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Perplexed over lab work
Hello, I am a 32 y/o white female. Some history about me that may be applicable: Surgeries: Gallbladder removed (2011), Gastric Sleeve (2017) Weight loss surgery: Started at 332lbs, currently fluctuate between 178-185. Diagnoses: Major Depressive Disorder, GERD (resulting from WLS), ADHD, Anemia
Hello, I am a 32 y/o white female. Some history about me that may be applicable: Surgeries: Gallbladder removed (2011), Gastric Sleeve (2017) Weight loss surgery: Started at 332lbs, currently fluctuate between 178-185. Diagnoses: Major Depressive Disorder, GERD (resulting from WLS), ADHD, Anemia
aybaylay
in
Pernicious Anaemia Society
1 month ago
An update
It's been a long while for me to post my husband has been watch and wait for 12 years now but yesterday he was informed that his haemoglobin had gone down dramatically from 113 to 67 and his white cell count had gone up from 65 to 250 in just 2 months he was at hospital yesterday and has to have a blood
It's been a long while for me to post my husband has been watch and wait for 12 years now but yesterday he was informed that his haemoglobin had gone down dramatically from 113 to 67 and his white cell count had gone up from 65 to 250 in just 2 months he was at hospital yesterday and has to have a blood
Nikkij81
in
CLL Support
1 month ago
stage 4 Mets in all his skeleton
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
Lakehouse32
in
Advanced Prostate Cancer
2 months ago
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New Drug may be relevant to MF, ET
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
EPguy
in
MPN Voice
2 months ago
Progress?
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Starlight79
in
British Liver Trust
2 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
2 months ago
Please advise - symptoms worsening
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Suzanneharb
in
Thyroid UK
2 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
2 months ago
Is there hope despite the pain? Is Cabometyx worth it?
My 63 year old husband LD stopped Cabo (Cabometyx) when we had Covid (because we took Paxlovid). Now he doesn't want to start up again because of side effects we believe are caused by the Cabo: jaw pain and numbness, body aches, tingling in extremities, pain in the shoulder joint emanating down his arm
My 63 year old husband LD stopped Cabo (Cabometyx) when we had Covid (because we took Paxlovid). Now he doesn't want to start up again because of side effects we believe are caused by the Cabo: jaw pain and numbness, body aches, tingling in extremities, pain in the shoulder joint emanating down his arm
Chris_Ali
in
Advanced Prostate Cancer
2 months ago
Never give up !!!
My name is Vicki, I am a waiting for my second kidney transplant. Both of my kidneys failed when I was 32 years, my children were 1 @ 2 years. I was on hemodialysis in center for 2 years and then got a lifesaving transplant. My life was wonderful, I had 27 years and then in 2020 my son passed and I was
My name is Vicki, I am a waiting for my second kidney transplant. Both of my kidneys failed when I was 32 years, my children were 1 @ 2 years. I was on hemodialysis in center for 2 years and then got a lifesaving transplant. My life was wonderful, I had 27 years and then in 2020 my son passed and I was
bubbaboo2
in
Dialysis Support
2 months ago
Having a moan
8 nights in hospital.Two surgeries within 2 days, a blood transfusion and iron infusion, insulin drip.Back at the breast clinic yesterday to have fluid drained from my boob and underarm. Fluid building up again, spoken to the clinic I'll have to go back to have the fluid drained once more! I'm exhausted
8 nights in hospital.Two surgeries within 2 days, a blood transfusion and iron infusion, insulin drip.Back at the breast clinic yesterday to have fluid drained from my boob and underarm. Fluid building up again, spoken to the clinic I'll have to go back to have the fluid drained once more! I'm exhausted
LindaLittleBear
in
My Breast Cancer Community
2 months ago
Ruxalinitib for MF2
I would love to hear anyone’s experience with Rux. How soon did you notice a difference? Which were the most obvious side effects? How low did they allow platelets to go and other bloods, before dose adjustments or transfusions? Any replies much appreciated!
I would love to hear anyone’s experience with Rux. How soon did you notice a difference? Which were the most obvious side effects? How low did they allow platelets to go and other bloods, before dose adjustments or transfusions? Any replies much appreciated!
artydutch
in
MPN Voice
2 months ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Heading down hospice road too…
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
LJGD
in
Advanced Prostate Cancer
2 months ago
Open letter
Hi all: I want to thank all who have posted regarding their experience with MPNs in this forum. I'm very grateful for the information and insight regarding ET, PV, and MF. All of you have educated and helped me a great deal. I write this while experiencing a great deal of stress and sadness; due to
Hi all: I want to thank all who have posted regarding their experience with MPNs in this forum. I'm very grateful for the information and insight regarding ET, PV, and MF. All of you have educated and helped me a great deal. I write this while experiencing a great deal of stress and sadness; due to
Kiruna
in
MPN Voice
2 months ago
'Something detected' on grandads CT scan....
Grandad is 86 and his iron levels have been dropping rapidly.He had a CT scan the other week and was called in to speak to a consultant at the hospital today. A Mcmillan cancer nurse was also there. He was told that there was something on the right hand side of his colon but they don't know what. So
Grandad is 86 and his iron levels have been dropping rapidly.He had a CT scan the other week and was called in to speak to a consultant at the hospital today. A Mcmillan cancer nurse was also there. He was told that there was something on the right hand side of his colon but they don't know what. So
Fenella34
in
Colon Cancer Connected
2 months ago
Itching in Myelofibrosis
I'm currently taking Fedratinib and Danazol and am having 6 weekly blood transfusions. In the last few months I've noticed increased itching. Last night I woke at 2.30am and the itching made it impossible for me to lie still and go back to sleep. I am on 10mg of Cetirizine Hydrochloride daily and though
I'm currently taking Fedratinib and Danazol and am having 6 weekly blood transfusions. In the last few months I've noticed increased itching. Last night I woke at 2.30am and the itching made it impossible for me to lie still and go back to sleep. I am on 10mg of Cetirizine Hydrochloride daily and though
Bullace
in
MPN Voice
2 months ago
Uncooperative GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
Eulophia47
in
Pernicious Anaemia Society
2 months ago
My take on the Nhs
OK I was 2 hours waiting in A&E when I had unusual chest pains but once I was seen I was admitted to hospital for nearly two months . This is back in October 2019 .I can only say the care I was given was outstanding. It turns out as well as needing a triple bypass I had anaemia quite badly which I
OK I was 2 hours waiting in A&E when I had unusual chest pains but once I was seen I was admitted to hospital for nearly two months . This is back in October 2019 .I can only say the care I was given was outstanding. It turns out as well as needing a triple bypass I had anaemia quite badly which I
Pollypuss
in
British Heart Foundation
3 months ago
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
3 months ago
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