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Free Counselling Service
At The Brain Tumour Charity, we are offering free telephone or webcam counselling sessions to anyone diagnosed with a brain tumour and their loved ones We’ve heard from those that have already used the service, that having a safe, confidential space, to talk about your experience, can be transformational
At The Brain Tumour Charity, we are offering free telephone or webcam counselling sessions to anyone diagnosed with a brain tumour and their loved ones We’ve heard from those that have already used the service, that having a safe, confidential space, to talk about your experience, can be transformational
Zhaleh_TBTC
Administrator
in
Acoustic Neuroma Support
1 year ago
Strange sounds 10 years post-op
Ive had vestibular schwannoma /acoustic neuroma removed in January 2013. Until now tinnitus has always been there but suddenly more persists and occasionally the whooshing sounds. I had a scan 1 year ago which gave the all clear but these sounds are causing a lot of stress Any similar examples.. please
Ive had vestibular schwannoma /acoustic neuroma removed in January 2013. Until now tinnitus has always been there but suddenly more persists and occasionally the whooshing sounds. I had a scan 1 year ago which gave the all clear but these sounds are causing a lot of stress Any similar examples.. please
Wounded101
in
Acoustic Neuroma Support
1 year ago
kadcyla drug
Has anyone had the drug Kadcyla? Trastuzumab and em tans one combined? How did treatment go with it? I have to decide to have this combined or the Herceptin ( also known adTrastuzumab) as a single drug. Any comments/ advice welcome . Thanks
Has anyone had the drug Kadcyla? Trastuzumab and em tans one combined? How did treatment go with it? I have to decide to have this combined or the Herceptin ( also known adTrastuzumab) as a single drug. Any comments/ advice welcome . Thanks
Chalky26
in
SHARE Metastatic Breast Cancer
1 year ago
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diet tips
I read conflicting info on what feeds prostate cancer cells. I’m looking for a simple, sustainable diet. Can I eat whole grain bread? Some sites say to avoid all grains. Chicken? Some sites say no. Fruits? I hear they’re important, but which fruits. Is sugar a thing to avoid with this
I read conflicting info on what feeds prostate cancer cells. I’m looking for a simple, sustainable diet. Can I eat whole grain bread? Some sites say to avoid all grains. Chicken? Some sites say no. Fruits? I hear they’re important, but which fruits. Is sugar a thing to avoid with this
KMillson
in
Advanced Prostate Cancer
1 year ago
Update
I look back fondly on the days when I was only worried about having n MPN. In the past few weeks I developed a blood clot. That has led to initiation of hydroxyurea. Fortunately, I am tolerating that well and platelets are starting to come down. Then I asked that intermittent pain on my left side be
I look back fondly on the days when I was only worried about having n MPN. In the past few weeks I developed a blood clot. That has led to initiation of hydroxyurea. Fortunately, I am tolerating that well and platelets are starting to come down. Then I asked that intermittent pain on my left side be
Mtnlife
in
MPN Voice
1 year ago
Faslodex + Ibrance - new mets
Hi everyone! My mother is on ibrance and faslodex for 15 cycles. she had pelvic metastases that are still under control, but there are new ones on her spine. she will continue to receive the same therapy. Does anyone have a similar experience? is it possible to keep the disease under control even
Hi everyone! My mother is on ibrance and faslodex for 15 cycles. she had pelvic metastases that are still under control, but there are new ones on her spine. she will continue to receive the same therapy. Does anyone have a similar experience? is it possible to keep the disease under control even
Goga156
in
SHARE Metastatic Breast Cancer
1 year ago
micropapillary serous borderline tumours
Hello I’m hoping to get some advice about borderline ovarian tumours. My surgeon rang to say that my histology results show I have borderline tumours on both ovaries. They are serous micro papillary type. Classified as stage 3 as a couple of peritoneal deposits and spread around the pelvis. She said
Hello I’m hoping to get some advice about borderline ovarian tumours. My surgeon rang to say that my histology results show I have borderline tumours on both ovaries. They are serous micro papillary type. Classified as stage 3 as a couple of peritoneal deposits and spread around the pelvis. She said
Farfromthemaddingcow
in
My Ovacome
1 year ago
urinary Frequency
Hi lovely ladies I was diagnosed with 2b ovarian Cancer in May 22 I consequently had a hysterectomy, salpingo-oophrectomy laprascopically. NED after my surgery followed by 6 cycles of Chemotherapy, which I completed in December. My post treatment scan was clear and my CA125 was 10. I’ve been doing
Hi lovely ladies I was diagnosed with 2b ovarian Cancer in May 22 I consequently had a hysterectomy, salpingo-oophrectomy laprascopically. NED after my surgery followed by 6 cycles of Chemotherapy, which I completed in December. My post treatment scan was clear and my CA125 was 10. I’ve been doing
Hota
in
My Ovacome
1 year ago
Just after some advice or reassurance.
