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Postviral fatigue syndrome
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34 public communities
Myalgic Encephalomyelitis Community
2,034 members
Myalgic Encephalomyelitis (ME) Community is a peer support community for people who living with ME, aka chronic fatigue syndrome (CFS). Join to connect with others who understand. Share your experiences and get tips and advice from others like you. Why not introduce yourself today - healthunlocked.com/meandcfssupport/write
EDMESH
2,018 members
We are a charity primarily focused on helping patients and their families with ME (Myalgic Encephalomyelitis) and CFS (Chronic Fatigue Syndrome) living in Edinburgh, Scotland. We welcome members from around the UK and the world with an interest in ME and CFS friends – indeed, anyone with an interest in M.E. or CFS.
Foggy's "Invisible Illness" Support
5,556 members
With charitable donations, we are able to provide 2 Hydrotherapy sessions per week, for our paid members. We are dedicated to providing support, raising awareness and promoting positivity, for invisible conditions primarily for: Arthritic Condition's Chronic Fatigue Syndrome Chronic Widespread Pain Fibromyalgia Giant Cell Arteritis Long Covid M. E. Myalgic Encephalopathy Myofascial Pain Polymyalgia Rheumatic Condition's
Fibro Friends WSM
1,055 members
Fibro Friends WSM is registered with the Fibroduck Foundation Our aim is to reach out to others in the area with Fibromyalgia, Chronic Fatigue and Similar Conditions. We run Regular Coffee Mornings and Meetings and occasionally invite guest speakers to come along and talk to us, to help us have better understanding of our conditions and how to manage them. We Meet Twice a Month: On The Second and Last Tuesday Every Month At 11am 1 in 4 People 39 Oxford Street. Weston Super Mare
Gorlin Syndrome Group
220 members
The Gorlin Syndrome Group is a support network offering guidance and information to individuals, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome). The group is organised by individuals affected by Gorlin Syndrome and their families, with support from medical advisors. Our aims and objectives are: to offer guidance and information to individuals, their carers, family and friends with Gorlin syndrome the advancement of the education of the medical profession into Gorlin syndrome and its implications for the family to promote research into the causes, effects, treatment and management of Gorlin syndrome.
Sweet's Syndrome UK
475 members
Sweet's Syndrome UK is a Derbyshire-based (formerly Cardiff-based) patient group that helps those with the rare autoinflammatory condition and neutrophilic dermatosis, Sweet's syndrome. Information provided is evidence-based and supported by medical research.
Neuro Support
1,976 members
Welcome to the Neuro Support Community. This community exists to improve the quality of life of people affected by any neurological condition, including: ALS, Alzheimer’s disease, Back pain, Bell's palsy, birth defects of the brain and spinal cord, brain aneurysm, brain injury, brain tumors, cerebral palsy, chronic fatigue syndrome, concussion, dementia, disk disease of neck and lower back, epilepsy, Guillain-Barré syndrome, migraine, multiple sclerosis, muscular dystrophy, neuralgia, neuropathy, neuromuscular and related diseases, Parkinson's disease, scoliosis, seizures, spinal cord injury, spinal deformity, spinal disorder, spine tumors and stroke. Whether you're affected directly, caring for someone or know someone affected, everyone is welcome. Join today to share your experiences, receive support and exchange advise in a community of people who truly understand. Introduce yourself today: https://healthunlocked.com/neuro-support/write
Sjogren's Support
713 members
This community is a safe space for members to chat about their experience with Sjogren's syndrome.
Lynch Syndrome UK
115 members
Lynch syndrome (LS) is a genetic disorder that causes an increase in certain cancers at an earlier age than usual. There about 12 cancers that can be affected, the commonest are large bowel cancer and rectal cancer. After that, the next most common is womb cancer. LS tends to run in families so it is usual to find than people in different generations have one of these cancers. Find out more on our website lynch-syndrome-uk.org
The Australian Sjögren's Syndrome Association
2,443 members
The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to illness of the founder, the association did not commence trading until June 2004 in Mullumbimby, Northern NSW. The name of the founder and president is Ms Beverly Norton. Background The Association was started by Beverly Norton who, in May 2000, was diagnosed with Sjogren's, a disease that Australian doctors knew very little about. Sjogren's (pronounced show-grins) syndrome is a chronic, autoimmune disorder in which the body's immune system mistakenly attacks its own moisture producing glands. The specific causes of Sjogren's syndrome are not known, but multiple factors are probably involved. These include genetics, viruses, hormones or a combination of all of these. It is critical that it is identified quickly and treated otherwise it can be fatal.
Down's Syndrome Support
322 members
We are a friendly support community for people living with or caring for someone with Down's syndrome. Join to connect with others who understand! Why not share your story today: https://healthunlocked.com/dhg/write/
Hughes Syndrome APS Forum
10,364 members
Hughes Syndrome - APS Support is a Forum that helps support people with Hughes/Antiphospholipid Syndrome and Sero-negative Hughes/APS (SN-APS), also referred to at times as STICKY BLOOD or Sludge Blood. We help people from the UK and globally. We also enhance education, awareness and research into Hughes Syndrome. Some of our members are writing books, and some already have, this does help raise awareness both with the public and medical staff. Please share your experiences, gather useful information, learn from others and don’t be afraid to ask for help if you need it. Above all please enjoy this site!
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