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Platelet transfusions
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Two blood transfusions ,home now. Just learning to stand again ,he wants to fight and do pluvicto may 5. prayers ? Tremor control ?
Hi all. Ty for your support as always. Five days feeding him in hospital and moving him etc, was so hard . Back on duty tomorrow. I miss him so but got weak . He's out of hospital and I'm shocked from a curled up humble position he's choosing to pray they give him pluvicto . His Dr put it through but
Hi all. Ty for your support as always. Five days feeding him in hospital and moving him etc, was so hard . Back on duty tomorrow. I miss him so but got weak . He's out of hospital and I'm shocked from a curled up humble position he's choosing to pray they give him pluvicto . His Dr put it through but
Daddyishealing
in
Advanced Prostate Cancer
1 year ago
My girlfriend
So im here to learn and try and help my partner who means the world to me,She has RLS and spent a few years addicted to nurophen plus which helped her alot shes been off them for 2years plus now and ive never been soo proud of someone, no other tablets helps u name it shes tried it. I have never seen
So im here to learn and try and help my partner who means the world to me,She has RLS and spent a few years addicted to nurophen plus which helped her alot shes been off them for 2years plus now and ive never been soo proud of someone, no other tablets helps u name it shes tried it. I have never seen
Hidden
in
Restless Legs Syndrome
1 year ago
Breathlessness and headaches
Hello everyone Just wondering what your thoughts are on my current situation. I have been on Niraparib since July 2022 with no major side effects and for about the last 4 weeks I have been experiencing breathlessness on exertion, headaches, occasional nausea, extreme night sweats and fatigue. I saw
Hello everyone Just wondering what your thoughts are on my current situation. I have been on Niraparib since July 2022 with no major side effects and for about the last 4 weeks I have been experiencing breathlessness on exertion, headaches, occasional nausea, extreme night sweats and fatigue. I saw
Purplepansies54
in
My Ovacome
1 year ago
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Always trust your instincts
Hello Everyone, Firstly thank you to everyone on this forum and the BLT nurses. You're all supportive so thank you. I suppose my post this evening is trust your instincts. In February this year my husband broke his knee and wrist and became pretty much sofa bound until he came out of hospital recently
Hello Everyone, Firstly thank you to everyone on this forum and the BLT nurses. You're all supportive so thank you. I suppose my post this evening is trust your instincts. In February this year my husband broke his knee and wrist and became pretty much sofa bound until he came out of hospital recently
DD75
in
British Liver Trust
1 year ago
Bone Marrow
Can you tell me what you’ve experienced with bone marrow involvement? How do they know it’s reached bone marrow? What tests? Does it change the medication options? Transfusions not an option for me. What else can help? My B12 is very low. RBC is always just below normal but hemoglobin is always just
Can you tell me what you’ve experienced with bone marrow involvement? How do they know it’s reached bone marrow? What tests? Does it change the medication options? Transfusions not an option for me. What else can help? My B12 is very low. RBC is always just below normal but hemoglobin is always just
HbbM
in
SHARE Metastatic Breast Cancer
1 year ago
My Story for private endocrinologist - what Qs to ask? 🤔
This is everything I have sent to the private endocrinologist about the last two years, with supporting evidence…. Dear Private Endocrinologist, I believe I have symptoms of hypothyroid or central hypothyroid or an issue with HPT axis however my blood tests are within the NHS ranges. In the two
This is everything I have sent to the private endocrinologist about the last two years, with supporting evidence…. Dear Private Endocrinologist, I believe I have symptoms of hypothyroid or central hypothyroid or an issue with HPT axis however my blood tests are within the NHS ranges. In the two
Insomania
in
Thyroid UK
1 year ago
Can stress or worries make a big difference in FBC numbers?
My wife's FBC has changed significantly over the past few weeks, while her medication has been the same for a year. During the past year she has been on anagrelide 3 a day, hydroxy 3 a week keeping her platelets at or around 250 white cells at or around 40 though over the past 8 months her Hgb keeps
My wife's FBC has changed significantly over the past few weeks, while her medication has been the same for a year. During the past year she has been on anagrelide 3 a day, hydroxy 3 a week keeping her platelets at or around 250 white cells at or around 40 though over the past 8 months her Hgb keeps
jointpain
in
MPN Voice
1 year ago
Anyone else being seen at Royal Marsden Sutton?
Hi. Its a while since I’ve posted. I’m now being treated at the Royal Marsden in Sutton - are any other people being treated there? I have myelofibrosis. Would be nice to be in touch with others in the area. My husband developed a glioblastoma very suddenly 2 yrs ago and died within 3 months.
Hi. Its a while since I’ve posted. I’m now being treated at the Royal Marsden in Sutton - are any other people being treated there? I have myelofibrosis. Would be nice to be in touch with others in the area. My husband developed a glioblastoma very suddenly 2 yrs ago and died within 3 months.
Rachelthepotter
in
MPN Voice
1 year ago
Imbruvica
i was diagnosed with CLL in Dec. 2008 at age 69 ….i did w&w till i hit 400,000 WBC and went on Rituxan in June 2020 for 4 mo. and in remission. for approx. 1 year. My HGB went down to 5.5 and needed 6 blood transfusions over time. And lots of Prednisone to keep it up. I did more w&w through 2021 and
i was diagnosed with CLL in Dec. 2008 at age 69 ….i did w&w till i hit 400,000 WBC and went on Rituxan in June 2020 for 4 mo. and in remission. for approx. 1 year. My HGB went down to 5.5 and needed 6 blood transfusions over time. And lots of Prednisone to keep it up. I did more w&w through 2021 and
Candy1015
in
CLL Support
1 year ago
Tear in oesophagus
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus , blood transfusion , antibiotics etc should we be aware for another bleed , does this normally happen ? Any advice appreciated .
