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Platelet transfusions
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My sister's just rung
The home rang her to say mum is in hospital, my sister finishes work at 5.00 it's an hour journey over so we're not going in tonight, personally, I'm hoping mum has the transfusion and is then sent back to the care home, thank you for all the support and advice x
The home rang her to say mum is in hospital, my sister finishes work at 5.00 it's an hour journey over so we're not going in tonight, personally, I'm hoping mum has the transfusion and is then sent back to the care home, thank you for all the support and advice x
Jennymary
in
Care Community
6 years ago
Does mum need to go into hospital
Mum's care home have just rung my sister to say the Doctor has visited and her haemagloblin levels are low and she should go into hospital for a blood transfusion. She's 87, dementia, diabetes angina to name a few health issues, so as a family should we let her go into hospital for a blood transfusion
Mum's care home have just rung my sister to say the Doctor has visited and her haemagloblin levels are low and she should go into hospital for a blood transfusion. She's 87, dementia, diabetes angina to name a few health issues, so as a family should we let her go into hospital for a blood transfusion
Jennymary
in
Care Community
6 years ago
Splenic Marginal Zone Lymphoma (SMZL) indolent, slow progressive, watch & wait/watch&wait/watch&worry/watch&fairbadly?
66 year old man in the UK, diagnosed with SMZL about 5 years ago, been going to hospital reguarly at 6-monthly intervals, next outpatient appointment March 2019. Just developed a short episode of what seems like costochondritis, mostly resolved, but at the time as is known did mimic heart attack (myocardial
66 year old man in the UK, diagnosed with SMZL about 5 years ago, been going to hospital reguarly at 6-monthly intervals, next outpatient appointment March 2019. Just developed a short episode of what seems like costochondritis, mostly resolved, but at the time as is known did mimic heart attack (myocardial
raythepaint
in
Lymphoma Canada
6 years ago
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Mets Everywhere..plse help
My dads cancer has spread to liver, lungs, lymph nodes, kidney and bone marrow. I am utterly devastated and in shock. Onco says he can have blood transfusions every week, but he has declined.. can anyone give me any idea of what to expect? Im shattered but want to prepare myself. Thanks everyone. x
My dads cancer has spread to liver, lungs, lymph nodes, kidney and bone marrow. I am utterly devastated and in shock. Onco says he can have blood transfusions every week, but he has declined.. can anyone give me any idea of what to expect? Im shattered but want to prepare myself. Thanks everyone. x
Karenprin
in
Advanced Prostate Cancer
6 years ago
MCL
My father is being treated with ibrutinib for mantle cell lymphoma. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of ibrutinib as he now has an infection. Has anyone else experienced this?
My father is being treated with ibrutinib for mantle cell lymphoma. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of ibrutinib as he now has an infection. Has anyone else experienced this?
Ibrut
in
Lymphoma Canada
6 years ago
ITP - Not Taking Medication - Feedback
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Bueller
in
ITP Support Association
6 years ago
SICKLE CELL NEWSWEEK
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
sicklecellnews
in
Sickle Cell Society
6 years ago
After 18 weeks of chemo
Hi all - last week I completed 18 consecutive weeks of Taxol (and carbo every 3rd week). I took booster shots each week for white count; had a transfusion for red; and drank daily cup of papaya leaf tea with addition of papaya extract for platelets. Now I am focusing on blood counts improving to where
Hi all - last week I completed 18 consecutive weeks of Taxol (and carbo every 3rd week). I took booster shots each week for white count; had a transfusion for red; and drank daily cup of papaya leaf tea with addition of papaya extract for platelets. Now I am focusing on blood counts improving to where
ElayneZ
in
My Ovacome
6 years ago
Anybody like this?
Platelets transfusion every 10 days. Black or red dots on your skin. Mostly hands and legs. Stool looks like tar when your platelets count gets less than 5. Please reply
Platelets transfusion every 10 days. Black or red dots on your skin. Mostly hands and legs. Stool looks like tar when your platelets count gets less than 5. Please reply
cier04
in
ITP Support Association
6 years ago
Anemia needing transfusion with lowered PSA?
Has anyone ever had experience of PSA going down with mets spreading? My dad has had to have a 2nd blood transfusion within a month of the first one, but onco said its not the prostate cancer its something else because PSA gone down. Can anyone give any suggestions?
Has anyone ever had experience of PSA going down with mets spreading? My dad has had to have a 2nd blood transfusion within a month of the first one, but onco said its not the prostate cancer its something else because PSA gone down. Can anyone give any suggestions?
