Search
Search
About
Log in
Join
Experiences with
Primary ciliary dyskinesia (PCD)
Posts
Communities
734 public posts
Filter results
New Video: Reflections on Parkinson’s Disease Podcast – EP2: Motor Fluctuations and the levodopa long-duration response
Another excellent podcast! https://www.oruen.com/podcasts/reflections-on-parkinsons-disease-podcast-ep-2-motor-fluctuations-and-the-levodopa-long-duration-response
Another excellent podcast! https://www.oruen.com/podcasts/reflections-on-parkinsons-disease-podcast-ep-2-motor-fluctuations-and-the-levodopa-long-duration-response
Hidden
in
Cure Parkinson's
3 years ago
Wearing Off or Dyskinesia
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Wearing Off or Dyskinesia Author: Jill Marjama-Lyons, MD and Mary J. Shoman ….possible changes to your medicines…discuss with your doctor. •Use Sinemet CR (controlled release) or Sinemet ER (extended release). •Add a dopamine agonist. •Add a COMT inhibitor to Sinemet (immediate release, CR form
Hidden
in
Cure Parkinson's
3 years ago
Interstitial cystitis/painful bladder syndrome and endometriosis?
Hi, I have a laparoscopy booked next week to look for endometriosis, which my consultant thinks may be linked to my interstitial cystitis symptoms- does anyone else have this? Do you have any advice on how to manage it? I had my mirena coil removed for the surgery at the surgeons request and now my
Hi, I have a laparoscopy booked next week to look for endometriosis, which my consultant thinks may be linked to my interstitial cystitis symptoms- does anyone else have this? Do you have any advice on how to manage it? I had my mirena coil removed for the surgery at the surgeons request and now my
alicexmae
in
Endometriosis UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Levodopa =? Dyskinesia
I take levodopa (2 pills x 200 mg throughout the day) to turn me on. Also it helps to reduce my arm's tremor. It does help, but also brings involuntary movements, even hyperactivity I'd say. Mostly it's my upper body (like I'm dancing or something). And it seems as such a waste of life energy. Is there
I take levodopa (2 pills x 200 mg throughout the day) to turn me on. Also it helps to reduce my arm's tremor. It does help, but also brings involuntary movements, even hyperactivity I'd say. Mostly it's my upper body (like I'm dancing or something). And it seems as such a waste of life energy. Is there
b-erec
in
Cure Parkinson's
3 years ago
Ongentys this medication WORKS!
I've been using this med for 6 months, with very positive results. I posted on this before and was surprised on the apparent low interest. Back in October 2020 I complained to my Neuro, my Sinemet was wearing off suddenly. I went from being totally functional to frozen in seconds. Also my dosage regimen
I've been using this med for 6 months, with very positive results. I posted on this before and was surprised on the apparent low interest. Back in October 2020 I complained to my Neuro, my Sinemet was wearing off suddenly. I went from being totally functional to frozen in seconds. Also my dosage regimen
Isthistheone
in
Cure Parkinson's
3 years ago
Swollowing
I'm 60 yo diagnosed with PD 10 years ago I can honestly say my symptoms have not changed much recently diagnosed with generalized anxiety disorder and have infrequent moments where I forget how to swollow is it PD GAD or just age related usually only last a few seconds and if I think about it it
I'm 60 yo diagnosed with PD 10 years ago I can honestly say my symptoms have not changed much recently diagnosed with generalized anxiety disorder and have infrequent moments where I forget how to swollow is it PD GAD or just age related usually only last a few seconds and if I think about it it
Boomercd
in
Cure Parkinson's
3 years ago
Sinemet Slow-release Hard Candy
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
Has anyone tried making a home-made slow-release levodopa lozenge or hard candy that you can suck on and have constant levels of dopamine in your system?
DeanGreen
in
Cure Parkinson's
3 years ago
Is edema a side effect of RYTARY?
[i]I noticed some edema in my foot and ankles when first trying medications for PD. I tried Sinemet but also tried amantadine and ropinerole. I never knew which medication caused the edema. Now I'm on Rytary alone and edema is back. I wore shorts today and both the neuro and my wife noticed
[i]I noticed some edema in my foot and ankles when first trying medications for PD. I tried Sinemet but also tried amantadine and ropinerole. I never knew which medication caused the edema. Now I'm on Rytary alone and edema is back. I wore shorts today and both the neuro and my wife noticed
kaypeeoh
in
Cure Parkinson's
3 years ago
Anxiety & Dyskinesia
My wife was first diagnosed about 10 years ago and has been taking Sinemet for about 5 years which has kept her Bradykesia in check and allowed her to live a reasonably normal life. Of late though she has started to experience random short attacks of involuntary and uncontrollable movements of her body
My wife was first diagnosed about 10 years ago and has been taking Sinemet for about 5 years which has kept her Bradykesia in check and allowed her to live a reasonably normal life. Of late though she has started to experience random short attacks of involuntary and uncontrollable movements of her body
thfc1961
in
Cure Parkinson's
3 years ago
Jaw pain with PSP?
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
My husband was only diagnosed with PSP two weeks ago and is already on hospice care. He was in hospital and rehab and just came home yesterday. Now his jaw is hurting very badly. I thought it was a toothache, but happened to notice a passing comment about jaw pain on a PSP page. Is this common? It
WindyGirl
in
PSP Association
3 years ago
Help me understand dyskinesia and how best to prevent
I gave read a lot on dyskinesia but still some confusion and fear it’s coming. Can you tell me what experience you have with dyskinesia, symptoms, when started and mostly how to prevent.
I gave read a lot on dyskinesia but still some confusion and fear it’s coming. Can you tell me what experience you have with dyskinesia, symptoms, when started and mostly how to prevent.
