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Mum, COVID-19 and in ICU (4 weeks).
Hi all, I joined this yesterday after desperately searching for some support as my mum has been ill the last few weeks with COVID-19. Reading through your posts has given me some comfort & hope. My mum was admitted to hospital in the UK on 11/04/2020, with what they initially thought was pneumonia
Hi all, I joined this yesterday after desperately searching for some support as my mum has been ill the last few weeks with COVID-19. Reading through your posts has given me some comfort & hope. My mum was admitted to hospital in the UK on 11/04/2020, with what they initially thought was pneumonia
Hidden
in
ICUsteps
4 years ago
Pete update
Well ups and downs pete is having the bluddy lot he has yet again another infection and he has another leek in his esophagus he has had 2 tests for covid 19 thankfully both ok he has had a blood transfusion and is still on antibiotics still nill by mouth still having oxygen and nebulizer he is having
Well ups and downs pete is having the bluddy lot he has yet again another infection and he has another leek in his esophagus he has had 2 tests for covid 19 thankfully both ok he has had a blood transfusion and is still on antibiotics still nill by mouth still having oxygen and nebulizer he is having
Valerie01
in
Oesophageal & Gastric Cancer
4 years ago
My dad has kidney failure
Hi everyone. My Dad had an aneurysm in February and alot of his large bowel and gallbladder removed whilst in surgery. He spent 6 weeks in ITU where his kidneys needed filtering a few times.There was talk of dialysis but then the kidneys started to improve on their own. Fast forward 4 weeks and my dad
Hi everyone. My Dad had an aneurysm in February and alot of his large bowel and gallbladder removed whilst in surgery. He spent 6 weeks in ITU where his kidneys needed filtering a few times.There was talk of dialysis but then the kidneys started to improve on their own. Fast forward 4 weeks and my dad
NICOLETTE2020
in
Early CKD Support
4 years ago
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Decrease in Anemia after starting Ibrutinib
Hi, can the folks who were anemic before starting Ibrutinib advise on the time it took for Hb levels to start rising again? My mother has started Ibrutinib 40 days back and her Hb is still decreasing and may need a blood transfusion if this continues. will have to make a judgement call to wait for the
Hi, can the folks who were anemic before starting Ibrutinib advise on the time it took for Hb levels to start rising again? My mother has started Ibrutinib 40 days back and her Hb is still decreasing and may need a blood transfusion if this continues. will have to make a judgement call to wait for the
VikPa
in
CLL Support
4 years ago
Is this fairly normal?
So my Dad is in rehab and is doing well with the physios and hopes to be home by the end of this month but he seems to be needing regular blood transfusions because his iron is too low. He only had one about 10 days ago and then an iron infusion and yesterday he got the same. I am still waiting on talking
So my Dad is in rehab and is doing well with the physios and hopes to be home by the end of this month but he seems to be needing regular blood transfusions because his iron is too low. He only had one about 10 days ago and then an iron infusion and yesterday he got the same. I am still waiting on talking
NICOLETTE2020
in
ICUsteps
4 years ago
First ivig this week
Scheduled for first ivig on Thursday. My veins like to play hide and seek whenever they are invaded so my lab friends always use a butterfly needle. When I had my transfusion last year after 11 unsuccessful pokes they went down to a 20 needle (I have no idea what that means. Other than it made the
Scheduled for first ivig on Thursday. My veins like to play hide and seek whenever they are invaded so my lab friends always use a butterfly needle. When I had my transfusion last year after 11 unsuccessful pokes they went down to a 20 needle (I have no idea what that means. Other than it made the
Imbub
in
CLL Support
4 years ago
How to get cell counts back to normal after Radium 223 (Xofigo) first dose?
