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Primary ciliary dyskinesia (PCD)
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I will be receiving the Dopa Macuna 15% L-Dopa tomorrow. I want to begin taking it in an attempt to see if this alone will replace the Carbidopa that I currently take 2 times a day each measured at 25-100. Does anyone have any suggestions on how to take it? I currently take one Carbidopa at 7 AM and
I will be receiving the Dopa Macuna 15% L-Dopa tomorrow. I want to begin taking it in an attempt to see if this alone will replace the Carbidopa that I currently take 2 times a day each measured at 25-100. Does anyone have any suggestions on how to take it? I currently take one Carbidopa at 7 AM and
procaffeinator
in
Cure Parkinson's
6 years ago
Burning feeling in neck
I’m only 11 weeks since dx. I’m 56 yo male. Decent fitness. In the last 2 weeks I’m noticing a burning sensation like sunburn on my left rear side of my neck. Stretching and rotating neck seems to help. Is this a Pd feeling you think? I was on mirapex for 2 months but doctor said last week I could halt
I’m only 11 weeks since dx. I’m 56 yo male. Decent fitness. In the last 2 weeks I’m noticing a burning sensation like sunburn on my left rear side of my neck. Stretching and rotating neck seems to help. Is this a Pd feeling you think? I was on mirapex for 2 months but doctor said last week I could halt
FergusonJR
in
Cure Parkinson's
6 years ago
Possible Endo with interstitial cystitis. Pressure feeling, frequent urination, pelvic pain
My symptoms started 3 months ago with a vaginitis and possible UTI. Got 2 different treatment and I still had pain all over my lower abdomen. It felt like I had PID, but none of the doctors believed my pain, I just had a little inflammation left. Ultrasound and gyno exams were always negative. Thought
My symptoms started 3 months ago with a vaginitis and possible UTI. Got 2 different treatment and I still had pain all over my lower abdomen. It felt like I had PID, but none of the doctors believed my pain, I just had a little inflammation left. Ultrasound and gyno exams were always negative. Thought
Edinamalac
in
Pelvic Pain Support Network
6 years ago
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Tremors
After 5 years, my tremors have increased to a point were they are far more than just inconvenient. I tried C/L for about 2-1/2 moths, but it made me horribly ill and didn't seem to do much for the tremors. I take amantadine 100 mg three times a day, and ropinirole 8 mg once a day. Has anyone had any
After 5 years, my tremors have increased to a point were they are far more than just inconvenient. I tried C/L for about 2-1/2 moths, but it made me horribly ill and didn't seem to do much for the tremors. I take amantadine 100 mg three times a day, and ropinirole 8 mg once a day. Has anyone had any
S70AWD
in
Cure Parkinson's
6 years ago
Mucuna Pruriens-Varying Amounts of L-dopa Confusing
I bought mucuna Kapikakacchu powder first and have no idea the content of L-dopa but it works. I took 1 tbsp. 2x a day. The whole powder doesn't seem as smooth when I come off of it but is supposed to have beneficial ingredients. Just not sure how much to take but once a day to replace another dose of
I bought mucuna Kapikakacchu powder first and have no idea the content of L-dopa but it works. I took 1 tbsp. 2x a day. The whole powder doesn't seem as smooth when I come off of it but is supposed to have beneficial ingredients. Just not sure how much to take but once a day to replace another dose of
rideabike
in
Cure Parkinson's
6 years ago
Levodopa and cerebral blood flow
I sense that I can feel blood vessels in or near my scalp changing as I head towards off-time and as the next dose as Sinemet CR (50-200) levodopa is transformed into dopamine inside my noggin. ×÷×÷× Effects of Levodopa on Regional Cerebral Metabolism and Blood Flow. Ji Hyun Ko, Renata P. Lerner, and
I sense that I can feel blood vessels in or near my scalp changing as I head towards off-time and as the next dose as Sinemet CR (50-200) levodopa is transformed into dopamine inside my noggin. ×÷×÷× Effects of Levodopa on Regional Cerebral Metabolism and Blood Flow. Ji Hyun Ko, Renata P. Lerner, and
aspergerian
in
Cure Parkinson's
6 years ago
Sinemet: factors affecting variability - gastric emptying
Sage et al 1994 summarily present factors which affect availability of levodopa. Roos et al 1993 compare C/L levels after empty-stomach ingestion with C/L levels after C/L has been ingested with a meal. Chen et al 2012 describe a newer form of controlled release Sinemet: gastric-retentive extended-release
Sage et al 1994 summarily present factors which affect availability of levodopa. Roos et al 1993 compare C/L levels after empty-stomach ingestion with C/L levels after C/L has been ingested with a meal. Chen et al 2012 describe a newer form of controlled release Sinemet: gastric-retentive extended-release
aspergerian
in
Cure Parkinson's
6 years ago
Water retention & bloating
Hi all thanks for the add, what are people doing regards bloating & water retention especially in the heat we are having in Scotland?
