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Platelet transfusions
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Coronavirus
Coronavirus I I live in north Devon am post ET-MF awaiting blood transfusion HB 94 and dropping my daughter works in local health centre rang me to say am best to self isolate soon my Transfusion is booked in next Wednesday not heard from hospital to cancel am very mixed as what to do ! My younger daughter
Coronavirus I I live in north Devon am post ET-MF awaiting blood transfusion HB 94 and dropping my daughter works in local health centre rang me to say am best to self isolate soon my Transfusion is booked in next Wednesday not heard from hospital to cancel am very mixed as what to do ! My younger daughter
westlieght
in
MPN Voice
4 years ago
Anyone taking Darolutamide develope asthenia, a known side effect? I've read similar SEs with Xtandi, so is this with all lutamide drugs?
My husband, who is mCRPC started Darolutamide 1 month ago. Shortly after, he started to become more weak in his legs, esp his knees. Last week, after taking Darolutamide for 3-1/2 weeks he suddenly developed asthenia (abnormal physical weakness or lack of energy). I had to run out and buy him a walker
My husband, who is mCRPC started Darolutamide 1 month ago. Shortly after, he started to become more weak in his legs, esp his knees. Last week, after taking Darolutamide for 3-1/2 weeks he suddenly developed asthenia (abnormal physical weakness or lack of energy). I had to run out and buy him a walker
JLS1
in
Advanced Prostate Cancer
4 years ago
Anyone needing blood transfusions
I do not want to be causing chaos but I have questions about how anyone who is transfusion dependent will be supported if this epidemic becomes really bad.Simply because donors will be in short supply and we may have to accept being low on the priority list. I have 3 proposals. Firstly encourage anyone
I do not want to be causing chaos but I have questions about how anyone who is transfusion dependent will be supported if this epidemic becomes really bad.Simply because donors will be in short supply and we may have to accept being low on the priority list. I have 3 proposals. Firstly encourage anyone
skodaguy
in
MPN Voice
4 years ago
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Radium 223 Side Effects?
Hubby had his first radium treatment almost 2 weeks ago. For those of you that have had this treatment what side effects have you had? He had bloodwork done on Monday and he does not need a blood transfusion, but his liver functions are decreased, his alk phos went from 143 to 223. Onc ordered an urgent
Hubby had his first radium treatment almost 2 weeks ago. For those of you that have had this treatment what side effects have you had? He had bloodwork done on Monday and he does not need a blood transfusion, but his liver functions are decreased, his alk phos went from 143 to 223. Onc ordered an urgent
Luv2fish
in
Prostate Cancer Network
4 years ago
My Father fight with prostate cancer(PSA 3045ng/ml)
My father(age 69) diagnose with Prostate Cancer on 16th Mar 2019, his PSA was 3045 ng/ml(ref range 0.00 - 2.80) Platelet count 56.00 (Ref range 150-400) Hemoglobin 8.70(Ref Range 13 - 80). Past history, he had Open Heart Surgery in 2012(MetXL 25 & Korandil 5, 2 times a day ) and thyroide problem (taking
My father(age 69) diagnose with Prostate Cancer on 16th Mar 2019, his PSA was 3045 ng/ml(ref range 0.00 - 2.80) Platelet count 56.00 (Ref range 150-400) Hemoglobin 8.70(Ref Range 13 - 80). Past history, he had Open Heart Surgery in 2012(MetXL 25 & Korandil 5, 2 times a day ) and thyroide problem (taking
Vasanta
in
Advanced Prostate Cancer
4 years ago
My nose bleeding blood transfusion and apixaban
Just an update about my continuous nose bleeding. (7months) for the past few weeks they went crazy, with blood streaming out, half filling a bucket. I had my blooded hands pinching my nose, used ice wadding sanitary towels (1of witch my husband accidentally stuck to my eyeball and lashes with white medical
Just an update about my continuous nose bleeding. (7months) for the past few weeks they went crazy, with blood streaming out, half filling a bucket. I had my blooded hands pinching my nose, used ice wadding sanitary towels (1of witch my husband accidentally stuck to my eyeball and lashes with white medical
mariamoo1
in
Hughes Syndrome APS Forum
4 years ago
Great news!