Since my Dad had his first dose of Radium 223 (Xofigo), a few months ago now, his cell counts; Neutrophils, white blood cells, Heamoglobin and platelets have decreased. There was mention of a blood transfusion but I don't think it is necessary yet. He obviously can't continue with his treatment until
Since my Dad had his first dose of Radium 223 (Xofigo), a few months ago now, his cell counts; Neutrophils, white blood cells, Heamoglobin and platelets have decreased. There was mention of a blood transfusion but I don't think it is necessary yet. He obviously can't continue with his treatment until
Luucy
in
Advanced Prostate Cancer
4 years ago
Covid-19: rough morning
Hi all, We had a rough morning today. Dad’s heart went into a-fib, and he is still bleeding from his bladder. He is on heparin because he is still hypercoagulable so we are in this catch22- his blood is so thin that the bleed won’t stop, but we cant stop the heparin or else he will clot again. He
Hi all, We had a rough morning today. Dad’s heart went into a-fib, and he is still bleeding from his bladder. He is on heparin because he is still hypercoagulable so we are in this catch22- his blood is so thin that the bleed won’t stop, but we cant stop the heparin or else he will clot again. He
Angelssavepoppy
in
ICUsteps
4 years ago
Continuous bleeding - pls advise
Hi. My mother was in sept 2019 diagnosed with stage 4 oesophageal cancer, location is at the joint to the stomach, we did chemo, dnt help much bt at the end of the treatment she developed bad ulcers and started losing blood a lot...seemed to run out of ideas and placed a stent... ofcourse we are doing
Hi. My mother was in sept 2019 diagnosed with stage 4 oesophageal cancer, location is at the joint to the stomach, we did chemo, dnt help much bt at the end of the treatment she developed bad ulcers and started losing blood a lot...seemed to run out of ideas and placed a stent... ofcourse we are doing
Prixy_J19
in
Oesophageal & Gastric Cancer
4 years ago
Newly diagnosed with ITP low platelet
Was diagnosed with ITP, was hospitalized with count of 1, given transfusion and steroids. Crashed after couple of weeks was hospitalized again with 1 and given another transfusion. I have had bone marrow biopsy and it came out ok. Currently off steroids they I’d nothing for my counts. I am on endplate
Was diagnosed with ITP, was hospitalized with count of 1, given transfusion and steroids. Crashed after couple of weeks was hospitalized again with 1 and given another transfusion. I have had bone marrow biopsy and it came out ok. Currently off steroids they I’d nothing for my counts. I am on endplate
Lawcomo
in
ITP Support Association
4 years ago
Thank you to everyone, time out has given me a chance to reflect
Hi All Firstly, thank you to everyone who kindly messaged me when I said I needed time out. I have had a chance to do some reflecting. In truth, I have not been in the best of places despite me trying to convince myself that I am okay. To summarise, I have a very complex gynaecological history involving
Hi All Firstly, thank you to everyone who kindly messaged me when I said I needed time out. I have had a chance to do some reflecting. In truth, I have not been in the best of places despite me trying to convince myself that I am okay. To summarise, I have a very complex gynaecological history involving
Positive2022
in
Pregnancy and Parenting Support
4 years ago
Cancer care in this new world
I went to my Cancer Centre yesterday for a blood transfusion. It was quite an interesting experience. First of all the hospital car park was empty and free! Then inside there was a receptionist and nobody else and I reported where I needed to go. The receptionist offered to take me there in a wheelchair
I went to my Cancer Centre yesterday for a blood transfusion. It was quite an interesting experience. First of all the hospital car park was empty and free! Then inside there was a receptionist and nobody else and I reported where I needed to go. The receptionist offered to take me there in a wheelchair
PhillipandBettykid
in
My Ovacome
4 years ago
How to remain positive?
how do you remain positive with the rollercoaster of emotions? We hear negative as well as positive things regarding mom and her treatment plan and progress in the ICU. Last night she was reacting and responding, today she can hardly keep her eyes open. Her ventilator settings are going up and down
how do you remain positive with the rollercoaster of emotions? We hear negative as well as positive things regarding mom and her treatment plan and progress in the ICU. Last night she was reacting and responding, today she can hardly keep her eyes open. Her ventilator settings are going up and down
Sidra89
in
ICUsteps
4 years ago
Intermittent GI bleeds with Atrophic Gastrititis?