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus , blood transfusion , antibiotics etc should we be aware for another bleed , does this normally happen ? Any advice appreciated .
Sharonmcfarlane
in
British Liver Trust
1 year ago
Involvement Opportunity - PRaCTicAL Research Project (UK)
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Stage 4 ~ Now Losing Blood Somewhere
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
drb1966
in
Advanced Prostate Cancer
1 year ago
New treatment after being dropped from Pluvicto.
I was dropped from LU177 treatment in late January and started my first round of Docetaxel/Carboplatin on 01/30. Lab results on 02/17 showed my platelet count to be very low so was denied the second round of chemo. We did see a significant drop in PSA from 758 to 611 on that lab. My next lab 03/17 showed
I was dropped from LU177 treatment in late January and started my first round of Docetaxel/Carboplatin on 01/30. Lab results on 02/17 showed my platelet count to be very low so was denied the second round of chemo. We did see a significant drop in PSA from 758 to 611 on that lab. My next lab 03/17 showed
docbulldog
in
Advanced Prostate Cancer
1 year ago
Advice needed recurrence
Dear ladies, I just need to share as feel very anxious and no one understands like those who are on this journey. So for three years I was told I had IBS and fatty liver. Was under a Gastroenterologist at a local hospital out of my NHS Trust area. Saw the Gastro man every 6 months and in Jan 202 I actually
Dear ladies, I just need to share as feel very anxious and no one understands like those who are on this journey. So for three years I was told I had IBS and fatty liver. Was under a Gastroenterologist at a local hospital out of my NHS Trust area. Saw the Gastro man every 6 months and in Jan 202 I actually
Skyeplus
in
My Ovacome
1 year ago
Double Pneumonia followed by double empyema - still in pain
Hi, in November last year I was diagnosed with double pneumonia that quickly turned into double empyema. I was in hospital for 3 weeks, needed 2 blood transfusions, chest drains in both lungs and ended up with VATs washout of 1 lung. Im almost 3 months after discharge and still get out of breath/tight
Hi, in November last year I was diagnosed with double pneumonia that quickly turned into double empyema. I was in hospital for 3 weeks, needed 2 blood transfusions, chest drains in both lungs and ended up with VATs washout of 1 lung. Im almost 3 months after discharge and still get out of breath/tight
Yoshi1606
in
Lung Conditions Community Forum
1 year ago
low lying placenta - 32 weeks
Hi, hoping to hear from others who have had/are having the same experience as me. I was told from 20 weeks that my placenta was low-lying, partially covering my cervix, and was at the front. I had another scan at 30 weeks which showed little movement - it is still partially covering my cervix. I am 32
Hi, hoping to hear from others who have had/are having the same experience as me. I was told from 20 weeks that my placenta was low-lying, partially covering my cervix, and was at the front. I had another scan at 30 weeks which showed little movement - it is still partially covering my cervix. I am 32
haylady
in
Fertility Network UK - Pregnancy Support
1 year ago
Low hemoglobin and Niraparib
It’s 2:29am and am just back from A&E. Had my usual bloods done today and at 10:15pm got a call saying my hemoglobin result were very low and I needed to go asap to hospital. Did so, fantastic treatment and back tomorrow to have a blood transfusion. Has anyone else experienced low hemoglobin whilst on
It’s 2:29am and am just back from A&E. Had my usual bloods done today and at 10:15pm got a call saying my hemoglobin result were very low and I needed to go asap to hospital. Did so, fantastic treatment and back tomorrow to have a blood transfusion. Has anyone else experienced low hemoglobin whilst on
Skyeplus
in
My Ovacome
1 year ago
Haemogloban
After yearly blood test for heart. They fine. Not fine for irob down to 70. Should b 130 . Blood test done at my request been ill lethargic breathless Dr dine thm 5 week ago seemly cne bak 100 . But thy didn't tell me now iv had 2 blood transfusion s bag iron go bk in Thursday ftidY. Get jags iron
After yearly blood test for heart. They fine. Not fine for irob down to 70. Should b 130 . Blood test done at my request been ill lethargic breathless Dr dine thm 5 week ago seemly cne bak 100 . But thy didn't tell me now iv had 2 blood transfusion s bag iron go bk in Thursday ftidY. Get jags iron
Truesta123
in
British Heart Foundation
1 year ago
Fatigue and me.
After a year of proper supplementation I became all but pain free and and only had slight numbness in my toes. I turned my focus to fatigue. This is the understanding and solution that I came up with. Acknowledging it may just be the supplementation taking effect. I surmised that I had become very
After a year of proper supplementation I became all but pain free and and only had slight numbness in my toes. I turned my focus to fatigue. This is the understanding and solution that I came up with. Acknowledging it may just be the supplementation taking effect. I surmised that I had become very
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Saline Solution Drip
I know it is unlikely. Can I get a saline solution transfusion in the UK with out a prescription? I can get one in some states in the USA. In Ecuador you can have a RPN come to your house and administer a saline solution once a month for $20.00 Note: As far as I know this may be the end of my rash
I know it is unlikely. Can I get a saline solution transfusion in the UK with out a prescription? I can get one in some states in the USA. In Ecuador you can have a RPN come to your house and administer a saline solution once a month for $20.00 Note: As far as I know this may be the end of my rash
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
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