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Not every breathing symptom is asthma!
Tentatively posting this because it’s perhaps controversial on an asthma forum - but it is also really important. It’s often assumed that any breathing symptom is asthma - those who have asthma assume it’s that because they have asthma therefore it must be that; those who don’t have asthma assume they
Tentatively posting this because it’s perhaps controversial on an asthma forum - but it is also really important. It’s often assumed that any breathing symptom is asthma - those who have asthma assume it’s that because they have asthma therefore it must be that; those who don’t have asthma assume they
twinkly29
in
Asthma Community Forum
3 years ago
Advice needed
Hi, after suffering for years in pain and being told it was skeletal by doctors and being told to do physio I looked into more options for my pain and asked to be referred to a Gyno. I had a consultation with a Gyno and they confirmed my suspicions also for endometriosis. I was referred for surgery and
Hi, after suffering for years in pain and being told it was skeletal by doctors and being told to do physio I looked into more options for my pain and asked to be referred to a Gyno. I had a consultation with a Gyno and they confirmed my suspicions also for endometriosis. I was referred for surgery and
Hidden
in
Endometriosis UK
3 years ago
Hopefully, should be sorted soon
Took a tumble six weeks ago and have been dealing with the fallout on and off since then. The latest flare up was last Tuesday when I tried some faster intervals and my ribs felt really sore afterwards. Wasn't sure If it was anything serious or not so checked it out with my GP but the conclusion was
Took a tumble six weeks ago and have been dealing with the fallout on and off since then. The latest flare up was last Tuesday when I tried some faster intervals and my ribs felt really sore afterwards. Wasn't sure If it was anything serious or not so checked it out with my GP but the conclusion was
SkiMonday
Ultramarathon
in
Fun Beyond 10K & Race Support
3 years ago
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Newly diagnosed fibro warrior
Hi everyone. I'm 39. Mother of 3, and suffered undiagnosed for I would say 2 years. Now diagnosed with fibromyalgia and hypermobility syndrome. Live in Middlesbrough. I can cope most days with the pain but for me it's the chronic fatigue that makes my life so hard. Also the dizziness, and breathlessness
Hi everyone. I'm 39. Mother of 3, and suffered undiagnosed for I would say 2 years. Now diagnosed with fibromyalgia and hypermobility syndrome. Live in Middlesbrough. I can cope most days with the pain but for me it's the chronic fatigue that makes my life so hard. Also the dizziness, and breathlessness
ALISONJ82
in
Fibromyalgia Action UK
3 years ago
Update on dosage/diet having seen Rheumatologist
Hi everyone, saw my rheumy again last night and told him I had increased back up to 12.5mg because of the pain when I dropped to 10mg. He agreed that it was the right thing to do but was very careful to point out that it takes 7-10 days for your body to adjust to the new dose and not to jump too quickly
Hi everyone, saw my rheumy again last night and told him I had increased back up to 12.5mg because of the pain when I dropped to 10mg. He agreed that it was the right thing to do but was very careful to point out that it takes 7-10 days for your body to adjust to the new dose and not to jump too quickly
Sufferinginsilence
in
PMRGCAuk
3 years ago
Walker for better balance 2
I would like to update all - I spoke with my consultant and GP and they have given me referral for physio to advise me on what walker to buy. Let's see what they say. I will keep you all posted
I would like to update all - I spoke with my consultant and GP and they have given me referral for physio to advise me on what walker to buy. Let's see what they say. I will keep you all posted
Amynah
in
Ataxia UK
3 years ago
Gutted…
I got about half way through then thought I sprained my ankle whilst running in a weird position because I had a blister on my heel. Turns out The blister was a red herring and I actually had a clean fracture through my fibula. Mind you, I walked around for 6 weeks thinking “Thats really sore. Better
