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Experiences with
Primary biliary cholangitis (PBC)
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PVCs and any activity
Hello, could anyone tell me if they experience PVCs with any form of light activity? I seem to get them at rest, singles, couplets, and any form of light activity seems to make them 100 times worse. Even walking into the garden, hanging out washing, walking up stairs, putting the bin out is enough
Hello, could anyone tell me if they experience PVCs with any form of light activity? I seem to get them at rest, singles, couplets, and any form of light activity seems to make them 100 times worse. Even walking into the garden, hanging out washing, walking up stairs, putting the bin out is enough
Daveyboy76
in
British Heart Foundation
4 years ago
Liver Transplants at the QE Birmingham.
This is really for those who are on the liver transplant waiting list, and who are awaiting that elusive phone call. I have heard that for the time being, all liver transplants are on hold, until this present epidemic has calmed down. Those patients are advised to stay on contact with the transplant
This is really for those who are on the liver transplant waiting list, and who are awaiting that elusive phone call. I have heard that for the time being, all liver transplants are on hold, until this present epidemic has calmed down. Those patients are advised to stay on contact with the transplant
Hidden
in
British Liver Trust
4 years ago
Liver transplants, and a moan?
I have Liver Cirrhosis and my liver is ok thanks to the gods, but I asked my Doctor if If I should go on the transfer list just in case, but he told me I wouldn't get one because of my age I,m only 62 . this really upset me. Youth these days need a brain transplant ?
I have Liver Cirrhosis and my liver is ok thanks to the gods, but I asked my Doctor if If I should go on the transfer list just in case, but he told me I wouldn't get one because of my age I,m only 62 . this really upset me. Youth these days need a brain transplant ?
Nictesla
in
British Liver Trust
4 years ago
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PVC, very scared
Hello for the last 2 weeks I have been having episodes that I can best describe as feeling like someone just scared me to death, my heart pumps really hard and it feels like the air is being pushed from my lungs. I finally went to hospital today and they said I had a PVC and to follow up with a cardiologist
Hello for the last 2 weeks I have been having episodes that I can best describe as feeling like someone just scared me to death, my heart pumps really hard and it feels like the air is being pushed from my lungs. I finally went to hospital today and they said I had a PVC and to follow up with a cardiologist
Mclaughs
in
Arrhythmia Alliance
4 years ago
Been told this is it
Been told this is it for my family member. Drain did not seem to work Low sodium Low platelets They said no to water tablets as would affect salts but i have just read on here there is a tablet that does not affect salts so do not know why they are not trying this
Been told this is it for my family member. Drain did not seem to work Low sodium Low platelets They said no to water tablets as would affect salts but i have just read on here there is a tablet that does not affect salts so do not know why they are not trying this
eekk
in
British Liver Trust
4 years ago
What is the way forward?
Hi all, I have only posted once before but all the answers and help I received were amazing. I support my husband who has decompensated cirrhosis - non alcoholic, probably caused by loads of prescription meds he had to take for ulcerative colitis. So, over the last 18 months to 2 years he has had most
Hi all, I have only posted once before but all the answers and help I received were amazing. I support my husband who has decompensated cirrhosis - non alcoholic, probably caused by loads of prescription meds he had to take for ulcerative colitis. So, over the last 18 months to 2 years he has had most
Caroll0605
in
British Liver Trust
4 years ago
Fibroscan
Had a Fibroscan 5 months ago which read 33. My BMI was 35 and I was a heavy drinker. I also have hemochromatosis which means there is to much iron in my liver making it inflamed. I’ve had 2 x MRIs, 2 x Ultrasound , CT scan and endoscopy which all indicated no liver damage . The Fibroscan reading indicates
Had a Fibroscan 5 months ago which read 33. My BMI was 35 and I was a heavy drinker. I also have hemochromatosis which means there is to much iron in my liver making it inflamed. I’ve had 2 x MRIs, 2 x Ultrasound , CT scan and endoscopy which all indicated no liver damage . The Fibroscan reading indicates
Marcwinchester
in
British Liver Trust
4 years ago
Advice re. my mum’s BP (NSTEMI last year)
Apologies in advance for the long post, but I feel like I’m losing my mind here, and the detail is relevant. We have an extensive, highly varied cardiac history, particularly on my mum’s side. She had obvious cardiac symptoms for years, even had a dodgy ecg when participating in a medical research project
Apologies in advance for the long post, but I feel like I’m losing my mind here, and the detail is relevant. We have an extensive, highly varied cardiac history, particularly on my mum’s side. She had obvious cardiac symptoms for years, even had a dodgy ecg when participating in a medical research project
Hidden
in
British Heart Foundation
4 years ago
Heartbroken 💔
Another liver angel 😇 has passed... No one knows her on here and I can't post on Facebook out of respect for her family... And I not sure others understand the bond you make with someone when you have had your transplants within days of each other and especially when you are the same age and you click
Another liver angel 😇 has passed... No one knows her on here and I can't post on Facebook out of respect for her family... And I not sure others understand the bond you make with someone when you have had your transplants within days of each other and especially when you are the same age and you click
jojokarak
in
British Liver Trust
4 years ago
Heart problems
I’m still convinced I have a heart problem.. I went to the doctor and got a couple of test and I don’t know the names of it so I’m going to try to explain it. One test I had stickers all over me and the seconds test I had a monitor for about a week. She said my heart was normal but she thinks I have
