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After some Advice
Hi all, I was hoping to get some advice. I have been on AS sonce December 2021 and am due for a PSA and MRI next month. Following this my urologist said that a follow up biopsy may be required. My Question should I also ask for a PMSA, I have read that this type of imagining picks up smaller lesions
Hi all, I was hoping to get some advice. I have been on AS sonce December 2021 and am due for a PSA and MRI next month. Following this my urologist said that a follow up biopsy may be required. My Question should I also ask for a PMSA, I have read that this type of imagining picks up smaller lesions
JVARA
in
Prostate Cancer Network
7 months ago
abiraterone first line use in high risk in U.K. debate after stampede research results
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
SimMartin
in
Advanced Prostate Cancer
7 months ago
Did not see that coming.
Hello to all, Dx 11-1-23. Went in with urinary situations and came out with a Turp and stage 4. had a Psma pet scan ..Mets here and there . So high volume I guess. PSA was 139 ..MO says triplet therapy ....seems like I'm pretty far down the road... I know I gain by doing the therapy but on average are
Hello to all, Dx 11-1-23. Went in with urinary situations and came out with a Turp and stage 4. had a Psma pet scan ..Mets here and there . So high volume I guess. PSA was 139 ..MO says triplet therapy ....seems like I'm pretty far down the road... I know I gain by doing the therapy but on average are
APK3
in
Advanced Prostate Cancer
5 months ago
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Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
3 months ago
Undetectable!!
Well, that pesky lymph node is now no longer PSMA detectable. After 1 year of Lupron, and Zytiga. So, now Im looking at 2 more years of Lupron (FML), and 1 more year of Zytiga. MO and RO both said to follow STAMPEDE trial. I want to follow SSPORT trial!! Odd thing, my Testosterone yesterday was 4
Well, that pesky lymph node is now no longer PSMA detectable. After 1 year of Lupron, and Zytiga. So, now Im looking at 2 more years of Lupron (FML), and 1 more year of Zytiga. MO and RO both said to follow STAMPEDE trial. I want to follow SSPORT trial!! Odd thing, my Testosterone yesterday was 4
Hidden
in
Advanced Prostate Cancer
7 months ago
Eligard and Muscle pain
I am 26 months into my ADT and generally tolerating well.I was first on firmagon shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
I am 26 months into my ADT and generally tolerating well.I was first on firmagon shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
mynacho
in
Advanced Prostate Cancer
7 months ago
Possible Cure
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
groth12345
in
Advanced Prostate Cancer
8 months ago
How long to Castrate Resistance: ADT+/- ARSI
Further discussion on details of EMBARK study on another HU forum bears restating here (IMO). For high risk BCR (and beyond) ADT combined with ARSI (in this case enzalutamide) is clearly superior to either monotherapy. However, development of castrate resistance between ADT + Enza vs. Enz monotherapy
Further discussion on details of EMBARK study on another HU forum bears restating here (IMO). For high risk BCR (and beyond) ADT combined with ARSI (in this case enzalutamide) is clearly superior to either monotherapy. However, development of castrate resistance between ADT + Enza vs. Enz monotherapy
MateoBeach
in
Advanced Prostate Cancer
7 months ago
Any difference between 6 month lupron or 6 month elegard injection?
Hi, I’m currently on 3 month lupron injection and doing well with PSA of >0.01 and asked my doctor if there is a 6 month injection. I’ve asked twice and twice he sent a prescription for Elegard instead of Lupron. Should I stay on Lupron? Is there any difference between the two?
Hi, I’m currently on 3 month lupron injection and doing well with PSA of >0.01 and asked my doctor if there is a 6 month injection. I’ve asked twice and twice he sent a prescription for Elegard instead of Lupron. Should I stay on Lupron? Is there any difference between the two?
Lslal
in
Advanced Prostate Cancer
7 months ago
4.7 PSA
Had my levels tested a year ago which was 3.2 and just last week they were tested again which shows 4.7. Considering my age my consultant thinks it's just inflammation but has ordered a MRI to have it checked. Is 4.7 any reason to be concerned?
Had my levels tested a year ago which was 3.2 and just last week they were tested again which shows 4.7. Considering my age my consultant thinks it's just inflammation but has ordered a MRI to have it checked. Is 4.7 any reason to be concerned?
Dan9267
in
Prostate Cancer Network
7 months ago
PMR or PsA or both
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
Seal49
in
Beyond Psoriasis
3 months ago
Fatigue after eating
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Union98
in
Advanced Prostate Cancer
3 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
3 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
3 months ago
Coincidentally ...
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
pca2004
in
Fight Prostate Cancer
9 months ago
Dr. Michael Zelefsky is joining NYU Langone Medical Center
I received this message from Dr. Michael Zelefsky this month: [i]I’m writing this letter to let you know I will be leaving Memorial Sloan Kettering Cancer Center (MSK) on September 6, 2023. For more than 30 years, it has been an honor to be part of the care team at MSK. I will be making a change to
I received this message from Dr. Michael Zelefsky this month: [i]I’m writing this letter to let you know I will be leaving Memorial Sloan Kettering Cancer Center (MSK) on September 6, 2023. For more than 30 years, it has been an honor to be part of the care team at MSK. I will be making a change to
Hope4Happiness
in
Prostate Cancer Network
9 months ago
had 4 treatments of Pluvicto is not dropping PSA
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
Areyoukiddingme
in
Advanced Prostate Cancer
7 months ago
... what, then, do we die of?
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
pca2004
in
Fight Prostate Cancer
9 months ago
Do low PSA-producing cells still rely on testosterone to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
novatimo
in
Advanced Prostate Cancer
7 months ago
Full circle with metastatic prostate cancer
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
Islandboy2021
in
Advanced Prostate Cancer
8 months ago
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