Karenprin
in
Advanced Prostate Cancer
6 years ago
SICKLE CELL NEWS WEEK
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
sicklecellnews
in
Sickle Cell Society
6 years ago
Diagnosed at 30
Yes I was diagnosed at 30, I went six years before I need a treatment . I’ve developed thrombocytopenia which is self-destruction of the platelets . I did six months of treatment and was fine for five years . I did relapse again and started self destructing my red blood cells as well . I did six
Yes I was diagnosed at 30, I went six years before I need a treatment . I’ve developed thrombocytopenia which is self-destruction of the platelets . I did six months of treatment and was fine for five years . I did relapse again and started self destructing my red blood cells as well . I did six
Reg722
in
CLL Support
6 years ago
My mom has HCC
I want to share my mom’s fight against HCC, she got Hepatitis C through a blood transfusion when she was only a teenager, she had successfully gone through very harsh treatments to kill the hepatitis C virus in her late 60s and has been virus free and able to enjoy life for couple of years afterwards
I want to share my mom’s fight against HCC, she got Hepatitis C through a blood transfusion when she was only a teenager, she had successfully gone through very harsh treatments to kill the hepatitis C virus in her late 60s and has been virus free and able to enjoy life for couple of years afterwards
kandy777
Caregiver
in
Blue Faery Liver Cancer
6 years ago
Anemia on Ibrutinib
Posting for a friend who started ibrutinib very recently. This is her first treatment. "After two weeks on ibrutinib, my hemoglobin level is 7.6 so I need a transfusion. It wasn’t something I was expecting. Just wondering if you had a similar experience on ibrutinib or have needed a transfusion at
Posting for a friend who started ibrutinib very recently. This is her first treatment. "After two weeks on ibrutinib, my hemoglobin level is 7.6 so I need a transfusion. It wasn’t something I was expecting. Just wondering if you had a similar experience on ibrutinib or have needed a transfusion at
Eagle5327
in
CLL Support
6 years ago
Begging for help
Hi, I’m 33 and from Melbourne, Australia I have always been the sick kid for as long as I can remember. At age 18 months I was diagnosed with severely low playlets and required transfusions. Luckily this rectified as I got older. Growing up I had asthma, allergies, hay fever and allergies to animals
Hi, I’m 33 and from Melbourne, Australia I have always been the sick kid for as long as I can remember. At age 18 months I was diagnosed with severely low playlets and required transfusions. Luckily this rectified as I got older. Growing up I had asthma, allergies, hay fever and allergies to animals
Creeny
in
Fibromyalgia Action UK
6 years ago
Anyone else having to battle each time they need an iron infusion?
I’ve had PA since I was a teenager, although it took them years to identify it and I was 23 by the time I received my first loading doses. The main reason they missed the PA was due to an ongoing iron anaemia which was disguising the cell shapes on blood tests. The B12 was treated but the iron issue
I’ve had PA since I was a teenager, although it took them years to identify it and I was 23 by the time I received my first loading doses. The main reason they missed the PA was due to an ongoing iron anaemia which was disguising the cell shapes on blood tests. The B12 was treated but the iron issue
Katyluisa
in
Pernicious Anaemia Society
6 years ago
New to all this
Hi everyone x this is all new to me, I was diagnosed with Hepatitis C in May this year, I have had medication since July. I finished taking them on the 1 October. On the 10th my bloods came back as normal 👍👍👍👍 I’m so happy and can’t thank medical staff enough.... unfortunately it’s left me with Cirrhosis
Hi everyone x this is all new to me, I was diagnosed with Hepatitis C in May this year, I have had medication since July. I finished taking them on the 1 October. On the 10th my bloods came back as normal 👍👍👍👍 I’m so happy and can’t thank medical staff enough.... unfortunately it’s left me with Cirrhosis
Icandothis66
in
British Liver Trust
6 years ago
Thomas is at home!
Some good news here, Thomas was discharged the week before last and has been settling in well at home. Matthew is still in hospital and now weighs 2lb 13oz. He's been quite up and down and has had two blood transfusions, a few rounds of antibiotics etc etc. We don't yet have a discharge plan for him
Some good news here, Thomas was discharged the week before last and has been settling in well at home. Matthew is still in hospital and now weighs 2lb 13oz. He's been quite up and down and has had two blood transfusions, a few rounds of antibiotics etc etc. We don't yet have a discharge plan for him
Kathy_t
in
Fertility Network UK
6 years ago
Poopedout
I lost half my blood in 2004 after I found that out from bloodwork that I had done, I was told to go to the emergency room , nine doctors looked at me and admitted me for a blood transfusion and then sent me home the next day at noon not finding where the blood I lost came from ? I was still bleeding
I lost half my blood in 2004 after I found that out from bloodwork that I had done, I was told to go to the emergency room , nine doctors looked at me and admitted me for a blood transfusion and then sent me home the next day at noon not finding where the blood I lost came from ? I was still bleeding
Poopedout
in
IBS Network
6 years ago
Lab results - PA?
Hi, Since this April I've been dealing with depression, anxiety, and starting in July I experienced extreme fatigue (couldn't sit up at my work desk) and passing out when standing for than 10 minutes. I thought the fatigue was a result of the depression and the fainting was because of the fatigue but
Hi, Since this April I've been dealing with depression, anxiety, and starting in July I experienced extreme fatigue (couldn't sit up at my work desk) and passing out when standing for than 10 minutes. I thought the fatigue was a result of the depression and the fainting was because of the fatigue but
reflected_glory
in
Pernicious Anaemia Society
6 years ago
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