Had clinic today and was expecting my haemoglobin to have gone down again and to be told I needed another blood transfusion. But no its gone up all on its own, and I can continue on 200 Niraparib which I am doing really well on...........What a fantastic birthday present!!! am on cloud 9. 😃 🥂🎂 Hope
Had clinic today and was expecting my haemoglobin to have gone down again and to be told I needed another blood transfusion. But no its gone up all on its own, and I can continue on 200 Niraparib which I am doing really well on...........What a fantastic birthday present!!! am on cloud 9. 😃 🥂🎂 Hope
Hidden
in
My Ovacome
4 years ago
Worst few days of my life.
Recently my father had been unwell at first he was told it was a virus however as it progressed he backs increasingly weak eventually we were advised to take him to hospital where it was discovered he had low platelets. He had been anemic as well as diabetic for over 20 years he had a blood transfusion
Recently my father had been unwell at first he was told it was a virus however as it progressed he backs increasingly weak eventually we were advised to take him to hospital where it was discovered he had low platelets. He had been anemic as well as diabetic for over 20 years he had a blood transfusion
Meyer_Gdmnx
in
Anxiety and Depression Support
4 years ago
Niraparib
After my blood transfusion of 1 unit I felt really good, last week my Haemoglobin was up at 92. They dropped the dose of Niraparib down to 2 x 100mg, sadly a week later my Haemoglobin is down to 84, they want to see me next week and if it has dropped anymore, will arrange another transfusion and drop
After my blood transfusion of 1 unit I felt really good, last week my Haemoglobin was up at 92. They dropped the dose of Niraparib down to 2 x 100mg, sadly a week later my Haemoglobin is down to 84, they want to see me next week and if it has dropped anymore, will arrange another transfusion and drop
Hidden
in
My Ovacome
4 years ago
So very sorry haven't updated
My daughter did come but is leaving today. We had a wonderful visit even though I had appointments constantly. I was transfused on Friday with 12 units of platelets and 1 of hemoglobin. This morning they checked my blood and I was rushed to ER with critically low blood counts.They transfused as fast
My daughter did come but is leaving today. We had a wonderful visit even though I had appointments constantly. I was transfused on Friday with 12 units of platelets and 1 of hemoglobin. This morning they checked my blood and I was rushed to ER with critically low blood counts.They transfused as fast
dar58
in
Hughes Syndrome APS Forum
4 years ago
Worried about my daughter
My 18 year-old daughter complained of fatigue and tiredness about 6 weeks ago had some bloods and they came back very low infact at one point they were going to give her a transfusion in the end they decided her iron was low and put on tablets she has perked up but last night she came through and said
My 18 year-old daughter complained of fatigue and tiredness about 6 weeks ago had some bloods and they came back very low infact at one point they were going to give her a transfusion in the end they decided her iron was low and put on tablets she has perked up but last night she came through and said
cartwheels
in
CLL Support
4 years ago
A message from hospital bed!!
Hi guys, thanks for you messages, and concerns. Sorry for lack of posts. Quick update. I'm getting on OK. My new liver is functioning wonderfully🤩, but my pain and issues with my haemoglobin have meant energy and strength are not the best. I've had two blood transfusions, and I'm currently getting
Hi guys, thanks for you messages, and concerns. Sorry for lack of posts. Quick update. I'm getting on OK. My new liver is functioning wonderfully🤩, but my pain and issues with my haemoglobin have meant energy and strength are not the best. I've had two blood transfusions, and I'm currently getting
Wass71
in
British Liver Trust
4 years ago
I had 1.5 mil platelets and now they are 645K
I am new here. Great board, great posts, great people.13 Years ago (2003) my platelets progressed to 1.5 mil in about a year. Dr. suspected ET but couldn't confirm, bone marrow test was inconclusive, as he said. He suggested hydrea, I refused. I even don't take a baby aspirin as told because it gives
I am new here. Great board, great posts, great people.13 Years ago (2003) my platelets progressed to 1.5 mil in about a year. Dr. suspected ET but couldn't confirm, bone marrow test was inconclusive, as he said. He suggested hydrea, I refused. I even don't take a baby aspirin as told because it gives
stai
in
MPN Voice
4 years ago
We got the answer, but not what anyone wants to hear.
