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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Newby needing diet, pain relief and extreme tiredness advice please.
Hi everyone, I’m new to the forum and looking for some general advice. I had endometriosis when I was 19. I had a laparoscopy and didn’t have any symptoms for 20 years. However last April the endo came back with a vengeance. I’m sure my story of suffering is similar to everyone on here and the past
Hi everyone, I’m new to the forum and looking for some general advice. I had endometriosis when I was 19. I had a laparoscopy and didn’t have any symptoms for 20 years. However last April the endo came back with a vengeance. I’m sure my story of suffering is similar to everyone on here and the past
Rai78
in
Endometriosis UK
6 years ago
Pkd on stage 2
My name is Bal, i am 36 year old . I have a PKD on Stage 2 , so what is the best suggetion for me for good health. now a days i am taking ' Seven seas' PURE COD LIVER OIL, is it good for my health? pls reply ....
My name is Bal, i am 36 year old . I have a PKD on Stage 2 , so what is the best suggetion for me for good health. now a days i am taking ' Seven seas' PURE COD LIVER OIL, is it good for my health? pls reply ....
bkrishna
in
Kidney Disease
6 years ago
Iron stores while taking b12.
Curious to know how many take iron with b12. I had major symptoms before any anemia showed up. However, my ferritin level was low end normal. My folate seems to stay at a decent level but thinking I might start taking a low dose daily. Sometimes it seems like my injections don't do much of anything
Curious to know how many take iron with b12. I had major symptoms before any anemia showed up. However, my ferritin level was low end normal. My folate seems to stay at a decent level but thinking I might start taking a low dose daily. Sometimes it seems like my injections don't do much of anything
Plucky1976
in
Pernicious Anaemia Society
6 years ago
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change of meds
Hi everybody, I have had to get some different painkillers for my RA as the mtx, ibuprofen, amitriptyline, co-codamol, and hydroxychloraquin were not working so I am weaning off the amitriptyline, and started on Pregbalin. I have just had the best nights sleep for months, as I have never been able to
Hi everybody, I have had to get some different painkillers for my RA as the mtx, ibuprofen, amitriptyline, co-codamol, and hydroxychloraquin were not working so I am weaning off the amitriptyline, and started on Pregbalin. I have just had the best nights sleep for months, as I have never been able to
Lincolnimp2457
in
NRAS
6 years ago
4 weeks post laparoscopy for endometriosis removal and still in constant pain - Is this normal?? Please help!
Hi There. I am new here. I had a lap for endo removal 4 weeks ago and i am still in constant pain from the surgery. I have a constant pulling feeling in my uterus where the endo was removed and then a sharp stabbing pain throughout the day. Im still taking co-codamol for the pain 4 times a day and
Hi There. I am new here. I had a lap for endo removal 4 weeks ago and i am still in constant pain from the surgery. I have a constant pulling feeling in my uterus where the endo was removed and then a sharp stabbing pain throughout the day. Im still taking co-codamol for the pain 4 times a day and
Marleyboh83
in
Endometriosis UK
6 years ago
Fed up with leg pains with warfarin
Has anyone given themselves a break from warfarin? I have been on it for 2 years with no issues but am now suffering from pains in the legs. I am a rambler but have had to give up walking and my doctor just told me to take co-codamol. As I am also a bridge player I cannot cope with my brain being in
Has anyone given themselves a break from warfarin? I have been on it for 2 years with no issues but am now suffering from pains in the legs. I am a rambler but have had to give up walking and my doctor just told me to take co-codamol. As I am also a bridge player I cannot cope with my brain being in
Judeth
in
AF Association
6 years ago
where do I go from here, help from the experts please.
I have had advice from this forum which has really helped and I am greatly appreciated of that, but, things for me are not getting any better, in fact I feel I am back to square one again and I've just had enough of feeling like this and desperately need further advice. My neck has began to get stiff
I have had advice from this forum which has really helped and I am greatly appreciated of that, but, things for me are not getting any better, in fact I feel I am back to square one again and I've just had enough of feeling like this and desperately need further advice. My neck has began to get stiff
Peanut31
in
Thyroid UK
6 years ago
Morphine Management
Hello all. Have just re-started morphine -lowest dose - last night as have a very degenerated spine and last week had a fall (which - hopefully - has resulted in some internal bruising and will resolve) but necessarily needed the morphine in order to work. Have had poor reaction to all the pain meds
Hello all. Have just re-started morphine -lowest dose - last night as have a very degenerated spine and last week had a fall (which - hopefully - has resulted in some internal bruising and will resolve) but necessarily needed the morphine in order to work. Have had poor reaction to all the pain meds
Fyllida
in
Pain Concern
6 years ago
Does anyone get iron supplements on prescription?
I was prescribed a couple of boxes but they have run out now. I am going to ask to be retested to see if my stored iron is any better. What figure is a good one to aim for for someone with Hashimotos on Levothyroxine. Thanks in advance for your reply’s.
I was prescribed a couple of boxes but they have run out now. I am going to ask to be retested to see if my stored iron is any better. What figure is a good one to aim for for someone with Hashimotos on Levothyroxine. Thanks in advance for your reply’s.
Auntbessy
in
Thyroid UK
6 years ago
is being clogged up in throat with phelm a good sign eg that its all coming out ?
HI asthma was under control on montelukast 10mg and clencil 200mg (like i didnt have asthma apart from odd chest infection once a yr) but last may/june had an infection that took 2 doses of antibiotics and predislone to calm down, but I still felt like no air feeling . In December was changed from clenil
HI asthma was under control on montelukast 10mg and clencil 200mg (like i didnt have asthma apart from odd chest infection once a yr) but last may/june had an infection that took 2 doses of antibiotics and predislone to calm down, but I still felt like no air feeling . In December was changed from clenil
Polly44
in
Asthma Community Forum
6 years ago
Cod liver oil & levothyroxine
Quick question- is there any reason I shouldn’t take my cod liver oil capsules with my levo?
