Experiences with

Potassium iodide

Hey all, It’s been a minute but now I’m five years out and still struggling. My TSH is mid range and I am on 175 mcg6x a week and now 88 mcg on Sundays. I feel this dose contradict my symptoms. For the last few months I have been waking up with my heart racing, night sweats, headache and adrenaline

I am interested to know ok, as a Graves’ disease patient post radioactive iodine. Or partial thyroidectomy have you had experiences after flying? Do you have reactions ?

I don’t want to be negative but what a waste of time that appt was! I didn’t see the same Doctor as last time, they STILL didn’t have any details of my RAI treatment so we were still in the dark. He was a nice enough chap but the same answer to every question was very ambiguous so I’m none then wiser

Most are aware there is a connection so I thought I would bring you up to speed with what’s going on with my thyroid. Rewind back to my second ablation back in early September 2018. Everything went well with no issues at all until April 2019 when I started to get a lot of short, fast runs of rapid

Can anyone please advise of iodine test results. Range .29 to 2.26 test result .81 normal Creatinine range 100 to 500 result 133 Iodine urine 108ugl not range with this. Don't know what this means. I feel this is low and i have excess hair loss. I'd like to raise my iodine to mid range normal. Previously

Hi there, does anyone have any help with this please I am a Graves’ disease patient and have had radioactive iodine in about 2002 I was on 200 micro gram of levothyroxine until last January, I was switched from liothyronine in 2015, as per nhs guidelines, I immediately put on three stone in weight,

Does anyone have cravings for very specific foods or tastes since having PA? When I was much younger, I had a bad case of Graves Disease and craved salt, for the iodine content obviously. Lately, I have have had unusual cravings for eggs and grits. For my UK friends, grits are a mostly southern USA

I’m interested in hearing about people’s experience of refusing RAI. What doctors have said to convince them to undergo it, and how they have responded to being challenged.

Our next meeting is scheduled for Saturday 1st February, 2-4pm at a central location in Chorley. There are two topics that we are going to give a bit of focus to in the meeting: 1) How managing a long-term health condition might affect our emotional outlook on life and 2) The role of functional

Hi everyone 👋 Seeing my Endo on Monday. Some blood test results should be in which were not on the system when I had my first appt with him at Christmas. He used my private tests to ascertain I was Vit D deficient so I have been on 50,000iu of Vit D (1 tablet per week) and took the last tablet yesterday

Hello everyone I had RAI treatment approx 20 years ago to treat thyroid nodules and address the overactivity of my thyroid. I haven’t really been well since despite seeing many different ‘Professionals’. I was prescribed T4 only for many years then tried NDT. I have good days and bad days with no obvious

Good health to all in 2020! Could someone please explain why it is important to have TPO and TG thyroid antibodies tested? I finally found a decent endo. who accepts that more than TSH needs to be tested. Only he doesn’t think it necessary to check TPO & TG. He explained why at the end of a long

I had rai in 2012. 7 yrs ago. 3 years later got ectopics. Dones all the tests. Say heart is ok.im managed on thyroxine. Will magnesium work as im on thyroxine or will i have this forever ? I'm crippled by it. im taking thyroxine and levels go up and down. I'm monitored every 3 months. Pleas help

Just to update my dear friends that I have just had my first injection after my Endophthalmitis infection, I was quite nervous and made sure all the correct sterile protocol practises were in place,I was given a course of antibiotic eye drops a few days before and now for 5 days after, the injection

Hello you all , I have done a test for thyroid and result is ths 20 (should be between 0,5 and 4,5 ) and t4 is 12 (should be between 10 and 20). Would it be worth to try to fix it with minerals like iodine selenium zink magnesium and a diet without gluten diary? Some say You have to take hormone medication

I really need to reduce my supplements for several reasons. For one, I am feeling increasingly nauseous and unsettled in my system after I take the myriad level of supplements I'm currently taking. I know it's the supplements, because when I don't take them, I don't feel like this. I always have them

Hi guys I am very new in this world of Thyroid issues so I may need please some guidance. My doctor has told me I do not have yet Hipo but I do not control it I may develop it. My TSH levels are fine but not the T4, therefore, she has prescribed me Levothyroxine 25 micrograms. After 6 weeks I will have

I'm probably deficient in b12 as I have many of the relevant symptoms (including neurological) so I started b12 injection therapy in the advice of my Doctor. I'm using cianocoblamin 1000 mcg injection each alternate day. I'm also mildly deficient with Iron so I take the Solgar "Gentle Iron" - 25mg byglicinate

I'm new to this website and wondered if anyone can help .I was given Radio Iodine Treatment in August for a multi nodular goitre and although my thyroid levels are back within normal limits I am feeling very ill . Achey joints , achey bones , goosebump sensation and pain in my forehead to name a few

Hey there, I was just hoping someone would be able to help me. I've been sick for over a year now, and have seen so many doctors, mainly gastroenterologists as I was diagnosed with SIBO. But nothing seems to have helped in that area (e.g. antibiotics) I just came back from a rheumatology appointment