Does anyone here that has Atrophic Gastritis have occasional GI bleeds? I suffer from them and it sometimes puts me in the hospital for blood transfusions if my Hemoglobin drops too low. Here in the USA, they won't give blood unless Hgb is less then 7 and I can't seem to get mine higher than 8, even
Does anyone here that has Atrophic Gastritis have occasional GI bleeds? I suffer from them and it sometimes puts me in the hospital for blood transfusions if my Hemoglobin drops too low. Here in the USA, they won't give blood unless Hgb is less then 7 and I can't seem to get mine higher than 8, even
scnuke
in
Pernicious Anaemia Society
4 years ago
Plasma therapy shows promise for Covid-19
RESEARCH ARTICLE Effectiveness of convalescent plasma therapy in severe COVID-19 patient View ORCID ProfileKai Duan, Bende Liu, Cesheng Li, View ORCID ProfileHuajun Zhang, Ting Yu, View ORCID ProfileJieming Qu, View ORCID ProfileMin Zhou, View ORCID ProfileLi Chen, Shengli Meng, Yong Hu, Cheng Peng
RESEARCH ARTICLE Effectiveness of convalescent plasma therapy in severe COVID-19 patient View ORCID ProfileKai Duan, Bende Liu, Cesheng Li, View ORCID ProfileHuajun Zhang, Ting Yu, View ORCID ProfileJieming Qu, View ORCID ProfileMin Zhou, View ORCID ProfileLi Chen, Shengli Meng, Yong Hu, Cheng Peng
Graham49
in
Advanced Prostate Cancer
4 years ago
Any advice gladly welcome
Good morning everyone. This is my first time posting on any group forum. I have had RLS since I was a teenager. (I am turning 50 this year) All my life I have managed it by getting up walking around or simply by going to bed. In the last 7 years that has all changed and it has become very difficult.
Good morning everyone. This is my first time posting on any group forum. I have had RLS since I was a teenager. (I am turning 50 this year) All my life I have managed it by getting up walking around or simply by going to bed. In the last 7 years that has all changed and it has become very difficult.
Poppip
in
Restless Legs Syndrome
4 years ago
Canada begins clinical trial of experimental COVID-19 treatment using plasma from recovered individuals
A team of blood transfusion experts from across Canada is planning the world’s largest clinical trial of a potential treatment for COVID-19. The study, which will involve 1,000 patients from across the country, will include at least 40 Canadian hospitals. The experimental treatment involves injecting
A team of blood transfusion experts from across Canada is planning the world’s largest clinical trial of a potential treatment for COVID-19. The study, which will involve 1,000 patients from across the country, will include at least 40 Canadian hospitals. The experimental treatment involves injecting
Jm954
Administrator
in
CLL Support
4 years ago
Trouble Dealing with End-stage kidney Disease
I'm 32 I was told I couldn't get pregnant I got married last year and got pregnant throughout my pregnancy my kidney failed while was 5 months pregnant Drs told me throughout my pregnancy that if I had my baby I would die or my baby would die but I took the chance because I felt as if she was my miracle
I'm 32 I was told I couldn't get pregnant I got married last year and got pregnant throughout my pregnancy my kidney failed while was 5 months pregnant Drs told me throughout my pregnancy that if I had my baby I would die or my baby would die but I took the chance because I felt as if she was my miracle
Acardet
in
Kidney Disease
4 years ago
Anaemic and have endo
Hi Everyone I'm new to here, I was diagnosed with endo sept 2019 at the age of 29. And was admitted into hospital in Dec for being severely anaemic from having really bad periods and clotting and had two transfusions they sent me home on iron tablets and the mini pill. In jan this year I took myself
Hi Everyone I'm new to here, I was diagnosed with endo sept 2019 at the age of 29. And was admitted into hospital in Dec for being severely anaemic from having really bad periods and clotting and had two transfusions they sent me home on iron tablets and the mini pill. In jan this year I took myself
Anjaly
in
Endometriosis UK
4 years ago
Transfusions
I have to go for five-weekly transfusions. (I have Myelofibrosis and am on Ruxo and Epo injections) I am extremely worried about going to the hospital. Two weeks ago none of the medical staff was wearing protective clothing, and as I am there for at least 5 hours the possibility of catching Coronavirus
I have to go for five-weekly transfusions. (I have Myelofibrosis and am on Ruxo and Epo injections) I am extremely worried about going to the hospital. Two weeks ago none of the medical staff was wearing protective clothing, and as I am there for at least 5 hours the possibility of catching Coronavirus
skipperL
in
MPN Voice
4 years ago
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