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Cancer and Me (Etc)
I've never written a blog before, so please bear with me. On the 19th December last, I was diagnosed with bowel cancer and non small lung cancer , both completely separate types. I was 71 years of age at this time, very fit, I thought and healthy. No thoughts of cancer. On the 12th January, 2012
I've never written a blog before, so please bear with me. On the 19th December last, I was diagnosed with bowel cancer and non small lung cancer , both completely separate types. I was 71 years of age at this time, very fit, I thought and healthy. No thoughts of cancer. On the 12th January, 2012
dscontroller
in
The Roy Castle Lung Cancer Foundation
12 years ago
Any suggestions for how to prepare for first appointment with haematologist?
Hi, I've been lurking for a week, and so glad I've found this site. I had one test after my first late miscarriage and they treated me as if I have APS, too late for second baby, but 3rd baby had full APS protocols - even pre-birth and she is now 7! I've had migraines - including visual disturbances
Hi, I've been lurking for a week, and so glad I've found this site. I had one test after my first late miscarriage and they treated me as if I have APS, too late for second baby, but 3rd baby had full APS protocols - even pre-birth and she is now 7! I've had migraines - including visual disturbances
aliceblue
in
Hughes Syndrome APS Forum
12 years ago
Blood/Haemotology
At last my HB level has risen to 10.5, after having a 3 unit blood transfusion. But my platlets are still low! I have been referred to the Haemotology Clinic for treatment, but I'm unsure what this will involve. Has anybody been through this & if is so can u enlighten me as to what I should expect.
At last my HB level has risen to 10.5, after having a 3 unit blood transfusion. But my platlets are still low! I have been referred to the Haemotology Clinic for treatment, but I'm unsure what this will involve. Has anybody been through this & if is so can u enlighten me as to what I should expect.
alyj
in
LUPUS UK
12 years ago
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I am still around !!!!!!
Hi Ladies, You will have missed me on the site. I have been very poorly, not cancer related we now find out thankfully. But I can now explain just why I have not been in touch and and have neglected friends on here. Somehow I find it so difficult to come on and post and deal with other peoples problems
Hi Ladies, You will have missed me on the site. I have been very poorly, not cancer related we now find out thankfully. But I can now explain just why I have not been in touch and and have neglected friends on here. Somehow I find it so difficult to come on and post and deal with other peoples problems
spanishanna
in
My Ovacome
12 years ago
Social Support
As a new member, this is my first blog, even though I was diagnosed at fifteen with SLE. I was always told my form was rare, as it effects my brain more than I'd usually admit and my nervous system. Lately I've been having more frequent flares and my iron count was a seven the other day so I had to
As a new member, this is my first blog, even though I was diagnosed at fifteen with SLE. I was always told my form was rare, as it effects my brain more than I'd usually admit and my nervous system. Lately I've been having more frequent flares and my iron count was a seven the other day so I had to
SLE15
in
LUPUS UK
12 years ago
Blood
After not being able to maintain my iron levels for quite a few months, I was finally admitted to hospital over the weekend for a blood transfusion. My HB fell to 6. I am hoping that this will get things looking on the up as I have been feeling so low for so long.
After not being able to maintain my iron levels for quite a few months, I was finally admitted to hospital over the weekend for a blood transfusion. My HB fell to 6. I am hoping that this will get things looking on the up as I have been feeling so low for so long.
alyj
in
LUPUS UK
12 years ago
Tired of this Merry Go Round....DOES IT END????
Was advised by another APS patient to see this "fantastic" heamotoligist here in Perth Australia....so off I went with my referral. Outcome total and utter disbelief of mine and my GP's part. My referral letter stated that I have had numerous DVTS and four miscarriages. Some prior to 2007. It also
Was advised by another APS patient to see this "fantastic" heamotoligist here in Perth Australia....so off I went with my referral. Outcome total and utter disbelief of mine and my GP's part. My referral letter stated that I have had numerous DVTS and four miscarriages. Some prior to 2007. It also
Mystynzl
in
Hughes Syndrome APS Forum
12 years ago
Hope all is well out there .......
Hi all.Sorry I havn't been on here for a while and on my return I was so saddened to learn of our Lizzie losing her fight . My heart and condolences go out to her hubby and family. Lizzie, who educated herself on every regime of chemo, who was always the first to reply to any query, who had the strong
Hi all.Sorry I havn't been on here for a while and on my return I was so saddened to learn of our Lizzie losing her fight . My heart and condolences go out to her hubby and family. Lizzie, who educated herself on every regime of chemo, who was always the first to reply to any query, who had the strong
suzieque
in
My Ovacome
12 years ago
Do any of you need blood transfusions about every other year? I seem to need about 2-3 units every other year. Just wondering!!!!
