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Happy New Year and Update
Update: I took what I hope will be my last Lupron shot which will work until March 5 /24. I will have had 31 months of Lupron with mostly undetectable PSA. I will have had 29 months of Abiraterone at that point. Had IMRT radiation 24 months ago Both my MO and RO are interested in whether they have
Update: I took what I hope will be my last Lupron shot which will work until March 5 /24. I will have had 31 months of Lupron with mostly undetectable PSA. I will have had 29 months of Abiraterone at that point. Had IMRT radiation 24 months ago Both my MO and RO are interested in whether they have
Scout4answers
in
Advanced Prostate Cancer
5 months ago
Are We Restoring Thyroid Hormone Signaling in Levothyroxine-Treated Patients With Residual Symptoms of Hypothyroidism?
Not yet even glanced - so no comments! [i]
Are We Restoring Thyroid Hormone Signaling in Levothyroxine-Treated Patients With Residual Symptoms of Hypothyroidism?
[/i] [i]Sabina Casula MD[/i] [i]Department of Endocrinology, Miami Veterans Affairs Healthcare System, Miami, Florida[/i] [i]Matthew
Not yet even glanced - so no comments! [i]
Are We Restoring Thyroid Hormone Signaling in Levothyroxine-Treated Patients With Residual Symptoms of Hypothyroidism?
[/i] [i]Sabina Casula MD[/i] [i]Department of Endocrinology, Miami Veterans Affairs Healthcare System, Miami, Florida[/i] [i]Matthew
helvella
Thyroid UK
in
Thyroid UK
11 months ago
Introducing myself - symptoms worsening, seeking a diagnosis (sorry for the long post!!)
Hi there, I strongly suspect I have a mast cell condition - which has currently flared up at its worst. Background: I was always very healthy, no allergies at all, up until my early twenties when in 2017 I developed a problem with facial swelling and rash. It took about six months to poinpoint the
Hi there, I strongly suspect I have a mast cell condition - which has currently flared up at its worst. Background: I was always very healthy, no allergies at all, up until my early twenties when in 2017 I developed a problem with facial swelling and rash. It took about six months to poinpoint the
Irene3a
in
The UK Mastocytosis Support Group
1 year ago
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Estrodiol and PC
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
Knittingque
in
Advanced Prostate Cancer
7 months ago
Advise please
Where do I start 🙈i apologise now for the length of this but I am at my wits end. I will try & keep it brief. I have Bronchiectasis I believe through Covid diagnosed 2022. Under control Dystolic dysfunction - mild. Under Active Thyroid since 2006 under control. And now NAFLD. I currently take
Where do I start 🙈i apologise now for the length of this but I am at my wits end. I will try & keep it brief. I have Bronchiectasis I believe through Covid diagnosed 2022. Under control Dystolic dysfunction - mild. Under Active Thyroid since 2006 under control. And now NAFLD. I currently take
Pinkhealth61
in
British Liver Trust
7 months ago
Medical OR chemical castration
Hi All, Ok I am 79 and still in great physical condition. PR and ADT for 2 years. To date no unusual physical side effects other than zero sex drive. It looks as thought I will be on ADT until I die. PSA increasing monthly so I will try other chemicals. I want to remain in good shape until my number
Hi All, Ok I am 79 and still in great physical condition. PR and ADT for 2 years. To date no unusual physical side effects other than zero sex drive. It looks as thought I will be on ADT until I die. PSA increasing monthly so I will try other chemicals. I want to remain in good shape until my number
Stevegr
in
Advanced Prostate Cancer
7 months ago
Keeping Going (part 4)
Well having been turned inside out by a nasty Bug and losing 14 lb of weight in two week, my Grandson and daughter convinced me that if at 76 to recover, I was going to have to do a lot of work. So ordered some Whey protein and some weights. So some gentle weight training plus gentle runs. After two
Well having been turned inside out by a nasty Bug and losing 14 lb of weight in two week, my Grandson and daughter convinced me that if at 76 to recover, I was going to have to do a lot of work. So ordered some Whey protein and some weights. So some gentle weight training plus gentle runs. After two
hamit
Graduate
in
Couch to 5K
1 year ago
Hot flashes from lack of estrogen
I have had anorexia for 27 yrs now. I'm 39 female. For the past 6 months or so I have been having severe hot flashes and I got my hormones checked at the gynecologist and she told me that I have low estrogen due to the malnutrition caused by the anorexia which is making my pituitary gland not produce
I have had anorexia for 27 yrs now. I'm 39 female. For the past 6 months or so I have been having severe hot flashes and I got my hormones checked at the gynecologist and she told me that I have low estrogen due to the malnutrition caused by the anorexia which is making my pituitary gland not produce
Hidden
in
Talk ED (eating disorders)
7 months ago
Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
7 months ago
If these were your results what would you do?