I got about half way through then thought I sprained my ankle whilst running in a weird position because I had a blister on my heel. Turns out The blister was a red herring and I actually had a clean fracture through my fibula. Mind you, I walked around for 6 weeks thinking “Thats really sore. Better
Move-Mama
in
Couch to 5K
3 years ago
Respiratory Physio therapy
For the last 18 months I’ve been paying a physio, who comes to my home twice per week, does good job and clears my lungs completely each time. I feel better. I know respiratory physio is listed in NHS aims for adults with PCD, does anyone actually get it, and does it depend where we live. Im 86 next
For the last 18 months I’ve been paying a physio, who comes to my home twice per week, does good job and clears my lungs completely each time. I feel better. I know respiratory physio is listed in NHS aims for adults with PCD, does anyone actually get it, and does it depend where we live. Im 86 next
Morrison10
in
PCD Family Support Group (UK)
3 years ago
Geneticist consult
Today, I had an appointment with a geneticist at Cedar- Sinai and she has slapped the label of Hypermobility Spectrum Disorder on me. The reason being that I fit the criteria of HEDS except that I have autoimmune issues. She has agreed that there are people with autoimmune and heds, but doesn’t think
Today, I had an appointment with a geneticist at Cedar- Sinai and she has slapped the label of Hypermobility Spectrum Disorder on me. The reason being that I fit the criteria of HEDS except that I have autoimmune issues. She has agreed that there are people with autoimmune and heds, but doesn’t think
JennaShi
in
LUPUS UK
3 years ago
Could this have been aFlare?
Hi People. Quick question pls. Originally diagnosed Sept 2018 . I remember my early pain days , and my frequent questions to you “experts”…I recall being berated for trying to do too much too soon , and then learning so much more about my condition, from others , and heeding their advice. I recently
Hi People. Quick question pls. Originally diagnosed Sept 2018 . I remember my early pain days , and my frequent questions to you “experts”…I recall being berated for trying to do too much too soon , and then learning so much more about my condition, from others , and heeding their advice. I recently
Stifffingers
in
PMRGCAuk
3 years ago
Yet another tentative restart
Here I am again, not on the bridge but I've restarted c25k again a year after breaking my ankle. My physio has given me the go-ahead to get on with it and has finally signed me off 🥳 So far I have run week one, repeated it, and just started repeating it again. Next week I might venture onto week two
Here I am again, not on the bridge but I've restarted c25k again a year after breaking my ankle. My physio has given me the go-ahead to get on with it and has finally signed me off 🥳 So far I have run week one, repeated it, and just started repeating it again. Next week I might venture onto week two
grumpyoldgirl
in
Bridge to 10K
3 years ago
My experience at Georgetown University Hospital
I just got out of Georgetown University Hospital where I went to adjust my Parkinsons Medication. During the 12 days I was there I experienced a wide range of abuse, neglect, and psychological torture including: I was not given food in ER after 7 hours of waiting (finally policeman gave me food). The
I just got out of Georgetown University Hospital where I went to adjust my Parkinsons Medication. During the 12 days I was there I experienced a wide range of abuse, neglect, and psychological torture including: I was not given food in ER after 7 hours of waiting (finally policeman gave me food). The
pmmargo
in
Cure Parkinson's
3 years ago
Waiting for a diagnosis
I have also had
physiotherapy
for FND. I'm pretty sure that I don't have that. I have never fainted nor had a siezure. I am seeing a neurologist on Weds and hopefully I will get a diagnosis. I'm almost at my wit's end. Sorry for the moaning but thanks for reading.
I have also had
physiotherapy
for FND. I'm pretty sure that I don't have that. I have never fainted nor had a siezure. I am seeing a neurologist on Weds and hopefully I will get a diagnosis. I'm almost at my wit's end. Sorry for the moaning but thanks for reading.