This is going to be my last time I post here. I did spend 2weeks in the hospital. During that time my blood levels were hard to get and stay level. So many transfusions. They called in Dr Ignatius hematologist oncologist. I had a bone marrow biopsy done. I have 2 very different cancers. The first one
This is going to be my last time I post here. I did spend 2weeks in the hospital. During that time my blood levels were hard to get and stay level. So many transfusions. They called in Dr Ignatius hematologist oncologist. I had a bone marrow biopsy done. I have 2 very different cancers. The first one
dar58
in
Hughes Syndrome APS Forum
4 years ago
in need of hope!!! husband received new kidney 11 days ago
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
Mafy
in
Kidney Transplant Patient Support
4 years ago
Haemoglobin
Just wondering if anyone else has a low haemoglobin, in December when I was in hospital it was way down in the low 60's and I was possibly needing a blood transfusion, luckily for me it's up at 84 just now which is still low but long term it's also better for me as a transfusion can make it a little
Just wondering if anyone else has a low haemoglobin, in December when I was in hospital it was way down in the low 60's and I was possibly needing a blood transfusion, luckily for me it's up at 84 just now which is still low but long term it's also better for me as a transfusion can make it a little
Hidden
in
LUPUS UK
4 years ago
Triplets are home!
I truly hope this post does not upset anyone. I came on here in 2015 and this forum has been an absolute life saver for me. I have had six rounds of IVF over then last five years with six surgeries for endometriosis/womb/cervical stitch. IVF worked every time but sadly had miscarriages every time from
I truly hope this post does not upset anyone. I came on here in 2015 and this forum has been an absolute life saver for me. I have had six rounds of IVF over then last five years with six surgeries for endometriosis/womb/cervical stitch. IVF worked every time but sadly had miscarriages every time from
Missy_22
in
Fertility Network UK
4 years ago
Niraparib Update..............
Hello Ladies, the Transfusion I had last Friday as done the trick and my Haemoglobin is up at 92, so I am going to restart Niraparib at a reduced dose of 200. No further forward in diagnosing my diarrhoea/constipation constant cycle just trying to not let it get me down. My bloods show I have very low
Hello Ladies, the Transfusion I had last Friday as done the trick and my Haemoglobin is up at 92, so I am going to restart Niraparib at a reduced dose of 200. No further forward in diagnosing my diarrhoea/constipation constant cycle just trying to not let it get me down. My bloods show I have very low
Hidden
in
My Ovacome
4 years ago
VENETOCLAX
Just wondered how many of you about there are on VENETOCLAX? My husband was started on this med and was ramped up just before the increase to 200mg when he had Tumor Lysis. Was hospitalized and all labs came drastically down and into almost normal levels. He feels much better as was extremely fatigued
Just wondered how many of you about there are on VENETOCLAX? My husband was started on this med and was ramped up just before the increase to 200mg when he had Tumor Lysis. Was hospitalized and all labs came drastically down and into almost normal levels. He feels much better as was extremely fatigued
Gogldn
in
CLL Support
4 years ago
Blood Transfusion
Hello Ladies - Unfortunately Niraparib has caused my Haemoglobin to fall, I am due to have a blood transfusion tomorrow so that I can hopefully resume Niraparib next week. If any one can answer the following I would be very grateful. Can my husband stay with me? do you get fed?
Hello Ladies - Unfortunately Niraparib has caused my Haemoglobin to fall, I am due to have a blood transfusion tomorrow so that I can hopefully resume Niraparib next week. If any one can answer the following I would be very grateful. Can my husband stay with me? do you get fed?
Hidden
in
My Ovacome
4 years ago
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