I’m still convinced I have a heart problem.. I went to the doctor and got a couple of test and I don’t know the names of it so I’m going to try to explain it. One test I had stickers all over me and the seconds test I had a monitor for about a week. She said my heart was normal but she thinks I have
oliviaaa1
in
Anxiety Support
4 years ago
Endo, cystitis and constipation
For the past nine months or so I've have cystitis around seven times, always needing antibiotics to clear up. I've also suffered from constipation three times severe enough to need prescription meds to clear. I've begun to notice the constipation comes around the time of my period. Has anyone else experienced
For the past nine months or so I've have cystitis around seven times, always needing antibiotics to clear up. I've also suffered from constipation three times severe enough to need prescription meds to clear. I've begun to notice the constipation comes around the time of my period. Has anyone else experienced
Rai78
in
Endometriosis UK
4 years ago
NHS UK on line information sheet: interstitial cystitis
I totally understand that at the moment there are more important things to do than updating online information sheets. However, once the coronavirus is over (very soon for everyone), could we ask the NHS to include endometriosis in the section explaining what conditions are associated with interstitial
I totally understand that at the moment there are more important things to do than updating online information sheets. However, once the coronavirus is over (very soon for everyone), could we ask the NHS to include endometriosis in the section explaining what conditions are associated with interstitial
Anastasia17
in
Endometriosis UK
4 years ago
Burning perineum pain and urinary frequency
Hi I have been suffering with interstitial cystitis for 4 years and for the last 6months have terrible burning perineum pain on the right side and awful frequency, am at my wits end. Does anyone please have any advice as to what I can do to help this pain please? Its horrendous 😭😭
Hi I have been suffering with interstitial cystitis for 4 years and for the last 6months have terrible burning perineum pain on the right side and awful frequency, am at my wits end. Does anyone please have any advice as to what I can do to help this pain please? Its horrendous 😭😭
26dre
in
Pelvic Pain Support Network
4 years ago
UTI
Hi So I’ve recently had UTI, and was on antibiotics but now I think I have it again. The doctor wants me to go for a blood test at the hospital, but I’m quite concerned about this? With everything that’s going on is it safe.
Hi So I’ve recently had UTI, and was on antibiotics but now I think I have it again. The doctor wants me to go for a blood test at the hospital, but I’m quite concerned about this? With everything that’s going on is it safe.
Edmonton81
in
Women's Health
4 years ago
VT Ablation
Hello everyone Is there anybody on here who has had an ablation specifically for Ventricular Tachycardia ? And was the ablation the first option ? Ive been diagnosed with none sustained VT I’m currently taking 20mg of Bisoprolol but they are miking me feel very lethargic I’m thinking of going down
Hello everyone Is there anybody on here who has had an ablation specifically for Ventricular Tachycardia ? And was the ablation the first option ? Ive been diagnosed with none sustained VT I’m currently taking 20mg of Bisoprolol but they are miking me feel very lethargic I’m thinking of going down
Prince123456
in
Arrhythmia Alliance
4 years ago
Endo on US ligaments and interstitial cystitis
Was just wondering if anyone has been diagnosed with endo on their uterosacral ligaments who also experience severe bladder pain. I have been reading some papers suggesting that there is likely a link but was interested to know what other people’s experiences are. I was suffering with severe bladder
Was just wondering if anyone has been diagnosed with endo on their uterosacral ligaments who also experience severe bladder pain. I have been reading some papers suggesting that there is likely a link but was interested to know what other people’s experiences are. I was suffering with severe bladder
Ejrn
in
Endometriosis UK
4 years ago
Hashimotos and water retention
Has anyone had bad water retention with Hashimotos? If so, how can it be reduced/gotten rid of? Thanks.
Has anyone had bad water retention with Hashimotos? If so, how can it be reduced/gotten rid of? Thanks.
Manjiajk
in
Thyroid UK
4 years ago
Bladder Issues
Does anyone else suffer with this issue? I was diagnosed with severe stage 4 endometriosis after a diagnostic lap in January. No Endo was removed as my bladder and bowel are bonded to my womb. I was supposed to be having an MRI scan on Tuesday but understandably this has been cancelled. I have suffered
Does anyone else suffer with this issue? I was diagnosed with severe stage 4 endometriosis after a diagnostic lap in January. No Endo was removed as my bladder and bowel are bonded to my womb. I was supposed to be having an MRI scan on Tuesday but understandably this has been cancelled. I have suffered
Klom81
in
Endometriosis UK
4 years ago
Keto diet with cirrhosis - good idea or bad?
I have cirrhosis caused by excess alcohol consumption, now “dry” for past 3 years. I am told my cirrhosis warrants an A on the Childs Pugh scale. In an effort to reduce my weight further, so reducing my risk of developing type 2 diabetes, I have embarked upon the ketogenic diet. Does anyone know enough
I have cirrhosis caused by excess alcohol consumption, now “dry” for past 3 years. I am told my cirrhosis warrants an A on the Childs Pugh scale. In an effort to reduce my weight further, so reducing my risk of developing type 2 diabetes, I have embarked upon the ketogenic diet. Does anyone know enough
Winelover
in
British Liver Trust
4 years ago
28 years old. Random chest tightness without pain the last couple weeks.
Hey Everyone Just want to start by saying that I've only had one run in with AF back in February but my cardiologist has not officially diagnosed me with AF since he thinks this MAY have been a one and done incident due to an adverse reaction to antihistamines... but only time will tell. Back in February
Hey Everyone Just want to start by saying that I've only had one run in with AF back in February but my cardiologist has not officially diagnosed me with AF since he thinks this MAY have been a one and done incident due to an adverse reaction to antihistamines... but only time will tell. Back in February
CT868
in
AF Association
4 years ago
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