Iv been having wierd pains and a few symptoms for a while , I managed to get the doctors to send me for a us pelvic scan . The scan came back abnormal yesterday and I have a solid mass with a blood supply on the right ovary. I'm having blood tests today and a ct next week. Naturally I'm in panic mode
Iv been having wierd pains and a few symptoms for a while , I managed to get the doctors to send me for a us pelvic scan . The scan came back abnormal yesterday and I have a solid mass with a blood supply on the right ovary. I'm having blood tests today and a ct next week. Naturally I'm in panic mode
Sophali31
in
My Ovacome
1 year ago
new here
hi, I’ve been reading your posts with interest as I’m in between diagnosis at moment and trying to gain as much information as possible. I was diagnosed with breast cancer last March had surgery, chemo and radiotherapy. Towards end of chemo started with severe back pain which oncologist was great at
hi, I’ve been reading your posts with interest as I’m in between diagnosis at moment and trying to gain as much information as possible. I was diagnosed with breast cancer last March had surgery, chemo and radiotherapy. Towards end of chemo started with severe back pain which oncologist was great at
BHPM
in
My Ovacome
1 year ago
Using modified virus to awaken your immune system to attack tumor
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
hi everyone
I am feeling a bit worried , I have just had scan results , 2 of the MBC lung nodules have grown slightly , I am having another scan in 3 to 4 months, I am on Ibrance and Letrozole , and just wondered if any body else has experienced change in nodule size
I am feeling a bit worried , I have just had scan results , 2 of the MBC lung nodules have grown slightly , I am having another scan in 3 to 4 months, I am on Ibrance and Letrozole , and just wondered if any body else has experienced change in nodule size
Liessie2014
in
SHARE Metastatic Breast Cancer
1 year ago
Stage 4 ~ Now Losing Blood Somewhere
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the past 5 years. His PSA increased quickly starting in October 2022 and by December it was 27. Hormone therapy isn’t working as before, it appears
drb1966
in
Advanced Prostate Cancer
1 year ago
tumor markers
hi everyone- these freaking tumor markers drive me INSANE! My dad is currently on Ibrance, letrozole, lupron and xjeva and his past 2 PET scans showed NED. (Last pet was 1/16). his tumor markers in January were 19 and in February they were not run unfortunately. His March tumor markers came back
hi everyone- these freaking tumor markers drive me INSANE! My dad is currently on Ibrance, letrozole, lupron and xjeva and his past 2 PET scans showed NED. (Last pet was 1/16). his tumor markers in January were 19 and in February they were not run unfortunately. His March tumor markers came back
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
Melanoma and prostate cancer
About five years ago Karmanos in Detroit doctor said my prostate cancer biopsy resembled Melanoma. I did have Melanoma removed from my arm and leg ten and Seventeen years ago. As I still show a dormant Pca cells in the prostate. Now PSA is 0.04. afte LU-177 and AC-225 at the university of Heidelberg
About five years ago Karmanos in Detroit doctor said my prostate cancer biopsy resembled Melanoma. I did have Melanoma removed from my arm and leg ten and Seventeen years ago. As I still show a dormant Pca cells in the prostate. Now PSA is 0.04. afte LU-177 and AC-225 at the university of Heidelberg
lewicki
in
Advanced Prostate Cancer
1 year ago
Holiday inspiration!
Hi lovely ladies, After reading about Beth’s amazing travels in New Zealand, I hope to encourage you to follow your dreams with travel when you can. I am from the UK, and was crushed when I had to cancel my planned silver wedding anniversary trip to New England twice, the first time because of the pandemic
Hi lovely ladies, After reading about Beth’s amazing travels in New Zealand, I hope to encourage you to follow your dreams with travel when you can. I am from the UK, and was crushed when I had to cancel my planned silver wedding anniversary trip to New England twice, the first time because of the pandemic
LibraryGeek
in
SHARE Metastatic Breast Cancer
1 year ago
The endo biopsy revealed cancer
Hello, everyone I'm 39 years old, I had a surgery 17 days before, I removed an endometriosis mass with fibroid and one ovary. Yesterday I received the biopsy results, it shows a tumor carcinoma high stage, they need to complete the test by immunochemistry test, and I'll get the results after 15 days.
Hello, everyone I'm 39 years old, I had a surgery 17 days before, I removed an endometriosis mass with fibroid and one ovary. Yesterday I received the biopsy results, it shows a tumor carcinoma high stage, they need to complete the test by immunochemistry test, and I'll get the results after 15 days.
Tomims
in
Endometriosis UK
1 year ago
Feel Terrible - Any Advice Please?
I'm weaning onto Armour Thyroid, guided by a doctor. I've been raising my dose by only 1/4 grain every 2 weeks, this slowly because I have low cortisol. The first two raises I had a few days of feeling jittery but this calmed with the help of taking ashwagandha and taurine. I reached 60mg last Sunday
I'm weaning onto Armour Thyroid, guided by a doctor. I've been raising my dose by only 1/4 grain every 2 weeks, this slowly because I have low cortisol. The first two raises I had a few days of feeling jittery but this calmed with the help of taking ashwagandha and taurine. I reached 60mg last Sunday
HEA72
in
Thyroid UK
1 year ago
LU177 not working for me
On the day before my 3rd infusion of Lu177 PNT2002, my bone scan shows increase in size of my old mets and numerous new mets. It is obvious that the Lu177 didn't work in my case. Today I have declined the 3rd shot. Meanwhile the PSA kept rising from 23 to 41 in 4 weeks. What next??
On the day before my 3rd infusion of Lu177 PNT2002, my bone scan shows increase in size of my old mets and numerous new mets. It is obvious that the Lu177 didn't work in my case. Today I have declined the 3rd shot. Meanwhile the PSA kept rising from 23 to 41 in 4 weeks. What next??
Ollie1948
in
Advanced Prostate Cancer
1 year ago
How do I stop constantly worrying about recurrence?
My mum had her debulking surgery last Wednesday and was discharged from hospital on Sunday afternoon. The doctors told us that they got all of the cancer, which I am over the moon about, however I can’t stop worrying about the cancer coming back. I feel like although we’ve had this great news I’m struggling
My mum had her debulking surgery last Wednesday and was discharged from hospital on Sunday afternoon. The doctors told us that they got all of the cancer, which I am over the moon about, however I can’t stop worrying about the cancer coming back. I feel like although we’ve had this great news I’m struggling
Shorty18
in
My Ovacome
1 year ago
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