Hi all thanks for the add, what are people doing regards bloating & water retention especially in the heat we are having in Scotland?
Saphypops1
in
Thyroid UK
6 years ago
Gabapentin helped
I was recently given gabapentin for a pinched nerve in my leg. I could not even sit in a chair. After 2 days I noticed that my tremors had way decreased and the mucuna I was taking seemed to last longer. I am 4 years into PD with the symptoms starting and remaining on my right side. I have so far managed
I was recently given gabapentin for a pinched nerve in my leg. I could not even sit in a chair. After 2 days I noticed that my tremors had way decreased and the mucuna I was taking seemed to last longer. I am 4 years into PD with the symptoms starting and remaining on my right side. I have so far managed
JimColdguy
in
Cure Parkinson's
6 years ago
Feeling good tonight.
I have a gambling problem when i take Ropinirole. But it works so good i think it is worth the risk. I took 2 6 mg today vs 1. I have felt better today than i have in the last month. If i waste $10,000 a year it is worth it to be without pain. If a person smokes 2 packs a day that is about $5,000
I have a gambling problem when i take Ropinirole. But it works so good i think it is worth the risk. I took 2 6 mg today vs 1. I have felt better today than i have in the last month. If i waste $10,000 a year it is worth it to be without pain. If a person smokes 2 packs a day that is about $5,000
Bailey_Texas
in
Cure Parkinson's
6 years ago
Email From Dr. Costantini June 14, 2018
Dr. Costantini sent this yesterday regarding Levodopa and Thiamine and their synergy together, but it was not translated correctly so I sent it back to him and he corrected it. This is his revised version: Dear Art, The doses of levodopa taken by the patients who write to me are very low. This (I think
Dr. Costantini sent this yesterday regarding Levodopa and Thiamine and their synergy together, but it was not translated correctly so I sent it back to him and he corrected it. This is his revised version: Dear Art, The doses of levodopa taken by the patients who write to me are very low. This (I think
Hidden
in
Cure Parkinson's
6 years ago
Blood in urine
Hi all, I am 60 this month, I went for a check up with the nurse as I was a new patient. On the dip stick test, she said there was blood in my urine, and that it is most likely a UTI infection? She asked me about discomfort or pain or about me not feeling well, I told her I feel the same as always, that
Hi all, I am 60 this month, I went for a check up with the nurse as I was a new patient. On the dip stick test, she said there was blood in my urine, and that it is most likely a UTI infection? She asked me about discomfort or pain or about me not feeling well, I told her I feel the same as always, that
allofatremor
in
Women's Health
6 years ago
Had to fall back on Rx Sinemet for 2days&Mental focus poor
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
BUZZ1397
in
Cure Parkinson's
6 years ago
Trials
Since 2012 I continuously tried various approaches and gauged or judged the benefit: sinemet, coconut oil, amantadine, keto diet, Neupro patches, mucuna, plus other park drug's name I cannot recall. This list could be longer. In all I never experienced placebo effect nor notable improvement. Thiamin
Since 2012 I continuously tried various approaches and gauged or judged the benefit: sinemet, coconut oil, amantadine, keto diet, Neupro patches, mucuna, plus other park drug's name I cannot recall. This list could be longer. In all I never experienced placebo effect nor notable improvement. Thiamin
Hidden
in
Cure Parkinson's
6 years ago