Quick question- is there any reason I shouldn’t take my cod liver oil capsules with my levo?
Rennixon
in
Thyroid UK
6 years ago
Anemia making me feel like death
Iam a powerlifter how long before the b12 shots and iron tablets start to work this is killing me having no energy the doctors don't really care but to get so anemic all the time is horrible position ,,,,how long will it take for my hemoglobin to get up from 10.2 and I am a massive muscley man do you
Iam a powerlifter how long before the b12 shots and iron tablets start to work this is killing me having no energy the doctors don't really care but to get so anemic all the time is horrible position ,,,,how long will it take for my hemoglobin to get up from 10.2 and I am a massive muscley man do you
Tommy33
in
Pernicious Anaemia Society
6 years ago
Caution about taking B12 supplements - article. By B12 deficiency research group.
Caution note about the use of B12 (sublingual) tablets, sprays and patches About oral supplementation: We see a big problem whenever oral B12 supplementation is discussed and in this way we would like to make a contribution with information for our foreign website visitors: Important note
Caution note about the use of B12 (sublingual) tablets, sprays and patches About oral supplementation: We see a big problem whenever oral B12 supplementation is discussed and in this way we would like to make a contribution with information for our foreign website visitors: Important note
eddie1952
in
Thyroid UK
6 years ago
I feel like Im never going to find the solution!!!
Hi Everyone Apologies for writing again but im in such a dilema After reading recent posts it appears alot of people are suffering with differetn symptoms and I really hope you find your treatment that will work for you I suffered with an ED for 14 years and noticed my stomach issues around 4 years ago
Hi Everyone Apologies for writing again but im in such a dilema After reading recent posts it appears alot of people are suffering with differetn symptoms and I really hope you find your treatment that will work for you I suffered with an ED for 14 years and noticed my stomach issues around 4 years ago
Sammy987
in
IBS Network
6 years ago
Lower abdomen pain
Hi ladies I have been having cramps in my left lower abdomen and back since last Saturday and the pain has got unbearable. I went to the doctors yesterday and she thinks I may have a ovarian cyst and has referred me to have an ultrasound done. This morning I have woken up with pains in the tips of my
Hi ladies I have been having cramps in my left lower abdomen and back since last Saturday and the pain has got unbearable. I went to the doctors yesterday and she thinks I may have a ovarian cyst and has referred me to have an ultrasound done. This morning I have woken up with pains in the tips of my
RebeccaL
in
Endometriosis UK
6 years ago
New lab results
Hi, havent written on here in a while but was wondering if someone could help me by explaining maybe whats going on? I have new lab results. Also back story, last month found out I have hashimotos due to my TGAB being over 900. Ihave changed my diet to AIP so this could he possibly be influencing
Hi, havent written on here in a while but was wondering if someone could help me by explaining maybe whats going on? I have new lab results. Also back story, last month found out I have hashimotos due to my TGAB being over 900. Ihave changed my diet to AIP so this could he possibly be influencing
JennaShi
in
Thyroid UK
6 years ago
pains in hands and generally everywhere!
I have been diagnosed with pernicious anaemia, had loading doses then next jab 10 weeks later instead of 12 due to pains, doc did say could possibly have fibromyalgia too - think that's her explanation for these pains, been taking two co-codamol most days, today hurt lots including hands and lower right
I have been diagnosed with pernicious anaemia, had loading doses then next jab 10 weeks later instead of 12 due to pains, doc did say could possibly have fibromyalgia too - think that's her explanation for these pains, been taking two co-codamol most days, today hurt lots including hands and lower right
Trace-67
in
Pernicious Anaemia Society
6 years ago
How long for iron to replenish ferritin levels?
Diagnosed iron deficient in 2011 with iron anaemia and this was when I started ferrous fumarate (3x a day), please advise. Only taking 1 ferrous fumarate now. All results below. Nov 2011 Ferritin 27 (30 - 400) abnormal pls contact patient Jan 2012 Ferritin 49 (30 - 400) normal no action Aug 2013 Ferritin
Diagnosed iron deficient in 2011 with iron anaemia and this was when I started ferrous fumarate (3x a day), please advise. Only taking 1 ferrous fumarate now. All results below. Nov 2011 Ferritin 27 (30 - 400) abnormal pls contact patient Jan 2012 Ferritin 49 (30 - 400) normal no action Aug 2013 Ferritin
WestonJ
in
Thyroid UK
6 years ago
Timing of tests - Iron, B12 and Folate
Hi I've bought this test from Medichecks. Does it matter what time of the day I do the blood test? And should it be a fasting test? Thank-you
Hi I've bought this test from Medichecks. Does it matter what time of the day I do the blood test? And should it be a fasting test? Thank-you
mb008
in
Thyroid UK
6 years ago
Long term pain killers for Fibromyalgia is to be only Paracetamol what a joke.
Hi ever body i have 'nt been on here for a while been so fed up with life. It is so hard to get to see a doctor where i live you have to go through a triage now and if your lucky you get a call back from the doctor otherwise its from the nurse or receptionist. They don't seem at all interested in how
Hi ever body i have 'nt been on here for a while been so fed up with life. It is so hard to get to see a doctor where i live you have to go through a triage now and if your lucky you get a call back from the doctor otherwise its from the nurse or receptionist. They don't seem at all interested in how
tasha2
in
Fibromyalgia Action UK
6 years ago
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