77tiger05
in
Hughes Syndrome APS Forum
12 years ago
My lupus journey
Hi All This is my first blog post. I'm so happy that I found this site!! At last I don't feel alone with all my worries and aches and pains! My journey started way before I was diagnosed 2 years ago. 8 years ago my twin boys started school and I felt a sigh of relief that I would at last have some
Hi All This is my first blog post. I'm so happy that I found this site!! At last I don't feel alone with all my worries and aches and pains! My journey started way before I was diagnosed 2 years ago. 8 years ago my twin boys started school and I felt a sigh of relief that I would at last have some
Maya23
in
LUPUS UK
12 years ago
Hey, need advice
Hey I am getting very upset. My levels are very low. I am only at a 1.5. I am currently taking 5 cumadin tabs a day. They put me on topomax. It is ususally given to seizure patients. It was given to me to try to prevent the terrible migraines before they started. I am going on like 2 months with these
Hey I am getting very upset. My levels are very low. I am only at a 1.5. I am currently taking 5 cumadin tabs a day. They put me on topomax. It is ususally given to seizure patients. It was given to me to try to prevent the terrible migraines before they started. I am going on like 2 months with these
tandtsmith
in
Hughes Syndrome APS Forum
12 years ago
JUST KEEPING YOU UP TO DATE WITH LATEST TREATMENT
My Oncologist decided to take me off the Cisplatin/Gemcitibane regime that was causing my bloods havoc, as I constantly was receiving blood or
platelet
transfusions
.
My Oncologist decided to take me off the Cisplatin/Gemcitibane regime that was causing my bloods havoc, as I constantly was receiving blood or
platelet
transfusions
.
spanishanna
in
My Ovacome
12 years ago
Does anyone else who has an ileostomy have to take Magnaspartate sachets for low magensium?
Because of the ileostomy which I've had for 18 months I suffer from low magnesium. I take 1-2 magnaspartate sachets per day but because they cause diahorrea I feel they do me more harm than good because soon after I take them I then have a couple of bags full of pure liquid poo (sorry if tmi!). It's
Because of the ileostomy which I've had for 18 months I suffer from low magnesium. I take 1-2 magnaspartate sachets per day but because they cause diahorrea I feel they do me more harm than good because soon after I take them I then have a couple of bags full of pure liquid poo (sorry if tmi!). It's
cathysal
in
My Ovacome
12 years ago
I want to give blood but I don't know if I had a blood transfusion when I had a laparoscopy
they don't usually give blood transfusions with laparoscopies.... do they?
they don't usually give blood transfusions with laparoscopies.... do they?
crystal_willow
in
Endometriosis UK
12 years ago
trying revolade
hi have just been diagnosed with ITP had steroids and immunoglobulins none of these treatments worked had bone marrow test and platelet transfusion on thursday my consultant is going to try me this week with revolade wondering if anyone else has tried this thanks salmagal
hi have just been diagnosed with ITP had steroids and immunoglobulins none of these treatments worked had bone marrow test and platelet transfusion on thursday my consultant is going to try me this week with revolade wondering if anyone else has tried this thanks salmagal
salmagal
in
ITP Support Association
12 years ago
My Mum - an update
My mum has non small cell adino carcinoma, she was diagnosed in November, which was a massive shock and has left us all reeling. She's had a rough time since, with biopsies etc. She started chemo in Jan. but had a terrible reaction and it also didn't work so she is now on Tarceva, as of 3 weeks ago
My mum has non small cell adino carcinoma, she was diagnosed in November, which was a massive shock and has left us all reeling. She's had a rough time since, with biopsies etc. She started chemo in Jan. but had a terrible reaction and it also didn't work so she is now on Tarceva, as of 3 weeks ago
AlliTB
in
The Roy Castle Lung Cancer Foundation
12 years ago
What happens if the blood blisters in your mouth burst?
Over the course of four days the blood blisters receded mainly due to the daily
platelet
transfusions
I was being given. But has anyone had blood blisters burst? Does that mean you haemorrage?
Over the course of four days the blood blisters receded mainly due to the daily
platelet
transfusions
I was being given. But has anyone had blood blisters burst? Does that mean you haemorrage?
NickyD
in
ITP Support Association
12 years ago
Can anyone advise me what the next step may be?
Hi, my daughter was diagnosed in October last year with a platelet count of 3 and is currently on 16, 4 months later. She hasn't had any medication as yet, though received a platelet transfusion at Christmas for heavy menstural bleeding, which is only just under control nowthat she is taking an oral
Hi, my daughter was diagnosed in October last year with a platelet count of 3 and is currently on 16, 4 months later. She hasn't had any medication as yet, though received a platelet transfusion at Christmas for heavy menstural bleeding, which is only just under control nowthat she is taking an oral
Gem1
in
ITP Support Association
12 years ago
BACK ON MY BELOVED AVASTIN
I have been somewhat absent from this site for the past week as frankly I have been feeling dreadful. I had my 'biggie chemo' Wed of last week and started going downhill Fri afternoon. No chemo has ever confined me to bed but the Cisplatin/Gemcitibane really is a killer. I had my scan last week
I have been somewhat absent from this site for the past week as frankly I have been feeling dreadful. I had my 'biggie chemo' Wed of last week and started going downhill Fri afternoon. No chemo has ever confined me to bed but the Cisplatin/Gemcitibane really is a killer. I had my scan last week
spanishanna
in
My Ovacome
12 years ago
Tips on writing letter of resignation due to RA, Fibro, Sjogrens, Chronic pain, oh and anemia,
Well thats what it says on my sick note, or fit to work note. Now i'm not boasting what I have or have not, don't forget the carpal tunnel op and the 2 ops on my spine, makes me feel ill thinking of it. I can't drive as my right leg can not be trusted, it goes off and does a little gig of its own
Well thats what it says on my sick note, or fit to work note. Now i'm not boasting what I have or have not, don't forget the carpal tunnel op and the 2 ops on my spine, makes me feel ill thinking of it. I can't drive as my right leg can not be trusted, it goes off and does a little gig of its own
Tricia-P
in
NRAS
12 years ago
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