So despite increasing my T3 dose my FT3 is staying at 5. My FT4 is falling. My symptoms are mostly in check these days but the fatigue and malaise is creeping higher again and it's starting to inhibit what I can do. (Noting that my estrogen is below range and I'm hoping to start HRT soon.) I'm sporadic
So despite increasing my T3 dose my FT3 is staying at 5. My FT4 is falling. My symptoms are mostly in check these days but the fatigue and malaise is creeping higher again and it's starting to inhibit what I can do. (Noting that my estrogen is below range and I'm hoping to start HRT soon.) I'm sporadic
WitchingHour2point0
in
Thyroid UK
7 months ago
prostap hrt and hysterectomy
Hi I’m looking for some advice, I’ve always suffered with my periods since starting them. I’ve tried lots of different contraceptives and found I’m really sensitive. I’ve had 3 children and don’t plan to have any more. I had an ablation done in 2021 which reduced bleeding but made pain more intense
Hi I’m looking for some advice, I’ve always suffered with my periods since starting them. I’ve tried lots of different contraceptives and found I’m really sensitive. I’ve had 3 children and don’t plan to have any more. I had an ablation done in 2021 which reduced bleeding but made pain more intense
Jessdoss
in
Women's Health
7 months ago
Newby
Hi I'm a new to here, I'm a 62yr female looking to improve my overall health, lose more weight and gain some physical stamina . Hopefully I will get lots of tips ect from here
Hi I'm a new to here, I'm a 62yr female looking to improve my overall health, lose more weight and gain some physical stamina . Hopefully I will get lots of tips ect from here
Smileylady36
in
My EXI Community
9 months ago
Odd statement found in STAMPEDE trial results
"Hormone therapy can cause bone problems. But the trial found that abiraterone reduced the risk of serious bone problems by a half." https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-hormone-therapy-with-other-treatments-for-prostate-cancer-stampede-trial-results
"Hormone therapy can cause bone problems. But the trial found that abiraterone reduced the risk of serious bone problems by a half." https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-hormone-therapy-with-other-treatments-for-prostate-cancer-stampede-trial-results
Hidden
in
Advanced Prostate Cancer
7 months ago
what to do??
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
Vorney
in
Thyroid UK
7 months ago
From a Gleason 9 to a clean CT scan in 18 mos.
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
jtango
in
Advanced Prostate Cancer
7 months ago
How important is missing 2 months of ADT?
I'm one month into RT and ADT for 9 months. I chose monthly Eligard. The Urology office made a mistake and came in with a 3-month dose. When I told the nurse I had communicated my 1-month preference prior, she left the room. The Dr. came in, eyeballed the dosage, removed 2/3 and I received it. I was
I'm one month into RT and ADT for 9 months. I chose monthly Eligard. The Urology office made a mistake and came in with a 3-month dose. When I told the nurse I had communicated my 1-month preference prior, she left the room. The Dr. came in, eyeballed the dosage, removed 2/3 and I received it. I was
Eadgbe
in
Prostate Cancer Network
7 months ago
urinary restriction
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Advanced Prostate Cancer
5 months ago
bone mets
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
dnmrk
in
Advanced Prostate Cancer
7 months ago
Managing side effects of ADT
I have found that Richard Wassersug has many blog postings related to ways to manage ADT side effect on the LifeOnAdt.com website. I also found the new version of his book has a great section on dealing with relationship issues. It was very helpful in keeping my relationship with Coco on track when
I have found that Richard Wassersug has many blog postings related to ways to manage ADT side effect on the LifeOnAdt.com website. I also found the new version of his book has a great section on dealing with relationship issues. It was very helpful in keeping my relationship with Coco on track when
Scout4answers
in
Advanced Prostate Cancer
7 months ago
declining psa #7
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Nfler
in
Advanced Prostate Cancer
7 months ago
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