Helenhooter
in
Multiple System Atrophy Trust
3 years ago
Hip Replacement
Hi.... I’m new to this forum, but familiar with HU for a condition my husband has. I’ve found it a great resource. I have OA in my right hip and was to have a hip replacement in approx 4-6 months (in Ontario), but due to COVID, all surgeries are now delayed. Some days are ok, but most are quite uncomfortable
Hi.... I’m new to this forum, but familiar with HU for a condition my husband has. I’ve found it a great resource. I have OA in my right hip and was to have a hip replacement in approx 4-6 months (in Ontario), but due to COVID, all surgeries are now delayed. Some days are ok, but most are quite uncomfortable
Loves2walk
in
Arthritis Action
3 years ago
Is it possible to regain movement in hand if you can’t feel anything in it?
Just wondering if it is possible to regain movement in a hand if you can’t feel anything in it? I go to a brain injury group and one of the women who goes had a stroke 6 years ago. She’s had physio for 6 month after it but now is left in the care of her husband who does everything for her, she is able
Just wondering if it is possible to regain movement in a hand if you can’t feel anything in it? I go to a brain injury group and one of the women who goes had a stroke 6 years ago. She’s had physio for 6 month after it but now is left in the care of her husband who does everything for her, she is able
keeley24
in
Headway
3 years ago
Back after injury
After damaging a ligament on Christmas Day and having physio (thanks York’s NHS
physiotherapy
) since, I had my first run out today. For prudence, although having completed the 9 weeks program, I started at Run 1 week 1. No pain and felt good doing it.
After damaging a ligament on Christmas Day and having physio (thanks York’s NHS
physiotherapy
) since, I had my first run out today. For prudence, although having completed the 9 weeks program, I started at Run 1 week 1. No pain and felt good doing it.
Vragtes
Graduate10
in
Bridge to 10K
3 years ago
Mind games
I was surprised at myself this week. After managing to run my first half marathon just over a week ago I lost confidence and mojo. It sort of came from no where but also somewhere 🥴. Yes I had an extraordinarily painful back at the end of the run and it took 24 hours of rest and strong pain killers
I was surprised at myself this week. After managing to run my first half marathon just over a week ago I lost confidence and mojo. It sort of came from no where but also somewhere 🥴. Yes I had an extraordinarily painful back at the end of the run and it took 24 hours of rest and strong pain killers
Knittingrunner
Half Marathon
in
Fun Beyond 10K & Race Support
3 years ago
Exercise and Lupus?
Hi everyone, I’m 21 years old and i’ve been diagnosed with lupus and APS for two years now, it’s been a really rough journey and this past year i’ve been feeling super down and depressed, and really feel defeated by it all. I really want to take some control of my life, and focus on things like exercise
Hi everyone, I’m 21 years old and i’ve been diagnosed with lupus and APS for two years now, it’s been a really rough journey and this past year i’ve been feeling super down and depressed, and really feel defeated by it all. I really want to take some control of my life, and focus on things like exercise
lupeylady
in
LUPUS UK
3 years ago
Do I have Fibro?
Hi, I have been suffering with pain now for months. I am getting tired as not sleeping well. My arms especially feel like the muscles are pulled when I haven't hardly done anything. Last year I ran half a marathon and now I struggle with a mile. I keep walking and 'getting on' because I have to!
Hi, I have been suffering with pain now for months. I am getting tired as not sleeping well. My arms especially feel like the muscles are pulled when I haven't hardly done anything. Last year I ran half a marathon and now I struggle with a mile. I keep walking and 'getting on' because I have to!
JLouL
in
Fibromyalgia Action UK
3 years ago
Advice return to work
It will be 2 years post abi for me in September But due to return to work in September I have been on a years career break. I was previously a district nurse which I know already that will be something I am not able to do anymore unable to drive due to hemianopea, lost the use of my left side, have
It will be 2 years post abi for me in September But due to return to work in September I have been on a years career break. I was previously a district nurse which I know already that will be something I am not able to do anymore unable to drive due to hemianopea, lost the use of my left side, have
Charlie90
in
Headway
3 years ago
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