PD_Partner
in
Cure Parkinson's
3 years ago
Anyone used Prof J. Malone-Lee's approach for Chronic UTIs?
Hi, I've just discovered this book by Prof James Malone-Lee and wondered if anyone has had any luck in getting this type of treatment from the NHS? https://www.amazon.co.uk/Cystitis-Unmasked-James-Malone-Lee/dp/1910079634/ref=sr_1_1?dchild=1&keywords=cystitis&qid=1618603818&s=books&sr=1-1 I've currently
Hi, I've just discovered this book by Prof James Malone-Lee and wondered if anyone has had any luck in getting this type of treatment from the NHS? https://www.amazon.co.uk/Cystitis-Unmasked-James-Malone-Lee/dp/1910079634/ref=sr_1_1?dchild=1&keywords=cystitis&qid=1618603818&s=books&sr=1-1 I've currently
Chancery
in
Pelvic Pain Support Network
3 years ago
PTT FUS in Switzerland - One month later
Not so detailed as Marc, but here is my fellings. After the surgery i was like new. No tremor, no dysknesia, no dystonia, no slowness. Then one week after i had two hard days, like withdraw symptoms, witch i assume it was of cutting meds to fast, especially C/L. I had also a lack of balance on the first
Not so detailed as Marc, but here is my fellings. After the surgery i was like new. No tremor, no dysknesia, no dystonia, no slowness. Then one week after i had two hard days, like withdraw symptoms, witch i assume it was of cutting meds to fast, especially C/L. I had also a lack of balance on the first
Markbit
in
Cure Parkinson's
3 years ago
Endometriosis in the News (hysterectomy, urinary tract, bowels)
Hi all. https://www.bbc.co.uk/news/uk-northern-ireland-56737353 Endometriosis: Young woman pleading for hysterectomy I have just seen this on BBC News. What I found interesting is that she talks about her fight to get the correct treatment, also about the fact that the endometriosis has spread to the
Hi all. https://www.bbc.co.uk/news/uk-northern-ireland-56737353 Endometriosis: Young woman pleading for hysterectomy I have just seen this on BBC News. What I found interesting is that she talks about her fight to get the correct treatment, also about the fact that the endometriosis has spread to the
Anastasia17
in
Endometriosis UK
3 years ago
Exercise poll
Dear Fellow PWPs, How many times per week do you exercise? What do you do, bike, walk, run, swim, weights etc? What level of intensity? My neurologist showed me an article about the theracycle and doing 60-80rpms for 45 minutes three times per week. Doctors said it had the same benefit as PD meds
Dear Fellow PWPs, How many times per week do you exercise? What do you do, bike, walk, run, swim, weights etc? What level of intensity? My neurologist showed me an article about the theracycle and doing 60-80rpms for 45 minutes three times per week. Doctors said it had the same benefit as PD meds
Hidden
in
Cure Parkinson's
3 years ago
CYSTITIS CYSTICA HELP
Cystitis Cystica (painful bladder cysts) inflammation, foul smelling urine, frequent trips to the toilet! Amongst many other things I've had this for many years. I would like to know what herbs or natural remedies anyone has had that has relieved or even better cured? Conventional medicine of 6 months
Cystitis Cystica (painful bladder cysts) inflammation, foul smelling urine, frequent trips to the toilet! Amongst many other things I've had this for many years. I would like to know what herbs or natural remedies anyone has had that has relieved or even better cured? Conventional medicine of 6 months
TinaBa
in
Thyroid UK
3 years ago
Endo, interstitial cystitis and IBS - anyone else?
Hello! I was finally diagnosed with endometriosis back in 2017 after a laparoscopy and in October I was diagnosed with interstitial cystitis after another operation. I also have suspected PCOS (polycystic ovary syndrome). Yesterday, after years of symptoms and a few weeks of tests, I have been diagnosed
Hello! I was finally diagnosed with endometriosis back in 2017 after a laparoscopy and in October I was diagnosed with interstitial cystitis after another operation. I also have suspected PCOS (polycystic ovary syndrome). Yesterday, after years of symptoms and a few weeks of tests, I have been diagnosed
siobhanlrs
in
Endometriosis UK
3 years ago
Has anyone taken Vinpocetine with Rasagiline and Amantadine?
If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
Hidden
in
Cure Parkinson's
3 years ago
The importance of vitamin B6 against Parkinson's. The end of a meaningless prejudice since 1975.
A restriction or prohibition that has survived almost 50 years (1975-2020) without any scientific reason since levodopa was linked to carbidopa or benserazide. by Jesus Marquez Rivera Project "Parkinsons Here and Now" (2012-2021) "What is Science? Learn from Science that you must doubt of the experts
A restriction or prohibition that has survived almost 50 years (1975-2020) without any scientific reason since levodopa was linked to carbidopa or benserazide. by Jesus Marquez Rivera Project "Parkinsons Here and Now" (2012-2021) "What is Science? Learn from Science that you must doubt of the experts
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Antibiotics and levothyroxine
I’ve developed an extremely painful Cystitis and ended up at walk in centre it got so bad. I now have antibiotics to take 2xday and I wondered if I can take them at the same time as my levothyroxine. There was no way I could avoid antibiotics & it came on so over just a few hours. Never had it before
I’ve developed an extremely painful Cystitis and ended up at walk in centre it got so bad. I now have antibiotics to take 2xday and I wondered if I can take them at the same time as my levothyroxine. There was no way I could avoid antibiotics & it came on so over just a few hours. Never had it before
StillEverHopeful
in
Thyroid UK
3 years ago
1
...
9
10
11
...
37
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
481 results
Endometriosis UK
77 results
Thyroid UK
34 results
View top 10 communities
Sort by
Most Relevant
Newest