. I've had symptoms of hypothyroidism for several (6-7) years including extreme fatigue, weight gain (now 2 stone heavier), depression, achy muscles - I used to be so fit and healthy and now everything feels like a huge effort. Had several tests over the years for TSH and T4
Thyroid16
in
Thyroid UK
10 months ago
Can Endo cause leukocytes to appear in your urine?
Hi you lovely lot! I’m 35 and was diagnosed with endometriosis last year. It’s nice to meet you. I had emergency surgery last year to remove an endometrioma that was discovered in hospital as I was unwell. During the laparoscopy it was found that all my pelvic organs were very inflamed and swollen
Hi you lovely lot! I’m 35 and was diagnosed with endometriosis last year. It’s nice to meet you. I had emergency surgery last year to remove an endometrioma that was discovered in hospital as I was unwell. During the laparoscopy it was found that all my pelvic organs were very inflamed and swollen
Yellowpanda
in
Endometriosis UK
10 months ago
New here !!
Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Wilderflower
in
Thyroid UK
10 months ago
ideal biochemistry monitoring
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
SimMartin
in
Advanced Prostate Cancer
10 months ago
How to get bladder to hold urine again? Bladder training?
Looking for guidance from others who have had to regain bladder function. I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Looking for guidance from others who have had to regain bladder function. I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Teddy28
in
Advanced Prostate Cancer
1 year ago
Traveling with supra pubic tube / catheter and urine bag - is it possible?
Looking for guidance from others who have experienced this. Briefly, I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Looking for guidance from others who have experienced this. Briefly, I had a bad case of Radiation Cystitis along with hemorrhagic bleeding that sent me to the hospital multiple times for blocked urine flow due to clots, the last time being end of Jan 2023. After 20 sessions of hyperbaric oxygen
Teddy28
in
Advanced Prostate Cancer
1 year ago
dilated left ventricle informed over the phone (heart failure) 1 week ago
Hello everyone I am a 37 year old man with no signs or symptoms of any heart condition until now . aprox a month ago I was sent for a echocardiogram to check my heart (routine every 5years ) as my father has a pacemaker since the age of 50 and 5years ago had an aortic aneurysm. 5 years ago I had
Hello everyone I am a 37 year old man with no signs or symptoms of any heart condition until now . aprox a month ago I was sent for a echocardiogram to check my heart (routine every 5years ) as my father has a pacemaker since the age of 50 and 5years ago had an aortic aneurysm. 5 years ago I had
Wallewoos
in
British Heart Foundation
1 year ago
Update after RALP ---- Need advice
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
FMOH_N
in
Prostate Cancer Network
10 months ago
Any informed opinions on NMN or NAMPT for advanced Pca - on ADT, no mets yet? Thanks! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4537380/
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
longrungo2
in
Advanced Prostate Cancer
10 months ago
GUIDANCE trial
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
LiveLongAndPropser
in
Prostate Cancer Under 60
10 months ago
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