My Sinemet CR plus IR protocol
I take one 50/200 CR plus one half of 25/100 IR every 4 hours. Also, amantadine, 100 mg twice per day. Also, 10 mg methylphenidate once per day. The CR + IR at 2,6,10 am and 2,6,10 pm. I am still in a rehab facility wherein pd meds and meals -served times are almost always in conflict. 7.45 am and 11.45
I take one 50/200 CR plus one half of 25/100 IR every 4 hours. Also, amantadine, 100 mg twice per day. Also, 10 mg methylphenidate once per day. The CR + IR at 2,6,10 am and 2,6,10 pm. I am still in a rehab facility wherein pd meds and meals -served times are almost always in conflict. 7.45 am and 11.45
aspergerian
in
Cure Parkinson's
6 years ago
Stalevo vs mucuna pruriens
Yesterday I went to my doctor with a question: Can I replace stalevo with mucuna pruriens, on the grounds that the first is a chemical drug whereas the second is a natural plant extract. She said NO, because 1) You cannot control the amount of l-dopa contained in each mucuna capsule, so there is a chance
Yesterday I went to my doctor with a question: Can I replace stalevo with mucuna pruriens, on the grounds that the first is a chemical drug whereas the second is a natural plant extract. She said NO, because 1) You cannot control the amount of l-dopa contained in each mucuna capsule, so there is a chance
christos_k
in
Cure Parkinson's
6 years ago
Slow Developing Parkinson's Symptoms
I've been following along the discussions, but am posting for the first time. I'm 76, and was diagnosed a little over five years ago. I'm taking two 25-100 Sinemet daily and two Selegiline 5mg with my morning and noon meals. My neurologist is very pleased with how slowly my symptoms are developing. My
I've been following along the discussions, but am posting for the first time. I'm 76, and was diagnosed a little over five years ago. I'm taking two 25-100 Sinemet daily and two Selegiline 5mg with my morning and noon meals. My neurologist is very pleased with how slowly my symptoms are developing. My
sandog
in
Cure Parkinson's
6 years ago
Going off requip (ropinirole)
My doctor has been reducing Requip today was the first day I went on only 4 mg. Tonight I can’t sleep due to what I think is dyskinesia. It’s mainly in my left leg But it is troublesome enough to be keeping me up awake at three in the morning. Should I self diagnose and take some additional ropinirole
My doctor has been reducing Requip today was the first day I went on only 4 mg. Tonight I can’t sleep due to what I think is dyskinesia. It’s mainly in my left leg But it is troublesome enough to be keeping me up awake at three in the morning. Should I self diagnose and take some additional ropinirole
Stuartep121
in
Cure Parkinson's
6 years ago
UTI/endo on bladder?
The beginning of me finally realising there was something wrong with my body started with having a UTI that didn’t clear with two lots of antibiotics. I insisted it wasn’t a UTI because it didn’t sting when I wee’d or any of the usual symptoms. Anyway, they then suspected appendicitis and whilst in hospital
The beginning of me finally realising there was something wrong with my body started with having a UTI that didn’t clear with two lots of antibiotics. I insisted it wasn’t a UTI because it didn’t sting when I wee’d or any of the usual symptoms. Anyway, they then suspected appendicitis and whilst in hospital
CJessicaD
in
Endometriosis UK
6 years ago
The single biggest predictor of the rate of Parkinson's progression is if you are lonely. Finding by Dr. Laurie Mischley 4/25/18
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
MBAnderson
in
Cure Parkinson's
6 years ago
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